July 4, 2010
My name is David, I am 25 years old, and I have suffered with eosinophilic esophagitis my whole life. I can't eat any chicken, fish, tree nuts, or peas, beans, lentils (legumes) or I get terrible chest pains and I can't swallow. Also, in the early fall if I go running or exercise, I may feel sick and have to stop. These things may seem bad, but APFED has taught me that I am actually lucky, compared with others with my disease. I came across their message boards on the kids with food allergies website and soon found some videos on youtube made by the group. I learned about the many kids who have this disease. Some of them can't eat any food and have to have a feeding tube for nourishment. Some of them get sick even without food, if there's something in the air they are allergic to. I had no idea there were so many with the same problem as me. Watching these videos breaks my heart, but it also helps me cope with my own problems, realizing they are not so bad. The alienation I felt telling my friends I couldn't eat chicken throughout my life, is actually small in comparison to what some of these kids go through. I hope APFED will continue to grow so that the rest of the world will see how strong these kids are. I also hope APFED increases worldwide understanding of this disease, so that maybe some doctor out there can come up with some better solutions for these kids. Thank you APFED, keep up the good work!
I've personally experienced the results of this organization in...
My own personal struggle with the disease.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
MY ROLE:General Member of the Public & I have this disease, and APFED has helped me cope with it.