For the families and children who are fighting Brain Cancer you can't beat this organization! Resources for financial help, gatherings of the families that keep us all bonded with special event activities, information and comfort for any situation,and staff that has always been there when we needed someone to listen. We couldn't have made it this far with out you! Thank you! \
Olivia diagnosed with two brain tumors at age 4.5 (2008), grew a new one in 2012 and a strong survivor!
In July of 2010 my daughter was diagnosed with a brain tumor. We were completely lost! At this point our lives were changing so quickly! Within three months I was no longer able to work, my daughter needed me to be with her. After three years we continue to fight! Our fight would not be possible without the Brain Tumor Foundation for Children! There are times that we feel like we have the weight of the world on our shoulders trying to fight with our daughter, but, one thing we have never had to worry about it loosing our home or having no electricity or gas money to make it to our 200 mile car trips to the doctors that can help our daughter. But, most important are the days that we just needed to have someone to talk to and those are the days that you can call the foundation and they know you by name and your child and your situation. It is an organization that we have been so very blessed to have! I wish that I had the words to express our gratitude!!!
My family would be very lost if it weren't for this foundation. They went over and beyond anyone else could have to help my family and I. My daughter loved receiving mail that was very enthusiastic and kept us going.
The Brain Tumor Foundation for Children is a small group with a huge heart. I feel that the compassion this group has for the children and their families fighting brain cancer is unmatched. One of their main objectives is to provide emergency financial assistance to familes to help them during a very difficult time. They also provide information, networking, and social events for the children and families. J. Smith Lanier & Co. has been a fundraising partner for BTFC for almost 10 years. Working with the foundation has become part of our corporate culture.
This foundation is very proactive in reaching out to families. Their presence is felt in the hospital and brain tumor clinics here in Atlanta. They work with other organizations to bring together meaningful resources to families. They are such a blessing to my son. He has had his brain tumor since birth. He has endured two surgeries. Because of the surgeries good brain tissue was sacrificed to fight this tumor. After all the pain and disappointments, It's such a joy to have an organization that loves on our children and supports the parents. The Brain Tumor Foundation for Children in their excellent way helps to quiet the hurt of fighting these tumors for our children.
You may have seen the documentary on Dr. Stanislaw Burzynski who has great success with children with brain tumors. He practices out of Houston, Texas. His anti neoplastons are amazing medicine. They have a much better success rate than traditional radiation with virtually no side effects.
My daughter was diagnosed with a brain tumor at 19 y/o on 29 Jul 12. They do not know how long she's had it. She had two surgeries to remove the tumor and she is currently going through radiation therapy then on to chemotherapy. She has an 11 month old son. Through my social worker the foundation has provided us with $350 in gas cards as we have had to travel back and forth at least once every two weeks for two hours for her doctor appts. Without the foundation we would be hurting as I nor my daughter are currently working; since I have exhausted all of my leave from work being by her side. We also are struggling to get her disability approved so the foundation is truly a God sent organization. They are willing to help with bills, car repairs, etc. if you just ask. We are truly grateful and thankful for God and him providing donors with such caring hearts. I am sure other families are just as grateful.
This past year out daughter was diagnosed with a rare brain tumor. Immediately the foundation reached out to us offering support in a number of ways. It was assuring to know we were not alone in this battle. Our daughter is admist receiving treatment and the foundation has reached out to our family and older daughter.
December of 2007 i received a call while my child and i were at st jude.The lady i spoke to was so kind sweet and thoughtful was as if a family member had called to offer help.Was a great burden lifted the finacial support was just the begining , they would call and check on us regularley they even sent my other child a gift for the holidays .And when i lost my son they send a gift i keep it in a special place so thankful for all they have done an do each day may god bless the btfc and as long as i walk this earth you'll have my support thank you.
In July 2005 our neighborhood of Decatur, Georgia lost one of our beloved children to pediatric brain cancer. Ian was a bright, vigorous, athletic 15-year old with a passion for skateboarding. After his death, friends and neighbors came together to raise money for the devastated family through a neighborhood festival called SkaterAid. The money we raised that year meant a lot, but the real power of the event was the healing it brought to Ian's family and friends. This year we celebrated our 8th SkaterAid. We continue to donate every dollar to the Brain Tumor Foundation for Children, who uses these funds to pay bills for families struggling with this disease. The people at the BTFC are truly the most caring, wonderful people you could ever hope to meet. SkaterAid is an anuual event, but we are proud to play a part in the work the BTFC does every single day of the year.
Our son, Scott Davis, was diagnosed with a brain tumor at 13months of age. We were given very little hope. Scott is truly our miracle. He is now 32yrs. old and happily married. My late husband, Larry Davis, was one of the founding members of the BTFC. When Scott was diagnosed in 1981, there was no where to go and no one to talk to. The BTFC provided so much support. It enables you to talk to other parents who are walking in your shoes. We parents could share our stories and concerns for our children.They offer so many opportunities for these kids to get together and enjoy fun times together. All 3 of our children always looked forward to the Christmas party sponsored by the BTFC. The BTFC for children continues to be a wonderful outreach for parents and children who are suffering. It helps to know that you are not alone.
I got involved with The Brain Tumor Foundation for Children because they are our corporate charity. I stay involved because of the wonderful work they do and the families they support. They are a very high touch organization. They reach out and provide support to all of the children and families being treated by the hospitals with whom they are affiliated. While not every family needs financial assistance, the organization also provides information, education, and activities for the children and families.
My 9 year old daughter Zoe was diagnosed with Glioblastoma Multiforme (GBM) brain tumor and had to have immediate resection surgery at OU Children's Hospital in April 2009. According to protocol she would also need radiation and chemotherapy treatment so in order to be closer to family we decided to relocate and continue her care at Miami Children's Hospital, Florida. For over a year Zoe did very well but the tumor came back and she had to have a second surgery in October 2010. It was then, through the staff at MCH that we learned of BTFC. BTFC stepped in and helped us when we didn't even realize that we needed help! They assisted us in paying several bills and travel expenses, which was well needed since we lived 2 hours away from the hospital and had other children. Their help allowed my husband and I to focus on Zoe's recovery as this time she also needed occupational, physical and speech therapy. When we returned home from the hospital, our mail man delivered huge box to our doorstep. Inside we found all sorts of goodies for not only Zoe but enough to share with her siblings. We were all excited, I only wish you could have seen her dimple filled smile which lit up the room! Since then BTFC kept in touch with us through emails and cards. Sadly Zoe passed away on December 11, 2011 at age 12 due to a third occurrence. Again, BTFC was there to assist us with several of our living expenses and also Zoe's final expenses. This time we focused on our broken hearts and those of our other children. You see, when you no longer have to go back and forth to the hospital for check-ups and treatments, when you no longer have to make appointments and fill prescriptions, when doctors no longer call and your extended family goes home it intensifies the fact that your child is gone. Then one day when our world had stopped, I heard the doorbell ring and looked to see our mailman holding a small box. Inside was a beautiful angel that was sent to our family from BTFC. It made our day, as was a gentle reminder that someone still remembered us, that someone still cared and that there are many other families like ours still fighting for their kids battling brain cancer.
The Brain Tumor Foundation for Children have been there for use over the last 10 years and we are so thankful for this organization. My son, Blake Carpenter, was diagnosed in January of 2003 with a craniopharyngioma. He has been fighting this brain tumor and the side effects for the last 10 years. Sherry Samuels and Mary Moore along with other volunteers from BTFC have been emotional and financial support for us over the years. There have been times when we needed a hug, smile, listening ear, surprise, or help with gas throughout the years and they have always been here for our family. Also, the BTFC has provided just simple FAMILY FUN for us and so many other families and provided us with an opportunity to meet other families that are also living a roller coaster life. I am thankful for BTFC and so happy to be blessed to be a part of this heartfelt organization!
What a wonderful organization! We are so thankful for all the support from initial diagnosis to relapse and eventual death of our son. Mary Moore and her team mean so much to our family! Sincerely, Jacque Porter
The Brain Tumor Foundation for Children is a godsend for families of children with brain/spinal cord tumors. Our son was diagnosed at the age of 8 with a large brain tumor. Thankfully the resection surgery was very successful but he endured many post-surgery complications. The BTFC was very helpful in connecting us with other families who were in the same situation, as well as providing information and support to help us through the entire ordeal. I'm happy to report that my son is now 18 years old and is a freshman in college. Life is not without its challenges but the BTFC is still there to help us.
Evan Carswell, my son, was diagnosed at 15 with a rare aggressive brain cancer he died at 16, with his sweetheart Faith (diagnosed with a brain tumor). They were certainly not their disease however BTFC is definitely part of our families. Here’s partly why.
The financial burden of the disease is monumental for families. It is an easy choice between paying $400 for an electric bill and buying two doses of medicine. (or $30,000 for 60 shots) The medicine came first – Evan’s health came first – and our electricity was cut off. Thanks to BTFC’s wonderful Butterfly Fund, our utilities were restored – not once, but twice. And when I called to get donation envelops for the funeral they asked for Evan’s funeral expenses. It felt too much and I protested… but so grateful again for their donation….
Once the treatment starts you realize that in a few short weeks your child will not feel well. About one month into treatment, Evan gave us a ‘bucket list’ – the things he wanted to do in life. As I read it, I prayed that he didn’t see the disappointment and despair in my face as I realized there was no money for fun…no money for making great memories. Having BTFC pay a $30 water bill may seem insignificant to you, but for our family it provided a night at the movies…a night to make memories. BTFC enables families of children with brain cancer a few moments to devote making life somewhat ’normal’ during a period of time that may be the remainder of their life.
Research is vital and my son felt so strongly he donated his brain tissue and BTFC donates too! It is important to know its not that our son died, but that he lived and lived well - with laughter, love, courage, a little romance and faith….he lived his best. Cancer does not change these children…it reveals them.
We are forever grateful for the Brain Tumor Foundation for Children and those who support them! You would need a whole other nomination for the staff there… we are forever joined by my sons illness and death… Ed and I are proud to be their friend.. The staff are just incredible. I just don‘t see how they do so much.
Any words we could think of really mean nothing. We pray the Holy Spirit will translate those feelings we hold in our hearts … but are unable to verbally express “Evan’s Proud Mom and Dad” Jennifer and Ed Carswell
My son William died from a brain tumor at the age of 1. After his death, my husband, a close friend of the family and I reached out to BTFC to see if they wanted to start a walk/run in William's memory to raise money for a cure and to help others. BTFC said YES and we worked closely with them for several years to manage the race and help grow it. While we were involved in the race it was part of our healing process. It was great to do something positive with such a painful event and the folks at BTFC were wonderful to love us and help us through it. We have since moved to Florida and are not involved in the race - however, BTFC is still doing the race each year and it gets better and better every year. I praise God for the folks at BTFC and for all that they do. They are a gift to so many people...
My daughter (Tori) was diagnosed with a brain tumor in Dec. 2005 on her 13th birthday. She will turn 20 on Dec. 7, 2012. We have seen many families go thru this durning many BTFC events. When my daughter was diagnosed in 2005 there were 2 to 5 new patients a month diagnosed with brain tumors. Now there are so many more diagnosed due to the awareness of the symptoms given out to many pediatric doctors. The BTFC has helped us in so many ways from pay bills to having family events to go to with our daughter and share our story with other family going thru the same thing. We have helped with fundraiser and volunteer at BTFC events too. My daughter LOVES this foundation and will stay a volunteer the rest of her life.
My daughter was diagnosed with a brain tumor that was discovered to be medulloblastoma brain cancer at 11 months old. Being a single parent, I had to leave everything, including my other 4 children, to be with my baby and care for her at the hospital. BTFC came into our lives and offered caring, compassion, and support that you rarely find. It wasn't just financial. It was emotional. They weren't just there for my daughter. They were there for my other children as well. They know that cancer affects the entire family. They are concerned about "their" kids. They are special people who go above and beyond for complete strangers. I will forever be thankful for them. They shined a light in the midst of all our darkness. Their purpose and cause couldn't be more perfect!