My daughter was diagnosed with FOXG1 in 2013. Since finding the International FOXG1 Foundation I've been able to learn more about FOXG1, how to help my daughter with her daily living, and meet clinicians and researchers around the world. I've been fortunate to meet other families and spend time with them, creating a bond that can only be established with others that understand our life. Without the International FOXG1 Foundation's dedication to families and research, our family would be lost in a sea of the unknown. I look forward to continuing the work the founding Board Members started in 2012.
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- EIN 46-1332092
- info@foxg1.org
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- TX USA
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Nonprofit Overview
Causes: Birth Defects & Genetic Diseases, Brain Disorders, Epilepsy, Health, Specifically Named Diseases
Mission: The International FOXG1 Foundation's mission is to raise awareness and educate others about this rare genetic condition, to facilitate relationships within the FOXG1 community, and to raise funds to directly benefit families impacted directly by FOXG1. Support - Connect - Advocate - Educate
Programs: Established in 2012, the International FOXG1 Foundation is the first Foundation dedicated to FOXG1 Syndrome. Our goal is raise awareness of and educate about FOXG1 Syndrome, while creating community relationships and raising funds to benefit families.