June 21, 2011
APFED and the information we have gained from the website, other parents, and related activities has been a tremendous help to our family in understanding our son’s diagnosis of Eosinophilic Esophagitis. The information provided to us through this website has been very comforting and served as a resource for other people in our community. The volunteers/employees of APFED are extremely helpful and timely in responding to any questions or information asked of them. My husband recently competed in a triathlon to help raise money for APFED. Julie Springer was extremely helpful in providing needed information and assisted him in anything he asked of her (sending a link for our family blog, posting on APFED website...). Thanks APFED for helping us on our EoE journey.
I've personally experienced the results of this organization in...
This organization has helped to strengthen our family's knowledge of this disease. It has also helped us to meet numerous other parents of children like ours. We have joined online support groups through meeting people from APFED. In addition, we are attending our first APFED conference this summer to learn more. We are very excited about learning more about this disease and ways in which we can help our son.
Ways to make it better...
If I had to make changes to this organization, I would...
Pray for money donations to allow this organization to continue in its awesome efforts.
General Member of the Public & I am a parent of a child diagnosed with EoE.