I've personally experienced the results of this organization in...
getting my son diagnosed, and a treatment center being established in my region.
Ways to make it better...
If I had to make changes to this organization, I would...
Make the website more user friendly for those seeking more in-depth research and information past diagnosis. The website helped us incredibly to get diagnosed and understand what current treatment options were. However, my child seems to have a difficult case, and I would like to have easier access to any info that is more specific to hard-to-treat cases. If that type of info is on there, then I can't find it, so that needs to be changed. If it's not on there, I would love to see this type of info be added
How would you describe the help you got from this organization?
How likely are you to recommend this organization to a friend?
How do you feel you were treated by this organization?
When was your last experience with this nonprofit?
How did you find this group?
By chance! Just googling my son's symptoms!
What, if any, change in your life has this group encouraged?
How to get my son the best care and treatment available to him.