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APFED
June 20, 2010

My son was diagnosed with a rare disease called eosinophilic esophagitis. Even his own doctors had no idea what this was or how to treat him. With APFED's help we not only educated his doctors but also have educated thousands of people in the community that had never heard of this before. It is only through awareness and education that we can find funding for research and ultimately a cure for the people who suffer from this. Through Apfed, I have met so many wonderful families that are going through this and I now know we are not alone in this fight. I thank God every day that Apfed goes out and fights for funding, educates the physicians so they know to look for this, and helps families who are struggling with this diagnosis.

The Great!

I've personally experienced the results of this organization in...

every aspect of our life. Without them there would be no coding for a diagnosis so our insurance could help pay for the medications and supplies we need to keep my son alive. They also provide training for the medical community.

More feedback

What I've enjoyed the most about my experience with this nonprofit is...

the support they provide for families struggling with the diagnosis of a rare disease.

The kinds of staff and volunteers that I met were...

the most caring and knowledgeable people I have ever met.

If this organization had 10 million bucks, it could...

teach the world about this disease that robs our children of the ability to eat and causes so much pain. They could donate enough money to researchers to find a cure for our children.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

MY ROLE:
Client Served & received valuable education and support.