My Nonprofit Reviews
mhulse37
Review for APFED, Atlanta, GA, USA
My 3 year old son Jaxon was diagnosed with EE in February 2008. He was taken off all food and put on an amino acid based formula. APFED provided much needed support and information; which was critical for our family especially for the first few months. APFED has also helped us connect with support groups in both Arizona and California. APFED helps families appeal to insurance companies to get formula covered, provides outlines for Individual Education Plans necessary for schools, and organizes yearly conferences to educate and support families affected by Eosinophilic disorders.
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What I've enjoyed the most about my experience with this nonprofit is...
The yearly conferences. I have attended in Chicago and San Diego. The information provided and the classes given are wonderful and I have used them for reference many times.
The kinds of staff and volunteers that I met were...
wonderful. They share their experience and knowledge of this condition and really help provide the support I needed when my son was first diagnosed.
If this organization had 10 million bucks, it could...
Pay for the research necessary to cure this condition. Also help needy families attend APFED conferences and help pay for medical bills.
Ways to make it better...
The website was improved so easier navigation and load time.
In my opinion, the biggest challenges facing this organization are...
funding research and educating people. Many people have never even heard of this condition until they or their child is diagnosed.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010