Find Diseases Of Specific Organs Nonprofits and Charities

  dberger1 wrote:

MISSION: Gift of Life facilitates bone marrow transplants for patients around the world by increasing the representation of donors of Jewish ethnic ancestry in the international registry. SERVICES: Recruitment Development Community recruitment campaigns... more »

  Eric O. wrote:

I am a current student in the braille literacy program. I recently enrolled after losing the last of my sight. So far, the school administration and professors have been of invaluable help in getting me started toward a life of increased independence.... more »

  Writer wrote:

I'll be honest--I'm a little biased because I volunteer for Lyme Warrior--but this is an INCREDIBLE nonprofit that does such amazing work. Not only does LW do major things to spread awareness and raise money for Lyme disease, but LW also supports it's... more »

  petha wrote:

They have a flourishing message board that has helped thousands of people. In addition they provide education to medical providers, patients, caregivers and the general public. They also develop educational programs for clinicians who treat viral hepatitis... more »

  chasingbliss wrote:

The ICA is a wonderful organization dedicated to supporting IC patients and their friends & family. They are focused on educating and informing us about current research, news and advocacy through excellent publications such as the ICA Update and the... more »

  Keva D. wrote:

This foundation helps families who wouldn’t otherwise qualify for assistance but need it. Our system is broke and Remingtons Heart gives those of us who are trying to make all the ends meet while caring for a critically ill baby Hope. It’s hard... more »

  Sheila Bevins R. wrote:

I've been working with Zaggo and serving on the Board since May 2006. It has been an honor and a privilege to work with this team of brilliant individuals and stand behind a product that I believe is essential in helping anyone with a chronic or severe... more »

  Jimbo wrote:

I got Hepatitis C from tainted blood during a transfusion in Viet Nam in 1969. Upon being diagnosed with Hep C in 1996 I began attending a support group sponsered by the Hep C Connection. I soon realized that I was more suited to giving support than receiving... more »

  cmccomb wrote:

My daughter was diagnosed with type 1 diabetes when she was six years old. I often marvel at how well she has adapted, given that her life after diagnosis was filled with needles, insulin, and constant queries about how she felt and what she had eaten.... more »

  Don S.3 wrote:

Sudden Cardiac Arrest (SCA) kills approximately 2000 students in America each year, usually during, or following strenuous activities. After the category of “Accidents,” “Heart Disease” is the second leading cause of death among persons under... more »

  mellowswan wrote:

Mellowswan Foundation We are a international all volunteer, medical charitable non profit foundation. Our goal is to provide medical care for deformed orphans worldwide. Our volunteers work around the world researching clinics and doctors... more »

  Taylor13 wrote:

I'm writing this review from the perspective of a husband that saw the birth of this organization as my late wife, Jamie Diane Gibson Hartley, turned her dream into a reality: to help those struggling with her same disorder become more self-reliant like... more »

  camper wrote:

I cannot speak highly enough about my experience at The Hole in the Wall Gang Camp. As a child with a serious medical condition, "normal" is something you don't get to experience. But at camp, the fact that every kid has an illness makes it normal. The... more »

  shnkennedy wrote:

My husband died of pancreatic cancer in 2007. Since then I have tried to find a way to combat this horrible disease, so that no other family would have to go through what we have been through. This year I organized a walk to raise money for pancreatic... more »

  Mary wrote:

When our son was born with a collodian membrane covering his body, and the doctors in our major-city hospital had to run to the medical library to be able to diagnose him, FIRST came into our lives as a comforting and knowledgeable resource. This caring... more »

  jennifer.d.pettit wrote:

I was diagnosed with Sjogren's at 15 (over a decade ago). Since that time, I have interacted with quite a few foundations, as a patient, health activist, and even professionally in my role as an auditor (my clients include not-for-profit organizations).... more »

  VFB22 wrote:

I stumbled upon HFI's website and after a few phone calls made arrangements to volunteer my time. I was amazed that a small nonprofit would have such a big impact in the health arena. HFI operates a hepatitis hotline and the calls fielded and people... more »

  lonecanyonrider wrote:

It was a lifesaver for me to find this forum. Valuable info was made available as well as an extensive support group. more »

  mzraik wrote:

As an almost full-time volunteer for the National Reye's Syndrome Foundation, I get to see the day-to-day impact their awareness and education programs provide, not only for the community, but for the USA and even on a global basis. The National Reye's... more »

  Melissa's F. wrote:

During 2014 I have hosted 2 t-shirt fundraisers for IFFGD so that fund would be donated for Gastroparesis Research. And I have 2 more fundraisers planned where a % of sales at my online store www.GPfight.com (where you can learn more about gastroparesis... more »

  beckster011 wrote:

I joined in a private fb support group and have also completed my patient survey. This group has pros and cons. Pros : The entire purpose is to "find a cure." This is almost impossible as the rate genetic disease is within our DNA. It gives me hope they... more »

  Larry Holmquist wrote:

Wow--those are some hefty salaries! I have given to this charity before, but have not done so in a few years. I was going to give again, but thought I would take a quick look at Charity Navigator before donating. Don't think I will donate now--too many... more »

  Inpiring by people who cares wrote:

I have personally met the President Of this Organization . She had a booth face painting and making glitter tattoos on children. I Had never heard of this disease before and learned a lot from the information Angela shared about this disease. I will... more »

  Teresa wrote:

I have been a volunteer with the Children's Skin Disease Foundation for the past four years. It has been a wonderful experience, seeing these very ill and disfigured children experience the freedom of playing and spending time with other children just... more »

  Walk On Foundation Inc. wrote:

Pennsylvania Cystic Fibrosis Inc. is a great asset to the Central Pa area and beyond. While many organization provide funding solely to research and finding a cause of a certain disease a few go beyond and assist those dealing with the disease with... more »