I've personally experienced the results of this organization in...
Both of my children have eosinophilic esophagitis (EoE) which is a rare medical condition that is virtually unknown to most physicians who meet them for the first time. APFED has helped me to understand the condition which, in turn, allows me to educate medical providers and effectively advocate for their medical care. Networking with patients and physicians at APFED conferences led me to the team of physicians that now provides my children with care that is superior to what they previously received.
Ways to make it better...
If I had to make changes to this organization, I would...
I cannot think of any changes that I would make to the organization.
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