May 29, 2013
APFED is a wonderful and highly recognized nonprofit organization that has benefited my family for years. When my three children were newly diagnosed with Eosinophilic diseases we couldn't pronounce the name much less understand what the condition meant. I found an APFED flyer at our pediatric gastroenterologist's office that led me to their website. Once I got online and took a look around, I was encouraged to get involved with APFED. My main reason was because I felt like APFED knew how important awareness of Eosinophilic Gastroentestinal Disorders is to me and my family. Research for a cure is huge as well, but if people aren't aware of Eosinophilic diseases then they are less likely to donate to help find a cure. Another thing that I love about APFED is their desire to educate both families and medical professionals.
Ways to make it better...
If I had to make changes to this organization, I would...
Bring some of the children and families effected by Eosinophilic diseases in as ambassadors for APFED. We need to show the faces of Eosinophilic diseases. Take advantage of our teens who have had to endure life in school with these diseases. Implement a "big brother or big sister" approach for our newly diagnosed families. I have many ideas.
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