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June 21, 2011

Apfed has been invaluable in helping us deal with our daughter's chronic disease. Their website alone is a tremendous source of information, covering topics from research, to education, to advocacy.

The Great!

I've personally experienced the results of this organization in...

Apfed helped us find other families with children with this disease, and specialists that know how to treat it.

Ways to make it better...

If I had to make changes to this organization, I would...

help raise more money for research!

More feedback

How would you describe the help you got from this organization?


How likely are you to recommend this organization to a friend?


How do you feel you were treated by this organization?

Very Well

How did you find this group?

internet searching

What, if any, change in your life has this group encouraged?

It helped us find doctors that were knowledgeable in this disease, which greatly increased my daughter's quality of living!

When was your last experience with this nonprofit?


Client Served & I received support and education when our daughter was diagnosed. .