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rkjlr

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1 reviews

Review for APFED, Atlanta, GA, USA

Rating: 5 stars  

Our thirteen year old boy has EE.When our doctor gave us the diagnosis he told us to research it on the internet because there wasn't alot known about the disease.We were left feeling alone and scared.I started researching and found APFED.It saved us.We found the education and support we needed to help our son and they helped us find him the best medical care possible.Without APFED I would have gone into a depression and not have been able to take care of my son like he deserves to be cared for.They provide a conference every year full of support and new research on the disease.We are attending our first conference in Denver in a few weeks and my teen is excited to meet teens with EE for the first time.He will finally have support from other teens and this is all due to APFED.Thank you

What I've enjoyed the most about my experience with this nonprofit is...

The information I have received has been so helpful.The support and education far exceeded my expectations as well.Thank you APFED!

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

Role:  Client Served & I educated myself on the disease to help my son.