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APFED
June 26, 2010

My five year old grandson, Jack, was diagnosed with EE three years ago. It is a challenging condition that effects the whole family in many ways. The information and support provided by APFED hwlped us all to learn about the condition and assisted in decisions regarding treatment options for Jack.

The Great!

I've personally experienced the results of this organization in...

I have valuable information about my grandson's medical condition and have learned ways help him with some of the challenges he faces.

Ways to make it better...

If I had to make changes to this organization, I would...

make the website more user friendly.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

learning both practical and medical information that can help my family.

The kinds of staff and volunteers that I met were...

I have only used their online services.

If this organization had 10 million bucks, it could...

provide more money for publicity, education, and medical research. Finding a cure, of course, is the ultimate goal.

Ways to make it better...

the APFED website was more user friendly.

In my opinion, the biggest challenges facing this organization are...

first of all, the fact that eosinophilic disorders are, for the most part, unseen and relatively unknown by the general public. Secondly, partly because of that situation, they face a lack of funding to achieve their mission of education and research.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2010

MY ROLE:
Donor & Donated funds.