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Rhonda B.

Rhonda B. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits
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APFED
April 9, 2013

My son was diagnosed with Eosinophilic Esophagitis (and suspected lower EGIDs) when he was 10 months old. I had never even HEARD of Eosinophilic diseases.

So, naturally, the first thing you do when a new diagnosis is thrown at you.... I started googling this strange new disease. Medical sites had some information, but I still felt like I was in a very grey area between mass confusion and total clarity.

I came across the APFED site and immediately it became my go-to for information. The information on the page was what made me realize that our specialist at the time was not well versed in the disease and that we needed to find better help for my son. It also helped me to find my son's current team.
If I EVER have a question about my son's disease, I head on over to the APFED wesbite. They are full of up to date and accurate information, and I greatly appreciate the effort and time that goes into this site. I don't know where we would be without it.

More feedback

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

MY ROLE:
General Member of the Public