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1 reviews

Review for APFED, Atlanta, GA, USA

Rating: 5 stars  

My 5 year old son has an eosinophilic disorder, is currently off all food, and gets all of his nourishment through a feeding tube. Shortly after his diagnosis, I attended the APFED conference in Cincinnati. I learned a tremendous amount that has helped me care for him and make more informed decisions about his medical care. The community of support that APFED has brought our family and the education we have gained is invaluable. We are looking forward to this year's conference in Denver!

What I've enjoyed the most about my experience with this nonprofit is...

-the reliability of the information they provide. -unmatched expertise in EGIDs. -conferences and newsletters. -National Eosinophil Awareness Week. -We are thankful for the insurance codes AFPED worked so hard to get.

The kinds of staff and volunteers that I met were...

-passionate about their work.

If this organization had 10 million bucks, it could...

-work even harder to find a cure for our kids.

Ways to make it better...

-the website (especially the message boards) were more user friendly.

In my opinion, the biggest challenges facing this organization are...

-lack of understanding about EGIDs in the medical community.

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Role:  Volunteer & I helped with political action and gift shop.