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National Psoriasis Foundation

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Nonprofit Overview

Causes: Diseases of Specific Organs, Diseases of Specific Organs Research, Health, Health Support

Mission: The national psoriasis foundation provides people with psoriasis and psoriatic arthritis the services they need to best manage their condition, while promoting research to find a cure.

Programs: Research and professional educationdirectly supporting 23 research projects and emerging researchers through research grants. Awarded 9 medical research fellowships designed to increase the number of physician researchers investigating psoriatic diseases, leading to more discoveries, better treatments and ultimately, a cure. More than 17 million has been committed to research since our inception. Hosted professional education for medical professionals, dermatology residents and rheumatology fellows to learn about the latest advancements in treatments and the management of psoriatic disease. Hosted 19 early career researchers at a scientific symposium. Promoted patient involvement in research studies and clinical trials. Continue to maintain the national psoriasis victor henschel biobank, aiding in the search for specific genes that cause psoriasis and psoriatic arthritis. Host an on-line community called citizen pscientist to connect patients with research and established infrastructure for a nationwide research ambassadors program. Published the journal of psoriasis and psoriatic arthritis, a peer-reviewed medical journal to provide rheumatologists, dermatologists and other medical professionals with the latest research and treatment information. Lead discussions with health policy and regulatory groups to improve health outcomes measures and remove barriers to care.

advocacythe foundation's advocacy priorities are focused on strategies that promote federal research efforts and ensure individuals living with psoriatic diseases have fair and affordable access to needed treatments. Harnessing the collective efforts of tens of thousands of advocates, the psoriasis foundation worked through advocacy efforts at the state and federal level: to make insurance fair and affordable and help improve coverage for people with psoriatic disease, help set public health policy for psoriasis and psoriatic arthritis through the findings from data collection at the centers for disease control (cdc), worked to improve the safety and affordability of psoriasis and psoriatic arthritis treatments, and increase federal funding for psoriasis and psoriatic arthritis research in order to find better treatments and a cure.

education, outreach and patient servicespublished information on living well with psoriatic diseases, as well as the latest science and treatment updates for 216,000 readers of psoriasis advance magazine and other print publications. Assisted 5,136 patients through the patient navigation center which offers free guidance on living a healthy life with psoriasis and psoriatic arthritis by working one on one with patients to find specialists, access new medicines and connections to others who are living with psoriatic disease. Provided comprehensive resources at www. Psoriasis. Org and other sites for 3. 6 million unique visitors. Sent educational e-newsletters to more than 150,000 subscribers. Broadcasted 12 patient educational webinars with a total of 1808 live attendees and more than 12,000 enduring views. Provided personal peer support to 152 new participants in the psoriasis one to one program. Hosted 15 more than skin deep and 3 be joint smart educational events attracting more than 600 participants. Engaged 4020 volunteers through non-fundraising programs and events.

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