June 23, 2010
APFED is an amazing organization that advocates for patients and families. When our son was an infant he was very sick. He was borderline malnourished and we couldn't figure out the cause of him being so sick. After numerous tests, scans and steroids our son had no change in his condition. At the age of 2 he was misdianosed with acid reflux. Our son was diagnosed correctly with EE at the age of 3 and then was removed from all foods at age 4. This was a drastic change in his life and ours. How do you tell a 4 year old that there is no more food in his world? Our family was gieven this information and then given the name of APFED as an organization that may be of help to us. The first day back from Cincinnati Children's Hospital I called the number to APFED and spoke to the president. She was encouraging and helpful and put me in contact with other families who were struggling down this same path. Through numerous conversations and encouraging words our family was guided down the path of adapting to a foodless world. When I expressed a willingness to coordinate a grand rounds, I was provided with everything that I needed to follow through with that objective by APFED. We were impressed by the dedication of APFED to families, to education, to initiatives and to research that we decided to hold a fundraiser for APFED. We had never taken on such a task before but we were driven on behalf of our son and on behalf of an organization that was instrumental in saving our family unity. We decided to hold a golf tournament and donate all of the proceeds to APFED. Wow! What an inspiring thing we did together as a family. Working together on this project helped to mend our broken and hurting hearts knowing that we were contributing and giving back to an organization that helped us more than words can say. We are now in our 6th year of holding a fundraiser and have raised over $80,000 for APFED. We are paying it forward and will continue to do so. APFED has made huge strides on behalf of patients and families and the least we could do is give back. APFED will always have a special place in our hearts for giving us the HOPE to keep on. Thank you APFED!!
I've personally experienced the results of this organization in...
I have personally experienced the results of this organization's commitment to patients and families.
What I've enjoyed the most about my experience with this nonprofit is...
that APFED puts patients and families first. This has been shown by their persistance to establishing universal codes that are recognized by the medical community in diagnosing patients.
The kinds of staff and volunteers that I met were...
extremely helpful and generous with their time. Whatever questions I had were quickly answered and when help was needed with certain situations, encouragement was offered.
If this organization had 10 million bucks, it could...
make a huge step in wiping out a disease that painfully affects so many.
How frequently have you been involved with the organization?
About every six months
When was your last experience with this nonprofit?
Volunteer & hold a yearly fundraiser.