Mission: Said organization is organized exclusively for charitable, educational and scientific purposes, including, for such purposes, the making of distributions to organizations that qualify as exempt organizations under section 501(c) (3) of the internal revenue code, or the corresponding section of any future federal tax code. Said corporation will adhere to the aforementioned purposes while providing education to the public about hydrocephalus and raising funds to support educational efforts and scientific research into potential cures and treatment options for those afflicted with hydrocephalus.
Target demographics: the Hydrocephalus community
Direct beneficiaries per year: Hydrocephalus Research by donating over $300,000 since 2009.
Geographic areas served: the United States
Programs: Educating the community by raising the level of awareness about this incurable brain condition. Provide support to the families, friends and children who are diagnosed with Hydrocephalus. Advocate on behalf of members of the the Hydrocephalus community and work with policy makers at the State and Federal level to raise awareness and pus for more research and support in the fight against Hydrocephalus.
I have been working with the PHF as a parent of a child with hydrocephalus and have always appreciated the transparency on where all the money is invested. No salaries are paid, no buildings leased; Al of the money goes toward the cost and they list the grants funded on the site. Although the Foundation has pediatric int eh title, the research funded can impact people of all ages. Always very quick in replying to question and have done a great job advocating for our community on capital hill.
PHF has always been there for us. They return calls or emails very quickly. One big organization which has been around many years asked for a donation. We were 3 hours from home and within miles of their main office and no one called us back for days. When they did they said they would mail me and envelope. They haven't really done much to help families or lend support. Another organization offered to send a stuffed bear but became hateful when I contacted PHF. PHF is there for everyone from infants to adults. I know that our daughter will have support even after she turns 18. PHF raises thousands of dollars per year which gets donated to research, helps with cost of materials for events and big event in DC each August. No office space or salaries. All volunteers!! If it weren't for the PHF there would be NO National Hydrocephalus Awareness Month in September. It was established in 2009 by the PHF! I am so proud to be a part of a truly amazing organization with amazing people
