I’m very disappointed that they discontinued my account without any notice. I have a rare condition called HAE. They gave me a hard time when I used the PEX card for my health relating to HAE. I don’t think I will ever continue their business.
I have HAE and this company has helped greatly with family expenses that otherwise would be a great financial burden. Accensia Health is a godsend. Their services are greatly needed and I hope they are able to continue their lifesaving services.
ADEQUATELY expressing how thankful I feel for the assistance received through Accessia Health is complicated. Premium assistance has eliminated the burden of the cost of coverage needed for my care. This offset frees up funds needed for medications and the so many other expenses involved. Getting the correct diagnoses and coordinating care for rare conditions has required travelling frequently and is a distance from my home. I am very, very thankful for the people who care and want to help those who have difficult health circumstances. GRATITUDE is what I feel!!!
My husband suffers from Pulmonary Fibrosis. Expenses for Durable Medical Equipment and Medical Supplies are costly, especially Oxygen Supplies and Respiratory Equipment. We are on a fixed income and sometimes struggle to pay for multiple medical supplies. I was so pleased to find that Accessia Health will help with these expenses. They also provide assistance for travel expenses related to medical treatment. Another thoughtful and useful benefit.
You receive an Accessia Health Payment Assistance Card (VISA) you can use to pay for Medical and Travel Expenditures. This is so convenient and efficient. I am truly blessed to have Accessia Health assisting me to care for my husband's medical needs. Thank you so much.
Accessia Health has been a God send. I honestly do not know what I would do without their assistance. My income due to health and other reasons has dropped dramatically and they have given me some peace of mind. They are always so kind on the phone if I have any issues. Thanks for being there Accessia Health.
Accessia has been a pivotal part of ensuring our two children with chronic health issues get access to the best health insurance possible. The generous gifts help keep our costs managable and our kids healthy.
My close friends and coworkers never wanted to understand HAE. My job wanted to make it so uncomfortable to force me to quit because I needed to use FMLA. My in-laws complained I was in "bed all day" or "didn't work." Noone understands illnesses they can't see, ESPECIALLY if it is an illness rare in the US. They don't understand how expensive the meds are or why the FDA rules make it difficult for more meds to be available. They cannot SEE your pain so they don't even TRY to understand it. Accessia Health and the workers are support for people like me that struggle thru this fight. Many of us want to stay alive and be role models living a good life while we are diagnosed. The world as it is has made it difficult, but people that dedicate their careers to working at places like Accessia CHANGE LIVES and give us opportunities others don't care if we have access to. This nonprofit is always caring, reliable, and provides resources for so many.
What an AMAZING Organization Accesia Health is!
I really don’t know what I would do without them.
I have an extremely rare disease that has left me on life support, and I’m also wheelchair bound for many years now.
Accessia Health has helped me so much by covering equipment and other supplies that I need that Medicaid will not cover so that I can live a more comfortable and enjoyable life.
Thank you from the bottom of my heart. You are truly such a blessing to so many.
Nicholas Frangiudakis
I appreciate you so much for assistance with my needs. I was worry about getting everything right. I called you when I had questions, that is so important, you answered them polite, it is good to have a calm and polite voice.
I was happy to get an email when the program became available because of being on the wait lists. I thank you for your patient assistance program. I have had to go to the emergency rooms for years, admitted every time because stones were unbearable with vomiting and pain hurt bad, I cried out for pain medication. Doctors admitted me in the hospital every time for real bad pain to ease my burden and pass stones. I still have stones; I thank you for helping me with my health condition and insurance.
The financial assistance Accessia Health has provided me has been a game changer for living with a rare disease.
Knowing that my very high insurance premiums will be reimbursed by Accessia Health every month has lifted an incredible amount of stress from my life, and as a result, the frequency of my flareups has decreased.
Thank you, Accessia Health for providing an invaluable service to clients like me!
Accessia Health is a wonderful company! We have a Daughter with MPS, which is life threatening and debilitating. We have lost another daughter to this horrible disease, so we push ourselves everyday to just get through the day and be happy for our other daughter Savannah. She is so precious and strong! Accessia helps us with our bills, that would otherwise be a struggle. They are so sweet and easy to work with! We are so Grateful for them in our lives!
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I had two special needs daughters. One has gone to Heaven. Access is has continued to support our family the whole way. Allowing us to focus on the needs of my daughter versus how I am going to paying for her care. We are truly grateful to them!! We couldn’t have handled all the necessary things without their help! Thank You from the bottom of our hearts!
Accessia Health was truely the light at the end of a very dark tunnel. With me being out of work filing for disability and my family and I struggling to make ends meet, Accessia Health was able to get me approved for their assistance. It may seem small to others, but when every penny counts, it speaks volumns to be able to use them to pay for your copay, medications, or any cost related to your medical condition. It's just one less thing to have to worry about. I am unbelievably thankful for their help.
When i was diagnosis with cml leukemia didn't know how in world I was going to afford rx as it was out of reach even with ins. and Accessia step-up and got the meds that I have to have so thankful for their help with cost of this. thanks for the help. or i wouldn't be getting treatment what a great organization life saving
Accessia has been a life saver for our household. Everything has gotten so expensive, that we were choosing between food and utilities. Because they send my Ins Premiums back to us. We are able to cover basic household items like food.
My family Thanks you for all you do.
Accessia's support is critical to my keeping my insurance while in my disability process, and then living on disability with ever increasing medical expenses. They're professional, consistent, kind, good at communicating with applicants and recipients without ever making us feel Less Than. They check on status and confirm requirements every six months, in a process that's easy to fulfill while keeping their info current. Before my disability I leas a non-profit, which gives me a decent understanding of all the work Accessia does "behind the screen" if you will, and I'm impressed every time I interact with them...along with grateful for their help.
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For more than a decade assistance from Accessia has kept me insured, the first critical step in receiving care as a rare disease patient. Their criteria for assistance is always clear & concise. The folks responding to emails or calls are also always professional, helpful, kind, and respectful. Accessia means I sleep more often because I'm not worried about medical insurance.
I was diagnosed with a very rare stage 4 cancer several years ago. I was told there was only one drug available for my type of cancer. The cost was over $10,000 a month. I have never been so overwhelmed and sad. I was referred to Accessia Health, formerly PSI, by UC Health…my contact at Accessia was so kind, helpful, generous with her time to guide me through the process and literally saved my life. I would not have lived without the drug. Accessia is continually reaching out to others in need…excellent organization.
I so appreciate the help. They've been wonderful in their program designs, and efficient at distributing grants funds for claims. It's helped my situation substantially.
I am a patient with a very rare blood disease called Hereditary Angioedema (HAE). It is a life long, life threatening, and potentially fatal disease; I've been intubated twice due to airway swells. Accessia Health allows for me to get the treatment needed and travel to doctors/specialists with their programs they offer. Without their help, I couldn't afford all of my treatments, insurance, and travel, making life even more stressful for a single mother of two. I'm forever grateful for the assistance I receive and could never put into words how very important and meaningful it is in our lives. I'm beyond thankful for the help I receive from Accessia Health, they absolutely make my life easier during the most difficult times.
I have been with Accessia Health or formally known as PSI for many years and have received wonderful care and assistance from them. Whatever my request or concerns have been they have handled it with professionalism and care. I would highly recommend and endorse their service to anyone in need.
Thank you for the relief and simplicity of receiving financial assistance! We are well served and we VERY much appreciate it!
Thank you!
Tracy and Neil
It is always frightening to get a diagnosis of cancer and even harder to say the word “cancer” to loved ones and friends, but I can always end my story with a positive. That is the help God provided me through Accessia Health. I am very grateful for the assistance that I am receiving for my Chemo. When my Doctor recommended that I stay on Chemo for 5 years instead of the 3 years originally planned, I contacted Accessia Health right away and asked if that would be a problem. I was assured I would have coverage as long as I needed it. What a comfort this has been. Thank you Assecia Health.
Accessia is an awesome nonprofit and has greatly improved my life as a patient. I was able to utilize their legal assistance to help win my SSDI, then I discovered their copay assistance programs which helped me struggle a bit less to afford my healthcare. Without accessia my transition to life on disability would have been significantly more difficult and traumatic
I cannot express enough gratitude for the support I’ve received from Accessia Health. They have consistently helped me cover copays, insurance, and doctor visits, which has been a game-changer for my health and well-being. Thanks to their assistance, I’ve been able to afford a crucial medication that helps manage my Hereditary Angioedema. Without their help, I wouldn’t have the stability I now enjoy. Their service has truly enabled me to live a more normal and worry-free life. I highly recommend them to anyone in need of financial support for medical care.
I was diagnosed with ALD during the start of Covid. I was later sent to UWMadison here in WI. Eventually started with new medications and many tests, lung biopsy, and much more.
Without the help from Accessia Health I'm sure I wouldn't continue to be as healthy as I am today. I am so very greatful, words cannot express. Karol
Because of the generosity of Accessia Health I have been able to maintain my overall well being
and I am extremely grateful for all that the organization does. Being able to navigate my journey
with the help of Accesia Health has made my my life and journey a whole lot more manageable
Dear Accessia Health Team,
I want to express my deep gratitude to the Accessia Health for the invaluable financial assistance they provided me during a challenging time in my life. Their support not only eased my financial burden but also gave me the peace of mind that I could get the medicine I needed for my severe asthma, while still being able to cover my bills.
Facing a medical condition that required costly medications was overwhelming, and I was struggling with how I was going to be able to afford my Fasenra Auto-injector Pen every eight weeks /and Breo inhaler every month. That's when I discovered the Accessia Health, and their assistance proved to be a lifeline. The application process was straightforward, and their team was incredibly helpful and compassionate throughout.
Thanks to the Accessia Health's assistance, I didn't have to make the difficult choice between prioritizing my health or my financial obligations. Knowing that I could access the necessary medication without sacrificing other essential expenses brought me a sense of relief and security that is truly priceless.
I can't thank the Accessia Health enough for their support in my time of need. Their commitment to helping individuals like me access vital medications while maintaining financial stability is commendable, and I would highly recommend their services to anyone facing a similar situation. They are a true blessing for those navigating the challenges of healthcare costs, and I am genuinely grateful for their assistance.
- Trish
Accessia Health has been a lifeline for me. It is such a blessing to have a corporation that truly cares about patients. It’s more than just financial support. Accessia Health is always there to help no matter what comes up. I’m so grateful to have them.
I have a rare disease called Primary Agammaglobulinemia. It means my bone marrow doesn't make enough immunoglobulin to protect my body from illnesses, from the flu to cancer. In order to stay alive, need an infusion of immunoglobulin every 3 weeks, which requires a certified nurse, equipment and 32 grams of immunoglobulin plasma. The plasma contains only IGG, which is just one of our immunoglobulins in our blood. Other types (IGA, IGM for example) are not replaced and remain low in me. Because I'm at risk for bacterial or viral illnesses by simply going to the grocery store, I have to stay home most of the time. I am still dealing with physical ailments due to the residual damage done to my body before a correct diagnosis was made, and the subsequent lack of appropriate medical care. This has greatly impacted my health and ability to make a living so I am now on disability. For me, there is a huge gap between what Medicare pays for and what I require. Many of the doctors I need (and hospitals, specialists and home healthcare) do not take Medicaid at all (which is the only supplemental coverage available to those on disability at a discounted rate.). I am forced to find my own private insurance. However, the cost of maintaining my medical insurance (Medicare and Humana), is impossible for me without Accessia's help., which is literally saving my life.
I have had my colon removed because bacteria caused it to stop functioning. My left eye is blind because a sinus infection got out of control and attacked my eyes. I have had a mastectomy with lymph node removal. The list goes on and on. . Because I'm considered "high risk", my health insurance is extremely expensive.
I have Medicare and Humana Supplemental, which pay for most of my medical needs, such as hospitalization, IVIG, various operations and outpatient care. My Humana Supplemental insurance alone, (Medicare is $140 per month) is $1,000.00 per month. If I don't have this kind of coverage I will not be treated for my health problems. That is one of the main reasons I am completely disabled: lack of adequate health insurance. Without the help I now receive, I would be dead.
It was terrifying for me to learn that I have a genetic, congenital condition that is fatal without treatment. It was absolutely devastating to also find out there was no insurance available to me because of my condition (and therefore no treatment for me). It was considered a "preexisting condition". After that excuse was taken off the table by legislation, the insurance companies came up with more creative ways to exclude me from care. Many doctors will not take Medicaid at all, and I often have to see specialists. Humana was the only coverage I could find that will pay for my special needs, but at an extremely high price. I've also been told that the policy I hold is now unavailable to newcomers and I'd never find a policy like the one I have should I ever default on a premium payment. The only way I can meet these financial requirements is by getting help from Accessia. They provide me with enough money each month to make my premium payments. I still pay for about half of the premium myself, but I can manage it by being very frugal with the rest of my bills. Accessia makes the difference, for me, between living and dying. Accessia makes it possible for me to receive the medical treatment I desperately need. Without Accessia, I would have no hope. Because of their help, I can wake up every day with confidence and the anticipation of good things to come.
This has got to be the best Nonprofit organizations for many reasons. I will bullet point for brevity:
1) Comprehensive coverage of life sustaining funding regarding medically related treatments and chemotherapies.
2) Great case management for history of case
3) Immediate eligibility of services patient is qualified to receive.
4) Reminders of various administrative documentation needed.
5) Accessia phone agents expertise to assist patients with education and/or other programs they could be qualified for.
6) Unconditional positive regard when patients call in with problems and/or stress.
7) If problems arise, they are easily resolved with minimal stress to the patient.
8) I am alive today because Accessia covers my drug copays and other medical related treatments. Otherwise, I do not have the funding to stay cover the life sustaining medications/travel.
The financial assistance I have received from Accessia Health has helped me get affordable health care for my rare disease. Without their assistance, I would not have been able to afford this care. They have made a big difference in the lives of a large number of people including myself. They cannot do this unless they receive accreditation from GreatNonprofits as well as grants from charitable organizations. Thank you.
I was born with a two genetic disorders, one being a bleeding disorder. I am very grateful for the financial assistance that I receive from Accessia Health. It has enabled me to maintain and, even improve, my health and avoid medical complications related to the genetic disorders. Thank you Accessia Health.
I have an auto immune disease that causes a lot of financial burden. I could not have handled all of these financial issues without the help of this program. I can’t thank them enough for all their help and compassion they provide.
I have pulmonary fibrosis, interstitial lung disease. I've been battling it over 5 years now. While I'm progressively getting worse, Accessia has been a tremendous GOD send to my wife and I. The money I receive each month in the form of Medicare Part B refund, has allowed us to purchase equipment such as whole house filtering as well as covering the deductible amount of my oxygen equipment. Hoses, canulas, moisture boxes, etc. Thank you Assessia and many blessings to ypur organization. Paul S Matheson
I have leukemia and Accessia has been awesome helping with the cost of my meds, travel expenses, etc. I am SO thankful for the help I have received from them plus the newsletters are great.
I appreciate the assistance receiving my Alpha one Antitrypsin and the cooperation from
when I need to speak to personal regarding my situation and the assistance is there for me. With monthly medical support fro Accessia Health.
I am so grateful for the monetary help I received from Accessia Health last year, without it I could not afford my medication for Alpha 1 Antitrypsin Deficiency. This medication is the only one that can help to slow the progression of Alpha-1. Accessia has made it possible for me to continue with treatments without interruption.
Accessia Health was a Godsend when I was first diagnosed with Ideopathic Pulmonary Fibrosis. They were able to get me my much needed medication and have continued their support for about 2 years. Thanks so very much, Marsha
Great customer service!! Really appreciate all the help with my medications and premium cost. Accessia’s is one of the best out there! Sincerely Frank J.
If it was not for this organization, I would have died several years ago. Without them I wouldn't have been able to have insurance or afford my medication. It is because of this group that I am alive and kicking.
I wouldn't have been able to get the help I needed without Accessia. They are so helpful and easy to get help from.
Accessia Health has been an invaluable resource for me throughout the years. Their support with my insurance premiums has made a significant difference in my ability to maintain health coverage while living on a fixed Social Security income. Given my multiple health issues, having comprehensive insurance is crucial for accessing the specialists I require for proper care. I genuinely appreciate the dedication and assistance of the Accessia Health team, as they have ensured that I can prioritize my health without financial strain. I look forward to continuing to benefit from their services in the future, as they are essential to my well-being.
I have idiopathic pulmonary fibrosis, a fatal disease. In 2014 two drugs were developed that slow the progression of the disease. They cost 13,500 per month. Without the assistance of Accessia Health, I would not have been able to afford the treatment which has kept me alive now for seven years since my diagnosis. This organization has saved my life.
They have made survival possible for me. I can't add anything. I can still eat and get my medications, I wouldn't have been able to without them.
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I have been lucky enough to get assistance from Accessia and it has made a huge difference on my life. I don’t know where I would be without them. Thank you!
Life-Saving Support from Accessia Health
I cannot express enough how much Accessia Health has helped me in my battle with hereditary angioedema. The kindness, care, and concern that every employee has shown is truly unbelievable. Without their financial assistance, which comes from the generosity of donors, I would be drowning in medical bills. Thanks to Accessia Health, I’ve been able to focus on my health rather than worry about overwhelming financial stress. I am incredibly grateful to the staff and donors who make this assistance possible—without them, I would be facing very difficult financial challenges. Thank you for your unwavering support!
Introduced to Accessia by a fellow Pompe disease patient, it's been a blessing to not have to worry about health insurance costs with Accessia, I don't have to choose between saving for retirement or getting a life saving treatment.
Accessia Health helped me to afford Glevec for 5 years after GIST excision. This was from 2009 to 2014 when Accessia had a different name but same wonderful organization. Have been Gist free since then, hopefully, as I am no longer followed up. Don't know how I would have coped financially without Accesia.
However, today I have been notified that I now have an aggresive breast cancer and will meet with a medical team in 4 days, so it begins again.
Hopefully, there will not be a need for financial assistance this time around!
Accessia has been helping me financially since 2022. I was diagnosed with Primary Immune Deficiency disease in August of 2021. I need antibody infusions every 4 weeks. For the rest of my life. I am on disability. It is barely enough to cover my bills, much less costs for infusions every 4 weeks. I immediately started scouring the internet for any type of financial help I could find. I saw Accessia's site in one of the hundreds of website searches I did. I hoped my disease showed up in the drop-down menu. It was there! I applied and was accepted. I get premium reimbursement and a travel allowance. I hope they know how appreciative I am for their help.
Accessia Health has helped tremendously to make my son’s health insurance affordable and ensure that he receives the life-saving medication he needs. Our family is very grateful to Accessia Health for their help!
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Accessia health has been a great great help to me and my families quality of life. I have an immune deficiency and they help me with the co-pays yearly and it is a great help. It keeps me healthy without having to get another job because I am too sick to work. They’ve been around for years. My father also has an immune deficiency and they also get help from Accessia . We’ve been with them for many many years when they were primary when they were formerly PSI. Having PSI has greatly improved my quality of life by giving us the means to afford my healthcare and Dr. bills, and all my medically necessary needs. I would like to thank them because they mean more to me than anything, and my family has greatly needed it.

AccessiaHealth 10/02/2023
Thank you for your kind words and allowing Accessia Health to assist you and your family. We're grateful for your support and for believing in the work we do.
The financial assistance Accessia provides brings a special peace of mind. My insurance payment is reduced because of the help. I have less worry that my finances won’t be sufficient to cover my living needs. Thank you.

AccessiaHealth 10/02/2023
We are grateful for the opportunity to support your healthcare journey.
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With a primary immunodeficiency I have so many medical expenses. They encompass co-pays and co-insurance as well as premiums for the insurance which provides me access the the treatments, specialists and primary care physicians necessary to manage the disease. Accessia has been a beacon in the dark! The financial assistance provided by this bright light of a charity removes some of the enormous stress that only medical debt can bring. Thank you!

AccessiaHealth 10/21/2022
Thank you so much for sharing. Your story matters, and if you are willing to send your contact info to accessiahealth@gmail.com, we would love to connect with you and capture more of your story to inspire others.
Accessia Health literally saved my life! A grant from them paid my co-payment for iife-saving medication I was prescribed to treat leukemia. Retired and on Medicare, there was no way I could pay more than a thousand dollars a month for the medicine. Getting a diagnosis of leukemia is frightening to say the least. Worse still is knowing that you would never be able to afford the medicine that might save or prolong your life! Accessia Health's grant removed that doubt and worry! They came through for me at the absolute worse period in my life.

AccessiaHealth 10/02/2023
Thank you for the review. Knowing that we were able to make a positive impact on your healthcare journey is incredibly rewarding.
Accessia has been a “godsend “ as medical expenses, including premiums, can determine your amount or type of care. After being misdiagnosed for so many years. It was a relief to discover my disease. It was also frightening as to how I would be able to afford the medicines, doctors, travel to specialists and insurance premiums. Accessia has helped me with part of the financial stress. Knowing the assistance is available has made it easier to cope with my disease. Thank you, Accessia!

AccessiaHealth 10/02/2023
Thank you for taking the time to share your positive experience. We're proud to have the honor of assisting you.
Without Accessia helping me pay for my secondary health insurance I would never be able to afford getting bi-weekly infusions of an orphan drug to stablize my bone envolvement with Gauchers Disease. Many months I had to decide about getting infusions or food. I cannot relate how much help it is every month not having to make that decision. I sleep better at night
The process of getting approved for financial assistance was quick and easy. The representative were courteous and knowledgeable.
I have been very thankful for the assistance I am receiving..
Have had very good experiences They are there when I call. Or always call me back answering my questions
My experience has been nothing short of joy and appreciation for Accessia help with providing the extra help I need it is greatly appreciated without it I don’t know how i would manage I am forever appreciated.

AccessiaHealth 10/02/2023
Thank you for your review and for allowing us to be a part of your healthcare journey.
We had a great experience with them they really helped me through some very rough times after my head injury and I was diagnosed with Angioedema and Igg defeciency . This last year it was heart breaking when they were were not able to pay for me and we ended up paying for some of my medication. They had under funded me.
Accessia Health is such a wonderful organization! I have been a client of theirs for years! I receive financial assistance for a few things regarding one of my chronic medical conditions! It is such a blessing to have this assistance and not have to decide between medications or groceries!
The financial assistance from this organization is tremendously helpful, especially for those of us who don't qualify for anything else!
They are a fantastic Non profit organization!

AccessiaHealth 08/25/2023
Thank you so much for sharing! We are grateful to you for allowing Accessia Health to be part of your healthcare journey. It's patients like you who inspire us to continue our mission of providing assistance and support to those in need.
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THANKS !
Your organization has provided co-payment assistance for Novartis GLEEVEC when the use of it was restarted in late September 2022 due to insurance coverage for the Novartis GLEEVEC being approved in a MEDICARE Administrative Law Judge (ALJ) Hearing Appeal.
Your organization had been providing co-payment assistance for Novartis GLEEVEC from January of 2022 till the time in the Spring of 2022 when CIGNA/Express Scripts would not provide insurance coverage for Novartis GLEEVEC.
When CIGNA/Express Scripts denied formulary coverage via a live telephone call in late-March 2022 on a Thursday and the next day, a Friday, via a robocall denied an appeal, WHICH HAD NOT OCCURRED IN REALITY AT THAT TIME, it caused the stopping of the use of Novartis GLEEVEC because CIGNA/Express Scripts would not provide insurance coverage for Novartis GLEEVEC.
In 2019, 2020 and 2021 your organization provided co-payment assistance for Novartis GLEEVEC.
In 2019, 2020 and 2021 CIGNA/Express Scripts approved insurance coverage for a Prior Authorization Approval, which continued the use of the Novartis GLEEVEC, which began in November 2002 in an experimental medical trial, for use against the GIST Cancer which multiple surgeries could not eradicate after the GIST Cancer had been discovered in late-1999.
Prior to 2019, your organization provided co-payment assistance for Novartis GLEEVEC each year that it had been applied for.
Prior to the CIGNA/Express Scripts merger finalization announcement in early 2019, when Express Scripts was a separate entity, it had been approving a Prior Authorization Approval each year so that the Novartis GLEEVEC could be provided under the Express Scripts insurance coverage.
I have 2 boys with Hemophilia a chronic condition. The cost of prescriptions is very expensive, with the help of Accessia Health we have been able to get assistance to help offset this expensive, treatable, but not curable condition. I don't know how we would have made it through without their assistance. I would and do recommend Accessia Health to other families who need the added help. This is an amazing nonprofit we are truly grateful for all their help. Thank you for being a part of our life.
They have helped me so much. I wouldn’t have the amazing insurance coverage to afford my medication which helps me live a normal life. The customer service has always been amazing as well. I don’t know what I would do without them!
They came to my aid when this 82-yer old MARINE had run out of options. Very caring and professional. without them it would have been a choice of no medication and hope for the best
I was diagnosed with CML a few years ago and with the help of Accessia Health I am living a quality life each day. Thanks for all that you do.
I have a rare form of Muscular Dystrophy called Late Onset Pompe Disease. There is no cure but there is a treatment, ERT, Enzyme Replacement Therapy. I get a bolus dose of the enzyme my body no longer makes every 2 weeks for life. This helps slow the destruction of muscle cells that would occur at a faster rate without my infusions.
It's expensive. Between the specialty pharmacy costs, the infusion costs, and then health insurance and the team of specialists that care for me (cardiology, pulmonary, PT, medical geneticists), it is not only very expensive but very time consuming.
Accessia Health helps financially. It is a tremendous relief to have their support. It is one less (very big important) thing I have to worry about. They help with copays to specialists and cover the cost of my health insurance premium up to a certain amount.
I am very grateful for their support!
Accessia Health helped me pay for my insurance premiums in a consistent and timely manner, thereby enabling me focus on my health and the important things in my life. Thank you Accessia Health!
I first got connected to this nonprofit through the Genzyme pharmaceutical company. I had been diagnosed with a rare genetic disorder, found out that the drug I need costs $30,000 + a month, and that my health would slowly but surely deteriorate as I got older (and the lifespan for men with my disease is roughly 58 years). It's an understatement to say I was feeling low and angry with everything and everyone. But with the help of my geneticist, Genzyme, and Accessia Health, I at least don't need to worry about my monthly health insurance premiums. Accessia makes sure that I get reimbursed for any and all costs from my health insurance plan, so that's one less thing I need to worry about. I truly am grateful for everything Accessia Health has done for me; and for everyone who works at that non-profit.
I was born with gaucher disease , a condition that has no cure . However, if you are able to get the very expensive drug which is a life savior , life can be enjoyable again .
Thank you Accessia for providing me with the help so I can receive my treatment and have a happy constructive life .
Greatfull Rachel
Accessia Health (PSI) has been helping me get my Gleevec since 2015. Without their help, I
would not be here today. Their generosity has allowed me to spend these years with my loved ones without having to constantly worry about whether or not I could afford the medication.
Accessia has made life a lot easier for me as a hemophiliac. I have had an unusual amount of trouble with my legs that makes it hard to work all the time. My insurance premiums are so high that I would not be able to survive. I want to Thank Accessia Health for their continued dedication and support.
This company is great in helping health consumers and pastiest obtain health products and equipment they need to have a good quality of life style. The products are packaged and send in a timely manner and they seems to have all the products for your needs. Thank you.?
When diagnosed with a rare disorder/disease there are plenty of health related issues to worry about. Then factor in the monetary strain it places on you and your family by going to specialists and all manner of other appointments in cities far away from your home that adds another layer of concern to the situation. Accessia Health has graciously provided assistance to ease the monetary burden and my family and I are forever grateful for their help.
Our son was born with Hemophilia A, thanks to Accessia Health has removed a huge barrier for our son to access emergency care when he needs it without us having to choose between medical care at the expense of other areas of our lives. Without them we would not be able to ensure his health comes first. Love them and all the donors who help support the health of our child.
My son and I have been diagnosed with Fabry disease; Accessia gives a chance to have a better quality life. Thank you!
Twice a day I use The Vest machine that percusses me, helping my lungs stay as clear of sputum as is possible. My alpha-1 antitrypsin deficiency is kept fairly well under control with the added benefit of a weekly infusion of Aralast. Due to my post polio fatigue, a nurse comes to my home to administer this infusion.
Without your financial help, this treatment would not be possible. Thank you from my heart for your help, and thank you to all the donors who make your help possible.

AccessiaHealth 10/21/2022
Thank you so much for sharing. Your story matters, and if you are willing to send your contact info to accessiahealth@gmail.com, we would love to connect with you and capture more of your story to inspire others.
I have chronic myeloid leukemia. Without your help on the very expensive medication, it would turn into acute leukemia. As of now with your help, I am in remission. You are the best nonprofit organization I know of. THANK YOU VERY MUCH!
After being diagnosed, I couldn't afford the prescription medication that I needed. Accessia Health provided that medication for me and probably saved my life.
Accessia Health has allowed my medical needs to be taken care of so I can live a longer life. Without them I would not be able to pay out of my pocket for the Chemo I need daily. I can’t thank them enough. Without Accessia Health I would not be here today. Thanks for helping me fight this fight. Couldn’t have made it without you!
Timmy
After years of multiple surgeries to hold back pelvic tumors ( GIST), a medication was found to keep this stage 4 cancer “asleep”. That has allowed me to volunteer, travel, help with family chores and live an active, productive life.
Thank you Accessia Health for you assistance !

AccessiaHealth 10/21/2022
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This program is literally a lifesaver. They help pay my insurance premiums and help with copay for my specialty medication. I wouldn’t have access to the medication I need if it wasn’t for them. They are always so friendly and helpful when I need anything. The online portal is easy to navigate.
I am a widow with limited income and have developed Acquired Angioedema (AAE). The copay for the rescue medication is over $4000. That is only 3 doses which can be required for a single swell. My last 3 swells have involved my throat and my airway. Fortunately, I had the rescue medication and did not require intubation or even hospitalization. Without Accessia I would probably have required a stay in ICU each time.
Accessia a life changer when it comes to living with chronic disease. It’s such a blessing to have help every month with my insurance and to know they are advocating for me with legislators. This agency brings me peace.
I have Fabry's disease and so does my son. Fortunately there is a treatment for our genetic disorder but over the years I haven't been able to manage the cost of insurance and/or co-pays and patient cost for treatment. Without this life saving treatment our future would be dialysis and ultimately early death. Accessia has truly been a life saver by assisting with these devastating costs. I'm so grateful beyond words and for all the wonderful people working there that have assisted me whenever I have questions. God Bless you all! Lori Meyers
I've been diagnosed with pulmonary fibrosis and lupus along with arthritis. I have Medicare insurance with a medicare supplement. There are times when I go to specialty doctors 3-5 times per week, have CT scans, MRI, see a radiologist, and co-pay for each. Without the funding from Accessia, my supplement policy would have canceled. Accessia's help has been a God send, it has removed a tremendous amount of stress from me. Since having Lupus, stress brings on relapses. I need Accessia, it's like God reaching down just at the right moment, it is a God send. I am so sorry that I do not have a photo. Ms. Jones

AccessiaHealth 10/21/2022
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First let me start by saying THANK YOU! Because of your generous supporters I’m still alive 20 years later but whose counting. People who think of other peoples needs besides their own will be rewarded in Gods eyes. There are not enough words to convey what I’m trying to say but just know all of the people who benefit from your organization will never say anything bad about this program. May God continue to work through all the kind people who provide the means to keep helping and with no rewards other then Thank you! Thank you for giving me the beautiful gift of life.

AccessiaHealth 10/21/2022
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Absolutely amazing nonprofit. They have taken so much financial stress off of our family’s shoulders. I have a rare genetic condition that has extreme high copays & they help pay my monthly insurance costs! I will always be forever grateful & thankful to have Accessia Health in my life. All employees are so nice to talk to, very quick response time & will answer any questions that I have!

AccessiaHealth 10/21/2022
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I am a 51 year old single female (divorced in 2020) who was diagnosed with CVID over 25 years ago, since then I have been diagnosed with a t-cell defect, histoplasmosis, systemic lupus with some kidney issues, Raynauds, B-12 defiency and in September last year I had a cerebellar stroke and diagnosed with cerebellar cognitive affective syndraome. In June of this year I had a heart attack caused by blood clots which they cannot figure out why my body is producing and probably what caused the stroke as I have no plaque. I was a corporate controller and no longer able to work. I have been placed on LTD and terminated from my position and it is with the greatest thankfulness that I receive premium reimbursement as I would not be able to afford cobra payments on my significantly reduced income between divorce and disability so without this I would have many many more issues to deal with. So thank you thank you for all you do.
Shannon Dussault

AccessiaHealth 10/21/2022
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Accessia has been a life saver providing excellent service in assisting me monthly with my insurance premiums. Thanks Accessia for your professionalism, great customer service and caring for the health of many many needs in the healthcare community.
I was diagnosed with hereditary angioedema many years ago. Accessia Health has been there for me in maintaining a better quality of life, and I greatly appreciate their support and assistance. It is a huge comfort to know that Accessia Health cares.
Accessia Health has been a lifesaver for me in assisting to pay my skyrocketing insurance premiums. I’m not sure where we d be financially without them.
Thanks to Accessia I am able to get the medications and treatment I would not be able to afford to treat my HAE. This program is truly a life saver.
Never would have been able to afford treatment medication without Accessia. They are improving lives.
Accessia Health has been a life saver to me. I have Fabry Disease and require Enzyme Replacement Therapy every 10 days and will need to do so for the rest of my life. This therapy helps subside symptoms of the disease and keeps the progression of the disease. Fabry attacks many different systems of the body, requiring me to see numerous specialists on a continual basis. Many of my specialists are in a major city almost two hours away. Accessia Health has assisted me with travel expenses, hotel expenses when I’ve had to spend the night due to testing, co-pays, and my expensive drug that costs almost $24,000 every ten days. My insurance will pick up some of the costs but not all of them. They help pick up what my insurance doesn’t. They also pay the premiums for my supplemental health insurance. Being on SSI and a pension that was minimized because I had to retire early put me on a limited income. The assistance they provide is appreciated beyond words. Any person that I have spoken with has been pleasant, personable, and extremely helpful. I don’t know what I would do without Accessia Health.

AccessiaHealth 10/21/2022
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I was diagnosed with Idiopathic Pulmonary Fibrosis in March (2022). Accessia provided the co-pay assistance that made my drug therapy possible.
I have been getting help to pay the copay for the medication I take..I wouldn't be able to afford it otherwise..I thank Accessia Health for the help they give me
I was diagnosed with Muscular Dystrophy in 2014. I had node what was happening to me. After a rare disease blood test, I found that I have a rare form of Muscular Dystrophy called Pompe Disease. Soon, I felt that I needed help so I contacted the MDA.They could not help me. They said that they only help fund research programs. They don't help us directly. I couldn't believe what I was hearing. Wwe need direct help, not just lip service. Somehow, I found this organization and it's been a lifesaver. The first year was very limited funding as well as the second year, but after that, the donations must have grown because they've been helping so much mo. I needed to get around and something trust worthy to go to doctor visits. Medicare wanted to give me an "In home" piece of junk that would cost $10K. It couldn't go outside and it could go 2 mph or 4 mph. It had to be charged every few hours. Because of you, I was able to get a trike that could get 35 miles per charge, go up to 16 mph, and I was able to drive it on the bike path to go to my doctors that are almost all within 2 to 2.5 miles from my house. I am able to use it to go there and actually go into the doctors office. This has brought so much peace to my life not having to worry about how to get to my doctors and rely or burden others to help me. They've helped with many other things such as seat cushions so I don't get sitting soars and leg coverings so I can actually take a shower while keeping my legs wrapped. I was able to get an upright walker that I couldn't have gotten otherwise. My back had been killing me from being hunched over that old fashioned walker but within 3 days of using the upright walker, my back was much better. The quality of life has been 100% better and I have been telling people that if they want their donations to ACTUALLY matter, go to Accesia Health. Not only do they make life bearable, but they make it worth living again. Thank you Access Health.

AccessiaHealth 10/21/2022
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Accessia Health made it possible for me to get the resources I needed to better understand my rare genetic condition and receive the proper treatment that I otherwise would not have been able to cover on my own.
My child has a bleeding disorder and the cost of care is almost unbearable; but, with the help we receive from Accessia Health, we are about to provide her with all of her treatments! Thank you for the insurance premium assistance and travel assistance!!

AccessiaHealth 10/21/2022
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I have Fabry disease and these past years I wouldn't of been able to get my treatments or even have health insurance without Accessia. I'm very THANKFUL for them
Because Accessia pays my medical premiums so I can get my immunoglobulin, I'm also able to get treatment and follow-up care for a brain tumor. Accessia has literally been a life-saver.
Hello, over the last few years that I've gotten help from Accessia Health they've been a Good send for me. They make it easier to breathe a sigh of relief by helping with copays and much needed medical equipment. I really appreciate everything they have done to help me and others like me.
I am so thankful for Accessia Health. Accessia has allowed me to receive treatment for Idiopathic Pulmanary Fibrosis, which I have had for over 10 years now. The treatment that Accessia has provided has slowed the progression of IPF and given me added years to my life. Accessia has been a God sent to me, and others and I am most grateful. Bill Efinger

AccessiaHealth 10/21/2022
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Accessia has been there for me thru life thick and thins. I have been humbled by their dedication and am diligently working on doing my part to keep my health as strong as I am able. Thank you Accessia, for giving me peace of mind on my travel with Alpha 1. Nancy Day
I have a rare disease called Pompe Disease. I’m a power wheelchair user because of my condition and require IV infusion every other week. My financial , medical, and accessibility needs are a constant struggle. Accessia Health had made fighting Pompe Disease a lot easier. Without their support, my life would be very different. Their employees are prompt and compassionate and their technology allows me to access information about my assistance 24/7. There are not a enough positive things one can say about Accessia Health - they save and change lives.

AccessiaHealth 10/21/2022
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I'm now 74 and was diagnosed with the rare disease CML (Chronic Myeloid Leukemia) more than 10 years ago. It was a total surprise to me and I continue to be very grateful to my PCP for recognizing the symptoms and immediately referring me to a very caring oncologist. I was scared out of my wits when I learned that the only drug available, Gleevec, would cost me over $100,000 per year, even with insurance! I was quickly referred to PCS, now Accessia, for financial assistance and breathed a huge sigh of relief when I was initially approved. PCS/Accessia has stood by me for all these years and I am so grateful for their unfailing support. They are truly a very caring organization and I thank them for my life.
Thanks to the amazing people that work for Accessia Health and the amazing support and help that they provide I no longer have to worry about being able to make it to important medical care visits or being able to afford life saving medication. If you're a donor, know that your money is not being wasted and is going to a good cause. My continued good health is a testament to that.
As a senior citizen being diagnosed with chronic myeloid leukemia, CML, was a scary experience. However, what exceeded that scary diagnosis scare was the cost to keep myself alive was unsustainable. With much assistance from my pharmacy to find monetary assistance, Accessia stepped in to help. Filed the necessary paperwork requirements. Within a few days, I was awarded a grant to cover my drug cost. This was a blessing to know I had coverage supplied by Accessia Health. I will reapply when the grant assistance is complete. Accessia has been a true partner in helping those of us need of a little financial assistance to stay alive. Thank you Accessia.
For many years thru your generosity and kindness, I have been able to afford the medicine for leukemia. Even with private insurance, I was unable to pay the difference. You came to my aide, and I am so grateful to all who donate and serve others. In our world today to find a truly altruist organization is very rare. There are no words to adequately thank you all for the sun rises and sun sets, the time with my family,,and just time to be at peace with this life. May God bless you all.
Accessia Health has made all the difference to me (and my family) being able to afford my medication for my health condition. The meds are incredibly expensive and Accessia Health has helped defray that cost. They are literally lifesavers!
This group came to my aid years ago after a cancer operation that meant ongoing daily cancer medication. Without their monetary assistance I would have had to sell my house long ago to keep up with the yearly cost of the copay. That help has given me great peace of mind knowing that I can count on this assistance. My wife prays daily for the group's success in this cause, and we cannot thank Acessia enough for the help.
Without their support, I would not be able to afford the rare genetic disease that I have inherited. They have helped me for several years with insurance issues and recently with the increasing cost of prescription medications. This illness has changed my life completely and I have had battles with work issues, insurance, doctors, etc. It is so nice to have someone that is actually helping me.
I was diagnosed with CML several years ago. Without the help of Accessia Health I would never be able to afford the medication. The people at Accessia are very helpful and kind. This medication is what keeps me alive.
I don’t even know how to explain the way this program has helped my life! I live hemophilia and because of accessia health I’m able to have one less worry every month.
I inherited HAE and spent years struggling with the associated health issues associated with this disorder. Accessia Health was the first organization to fund successful treatment for this disorder. This significantly improved the quality of my life. I am so grateful!
I was diagnosed with Primary Immune Deficiency. Accessia's patient assistance program has been very helpful in maintaining access to health providers and treatments.
I was diagnosed with pulmonary fibrosis 6 years ago and take a very expensive drug to help slow the disease, after retirement my insurance stopped paying for the drug and Medicare only pays a small portion of it. With out this nonprofit It would be very difficult to pay the amount needed to keep the drug. My life expectancy with out the drug is approximately 2-5 yrs. with the drug it is about 20 yrs. Thankyou for helping with my expensive drug. I can’t thank you enough for your generosity and compassion
Accessia Health (previously Patient Services Inc.) has been an integral part of our family over the years, in providing support, compassionate care, and education. This non-profit provides various services to those living with life-threatening medical conditions. My son was born with such a condition, and for our family, being able to have assistance over the years to provide him with optimal medical care, has been immeasurable in value. Thank you Accessia Health for being committed to those in the Rare Patient Need community!
I was mowing my lawn on a Saturday morning when I had to sit down. I could hardly breath.
I was told I had Idiopathic Pneumonia and this was the causation of my constant shortness of breath. I have to use Oxygen 24/7. In order for the passage-ways in my Lung to not close I must take a medication which cost 152,000 per year. Accessia Health came to my rescue with financial assistance. With out this help I'm as good as gone. I am truly grateful for all the help. God Bless the good people who donate to help us, those who need help. I pray for these caring people and Accessia Health daily. Thank you, Jim D.

AccessiaHealth 10/21/2022
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Accessia has made an incredible difference in my life. I am thankful each and every day for their help in making it possible for me to afford the life saving medicine that I need to live a normal life. Without their support there would be absolutely no way I could have access to the extremely expensive medicines that keep my disease under control. It's impossible to overstate the importance of this organization and how grateful I am for their help. It's pretty close to a miracle for me, and I will forever be indebted to them.
In the late 1990's, my loving wife was diagnosed with with Fabry disease, along with progessive MS. As to Fabrys, it was passed to my wife, and two younger brothers, while another brother and sister weren't.
My wife passed Fabry down to our son and daughter. We were blessed to learn about PSI, now Accessia Health, from our Genetics Doctor, and inquired about how it could help us financially. We were able to apply for premium assistance, and all were accepted. Financially, I'm unsure as to how I could have coped without it's benefit. Although my wife has since passed, I was able to have her for fifty years, five months, and two days, as I retired at 63 to be her full time caregiver for 10 years. Without Accessia Health, this wouldn't have been possible.
Today, my son, who participated in the clinical trials at Mt. Siani before the FDA approved Fabrazyme, gets his bi-weekly infusion at home every two weeks, and a monthly health insurance premium of $655./month, which is promptly reimbursed by Accessia Health. My daughter is a school teacher, and her premiums are much less, but also promptly reimbursed.
I can't express enough my feelings how my family was sparred a financial hardship due to the financial assistance programs from Accessia Health.

AccessiaHealth 10/21/2022
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Having CML and requiring a daily dose of Gleevec, the service provided by Access has enable me and my family to live a somewhat normal life. The high monthly cost of chemotherapy would have been so far out of reach for our family we would not have been able to make it. This non profit not only helped me survive but so many others to get through difficult times on a financial and emotional level. They make a BIG difference in SO many lives and I am forever grateful for their help and support.
Accessia Health has helped my family for years - my mother would not be alive without them. Their team is always accessible, compassionate and helpful, and they understand the needs to chronically ill people. Anyone who becomes a client will be well taken care of.
I am so thankful for Accessia's financial assistance. Having HAE is stressful enough, and the help that they give is wonderful. I am unable to work due to my illness, so the help they provide to off set the enormous expense of the care I need is crucial. They are so helpful and do elevated some of the difficulties living with a chronic rare disease.
Thank God for Accessia Health, with their help, I'm able to see my doctors and not cut back from my visits. Thank you Accessia.
I am 78 and a widow with Pompe disease. If Accesia didn’t help with my insurance premiums I just don’t know what I would do. I am walking thanks to the medicine I receive! I appreciate it so very much!
I cannot say enough good things about this company. They have truly made a huge positive impact for my son and I cannot thank them enough. I don’t know what we would do without them!
Accessia Health has made it possible for me to continue my monthly infusions for the Gaucher
disease for without these infusions my life would be in great danger.
I can not thank Accessia Health enough for their kindness in making it possible for me to continue my infusions.
Phil Kaufman

AccessiaHealth 10/21/2022
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Accessia Health has saved my life. Without them I would not be able to afford the healthcare I need to deal with my hereditary angioedema. Before Accessia, I was sick and constantly in the hospital - now I rarely get any health attacks thanks to them aiding me in health insurance to get the medication I need.
I have been patient with Accessia health for over 8 years and can’t express how much Me and my family appreciate the help we have received over the years. The level of service I get when calling in is exceptionally caring and genuine. I will be forever thankful for Accessia health.

AccessiaHealth 10/21/2022
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I have primary immunodeficiency, which has led to nontuberculous tuberculosis. It is s blessing to have Accessia Health pay my monthly premium for my health insurance.

AccessiaHealth 10/21/2022
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Loving, caring, excellent nonprofit organization. Definitely appreciate all the work they have did in working with Individual people and public. Would definitely recommend them to everyone
Accessia is the most caring and compassionate company. They have helped us to afford the healthcare we need for our daughter who has a genetic disease that requires bi-monthly infusions. Each and EVERYTIME I have called with a question, the representatives have been kind and extremely helpful, never frustrated no matter my reason for the call. We are grateful for this opportunity and can’t thank Accessia for all that they do!

AccessiaHealth 10/21/2022
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Just a super nonprofit doing great things everyday for the Patients with extremely expensive medicines for chronic diseases
Without these type of unselfish organizations what would happen to Us Patients?
Truly Blessed and Dedicated individuals!!!
Luv them So
For 9 years ,I've been living with CML, a rare but deadly form of leukemia, BUT Accessia Health took all the financial pressure off my family and me by financing my copay for the special leukemia chemotherapy that costs over $100,000 per year! It was a "magic bullet" as the oncologist said which enabled me to live a full life with family and active as I always was,ie,tennis ,jogging,grandkids. Because of Accessia support, I was able to go into remission and am no longer taking the expensive chemo! A miracle on many fronts assisted by Accessia Health. Jim Berko
Accessia Health has been helping me and my family for almost a decade, dealing with Fabry. Their compassion, empathy, and financial support has truly proven to be invaluable! We can't thank them enough.
As a patient with CML, diagnosed in 2013, I require a very expensive medication. With traditional market place insurance, my medication was taken care of. A few years ago I was put onto Medi-Care. With my Part D coverage, the out of pocket expenses became unaffordable, I was then able to qualify for and received assistance from Patient Services, now Accessia Health. In June they instituted electronic income verification. At that time I was immediately cut off from assistance with no explanation other than I fell outside of income guidelines. After dealing with customer service, I was told that the reported income was to high. It turns out that the income reported was in error and 2.5 times my actual income. I was told I could file income documentation and apply for reconsideration. After a few weeks, I was told I was still denied service. After talking with a manager, I was basically told i needed to prove why the reported income was wrong and to explain the discrepancy. For what ever reason, they can not give me the information needed to fix this. They tell me that the reporting is supplied by Experian Health. Although it is Experian, as far as i can tell, it is not the same as the credit reporting, and finding consumer contact information for Experian Health is not there. I would also suspect that getting false information removed is next to impossible. I hope that Accessia is able to find a more patient friendly way of dealing with situations like this.
Edit 10/15/2022 : Thank you to Kristin, Director of Operations, for looking into this and getting it resolved. I understand that new systems will present new problems to work out. Have been able to resume receiving my medication.

AccessiaHealth 10/03/2022
As a nonprofit, we are grateful that we are able to provide financial assistance for many individuals. Our recent change in income review has eased the application process. The use of a well-established and verified tool allows us to provide a consistent method of determining eligibility for financial assistance. We understand that you have concerns and will reach out to discuss further. Thank you.
One year before retiring in 2016, I was diagnosed in 2015 with CML Leukemia. Thanks to the generous support of Accessia Health, I felt comfortable that I could continue to battle the ups & downs of CML and not worry about co-pays when using my daily medication to control this disease. Without Accessia Health, I would otherwise need to dip into personal savings every month to cover my medical treatment. I am very thankful for your support!
Patient Services Inc, or PSI has greatly helped my family. Our son was diagnosed at the age of 4 with MPS 1, a progressive and degenerative disorder. His Enzyme Replacement therapy medication is astronomical in price. PSI allows us to be able to have a better quality of life for our family. Thank you so much for sharing!
PSI has been a huge blessing in my life. It allows me to afford better health insurance so I can get the medications I need to life a functional life.
PSI has meant so much to our family. 3 of us have a rare disease and the regular medications are very expensive. They help with copays so we can afford them. Also, when my husband retired and we lost his insurance, they began helping us with our insurance premiums. Whenever I talk to any of their staff, they are genuinely concerned and always helpful. They’re the best!
Without PSI there is no way I could afford the medication I need for my Hereditary Angioedema. Very, very thankful for this non-profit as it helps me to have a semi-normal life!
PSI has been a lifesaver for our family. My son was diagnosed with Fabry in 2008. Not all of his tests and procedures were fully covered by our insurance. The assistance received from PSI was a blessing and they continue to support our family with our Fabry journey.
PSI has not only been pretty much a life saver for me as I battle Pompe disease, they have also been a mind saver. Their help has allowed me to focus on my treatment and doing all I can to improve my situation and not so much the financial implications of a chronic disease. Another great thing is their constant quest to find ways to improve their services.

AccessiaHealth 10/21/2022
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PSI has been a blessing in helping with my life-saving medications. As a patient with a rare disease, my medications are also rare and very costly. Even with full insurance coverage, I was drowning in hundreds of dollars of co-pays every month. PSI has allowed me to keep taking my medication without the fear of going into major debt. They are incredibly accommodating, honest, and easy to reach for any questions and assistance.
Without the support of Patient Services, I would not have access to the medication I need to treat a life-altering condition. My health, finances, family, and quality of life would all be in tenuous peril. Their yearly support, makes it possible for me to recover from chronic attacks, and to continue to live and function daily with what otherwise would be a disabling condition. I am forever grateful for their partnership and providence to patients like myself.
Without PSI my daughter and myself wouldn't be able to afford even one of our life saving treatments. We go through multiple treatments a month and unfortunately have multiple ER visits due to our rare life threatening medical condition. PSI has given my daughter and myself the chance to live our lives to our fullest and not have to worry about not being able to have treatments on hand at all times.
Thank you PSI from the bottom of our hearts. ❤
PSI has been a godsend! They provide much needed assistance and their customer service is outstanding every time I call with a question. Thank you so much for helping people like me manage life with chronic illnesses!
Previous Stories
I have numerous serious ailments with one of them being CML. I was diagnosed with CML in 2003. The medication they prescribed was Gleevec and it was terribly expensive. In fact I cried when I went to the pharmacy to pick up my first prescription. We did not know how we were going to be able to afford this prescription. Shortly after this we learned of the PSI Foundation. They have assisted us with the cost of this medicine since then. We could not have handled this without their assistance and we are so thankful they were willing to help. They are a first class foundation and I pray that God will continue to bless them.
When I was diagnosed with a rare disease called Hereditary Angioedema, it was absolutely overwhelming. I was happy to be diagnosed, finally, after 30-years of searching for answers and grateful there were medications available to help me feel more normal. Then, I became terrified about the cost of my rare disease medications. That is when I was referred to Patient Services Inc. (PSI). Since then I have never had to worry about receiving my medications each month and I can focus my time and energy into being well. When I receive my monthly medication shipment, I feel such strong emotions of gratitude for PSI. Every single exchange I have had with PSI has been beyond professional and they are so kind and caring as well. PSI’s communication is superb, combining patient portal access and messaging. Thank you, PSI, for allowing me to have a mostly normal life these past five years and feeling well enough to enjoy my time with my husband, family and friends. I am so thankful for PSI's support and for allowing me to be well again.
They are keeping my financial head above water. But I still have not come to terms with the fact that I now have to accept charity. But at least my life continues. Great organization.
I learned about PSI at a conference and my life changed! Being diagnosed with Alpha-1 antitrypsin deficiency 10 years ago I've had to maintain a high costing insurance to cover the $10thousand a month infusion I need to slow the progression of my lung deterioration. Without their assistance to help with that insurance premium I would have had to make some hard choices between medicine or mortgage/food/utilities. They have truly been a lifesaver!
I would be completely lost without patient Service, Inc.
They are truly my life saver. It took years before I was finally able to get a medical diagnosis and to my surprise it was a rare condition I had never heard of, it was a very stressful time and to add to it I found out the cost of my treatments..... I wouldn't be able to afford even one treatment due to the high cost.. Because of PSI having a rare condition like Hereditary Angioedema doesn't have to be a death sentence, I'm able to get my life saving treatments that make it so I can be around to see my children grow up. They have amazing case workers that are so nice and helpful everytime I need to talk to someone. I am so blessed and grateful for everything they do for me any my family.
Thank you PSI!
PSI is a lifesaver. I was Diagnosed with a rare genetic disease, Fabry disease five years ago right after I purchase a new home. My treatments are over $40,000 every 2 weeks. I wasn’t sure how I was going to pay my mortgage,it’s only with the help of psi and I’m able to stay in my home and afford my treatments, medical bills and nursing services.
PSI has been such a relief financially since I was diagnosed with Pompe disease in 2013. My medical insurance has always been provided through my husband and we are so grateful for that. But PSI has been WONDERFUL in picking up my copays. Whenever I need to call them, they are SO pleasant and SO helpful. They are wonderful to deal with in my situation.
When you don't expect life to throw you a curve ball and you have to stop working and have two children to provide for, well, PSI has been a huge financial help! I love the organization.
I have had CML for several years and thanks to PSI I am doing fine and enjoying my life. I could not afford the high cost of Gleevec even though I am a med tech and work and made good money I would have lost all I had worked for and still could not have afforded the outrageous cost of the drug. PSI has paid my high copays and took that burden away from me. My family will always be grateful to them. The staff is excellent to work with and always helpful. PSI is the best!!!
It took many years and doctors before I was diagnosed with Pompe Disease. Then it was another three years before the treatment drug was approved by the FDA. I was so worried about the cost. My disability check would not cover the co-payment, or even come close. That's when PSI stepped up. Because of PSI, I have been receiving treatment for the past nine years without the stress and worry of paying. Actually without PSI's help, I would not be receiving treatment and would be in much worse shape physically. Probably, to be blunt, I would have already passed on to the next world. I cannot find the words to express my feelings for this great non-profit organization. Thank you!
PSI was there for.me when I was first diagnosed with CML. My health insurance would only pay a portion of the $10K monthly cost of medicine. Patient Services Inc paid all of my copays directly with compassion and took much of the stress of my cancer off my shoulders. Words of thanks could never express my deep gratitude.
My husband was diagnosed with CML a year ago. He was let go from his job a year and a half before this. The outcome with PSI has been exceptional and with the medicine Gleevic to consider for his condition money was an issue. I work part-time so money is very tight and hard to come by. With Gods help the doctors office directed us to PSI. They have helped us so much and as soon as I can get extra money I plan on giving back all I can. I know that this is not expected but and this point in my life, if it was not for PSI and God we would not have come this far. Thank you PSI and Thank You God for sending us to them.
I was diagnosed at age 50 with Fabry disease after many years of unexplained symptoms and misdiagnoses. Several other family members have since been identified with this very rare and strange disease. I was forced to retire from my company after 34 years. My treatment is complicated, time consuming and sometimes overwhelming. Without the help and support of PSI I don't know how I would have managed. I am grateful for all the wonderful employees with this great organization and the compassionate services they provide to those of us who face challenging illnesses.
When I was diagnosed with CML three years ago, my life expectancy was 6 months unless I took the very expensive drug Gleevec, which we could not afford. We were referred to Patient Services, Inc., enrolled with them, went through their financial evaluation, and they have subsidized our copay. I will have to be on Gleevec the rest of my life. With Gleevec, my CML is controlled and I am able to help care for my family and even participate in volunteer activities for inner-city children. I am thankful to God for Patient Services, Inc.
Review from Guidestar
I have CML a form of Leukemia, the treatment requires Gleevec an extremely expensive drug. Thanks to the extraordinary and wonderful help of PSI, I have been able to survive and cope with my Leukemia. Without them I wojld have fallen in plain desperation.
PSI and Dr. Khun its founder have helped thousands of needed people and he truly deserves my most intense gratitud.
Review from Guidestar
PSI provides a kind, caring, and generous work environment which enables staff to provide for the thousands of chronically ill patients we financially assist. I consider the PSI staff as a second family and know each and every employee by name. In our twentieth year, we have over 70 exceptional individuals on staff (serving more than 6,500 patients)!
AccessiaHealth 12/05/2024
We are very sorry to hear you were not satisfied with your experience at Accessia Health. We take all feedback seriously and want to assure you that we have communication policies in place that ensure patients are notified well in advance of any account changes. Should you have any questions about our notification policies, please don't hesitate to contact us at 800-366-7741. We hope you will consider us again in the future for your financial assistance needs.