June 24, 2011
My son was diagnosed with eosinophilic esophagitis when he was 3. It was a long road to finally receive his diagnosis and treatment. APFED has become a staple in my life. I received more information on this site than from my son's physicians. My family and I will be attending our 1st APFED conference this summer and we can't wait.
The Great!
I've personally experienced the results of this organization in...
As research continues, my son will always personally gain from this organization. Without APFED, I'm not sure others would really understand these disorders.
Ways to make it better...
If I had to make changes to this organization, I would...
None. It has provided me with all the information I have needed.
MY ROLE:
Client Served & I spent a weekend helping educate people on eosinophilic disorders the the Alive conference in Atlanta.