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PGTmom

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1 reviews

Review for APFED, Atlanta, GA, USA

Rating: 5 stars  

APFED is an organization that is vital to the education and support of families dealing with eosinophilic disorders, as well as treating physicians. Education, advocacy and the support of research have, together, increased the availability of appropriate medical treatment and the quality of life for patients.

I've personally experienced the results of this organization in...

Both of my children have eosinophilic esophagitis (EoE) which is a rare medical condition that is virtually unknown to most physicians who meet them for the first time. APFED has helped me to understand the condition which, in turn, allows me to educate medical providers and effectively advocate for their medical care. Networking with patients and physicians at APFED conferences led me to the team of physicians that now provides my children with care that is superior to what they previously received.

If I had to make changes to this organization, I would...

I cannot think of any changes that I would make to the organization.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

Role:  Client Served & I have attended two consecutive annual patient conferences, where I was able to network with other families and leading physicians.