This organization is a godsend for families, friends, and colleagues impacted by migraines. It’s grass roots and is growing exponentially thanks to unrivaled, compassionate care and programs . every dollar raised makes a huge difference in the lives of so many people who live with migraines.
My top charity pick. Too many of my friends as well as my self fight the pain and stigma of migraine. The MfM team is so well organized, offer great information, and activities. Knowing the money is being spent on the right things and stays local makes it a no brainer for me want to support them.
My life changed a year ago when the onset of chronic migraines started. I am blessed to have found this excellent organization. From finding an amazing support group to excellent educational programs, this organization empowered me to advocate for myself and others who suffer from this and other neurological diseases. Thank you for the work you do! It really makes a difference!
Finally a nonprofit that I can get behind! I've suffered from Migraines for most of my life and sometimes it feels like no one understands what you're going thru, but after just one day volunteering at their annual race in SF I'm hooked. So many resources and people that truly care about those of us that suffer from this affliction.
The volunteer experience was terrific. I am a semi-pro photographer and offered my services to help them take event photos and it was a blast. The staff was kind, accommodating, and extremely grateful for my time. I can't wait to volunteer again next year!
This is a non-profit that walks the talk. Here's why:
- Most of its management are volunteers. Those that are not, get compensation at middle income levels as opposed to many other similar non-profits who compensate their management at luxury lifestyle levels off of people donations and good intentions.
- They do not pepper their members or mailing list with endless request for donations and a lot of costly gimmics but market their requests in a respectful manner and utilize their services as tools to build loyality, interest, thus receive much of their donations on the basis of their members freely offering donations for the services they receive.
- They offer a variety of services at no charge with focus of help those with adversities in conjunction with their mission.
- They actully listen to their members needs and suggestions and tune their services to those needs.
- They are constantly offering training and support to their volunteer group facilitators on a regular basis to help insure that they are meeting the members needs, goals, the mission of the organization, and the needs of the group facilitators to properly do their job.
- Their focus of information and support is on the members needs, not the marketing of the products of their major business donors.
- They make an effort to stay constantly in touch with their members and volunteers to address their needs and make an effort to show their appreciation for their efforts and adversity management.
- Most of their management and volunteers have a deep understanding their mission as they personally have experiences with the focus of the organization themselves.
- Through the resources they provide, the organization strives to provide tools, information, experiences, and inspiration to its members to assist them in the management of their health adversities as well as provide a safe and comfortable environment to their members for such management.
- Their information to members and volunteers is based on validated information from reliable sources and delivered in a professional manner.
- Whenever the organization makes commitments they honor them as well as staying true to their mission.
I am a migraine sufferer and have been for 50 years. I have learned so much from Miles For Migraine through the emails I received and participating in the Migraine Summit migraine expert discussions. They do great work!
Miles for Migraine hosts weekly support groups and education events for people living with migraine. The support groups are a priceless part of my overall migraine treatment plan. Since I have found support with other people that suffer just like me, I do not feel so alone. Meeting with my "friends" weekly, has significantly helped my feelings of depression. Thank you Miles for Migraine!
I appreciate the education I have received from this organization. They advocate for government recognition and funding for research on this disease. Thanks for all your efforts!
Miles for Migraine has been such a huge advocacy, non profit, & educational community for migraine patients, families, & caregivers.
The virtual educationional events I've personally attended have been so informative and I always look forward to the next one.
#migrainewarrior
I have a very long battle with chronic migraines. My son has also been battling with migraines. I am so thankful for Miles for Migraines because it is a very educational and successful way to spread awareness about an invisible yet debilitating disease that affects so many. It's the perfect way for Lyssa, my migraine alert dog and I, along with my friends who are mainly runners to enjoy some time together while raising money, informing others about migraines, and letting people know what Miles for Migraines does. Thank you for what you do for us.
Miles for Migraine has brought me back to life. Having a devastating chronic disease impacts every facet of one’s being. Miles for Migraine has provided education, social events and most importantly support…they are my warrior tribe. I have learned an enormous amount about migraine disease and made life long friends. It’s comforting to know that there’s always someone there for me.
As a person living with migraine, Miles For Migraine has been an integral part of my education, growth, and development into an advocate for myself and others. It has helped me realize my life can be meaningful, despite the limitations migraine disease has placed on my body. I can honestly say that without Miles For Migraine, I would not be the empowered person that I am today.
I have been attending Miles for Migraine walk/run/relax events since 2014. For the first time, I met others who had chronic migraine like me - a priceless gift. I always wanted to be able to run a 5k and I did during a race in Philadelphia.
Over the years, this amazing non-profit has not only grown the number of walk/run/relax events both in-person and virtually, but has expanded into Patient Education Days, Support Groups, Youth events, Virtual Mindfulness series, and even a program that brings fellows and patients together in order to learn from each other. I have proudly been part of these events. I wholeheartedly believe in their mission and see it being carried out in various ways to meet patients where they are in their journey.
Miles for Migraine has given me opportunities and platforms to advocate for our stigmatized, invisible disease. It embodies the essence of a Great Non-Profit.
My son's neurologist team recommended the Miles for Migraines organization as a source of support and education for both patients and parents dealing with the stress of the disease. I joined a 6 week parent support group and it was incredibly helpful to speak with other parents who truly understood what I was going through. Not only was the group a much-needed emotional support, but the facilitators provided useful resources as well. The organization also runs a teen support group online, as well as providing webinars and other events suck as 5K runs/walks to raise both awareness for the disease and also funds for research. MFM has many ways to both support and advocate for the community. I have joined a new ongoing parent support group and have met some truly wonderful people. It helps me so much to be able to vent my feelings, ask questions, and feel heard. The webinars have been very helpful as well, providing educational resources and information about disability law, medical research, treatments, etc. I am so glad I connected with this organization and highly recommend it for anyone suffering from migraines and/or their caregivers.
So lucky to have their support!!
. Their weekly support group connects you to others who have migraines. We all can uplift everyone when we have bad days. There is so much sharing! It’s a fabulous organization!! Katie Moran and Kelly Armstrong are amazing!! Five stars!!
When I started my migraine journey, I felt alone. I felt as though I was the only one that experienced the pain I had with migraine. I am chronic and not many people understand what that meant because people cannot see migraine, it is an invisible disease. When I connected with Miles for Migraine; I found that there were so many others just like me. From there I learned how to discuss my disease with others, how to advocate for myself and others. I now work, part-time at Miles for Migraine, oversee the support groups and our volunteers. I have found “my tribe”. I have never felt more supported in my disease. I still volunteer for Miles for Migraine whenever I can as well. I will go above and beyond for them because they go above and beyond for me!
My one piece of advice for anyone struggling with feeling isolated or misunderstood with migraine: join one Miles For Migraine support group. This seemingly inconsequential decision I made one night led me down a path of invaluable education and steadfast emotional support. Through Miles For Migraine, I’ve gained a sense of peace and understanding about my diagnosis, a network of incredible, lifelong friends, a true sense of empowerment, and a staunch mission to continue to advocate for mysef and my community.
Miles for Migraine has been an excellent organization and community to be a part of. I have grained such valuable information from the events, and education day classes. I am so very grateful for my Monday support group. The group has been essential in my migraine journey. I have found a supportive community that I did not have in my life prior to discovering Miles for Migraine.
When I discovered Miles for Migraine, my life changed. I had been living in isolation with my disease for years. I went to my first race and realized that I wasn't alone. I went to an Education Day event and learned more in that one day than I did in all the years I had the disease. I became a volunteer for Miles for Migraine shortly after that. I will do whatever is needed in the organization. I became a facilitator for a Miles for migraine support group that became virtual last March. I made many friends in the Miles for Migraine community. It is so wonderful to watch new people get involved with for Migraine and see how their lives change from being isolated to having an entire community of people who understand what they are experiencing. It's priceless
Miles for Migraine’s events are so empowering for patients that I became very involved after I attended my first event. I highly recommend them to anyone with migraine, and their staff and volunteers do a wonderful job in helping people and spreading the word.
Miles for Migraine is a wonderful organization! I have participated in several of their events and I have always had an amazing time. The staff is fantastic and each event is designed so that people can get involved in many different ways. Get involved, you won’t regret it!
Miles for Migraine has taught me so much about the migraine disease. They have helped me learn how to cope with it and have provided a shoulder to lean on. I am so grateful for them everyday. I would never have made it as far as I have with migraine disease without them. They provide so many support opportunities for people suffering from migraine and the connections I have made will last me a life time.
Awesome events! I went to the Chicago run/walk event and it was so awesome to hear the speakers and to see so many advocates for migraine! Truly kind community that gives me so much hope!!
I discovered Miles For Migraine about a year ago when I did my first virtual 5k Run/Walk/Relax event in October 2020. At that time I had recently started running everyday and picking up my endurance level and really wanted to run a 5k. I started looking for 5k events and through a friend who is involved with Miles For Migraine I was able learn about this great non-profit organization. Unfortunately due to COVID-19 they were not having in person events so I did the Virtual option with a friend. With the power of social media virtual events are still very interactive. You are able to share your experience with people all over the country with Live streaming, videos and pictures. Come Summer 2021 I was very excited to find out that Miles For Migraine was going to be hosting in person events and one was coming to my hometown, Chicago. I signed up right away for the 5k run/2k walk event on June 19, 2021. I was also very excited to not only run my first in- person 5k but to volunteer and help with the event. I enjoyed meeting new people and learning more from people who live with migraine. I am supporter. Through conversations since being involved with Miles for Migraine I was able to learn that my dad and other people in my family have suffered in the past from migraine and being apart of this organization has helped me gain better knowledge of the disorder. I listened to speakers tell their stories and they offer many workshops and events for people who have migraine and people who live with someone who has migraine. It's very helpful for everyone . Raising awareness and gaining knowledge is so important and that is what Miles for Migraine helps people do. I look forward for many more events in my future and will always support and love people within this community.
-Karissa O.
Miles for Migraine is an amazing nonprofit with the unique mission of producing events to create real community for people living with migraine and headache disease. They have walk/run/relax events, education days, youth and parent programming, a mindfulness series, social events (like cooking classes) and an amazing advocacy training program called ACT Now. This organization understands that it can be hard for people with migraine and headache disorder to commit to events, but they do everything possible to be inclusive and provide options to meet people where they are at, while gentling encouraging them to grow their advocacy voices.
I am truly impressed with the executive director's knowledge, expertise, and passion working for Miles for Migraine. She is an incredibly hardworking person who understands how to connect such an important health issue while making her races fun for the public as well as informative and educational. She brings a positive energy to this nonprofit. I whole heartedly support this group and hope to see continued success for many years!
As a San Franciscan suffering from migraines all of my life, I jumped at the opportunity to participate in the Miles for Migraine race last July, 2012. Migraines are an underestimated and misunderstood condition, and I've always been frustrated by the lack of awareness both in the general public and in our legislature. This non-profit organization is filled with exceptional, energetic people who are working hard to change that, and the time I spent with Miles for Migraine was fun and rewarding. I look forward to working with my new friends again at the 2013 race on May 18th!