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Nonprofit Overview

Causes: Brain Disorders, Brain Disorders Research, Health, Neurology & Neuroscience

Mission: The organization's mission is focused on the development of treatments and cures for rett syndrome and related mecp2 disorders.

Programs: The organization provides funding to leading research institutions working on rett syndrome and related mecp2 disorders. Research is aimed at 1) reversing the underlying mecp2 genetic defect, 2) identifying compensatory mechanisms that might bypass the genetic defect and 3) identifying existing drugs,compounds and procedures to ameliorate rett symptoms. Grants are both paid and committed funds. 4) identify function of mecp2 protein.

the organization sponsors scientific workshops that bring the leading rett researchers together with elite scientists in synergistic fields to exchange data and set research direction.

Community Stories

1 Story from Volunteers, Donors & Supporters


General Member of the Public

Rating: 5

Our granddaughter Adah is a beautiful and sweet 7 years old girl. She was diagnosed with Rett Syndrome when she was almost 3 yrs old. She is very emotional, she communicates with the toby or IPad, she has limited hands use, she walks but her balance is not great...Sadly, Adah is much aware of her limitations and she often wishes to be like any other child that speaks, plays, runs and have a normal life.

Thus, family and friends. grant Adah's wish for a future without RETT by donating directly to the Rett Syndrome Research Trust in her name.

Review from #MyGivingStory