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lmrpeds

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APFED
June 28, 2011

As a mother of a child with EoE I know first hand the need for support and education, not only for my family but everyone we meet. Apfed was there when I most needed to learn more about this disease and encouragement to move forward. The many volunteers that donated time to make sure that I had the necessary resources to be the best advocate for my child was priceless. As a board member I am so very impressed with all the families that I meet that come together to advance the knowledge of this disease and know that dealing with this condition requires support on many levels. Apfed truly lives up to their mission and vision and continues to challenge the community to unite to advance the future knowledge of this disease with the outcome of providing a better quality of life for the families living with this disease.

The Great!

I've personally experienced the results of this organization in...

My family volunteers yearly to assist with the patient education conference

Ways to make it better...

If I had to make changes to this organization, I would...

This organization is doing a extraordinary job.

MY ROLE:
Board Member & Served as board member and annual conference speaker.