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colleen7

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APFED
June 20, 2010

Where do I start? When my son was almost 2 he had a endoscopy and colonscopy and I was told he had eosinophilic disorder. I didn't know what to do next. Thru researching on the computer we found APFED. Thru APFED I found the RIGHT medical people for my son. My son was given the right medicine. By going to the APFED conference I found out more about his disorder, what they were researching and could hear other families going thru the same thing. They are my second family. We help each other. Without APFED we would not have a National Eosinophilic Awareness week. We would not have medical coding. They also raise monies for research. APFED saved my eos son and many others. Thank you APFED.

Photos

The Great!

I've personally experienced the results of this organization in...

Helping my son be at the right hospital getting the right care. Caring about every eos kid no matter where they are seen. They help eos kids who go to different hospitals all over.

Ways to make it better...

If I had to make changes to this organization, I would...

More monies since we are not on the list for NIH for any federal funding.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

That when my eos child ever has an issue I can turn to them and get help in a minute.

The kinds of staff and volunteers that I met were...

wonderful and now part of my extended family.

If this organization had 10 million bucks, it could...

use it the right way. In giving it to research at ALL the different hospitals and raising awareness.

Ways to make it better...

they need more money for research and for awareness.

In my opinion, the biggest challenges facing this organization are...

That we need more money so that they can do more good for ALL the hospitals that are doing research.

One thing I'd also say is that...

without APFED I would truly be lost. I am blessed to have found them and thank them everyday. Last year when my son was 6 he held a fundraiser for APFED and again this year. Why? He wants all his eos friends to eat pizza one day.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Volunteer & Helped at conference - Did a fundraiser.