Find Brain Disorders Nonprofits and Charities

  deedleb wrote:

At the hand of a doctor's care and oversight while I was in back surgery the blood supply to my brain was cut off for 8 hours, a clot was created which my body threw two days late on. Hence a stroke, a brain injury. I literally had to start from the begining... more »

  support wrote:

It is amazing to see how this organization has grown and all we have accomplished. I am proud to serve on the Board with such wonderful dedicated volunteers and to be the president & founder of Hydro Angels over America. Please feel free to tell us how... more »

  Team Hope wrote:

This is why our family volunteers as WALK Chairs for the WNY Hydrocephalus Association WALK. Joining other families with the same goal...to find a cure and raise Hydrocephalus Awareness. Our family and the Hydrocephalus Association supports Baby HOPE's... more »

  mddsfoundation wrote:

This Foundation uses 96% of donations for to meet its goals of funding research and educational efforts to find a cause and a cure for Mal de Debarquement Syndrome. more »

  Marksz wrote:

I started the California Brain Tumor Association in 2008. more »

  Edward C. wrote:

Both, "Sofies Journey Inc." and "Epilepsy Awareness Day at Disneyland" are responsible for uniting the "Epilepsy Community" together and helping us understand we are not alone fighting our battles with "Epilepsy". I have attended this wonderful event... more »

  Stacy Benton S. wrote:

PMG Awarenesss organization has been amazing for our family. We have been able to connect with other families around the world that have someone with PMG! We also got to attend our first PMG conference this last July in Colorado. We talked with lots of... more »

  BrileyMitchell wrote:

My wife suffered a life changing stroke in June of 2005 that left her with a debilitating affliction known as aphasia, the loss of speech. From the first day that we learned of this problem we were told about the Aphasia Center here in Midland, Texas,... more »

  samanthajg824 wrote:

For the past few years, I have been volunteering at the Epilepsy Foundation of Greater Chicago. As a person with epilepsy, I find being at the foundation to be extremely comforting. Everyone here is so genuinely kind and caring, and ready and willing... more »

  Shanda K. wrote:

You don't ever expect to hear the words "YOUR DAUGHTER HAS A MASS ON HER BRAIN." But I heard those exact words on October 31, 2007. Our daughter, Calla, was just 21 months old. Devastated doesn't even begin to describe how I felt. Not to mention scared... more »

  cholcobo3 wrote:

As a San Franciscan suffering from migraines all of my life, I jumped at the opportunity to participate in the Miles for Migraine race last July, 2012. Migraines are an underestimated and misunderstood condition, and I've always been frustrated by the... more »

  Rys Gamma wrote:

It was a few weeks after Christmas 20011 that my Grandson Ry was diagnosed with Hydranencephaly. My Daughter and Son in-law were told after Ry was airlifted to Denver Children's Hospital that they felt they needed to run a brain scan on Ry. The results... more »

  sdewitt2 wrote:

Awesome with Vets. Thank you for all of the support that you continue to give to the members of the uniformed services. more »

  friend12345 wrote:

This is a great organisation with lot of spirit to help the child with tumor. I have been part of there activities and they do things with heart. more »

  joyce schneider wrote:

The Long Island Alzheimer's Foundations programs are specifically created to make the participants experience enjoyable, while at the same time reinforces their physical and mental skills through excersie, dance, word games, art projects, computer games,... more »

  SPcurtiss wrote:

The National Aphasia Association is a direct link to communication advocacy. I volunteer for this association because it has all the right resources at all the right times. The web resources are fantastic. When people lose their communication, the... more »

  Danny's Parents wrote:

Danny came into this world on a rainy day in October. He was born 15 minutes after we arrived at the hospital and instantly brought joy to our entire family. At 6 weeks old, Danny was diagnosed with Pyloric Stenosis. Then at 2 months old, he was diagnosed... more »

  suzy13 wrote:

I saw these girls give an incredible motivational speech at our high schoolThey also talk us great techniques for writing . It really helped me because I have learning disabilities also more »

  Douglas Miller wrote:

I have regularly contributed to this organization for the past several years through the mail. Recently, I have been receiving calls from them, as evidenced on my caller ID. When I would pick up the telephone, no one would be there. Finally on 03/29/11... more »

  Catherine E.3 wrote:

Dr. English is the best. I am a migraine patient and donor. more »

  dbae1128 wrote:

Let’s all help to find a cure for all rare disorders . more »

  Mario R.1 wrote:

I have been going to camp twitch and shout since it opened! It is a place of love and independence for some many kids that feel like they are alone. As a camper Camp twitch and shout impacted me greatly and made me a happier and better person. Now as... more »

  Cathy_Z wrote:

Happy New Year. I was on my way to meet some friends for our annual party on 12/31/05. First I had to make a stop at the mall for my parents anniversary gift for the next day. I purchased the crock pot and came out and put it in the trunk of my car.... more »

  Kathleen L. wrote:

National Hydrocephalus Foundation is a non-profit organization devoted to helping people better cope with and understand both childhood hydrocephalus and adult onset hydrocephalus. The organization is based in Lakewood, CA and has board members all over... more »

  alanabaron wrote:

MCHS is a wonderful organization 100% committed to help all of those in need of their services. Their team is selfless, smart, motivated, and totally determined to make a huge change in the world of better Alzheimers care. more »

  Annie11 wrote:

Brain Injury Alliance of Colorado is an amazing organization that really stands for the work they do. Their community support, educational resources and their knowledgeable staff are first-class. more »

  RayNorshine wrote:

Without this organization, we wouldn’t have a lasting source of support and resources in our community for brain injury survivors/caregivers. Thanks for the great work you’re doing in Southwest Florida. more »

  Catherine Way wrote:

25 years ago, at the age of 56 my father suffered a massive stroke that left him paralyzed, unable to speak and unable to swallow. In one split second, our family was forever changed. My father could no longer work as a pharmacist and small business owner... more »

  david wrote:

My father goes here for group speech therapy sessions. He had a stroke and has trouble talking. It was the best thing he ever did. His talking has really improved and he became a lot more confident. The speech therapists are really great and know a lot... more »

  Jimmy Tragle wrote:

I've been raising funds for the PBTFUS for over ten years. I've been impressed with their organization since my first encounter. Their financial transparency is more than adequate and the cause is one of great importance. Through their efforts... more »

  ikePofAveZ wrote:

A chronic headache sufferer for decades, I am now headache free thanks to information provided by the NHF about contemporary treatment options. The Foundation’s commitment to end headache suffering by educating practitioners as well as patients... more »

  thisisus wrote:

Excellent charity helping fund epilepsy awareness and research more »

  garyzinsmeyer wrote:

Sudden damage to the brain is so devastating. My husband a renowned professor at CUNY Baruch suffered a major decline due to lewey body dementia. Suddenly he was unable to create lesson plans and no longer able to challenge his students in their efforts... more »

  gsimanek wrote:

The Brain Injury Association of Nebraska (BIA-NE) is a vital component to the state of Nebraska. They are serving many individuals and families that incur a brain injury ranging in all ages including the elderly population (e.g., falls, strokes, aneurysms);... more »

  pbuchanan4 wrote:

In my 4+ yrs of association with Brain Injury Services of SWVA, I have witnessed wonderful changes to those with brain injuries who are living fuller lives because of the services provided by this organization. No only do they provide free case management,... more »

  BPKELAHAN wrote:

In early 2008, my sister Lee, a vibrant, healthy mother of two adolescents and talented elementary school teacher was showing early symptoms of aphasia, struggling to get the words out of her mouth that were in her head. Of course, at that time, we had... more »

  elizabeth32 wrote:

I have donated thousands of dollars to this organization and i was planning to hold a fundraiser for it in conjunction with my 50th birthday in 2010 at no expense to the organization but the executive director/founder became disgruntled when I asked about... more »

  Carrie77 wrote:

PHF has always been there for us. They return calls or emails very quickly. One big organization which has been around many years asked for a donation. We were 3 hours from home and within miles of their main office and no one called us back for days.... more »

  livelearnhavefun wrote:

I brought my husband to SBI at the point that insurance stopped paying to rehabilitate him from a severe brain injury and stroke. I discovered there is no where else in the Bay Area to get the kind of rehab that SBI offers. They provided my husband... more »

  ThePhilanthropish wrote:

This is a great cause that helps so many children and families in need! Highly recommend! more »

  Josh wrote:

The service they provide is unmatched. Their hearts are big and their knowledge of brain injuries vast. They have helped me come so far and have never given up on me. I have a chance to make something of myself due to my own hard work and their guidance. more »

  Brinton C. wrote:

PATSA is a fantastic organization that has helped my family by providing education and support with living with Tourette Syndrome. They have also come to our school to help educate the staff and help us all to better understand TS. This has been incredibly... more »

  kristinesmeltzer wrote:

My husband was diagnosed with early onset Parkinson's disease at 67. His symptoms were shuffling of feet, slurred speech, low volume speech, degradation of handwriting, horrible driving skills, and his right arm is held at 45 degree angle. He was placed... more »

  Writer wrote:

Unlike many non-profit organizations, the Fox Valley Brain Tumor Coalition has no paid employees. All monies received from donations and fundraisers go entirely towards the treatment and care of those who need it most. Our overall mission is to be a... more »

  bigmomma69 wrote:

this place has gone down hill so badly they treat the clients like crud ~ to be nice~ in saying it. the 1 on 1s don't help the person in need the staff are always on their cellphones in the restrooms are all mess-up let just say ~~stuff~~ on the... more »

  kinder1 wrote:

This used to be a wonderful caring organization with excellent doctors and friendly supportive staff. All that changed last year when they got a new president. All the doctors have left, the new doctor is very unpleasant and uncaring. They used to... more »

  Cars 4 Causes wrote:

We are proud to support ALS Service Organization through our Cars 4 Causes Vehicle Donation Program. The funds generated through this program go far to help them to provide meals, rides, shopping, chores, installation of adaptive equipment and home... more »

  Mike164 wrote:

This is a superior NP. Feel confident when you give. Often your donation it matched by the major donor. This groups creates impactful fundraising, by incorporating compelling events and including people to form comradely and interest, the Parkinson Alliance... more »

  Graziella_C wrote:

Our granddaughter Adah is a beautiful and sweet 7 years old girl. She was diagnosed with Rett Syndrome when she was almost 3 yrs old. She is very emotional, she communicates with the toby or IPad, she has limited hands use, she walks but her balance... more »

  Jackson2 wrote:

17 years ago I sustained a head injury from an accident. When released from a trauma center they never advised me I had a traumatic brain injury. I looked ok, I sounded ok...but I was not. While you couldn't "see" my injury it caused cognitive,... more »

  gliomagirl3 wrote:

Fantastic organization! All-volunteer organization with a renown scientific advisory. The Childhood Brain Tumor Foundation offers the best materials for families. The Ombudsmen Program they offer provides excellent advice. They understand what families... more »

  Jonny Imerman CLOZTALK ImermanAngels wrote:

GREAT mission, GREAT team! the CLOZTALK team is honored to call this org a partner & promote its good work! CLOZTALK team >> Jonny Imerman, co-founder more »

  Professional-Care wrote:

This organization ceased to exist in 2003. Since it no longer exists, I would like to suggest it be removed from your site. Thank you for your consideration. The senior service organizations involved with this non-profit are now served by various other... more »

  Carolyn_P wrote:

The Lisa Colagrossi Foundation is a private funder of brain aneurysm programs focused in the areas of awareness, education, research and support throughout the United States. Her story inspired me to do more regarding bringing awareness regarding this... more »

  Atlstan wrote:

This foundation provides much needed funding for new science that is not yet proven enough to gain funding from the NIH or other such sources. To date more that $2,000,000 has been granted to the research that the medical review board, which is made... more »

  Michael230 wrote:

Just wanted to share why I am proud to be a board member of Miles For Hope. My wife, Christine A. Swingle contracted a glioblastoma multiforma which was diagnosed on March 5th, 2012. She lived 87 days and went to her reward on May 30th, 2012. She served... more »

  ProjectFND wrote:

FNDHope's website is a much-needed resource for FND patients, carers and doctors. They also provide a brilliant support group which is available to all those who suffer from FND, or care for someone who does. They have used research and input from leading... more »

  rohrrman wrote:

https://www.flannerbuchanan.com/obituaries/kaitlyn-diane-isbell she w me 1/1/08-4/1/10, until she not mess around 4 months. My parent say I should go to the other side of the country instead of just going to a counselor to get her to maybe get... more »

  aidensmother wrote:

When my son Aiden was diagnosed with ATRT, a rare pediatric brain tumor there was VERY little information available through hospitals, books or the web. Children's Brain Tumor Research Foundation connected me with other parents of children diagnosed with... more »

  jlynnleonard wrote:

My daughter was diagnosed with FOXG1 in 2013. Since finding the International FOXG1 Foundation I've been able to learn more about FOXG1, how to help my daughter with her daily living, and meet clinicians and researchers around the world. I've been fortunate... more »

  Erica_G wrote:

How a Brain Tumor Changed My Lifewww.braintumor.orgIn 2010 my world was turned upside down when I was diagnosed with a nearly fist sized meningioma brain tumor. For months, I experienced strange aversions to smells, and had bizarre out of... more »

  David364 wrote:

This is a great organization helping individuals and families of individuals with Alzhiemers and Dementia. There Staff and Board are awesome individuals who really care. more »

  Debbie K wrote:

I have had a great experience with this organization! They are positive and wonderfully respectful of every caller or visitor who comes through the door. They have a great 24/7 Helpline if someone needs to call with questions about caring for their... more »

  flossie wrote:

More than 95 cents go toward finding a cure for Parkinson's disease which we desperately need. It is very important to me that the maximum amount of my donation goes to research. I am extremely impressed by the quality of this organization's contributions... more »

Provide assistance to those stricken with pediatric brain tumors more »

Help prevent brain injuries more »

Visions autism center was created by parents of a child on the autism spectrum along with professionals wanting to make a difference... more »

Awareness, Research and Assistance 1) Promote awareness of moyamoya disease by working with healthcare professionals and patient... more »

The epilepsy foundation northwest mission is to lead the fight to overcome the challenges of living with epilepsy and to accelerate... more »

To provide research, education and care for patients and families with neurological disorders. more »

The SPF is the only organization in the Americas dedicated to these disorders. Its primary focus is to raise funds for research.... more »

Medical research. more »

Inform and support people affected by traumatic brain injury. Prevent brain injury through public education and legislative action.... more »

Support of families with severely disabled children. more »

To provide relief through education, information, and hope to people and their families suffering from brain cancer. more »

Adler aphasia center,located in maywood, with locations throughout new jersey, is an innovative post-rehabilitative therapeutic... more »

THE FOUNDATION SERVES AS AN INFORMATION SOURCE FOR HAMILTON COUNTY, TN AND SURROUNDING COUNTIES IN TENNESSEE AND GEORGIA. more »

Assist people with epilepsy and to educate the public about epilepsy. more »

The mission of Shared Journeys Brain Injury Foundation is to empower persons with acquired brain injury the hope and support needed... more »

Help special needs children more »

Hoops for life of southeast missouri is an organization specifically desined to promote awareness and raise funding for pediatric... more »

Through participation in extreme endurance events, The Endurance Trust helps to bring awareness children suffering from PLGA -... more »

To help find a cure for diffuse intrinsic pontine gliomas and related pediatric tumors. more »

To improve the quality of life for survivors of traumatic brain injury and for their families. more »

To provide the resources, information, and support necessary for people with brain injury or other neurological conditions the... more »

Hope For A Cure Foundation for Parkinson's Research was established to increase awareness and raise funds for Parkinson?s disease.... more »

Keep memory alive supports the mission of the cleveland clinic lou ruvo center for brain health which provides treatment, research,... more »

To benefit children with brain injuries & their families more »

Providing services and supports to people with disabilities and older adults living at home in their community. more »

Austin Speech Labs’ mission is to support stroke survivors and their loved ones in rebuilding their lives by providing intensive,... more »

The foundation's mission is to provide a continuum of comprehensive service to multiple sclerosis patients, their families and,... more »

To assist persons with motor disabilities that severely impair communication capability. It will assist these individuals by providing... more »

To provide educational programs, scientific updates and a platform for communication for professionals involved in brain injuries.... more »

Chronic migraine awareness inc (cma) will raise awareness about chronic migraines and their effects on those who suffer from them... more »

Public charity existing to educate, more »

Desires to exist as an internet resource tool for those seeking information about aphasia more »

The mission of the minnesota brain injury alliance is to raise awareness and enhance the quality of life for all people affected... more »

To advance mental health in greater indianapolis through education, advocacy and intervention. more »

The brain institute of louisiana is a private, non-profit research institute with a primary focus on enhancing brain science in... more »

The Brain Injury Alliance of New Jersey is dedicated to providing education, outreach, prevention, advacacy and support services... more »

The bridge line is a charlottesville based organization dedicated to the support of adults with brain injuries, assisting them... more »

Provide support and information to individuals diagnosed with acoustic neuroma. more »

Fund education and research into hyperbaric oxygen therapy for the treatment of children living with brain damage. more »

Founded in 1983, the Alzheimer's Association, Southeastern Wisconsin Chapter is part of the National Alzheimer's Association chapter... more »

The brain tumor network (btn) is dedicated to providing compassionate, personalized services to brain tumor patients and their... more »

We started in 1996 as members of an AOL message board, and then we began to meet in a chat room once per month. We then began... more »

Our mission is to eliminate alzheimer's disease through the advancement of research; to provide and enhance care and support for... more »