June 28, 2010
My 22 month old son was diagnosed with EE at 16 mos old. There is not a whole lot of information available to parents who are trying to learn about this disease but through APFED, I was able to educate myself and my family on what our little guy was dealing with. This is a great organization that deserves additional funding and recognition. Go APFED!
I've personally experienced the results of this organization in...
I have personally experienced the vast array of knowledge that APFED supplies.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
MY ROLE:Client Served & I was able to learn about my sons rare diagnosis through APFED.