Find Diseases Of Specific Organs Nonprofits and Charities

  AccessiaHealth wrote:

PSI provides a kind, caring, and generous work environment which enables staff to provide for the thousands of chronically ill patients we financially assist. I consider the PSI staff as a second family and know each and every employee by name. In our... more »

  dberger1 wrote:

MISSION: Gift of Life facilitates bone marrow transplants for patients around the world by increasing the representation of donors of Jewish ethnic ancestry in the international registry. SERVICES: Recruitment Development Community recruitment campaigns... more »

  Writer wrote:

I'll be honest--I'm a little biased because I volunteer for Lyme Warrior--but this is an INCREDIBLE nonprofit that does such amazing work. Not only does LW do major things to spread awareness and raise money for Lyme disease, but LW also supports it's... more »

  Writer wrote:

I dealt with Kathy. She was so friendly, helpful and informative. She eased my mind and answered all my questions. Being that she has been in her on battle/journey with CKD, she knew what I was feeling and gave helpful hints and tips to conquer some of... more »

  Writer wrote:

Experienced and well organized management team, transparent, the team of UMR are committed to helping others. more »

  Fijiboy wrote:

This charity is purely volunteer based and I am so thrilled to have contributed to its cause of bringing healthcare to the poor in the South Pacific. The charity was quick to update its donors on how the contributions were used though a dedicated page... more »

  HenryN wrote:

The foundation provides very valuable information that can be used for finding a specialist or a practice that specializes in this particular area. Also the excerpts written by other patients is insightful. more »

  petha wrote:

They have a flourishing message board that has helped thousands of people. In addition they provide education to medical providers, patients, caregivers and the general public. They also develop educational programs for clinicians who treat viral hepatitis... more »

  sbayton wrote:

This organization has given parents a gift - breaking down the hard science of how concussions, sub-concussive trauma, and repetitive brain injuries can affect a child athletes brain development and lead to mental illness and suicide. For parents with... more »

  chasingbliss wrote:

The ICA is a wonderful organization dedicated to supporting IC patients and their friends & family. They are focused on educating and informing us about current research, news and advocacy through excellent publications such as the ICA Update and the... more »

  Keva D. wrote:

This foundation helps families who wouldn’t otherwise qualify for assistance but need it. Our system is broke and Remingtons Heart gives those of us who are trying to make all the ends meet while caring for a critically ill baby Hope. It’s hard... more »

  Sheila Bevins R. wrote:

I've been working with Zaggo and serving on the Board since May 2006. It has been an honor and a privilege to work with this team of brilliant individuals and stand behind a product that I believe is essential in helping anyone with a chronic or severe... more »

  cd-greatnonprofits wrote:

MDF has been instrumental in helping me and my family learn about this little-known, but extremely impactful condition. Additionally, just becoming aware of the extended communities of families and others living with this condition has helped me understand... more »

  Jimbo wrote:

I got Hepatitis C from tainted blood during a transfusion in Viet Nam in 1969. Upon being diagnosed with Hep C in 1996 I began attending a support group sponsered by the Hep C Connection. I soon realized that I was more suited to giving support than receiving... more »

  cmccomb wrote:

My daughter was diagnosed with type 1 diabetes when she was six years old. I often marvel at how well she has adapted, given that her life after diagnosis was filled with needles, insulin, and constant queries about how she felt and what she had eaten.... more »

  janscript wrote:

Shirley contacted me after learning about my experience with tissue donation and quickly became a dear friend. I was thrilled to hear about EMAT’s mission and jumped on board. It is so important to educate people about every aspect of organ, eye, and... more »

  Don S.3 wrote:

Sudden Cardiac Arrest (SCA) kills approximately 2000 students in America each year, usually during, or following strenuous activities. After the category of “Accidents,” “Heart Disease” is the second leading cause of death among persons under... more »

  elogan530 wrote:

The Endo Forward online community was a much appreciated resource to me for advice and support while I recovered from surgery to treat endometriosis. I love that they offer care baskets as a way to support women in our local community who are having surgery.... more »

  silf wrote:

Great people, great help. My friend needed a mammogram and they found places where she could get it for free. I checked out the skin cancer pix and thought I had skin cancer. They helped me understand what skin cancer is and how to get a local doctor. Wonderful... more »

  mgk360 wrote:

I love Bloom To Life. Bloom To LIfe not only saves children but by helping save a child, they actually save a family! more »

  Taylor13 wrote:

I'm writing this review from the perspective of a husband that saw the birth of this organization as my late wife, Jamie Diane Gibson Hartley, turned her dream into a reality: to help those struggling with her same disorder become more self-reliant like... more »

  shnkennedy wrote:

My husband died of pancreatic cancer in 2007. Since then I have tried to find a way to combat this horrible disease, so that no other family would have to go through what we have been through. This year I organized a walk to raise money for pancreatic... more »

  mellowswan wrote:

Mellowswan Foundation We are a international all volunteer, medical charitable non profit foundation. Our goal is to provide medical care for deformed orphans worldwide. Our volunteers work around the world researching clinics and doctors... more »

  camper wrote:

I cannot speak highly enough about my experience at The Hole in the Wall Gang Camp. As a child with a serious medical condition, "normal" is something you don't get to experience. But at camp, the fact that every kid has an illness makes it normal. The... more »

  VFB22 wrote:

I stumbled upon HFI's website and after a few phone calls made arrangements to volunteer my time. I was amazed that a small nonprofit would have such a big impact in the health arena. HFI operates a hepatitis hotline and the calls fielded and people... more »

  jennifer.d.pettit wrote:

I was diagnosed with Sjogren's at 15 (over a decade ago). Since that time, I have interacted with quite a few foundations, as a patient, health activist, and even professionally in my role as an auditor (my clients include not-for-profit organizations).... more »

  CFT2022 wrote:

The SRF is a well-run, efficient, and effective nonprofit organization to which I am proud to donate. I am confident my donations are getting us closer to a cure for scleroderma, because the SRF is the country's leading organization driving the science.... more »

  Mary wrote:

When our son was born with a collodian membrane covering his body, and the doctors in our major-city hospital had to run to the medical library to be able to diagnose him, FIRST came into our lives as a comforting and knowledgeable resource. This caring... more »

  lonecanyonrider wrote:

It was a lifesaver for me to find this forum. Valuable info was made available as well as an extensive support group. more »

  c.naffy wrote:

My husband and I donated to MO on 8/27/2023 to support their efforts in neglected tropical diseases. We researched multiple nonprofits working on ntds and found the work being done by MO and DWB to be the most compelling as it was a comprehensive approach... more »

  mzraik wrote:

As an almost full-time volunteer for the National Reye's Syndrome Foundation, I get to see the day-to-day impact their awareness and education programs provide, not only for the community, but for the USA and even on a global basis. The National Reye's... more »

  Melissa's F. wrote:

During 2014 I have hosted 2 t-shirt fundraisers for IFFGD so that fund would be donated for Gastroparesis Research. And I have 2 more fundraisers planned where a % of sales at my online store www.GPfight.com (where you can learn more about gastroparesis... more »

  kluck wrote:

I was diagnosed with breast cancer last year. The facilitated virtual support group is helpful to me. The facilitator creates a safe, friendly and warm environment within the group, giving people the space to share their stories and express their emotions.... more »

  kidneyhealth wrote:

In 2017 my husband was diagnosed with kidney failure and told he needed to consider going on the kidney transplant list. I knew I needed to learn as much as possible for the journey we were about to take. After searching the web, I landed... more »

  Inpiring by people who cares wrote:

I have personally met the President Of this Organization . She had a booth face painting and making glitter tattoos on children. I Had never heard of this disease before and learned a lot from the information Angela shared about this disease. I will... more »

  Teresa wrote:

I have been a volunteer with the Children's Skin Disease Foundation for the past four years. It has been a wonderful experience, seeing these very ill and disfigured children experience the freedom of playing and spending time with other children just... more »

  beckster011 wrote:

I joined in a private fb support group and have also completed my patient survey. This group has pros and cons. Pros : The entire purpose is to "find a cure." This is almost impossible as the rate genetic disease is within our DNA. It gives me hope they... more »

  danesterly wrote:

I met Suzanna (executive director) several years back and have since maintained involvement in Community Liver Alliance as a consultant, donor, and volunteer. It's truly a great organization that has grown and blossomed since I became involved. If you... more »

  horseman1948 wrote:

I learned about the charity while listening to Ed Randall 's Sunday show while I was in NY on WFAN New York radio. My PSA was elevated and I was scheduled for a prostate biopsy. I emailed Ed on a Saturday morning for information on prostate cancer.... more »

  Walk On Foundation Inc. wrote:

Pennsylvania Cystic Fibrosis Inc. is a great asset to the Central Pa area and beyond. While many organization provide funding solely to research and finding a cause of a certain disease a few go beyond and assist those dealing with the disease with... more »

  MichaelFeldstein wrote:

There is much misinformation and superstition regarding the permissibility of organ donation under Jewish law. The Halachic Organ Donor Society has been a very important educational resource for those seeking more information about the subject. Particularly... more »

NFB serves as a vehicle for collective action by the blind of the nation; functions as a mechanism through which the blind and... more »

THE SPECIFIC OBJECTIVES AND PURPOSE OF THIS CORPORATION THE TEXAS RENAL COALITION, SHALL BE: TO LEAD IN THE ADVANCEMENT OF EDUCATION,... more »

Patient care more »

A unique collaboration of patients, families, advocates, physicians and scientists, American Skin Association has evolved over... more »

Prenatal development more »

Celebrate hope foundation, inc. Was founded to further the mission of creating awareness about sturge-weber syndrome and raising... more »

Helping children with rare skin deases more »

To provide information and support for those with hypospadias & epispadias, family members, and the general public. more »

Our mission is to raise awareness of Sarcoma, a very rare and devastating cancer as well as to help fund for a cure. more »

To create an awareness and assist individuals with spinal cord injuries in dealing with everyday life. In creating a public awareness... more »

Raising funds for research: toward treating and curing achromatopsia: improving the lives of persons affected with the disease;... more »

Goldie's Fund is the only organization of it's kind in the country. Goldie's Fund fills the gap between when a patient has ostomy... more »

Maintenance contract more »

To be the definitive internet resource for PH-related information For Patients, Caregivers, and Medical Professionals Guiding... more »

To enhance the quality of life for individuals affected by visual and auditory impairments with educational and finacial support more »

NFB serves as a vehicle for collective action by the blind of the nation; functions as a mechanism through which the blind and... more »

The Foundation for Digestive Health and Nutrition (FDHN) is the foundation of the AGA. Incorporated in 2001, the Foundation is... more »

To improve the quality of healthcare more »

To raise awareness and funds for research, therapies, medication, clinical trials, and research that may potentially provide a... more »

Provides strength and support more »

NFB serves as a vehicle for collective action by the blind of the nation; functions as a mechanism through which the blind and... more »

The organization was established to promote the education about treatment and prevention of prostate cancer. more »

Form 990ez, part iii, primary exempt purpose--started in 1981 by a breast cancer survivor and fashion model sue miller, the day... more »

The general purposes of the center for viral hepatitis inc are: (1)to raise awareness of viral hepatitis b and c ("hepatitis")... more »

To provide for the needs of the blind more »

The south carolina ovarian cancer foundation (scocf) was created as an organization to support women diagnosed with ovarian cancer,... more »

Our mission is to provide high-level education to clinical care providers in hepatology, to educate patients and members of their... more »

NFB serves as a vehicle for collective action by the blind of the nation; functions as a mechanism through which the blind and... more »

Donations to existing programs and organizations, which have similar purposes in seeking a cure to and for advancing medical therapies,... more »

NFB serves as a vehicle for collective action by the blind of the nation; functions as a mechanism through which the blind and... more »

Oklahoma project woman is dedicated to providing access to breast health care that will facilitate the early diagnosis of breast... more »

To help eradicate Amblyopia/Lazyeye and eye cancer. Better Vision for Children Foundation (BVC), is committed to the implementation... more »

Camp Holiday Trails empowers, encourages and educates children with chronic illnesses, their families and healthcare professionals... more »

Our mission is to support and preserve the family units of those that are suddenly diagnosed with diabetes or epilepsy. To promote... more »

NFB serves as a vehicle for collective action by the blind of the nation; functions as a mechanism through which the blind and... more »

The purpose of the Transplant Support Organization is: promoting organ and tissue donation as an important social responsibility;... more »

Medical care & medical education in the pacific islands. more »

To subsidize the research and training efforts of dermatologic disorders through the treatment of patients with such disorders.... more »

To increase awareness of ovarian cancer and its silent symptoms. more »

Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis,... more »

Promote understanding, care and research to cure diabetes. more »

Support: To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician... more »

The organization is dedicated to making available to the general public, free of cost, screening tests for early detection for... more »

To increase public awareness and understanding about lung cancer, and to support and promote programs and technology for early... more »

THE PURPOSE OF THE SCLERODERMA FOUNDATION/SOUTHERN CALIFORNIA CHAPTER IS TO RAISE MONEY TO FUND RESEARCH TO FIND TREATMENTS AND... more »

To develop understanding and awareness of rett syndrome; to promote the general welfare of those with rett syndrome; to assist... more »

Facilitate the treatment, cure of viral hapatitis, cancer more »

Foregen was created in 2010 thanks to donor funds. Foregen operates in the united states and europe. Its head office is in rome,... more »

To provide access to diabetes self-management education and support from certified diabetes educators. more »

The Hemophilia Society of Colorado advocates for persons living with hemophilia and other coagulation disorders and their related... more »

The mission of It Takes Guts is to support children and their families as they navigate the complex world of pediatric chronic... more »

NFB serves as a vehicle for collective action by the blind of the nation; functions as a mechanism through which the blind and... more »

To assist couples with fertility and adoption issues through education more »

The national psoriasis foundation provides people with psoriasis and psoriatic arthritis the services they need to best manage... more »

Raise funds, coordinate resources and develop support programs to aid the needy liver transplant community. more »

Diabetes research connection's mission is to connect donors with early-career scientists enabling them to perform peer-reviewed,... more »

To engage actively and continuously in medical research and to provide medical education and medical research auxiliary to the... more »

This orgainzation is to educate and refer people to resources about liver diseases more »

To improve the health and quality of life of women with and at risk of developing diabetes. more »

NFB serves as a vehicle for collective action by the blind of the nation; functions as a mechanism through which the blind and... more »

The Hepatitis C Mentor and Support Group’s mission is to empower individuals and communities to become their own agents of change.... more »