I've personally experienced the results of this organization in...
Apfed helped us find other families with children with this disease, and specialists that know how to treat it.
Ways to make it better...
If I had to make changes to this organization, I would...
help raise more money for research!
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What, if any, change in your life has this group encouraged?
It helped us find doctors that were knowledgeable in this disease, which greatly increased my daughter's quality of living!
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