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Rochester Nonprofits and Charities

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Center For Disability Rights Inc

12 Reviews
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Rochester, NY
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kearnan

I am enrolled in the pooled trust spend-down with assistance from one of the Maimonides Cancer Center's social workers in 2018 or 2019. It has been a blessing for me as I have advanced breast cancer and am on a fixed budget with SSDI. <br> <br>I have had no bad experiences with CDR in Rochester. But one has to take responsibility and keep watch for what you send in to get paid and when the payment is due. So you need to keep an eye on your own expenses that you are submitting to check that they are paid on a timely basis. <br> <br>I have occasionally interacted with Marsha Sweet, Assistant Director, at CDR. She has always answered my questions quickly and has always been polite and professional. <br> <br>It is NOT a saving plans so you need to try and use the money you have in there every month realizing that they charge a $20 fee (which is minimal compared to other places). Once you pass away, or if you wind up in nursing home or hospice, it will be the end of the pooled trust bc you no longer have bills to pay. <br> <br>They are human and make errors occasionally like all of us. But each participant needs to check their own account to ensure bills are being paid on a timely basis. I have not had one issue with them, and phone calls/emails are responded to promptly. <br> <br>Realize once one passes, CDR keeps whatever money is in the pooled trust spend-down to help others in the same position. YOU DO NOT GET WHAT IS LEFT OVER BACK. <br> <br>I am grateful for the work they do.

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