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Phone: 713-493-7749
PO Box 29545
Atlanta
Georgia 30359
USA
Website
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Someone who had 3 hours of volunteer time could: Assist with research of grant opportunities; proof quarterly newsletters; assist with conference planning; assist with fundraising; and many more opportunities.

Geographic areas served: Global

Programs: HOPE Research Grants
Trainee Grants
Education Programs
Advocacy Programs

Mission:
American Partnership For Eosinophilic Disorders (APFED) is a non-profit organization dedicated to the patients and their families coping with eosinophilic gastrointestinal disorders. APFED strives to expand education, create awareness, and support research while promoting advocacy among its members.
Results:
Over this past decade, APFED has made a huge impact in all areas of its mission: education, awareness, support, and research.

- Educated patients, families, healthcare providers, and the public about eosinophilic disorders and how to manage them.

- Initiated groundbreaking advocacy efforts on the state and federal levels to help families secure insurance coverage for medical foods, and encouraged our governments to direct more funds to eosinophilic research.

- Played a critical role in encouraging the development of comprehensive guidelines for the diagnosis and treatment of eosinophilic esophagitis.

- Led the effort to develop ICD-9 codes for eosinophilic gastrointestinal disorders, which are crucial for insurance coverage of therapy and for ongoing research.

- Authored the bill for National Eosinophil Awareness Week (third week of May) and worked with the community to get it passed.

- Participated in the NIH working group that was assembled to define unmet research needs for eosinophilic disorders, and we were instrumental in publishing a report on these findings, charting the course for scientific breakthroughs.

- Thanks to the generosity of our supporters, APFED’s Hope on the Horizon Research Fund has granted nearly $1 million in support studies that are leading us to a better understanding of eosinophilic disorders, less-invasive diagnostics, and improved therapies. We have teamed up this year with the Allergy, Asthma & Immunology Education and Research Organization, Inc. (a supporting organization to the American Academy of Allergy, Asthma & Immunology, Inc.) to offer a APFED/ARTrust™ Pilot Grant Award. This collaborative award will allow investigators from a variety of disciplines to initiate new projects relevant to eosinophilic disorders, focusing on the development of ideas which are likely to lead to future external funding.

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04/22/14
I am a volunteer who raises money for apfed. but MOST important I am a mother of a child with EGID. these apfed support groups help everyday by giving muh needed support and guidance through this rare condition... more »
04/22/14
When Emily was first diagnosed at 10 months old, doctors recommended taking her off all food and beginning drinking elemental formula exclusively. We didn’t really know how to cope and daily functioning was difficult for not only us as parents, but understanding how to support our daughter. When ... more »
04/18/14
I can hardly believe that it has been almost a year since I was referred to APFED. My son had been diagnosed with EoE a few years previous but both his doctor and myself were not knowledgeable about the true nature of this disease. My son (now 9) was constantly sick. I was shocked as I began to ... more »
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