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June 28, 2010

My 22 month old son was diagnosed with EE at 16 mos old. There is not a whole lot of information available to parents who are trying to learn about this disease but through APFED, I was able to educate myself and my family on what our little guy was dealing with. This is a great organization that deserves additional funding and recognition. Go APFED!

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I have personally experienced the vast array of knowledge that APFED supplies.

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Client Served & I was able to learn about my sons rare diagnosis through APFED.