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The Pain Community (a DBA of Women With Pain Coalition)

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Nonprofit Overview

Causes: Health, Public Health

Mission: To build and strengthen an active, energized and diverse community of people affected by pain by providing a foundation of support where education, wellness information and advocacy are promoted. TPC embraces, promotes, and educates people with pain about an integrative approach to management—an approach that is positive, hopeful, and empowering.

Community Stories

116 Stories from Volunteers, Donors & Supporters

1

Jim_171, Client Served

Rating: 5

09/24/2024

As a long-time caregiver, it helps to know there are folks out there who can help connect me to the resources and support I need. The Pain Community is my go-to organization.

1

Jim_171 Client Served

Rating: 5

09/24/2024

As a long-time caregiver, it helps to know there are folks out there who can help connect me to the resources and support I need. The Pain Community is my go-to organization.

Previous Stories
1

Client Served

Rating: 5

09/21/2022

As a caregiver of a loved one who has lived with pain for nearly 30 years now, having support is important. It is important for the person living with pain to be able to connect with others who live with pain. It is equally important for the caregiver to connect with other caregivers. Even though the pain affects the person in pain and the caregiver differently, the feelings each have are valid and most be validated. The Pain Community understands this and reaches out to both and provides support, comfort, compassion and empathy.

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1

Sad64 Client Served

Rating: 5

09/24/2024

Life is just plain hard when you live with pain. It takes a toll on the whole person, mind, body, and soul. It helps to have an organization like TPC out there for support and resources and more.

Previous Stories
1

Client Served

Rating: 5

09/11/2021

Living with pain is just plain hard. I am not just dealing with the physical pain but dealing with life in general because the pain affects all of me, physically, mentally and emotionally. The Pain Community's resources and the options for support makes it a little bit easier and for that I am thankful.

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1

Becca64 Client Served

Rating: 5

09/24/2024

It can be hard being a young Mom who lives with pain. It helps to have the folks and resources at The Pain Community to reach out to for support.

Previous Stories
1

Client Served

Rating: 5

09/29/2023

Living with pain is a struggle. You want nothing more but to live your life and the pain takes the control from you. It is so frustrating, heartbreaking and depressing. The folks at The Pain Community understand all of this because many of them live with pain. They not only understand but they are willing to volunteer their time to help others and that is truly amazing.

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1

Seth20 General Member of the Public

Rating: 5

09/24/2024

It is a nice organization run by volunteers who really do care for those living with pain.

Previous Stories
1

Client Served

Rating: 5

08/11/2020

I have found The Pain Community to be very compassionate and supportive. The website is full of great info and they offer a weekly support conference call. The blogs are about pain but also living a life of pain. The volunteers give so much of themselves and they live with pain also. Living with pain is hard, TPC makes it a little bit easier.

1

whitenox Client Served

Rating: 5

09/17/2024

It is a pleasure to share my interactions with The Pain Community. They are a smaller nonprofit where it is all volunteers and they have the biggest hearts. I don't get to interact as much as I would like to due
to depression from living with pain. However, I can promise you that you will have nothing but the best from those behind the scenes at TPC.

Previous Stories
2

Client Served

Rating: 5

09/29/2023

There are times in your life that you find yourself in a place you never thought you would be. That is how I felt about my journey with pain. It can start out on the lonely side if you don't know anyone else who lives with pain. That is why finding a place like The Pain Community online was like a ray of sunshine on a cloudy day. Not only do you find resources and education, you find others who live a life of pain. You also find some of the kindest people who volunteer their time behind the scenes.

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1

Writer Client Served

Rating: 5

09/05/2024

I found the support calls that The Pain Community offer weekly several years ago. It allowed me to get support & to give support. It gave me the chance to talk to other people living with pain who know what I live with daily. I don't get to join the support calls as often as I would like to --- however, I know that every Tuesday evening, come rain, shine, or pain that support call is there for me and others.

Previous Stories
1

Client Served

Rating: 5

07/18/2022

The Pain Community cares for not just the person living with pain, they also care about and include the caregivers.
They understand that even though the caregiver may not live with pain, they are very much affected by it. You see pain is not selective, it doesn't care, who you are or where you are. It doesn't care if you have a family or don't have a family or if you want to have a family.

It doesn't care if you are a single parent or a two parent household where both must work in order for the family to financially be okay. Pain doesn't care if you are young or old. It is a vicious monster that robs normalcy from the person living with the pain, the caregiver and the families. It takes from all and keeps taking and taking and taking.

The Pain Community understands every one of these things. They understand because many of the volunteers are people who live with pain themselves. They are fighting the same fight that everyone else who lives with pain is fighting. They get it and because of that, they treat everyone with compassion, understanding and empathy.

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1

TAB55 Client Served

Rating: 5

09/05/2024

Living with chronic pain & illness is just plain hard. It tries to take over, it steals your energy, and it wants you to be isolated and sad. The Pain Community gives myself and others ways to support each other. The support calls are great, you hear their voices and the emotions in their voices. While social media is a place to meet others in pain, it isn't the same reading typed words as it is when you can talk to them and hear them talking to you.

Previous Stories
1

Client Served

Rating: 5

07/18/2022

Sometimes it is the little things that make the biggest impact in our lives. Having someone willing to just sit and talk to you. No expectations, no time limit, just someone listening to you talk about how the chronic pain has affected your whole life. A voice on the other end of the phone line, telling me it was okay to cry, it was okay to be frustrated and sad and angry and so much more. That voice that had absolutely no judgement in it. That voice that cracked a little because she was crying with me and for me. That is what I found at, The Pain Community, and that meant more to me then I could ever explain.

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1

TeresaS56 Volunteer

Rating: 5

09/05/2024

I have been a volunteer with The Pain Community since the beginning. It is important to me to reach out and help those who live with chronic pain. So many are isolated and do not have support from family or friends and that is hard on the entire person, physically, mentally, and spiritually. I want people who live with pain like myself, to know that there are others out there and we are here to support them. The Pain Community platform allows me to reach out and be there for others.

Previous Stories
1

Volunteer

Rating: 5

09/29/2023

As a volunteer at The Pain Community, I am humbled each day to talk to those who live with pain, they fight the pain so hard to just have somewhat of a normal life. I am proud that TPC offers the support and resources that those in pain need to better care and advocate for themselves.

1

Grey44 Client Served

Rating: 5

09/05/2024

I am a caregiver to a chronically ill partner. It is just so hard to see someone you care about hurting and there is nothing you can do to stop the pain. The Pain Community understands what it is like to be a caregiver and they support and advocate for the caregivers and that means the world to me.

Previous Stories
1

Client Served

Rating: 5

10/12/2022

Being a caregiver is hard and sometimes we can be forgotten about. While we are not the ones living with pain, what we do for our loved one or friend is hard work. It isn't just taking care of them, it is having to watch them suffer and not being able to do anything about it. We sometimes get frustrated and that can be taken as if we don't care. It absolutely is not that, those who we care for, need to understand that while they physically live with pain, we are also affected by the pain.
The Pain Community recognizes caregivers as being an important part of the team and understands the frustration that we feel and that the pain does affect us, just in differently ways.
If you are looking for a nonprofit to donate too, The Pain Community is the one. They are all volunteers who are there because they want to be and they want to help.

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1

Yvette13 Board Member

Rating: 5

08/21/2024

Another year brings another opportunity to highlight what a great organization The Pain Community is. I continue to be a board member (now Chair), volunteer, and donor) with TPC. I continue to advocating for and support those with chronic pain. As a social work educator, I have taught students and health care professionals about the importance of affirmative, integrative pain care practice. TPC remains an important commitment for me and is my go-to chronic pain consumer information and support organization. There still is so much work to be done to support people with pain. I'm glad I'm able to continue serving them through TPC!

Previous Stories
1

Board Member

Rating: 5

09/01/2023

I'm back to give my testimonial about what a great organization The Pain Community is. Yes, I continue to be a board member and volunteer (and donor) with The Pain Community. I believe very much in its mission. I'm so glad to be a part of advocating for and supporting those with chronic pain. As a social work educator, I also teach students and health care professionals about the importance of affirmative pain care practice. TPC remains my go-to chronic pain consumer information and support organization and it reminds me that there is much work to be done to support people with pain. I'm glad I'm able to continue to advocate through TPC and beyond.

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1

JG64 Client Served

Rating: 5

09/29/2023

It is always an honor to share my story regarding The Pain Community. They have been there for me as a caregiver to someone who lives with pain. They recognize that it is not only the person living with pain that is affected, it is also the caregiver. It is so hard to watch someone you love struggle day to day with pain. There is not a lot you can do for them and that is frustrating. The stigma that goes along with being a person living with pain is so wrong and we need organizations like The Pain Community to help stop this stigma so people living with pain can get the treatments needed to function daily.

Previous Stories
1

Client Served

Rating: 5

09/08/2021

The Pain Community supports me as a caregiver, as well as my loved one living with pain. The Pain Community understands that the pain affects the entire family/friend units. We may not live with pain but the pain impacts us as the caregivers. TPC understands the caregivers need support too.

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1

Cliff - B Client Served

Rating: 5

08/30/2023

I have been with the Pain Community now for many years and still find great value for my ongoing joinery with my pain. The weekly call in support line is one of the great values I get from the Pain Community among other information that is provided. They are truly one of best nonprofit organization out there. Anyone who maybe struggling with the ongoing joinery of pain or a care giver who needs help this is a great organization to be apart of.

Previous Stories
1

General Member of the Public

Rating: 5

08/05/2021

The Pain Community is a wonderful place to be apart of. They give great information that is very helpful and are always there to help. The chats they have are also wonderful and so very helpful to hear the people who are going through what you are going through so you don't feel alone. I have been a member for many years and have found it to be so very helpful.

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1

Sissy11 Client Served

Rating: 5

08/29/2023

The Pain Community may be a smaller organization but they have what it takes, "volunteers who really care!"
Their volunteers live with pain themselves or are in the health care world of pain. They volunteer for all the right reasons, they truly want to help with support, compassion, empathy and education.

Previous Stories
1

Client Served

Rating: 5

09/08/2021

The Pain Community is a smaller nonprofit but it is solid as a rock and is there to really help people living with pain. The resources are up to date and the ability to actually talk to others on the weekly support calls is priceless. It helps to know that we aren't on this pain road alone.

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1

Dot56 Client Served

Rating: 5

08/29/2023

It is always a pleasure to share my story with The Pain Community. It takes some really special people to dedicate their time as volunteers time after time. That is what you have behind the scenes at The Pain Community. They don't do it for any other reason but because they want to help all those living a life of chronic pain and chronic illness. They may be a small group but they sure have the biggest hearts of anyone.

Previous Stories
2

Client Served

Rating: 5

09/11/2020

The Pain Community absolutely far exceeds my expectations and that is why I want to share my story. A person who lives with pain has a life that is constantly changing. It is hard to plan for anything even simple everyday things like going to a grocery store or for a doctor appointment. Now we are living within a pandemic and it just got so much harder to be a person living with pain and chronic illness. Like so many I am scared and my anxiety was beyond high and I decided to try one of the weekly support calls and let me tell you, what a wonderful experience it was. The moderator on the call was understanding and patience with me as I had a full on anxiety attack as we were talking. She was calm and spoke softly and compassionately and helped me slow my breathing down. She also used a distraction technique that I had never heard of to help me calm. She asked me to name 5 things I could see, 4 things I could feel, 3 things I could hear, 2 things I could smell and 1 thing I could taste. She was so patience with me and her distraction technique worked and helped me so much. We continued to talk and the more I listened to her soft voice, the calmer I got. I just want her and anyone who reads my story to know how much her being there on the other end of that phone line that day meant to me.

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1

Ann64 Client Served

Rating: 5

08/29/2023

When you live a life of chronic pain and illness you can and do feel isolated from day to day life. Even through all the ups and downs of this messed up world, I know that I can count on The Pain Community to be there for me. The support calls are there every week and even though I don't always get to go every week, it is just knowing that they are there for me when I can or need to go. That is what makes them my go too for support, education and they always make sure that I know that I am seen, heard and my journey is valid.

Previous Stories
2

Client Served

Rating: 5

09/11/2020

I just wanted to stop by and once again share how much The Pain Community means to myself and others who live with pain. The Pain Community isn't just another non-profit, The Pain Community was brought to life by a group of volunteers who live with pain, work with people who live with pain and care about people who live with pain. These volunteers continue to work to support and give of themselves despite their own pain. If you are looking for a great organization who cares about you The Pain Community is it! If you are looking for a great non-profit to volunteer with, The Pain Community is it! If you are looking to donate to a non-profit and want to know exactly where the money goes and how it is used then The Pain Community is it, they are totally 100% transparent. The support calls that The Pain Community provides every Tuesday of the week, is not just a support call, it is a safe place to share, a safe place to be yourself and to share your life with pain. The moderator has lived with pain for over 20 years and she is caring and supportive and real.

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1

PainAdvocateVolunteer Volunteer

Rating: 5

08/05/2023

This is the place to look for a variety of resources and references new and old. The volunteers behind this nonprofit are a welcoming group who are generous with their time. They encourage people to share their talents and skill with others by submitting blogs, adding to the resource lists and participating in the chats, telephone support calls and discussion forums.

Previous Stories
1

Board Member

Rating: 5

09/29/2022

I’m proud to volunteer with THe Pain Community to advance efforts to promote Comprehensive Integrative Pain Medicine (CIPM). More and more research underscores that the most effective way to manage acute and chronic pain is to use a multi-modal approach incorporating things like massage, acupuncture, prescriptions, nutrition management, prescriptions, interventional procedures and many other things identified in a partnership between healthcare providers, caregivers and the person living with pain.

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MABrown21783 Board Member

Rating: 5

09/29/2022

The Pain Community has a dedicated group of volunteers who care deeply about those who struggle while living with pain. It is these individuals who are attempting to redefine the life of pain by pointing the way towards wellness allowing others to thrive to their best ability. Working together with others concerned about pain management is key and an essential model in the fight to promote best pain practices by healthcare providers and push back against the unfair stigma from those in our society who do not understand the unnecessary suffering that results from untreated or undertreated pain. I am proud to know and work with all who work with TPC.

2

Noki5 Board Member

Rating: 5

09/21/2022

As a person living with pain and a volunteer board member, I see both sides of The Pain Community, the support for clients served and the hard work put in behind the scenes by the volunteers. Living with pain in these days and times isn't just living with pain, it is living with a huge stigma. People with pain are only trying to live their best lives with some sense of normalcy. The Pain Community understands the stigma those with pain live with and the life of a caregiver.

Previous Stories
1

Client Served

Rating: 5

07/05/2019

The Pain Community may be a smaller nonprofit but the people behind the scenes who volunteer have great big hearts. They do what they do out of compassion for those who live with pain. The Pain Community offers the one on one approach and that can mean so much to someone who lives with pain and has felt alone for a long time fighting the pain. It takes real special people to volunteer so much of their time to help others and The Pain Community has those special people.

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1

cleyland Board Member

Rating: 5

09/19/2022

The PAIN Community provides important education and support for those who live with pain.

1

LadyT64 Volunteer

Rating: 5

07/18/2022

I volunteer with The Pain Community. It is very rewarding and helpful with my own pain journey. Volunteering allows me to share what I have learned over the past 30 years on my own pain journey. It is a safe place, with empathy, compassion and support.

Previous Stories
2

Volunteer

Rating: 5

06/27/2019

I am a person living with pain and I volunteer with The Pain Community. I have found by helping others who live with pain, it helps me deal with my own pain. People who live pain need a community where they can feel safe, where they can feel compassion, where they can feel understood. The Pain Community offers all that and so much more. I feel honored to be able to volunteer with The Pain Community.

1

E-5USMC Client Served

Rating: 5

09/11/2021

Before I found the Pain Community, I felt alone with the pain I have suffered with for 36 years. The knowledge and friendships that have I have developed let me have hope. Depression goes hand in hand with chronic pain and it can sweep you up and carry you to a place where you would rather take your life just to end the pain. I now have friends that I can reach out to when I get close to that edge and their friendship and love will let me hang on and lift me out of depression. Thank you Pain Community for being there.

Previous Stories
1

Volunteer

Rating: 5

10/22/2015

I have suffered from chronic pain since 1989 and I had to give up my career as a US Marine. Over the ensuing years, my body has continued to find new ways to experience pain. Pain that never leaves me 24/7 365. Chronic pain and depression go hand in hand and as pain worsened, my depression followed suit. I was in a very dark place in my life and had all but given up, on the verge of committing suicide. I stumbled across this organization and became a member of the chat room. Through this and the excellent information, I began to understand my pain more and ways to counter the pain. The staff members helped me find ways to communicate to my VA Care team. I have my depression under control and no longer consider the choice I came very close to making. I can say truthfully that TPC saved my life. I now attempt to repay the debt I owe them by volunteering as a moderator for the chat room.

1

Carolyn124 Volunteer

Rating: 5

09/10/2021

I've been working with The Pain Community since 2012 and with the people who run TPC for much longer than that. I've never known a more dedicated group of people who truly care about people living with pain--because we all live with chronic pain as well.

Previous Stories
2

Volunteer

Rating: 5

03/06/2017

I've volunteered for The Pain Community since its inception. I live with chronic pain myself and the services provided by TPC are crucial for those living with this disease. The chats and forum provide me a way to share with others who truly understand what I'm going through. They are positive and uplifting and give me hope. I've known the volunteers, board members and many of the participants for nearly 15 years and they are some of the best people I know.

This organization runs on a shoestring and deserves the support of those able to give it.

Carolyn Noel

1

TeresaS. Volunteer

Rating: 5

09/08/2021

My time as a volunteer here at The Pain Community has been so rewarding. I am humbled by the strength that those who I interact with have. They are living the best life they can while managing the chronic pain. They have so much support and compassion for others living a life of pain. Each week on the support call I have the honor to hear each of them reaching across the phone line to offer support and empathy to each other. It is always about how each of them can help each other and it is amazing to be a part of that.

Previous Stories
1

Volunteer

Rating: 5

07/05/2019

I have been living with pain for the past 28 years. I have found renewed strength in my never ending fight to stand up to the pain by being a volunteer with The Pain Community. Being a volunteer allows me to focus my energy on helping others who live with pain. TPC has many ways to volunteer and I urge others to visit the website and check out the different ways you can volunteer and help yourself while helping others.

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1 dcspeeckaert

dcspeeckaert Client Served

Rating: 5

09/08/2021

The Pain Community has been a great resource for my husband who lives with chronic pain and has been doing so for many years. The community has provided him great support through their resources such as the chats, networking with other members, friendships made, support from other members. The Pain Community continues to be a wonderful resource for my husband and for others who may need the community and the services and resources they provide.

Previous Stories
2

General Member of the Public

Rating: 5

03/26/2017

The Pain Community has been a lifeline for my husband who has become an active member on the phone chats. The community has given him an outlet to connect with others who have and live with similar experiences.

1

Painnurse77 Board Member

Rating: 5

08/15/2020

The Pain Community provides a place for people to learn how to advocate for themselves; learn how to participate in their healthcare and find a place where they are accepted. This safe place is open to all, gender, race, ethnicity and beliefs. In a time where gender identification has come to the forefront, we at the pain community embrace all and provide a safe place.

We also are very diverse and welcome new thoughts, ideas and are open to discuss barriers to pain relief and try to assist in removing those barriers. The assistance comes in the form of empowerment by providing tools for all. We believe in wellness, using integrative and holistic approaches.

I am proud to be a board member of The Pain Community and offer everyone the tools and support needed. The online presence removes transportation barriers while providing resources miles apart.

1

Maggie62 Board Member

Rating: 5

08/15/2020

The organization’s website is a wealth of resources for everyone in pain community; Patients, Caregivers, Nurses, Social Workers, Doctors, Researchers, Healthcare Providers and you! In addition to research resources, there is a Pain College with learning modules and slide decks to help everyone add pain management tools to their toolbox.

Previous Stories
1

Volunteer

Rating: 5

07/17/2018

So many great resources are packed into the different Resources tabs of this web based support option for people with pain AND caregivers and clinicians that are part of a pain care team.

The chat room is great for people with hearing impairments to be able to interact in real time.

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1

clbjr24dcs28 Client Served

Rating: 5

08/12/2020

The Pain Community is a outstanding and extremely wonderful place to talk with people who are going through what you are and help each other. The weekly chats which I attend our wonderful and helpful to me. I have read other groups like them but none have that feeling of caring that I get from the Pain Community that is my opinion. I have recommended them to my other friends who need help. One of my doctors gave me the information to them and I am so glad as it has helped me as I said before. My doctor was happy I joined and encourages her other patients to join as well. They truly are a credit to the us who are members.

1

DJ2020 General Member of the Public

Rating: 5

08/11/2020

What set's The Pain Community apart from other non-profits is the volunteer's. They volunteer because they truly care about all of us living with pain. They understand a life of chronic pain because they live with chronic pain. The volunteers take what they have learned on each of their journey's and they openly share the ups and downs, the good and the bad and it is raw honesty. The support calls each week are open discussion and the moderator ensures that everyone who is on the calls has the chance to talk and share and that is important.

1

Karen K.3 Board Member

Rating: 5

05/04/2019

TPC is continually supporting people in pain and is totally transparent. Current issues and concerns are addressed in a safe haven for all. I believe in the vision, mission and activities of TPC and would not be involved if I didn't believe in the organization. This great resource is free and accessible to all. A diamond glistening with hope and acceptance.

Previous Stories
1

Board Member

Rating: 5

10/25/2018

The Pain Community is an extremely valuable resource to provide education, assistance, support and a sense of community. Many of those using the site are unable to travel due to monetary, physical or other reasons. This wonderful site allows discussions, blogs and educational information to promote wellness. As a board member I believe that this non-profit reaches into hearts and home providing hope, a sense of community and a belief in the members. Also as a healthcare professional I believe that the website is crucial to wellness on all levels.

2

AlissaKay General Member of the Public

Rating: 5

10/24/2018

One of the best nonprofit organizations around. Great feedback and I love the blogs that are posted.

1

KayAlissa Board Member

Rating: 5

10/24/2018

The Pain Community an amazing organization. I have enjoyed working with each of these individuals for the short time one been with them.

1

kaydiene Client Served

Rating: 5

10/24/2018

The Pain Community is a fantastic organization. I enjoy the content and being able to love to chat with someone via the Live Chat feature.

1

kballe General Member of the Public

Rating: 5

10/20/2018

My mom and brother benefitted greatly by being a part of this organization. The volunteers helped them find solutions to pain management when doctors could not. They fight the good fight, making sure that those in debilitating pain can find the doctors, the medications, and the routines that'll best help them stay mobile.

1

Melissa L.3 General Member of the Public

Rating: 5

10/14/2018

This is an amazing organization and thank you to all of the hardworking people making it so successful.

2

Micke B. Board Member

Rating: 5

09/05/2018

This is the only pain organization in the nation for people living with pain who wish to be more informed about living a life of wellness and learn how to build a personalized pain tool kit using integrative pain relief methods. TPC connects, cares and listens!!

Previous Stories
2

Board Member

Rating: 5

03/14/2017

I am proud to be one of the founding board members of The Pain Community (TPC) and privileged to work with some of the most amazing people I know. The TPC mission is a passion from all who donate tireless volunteer hours to help others with pain live a life of quality and fulfillment to the best of their ability. Seeking wellness and integrative pain care options is the home of this non-profit---all are welcomed.

2

Lenniebeth Board Member

Rating: 5

03/30/2017

I am proud to serve on the board of The Pain Community--the only pain patient organization in the nation that embraces an integrative model of care.

2

Writer Board Member

Rating: 5

03/30/2017

The Pain Community is an organization truly dedicated to being a resource for people suffering from chronic pain. The website is a constantly growing resource that shines a spotlight on the latest as well as tried and true resources potentially helpful to pain survivors. What works for one, may or may not work for others, but by sharing our stories, we can be helpful to others. And their stories may be helpful to us. Methods of coping that we personally have not previously tried may be just what we need. Helpful tips in blogs are always worth a try. The chat room is a place where we can listen and share as we are comfortable. By sharing, we help ourselves and other pain warriors, by listening, we may learn new coping methods.

2

susanalden General Member of the Public

Rating: 5

03/15/2017

The Pain Community taught me about having a "Pain Toolbox" to "store" strategies for pain management. What a great idea!

Previous Stories
1

General Member of the Public

Rating: 5

10/01/2015

The Pain Community is a valuable source of information and fellowship for those who live with chronic pain, and for the people who love them.

2

Writer General Member of the Public

Rating: 5

03/13/2017

The group chats have been a vital part in my rehabilitation. It is so important to be able to talk to other people who have similar challenges with chronic pain. Everyone who participates in group chat is positive and the moderators do an amazing job of keeping spirits up even if we are discussing a difficult topic. Although we don't all have the same issues, each person provides new insight into some of the challenges we each face dealing with chronic pain.

1

Writer Client Served

Rating: 5

10/29/2016

The pain community has helped me so much. I feel very supported

1

jenn62483 Client Served

Rating: 5

10/29/2016

The pain community is great for people with pain. It's a great way to get support and have some one to talk to.

1

Jess08 General Member of the Public

Rating: 5

10/29/2016

The Pain Community offers support and so much more. The online community is there so people with pain can talk and interact with others who truly understand a life with chronic pain.

1

Writer General Member of the Public

Rating: 5

10/27/2016

I had never been disabled by pain before. With the progression of my condition and a significant increase in pain, everything changed. Many of the activities of daily living I'd always taken for granted were no longer easy to do. Just getting around and tending to all our basic needs became a struggle. Managing all the changes became a challenge. TPC and Teresa's conference call community provide a special weekly rest-stop on this difficult journey. On her call, Teresa has established an atmosphere of camaraderie..an environment that is healthy and responsive to the needs of people with chronic pain. It is a stress-free environment where people can relax and feel at ease just being who they are. Like its facilitator, the community is made up of caring people who, in mutual support, share with and inform one another in many important and positive ways.

1

Shirly H. General Member of the Public

Rating: 5

10/24/2016

The many great people at The Pain Community are always available to help you in your time of need with Chronic Pain. I, myself have been the lucky recipient far too many times to count. They give so much more than just plain old effort and the benefits to you will be enormous. World Wide Care Is Available To You. Reach Out. Shirly Reid

Previous Stories
1

General Member of the Public

Rating: 5

10/22/2014

Albeit a relatively new organization, I can attest to the credibility of all who make The Pain Community what it is. Having worked with many of them in the past, I can tell you that this is a very dedicated group of caring people who educate and advocate those and theirs living with pain, be it acute or chronic. Kudos to TPC! Onward and upward!

1

Horizon18 Client Served

Rating: 5

10/21/2016

TPC is a wonderful organization of fellow chronic pain warriors. It's so good to be supported and give support to others who suffer. I thank Teresa for her amazing work running the support groups.

Chall152

Chall152 General Member of the Public

Rating: 5

10/21/2016

I have been dealing with Chronic Pain for years and The Pain Community has helped me in a lot of ways. I have MS and RSD and the pain is like no other pain. The Pain Community (a DBA of Women With Pain Coalition) is a great site in helping others who deal with a lot of pain issues.

Writer General Member of the Public

Rating: 5

10/21/2016

A great group of volunteers who always offer support, compassion and education.

1

Writer Client Served

Rating: 5

10/29/2015

I am new to pain and it is hard to find trustworthy information online. The Pain Community refuses to give out any information that they cannot verify as being trustworthy. That gives members peace of mind and that means so much. As a person with pain I have enough to worry and stress about. The Pain Community helps me, help myself.

Larry V. General Member of the Public

Rating: 5

10/26/2015

I found TPC to be helpful and encouraging, great website.

Writer General Member of the Public

Rating: 5

10/26/2015

The Pain Community is amazing. The website is super easy to use and they care.

1

Writer General Member of the Public

Rating: 5

10/26/2015

It is great to have a website that helps people living with pain.

1

Ena M. General Member of the Public

Rating: 5

10/26/2015

The website at TPC is easy to use and is very helpful for people in pain.

1

Amy_248 General Member of the Public

Rating: 5

10/26/2015

The people who volunteer behind the scenes at TPC truly care about people who live with pain.

1

pocketfullblues Professional with expertise in this field

Rating: 5

10/24/2014

I do not normally review a group or non-profit organization however, I believe that this advocacy group deserves some credit for their actions in the field of pain. I've been a national advocate for Reflex Sympathetic Dystrophy a.k.a. Complex Regional Pain Syndrome since 2000. I have had some time to review most of the information found on their website and I am thankful that the group as a whole is dedicated to providing information and support to the underserved pain community. I hope that TPC will continue with the same level of information, support and advocacy for the pain community. Best of Health,

1

Angela106 Client Served

Rating: 5

10/23/2014

As someone who has lived with chronic pain since 1996, this group has been invaluable to me. They have several learning tools that really do help. I've been able to take the lead in my medical care and put together a team I am happy with rather than letting doctors do what they want and have doctors who do not communicate with each other. I learned, with the help of TPC, to ask the more important questions of my doctors and let the little ones go until a later appointment. And in the chat room, I've made a lot of good friends that I really prefer to call family because they really are there for me whenever I need them, just like family would be. When my grandmother passed, they were there. When both of my in-laws passed, they were there. When the daughter of another member graduated, as many of us could got together to celebrate. And most recently, when I found out I had lung cancer and through my struggle to quit smoking, they have been there for me, so the people from the admins to just the users, go above and beyond to help one another. Everyone who joins is family!

1

sarr Professional with expertise in this field

Rating: 5

10/22/2014

Individuals with pain need support and so often have a hard time finding it. They often are surrounded by family and friends who just do not understand the impact the pain is having on them and by healthcare professionals who may not believe that their pain is as bad as it really is. The type of supportive community offered by these dedicated professionals and volunteers is invaluable to chronic pain patients who are lucky enough to find this organization.

1

md484 General Member of the Public

Rating: 5

10/22/2014

Passionate group of folks doing great work with great skill and heart.

1

Cindy153 General Member of the Public

Rating: 5

10/22/2014

I have lived with chronic pain for 15 years now and as a person who suffers with several life altering conditions that cause constant pain every day, I actually stumbled across the pain community by accident, so I thought at the time. I wasn't going to stay in the chat because I felt it wasn't for me and 1 particular member convinced me to stay and come back the next day. I did because really deep inside it was the first time that SOMEONE cared about me and understood the horrific pain that I was in!

I had lost my marriage, friends, employment etc. because of the pain I had daily and I had a daughter that suffered in other ways because she had a mother who had to be medicated all day every day just to survive. Over the course of a few months I found a forever family. Still to this day I have a fantastic pain family who supports not only me but my family members as well.

Many of us have grown very close and have even made it a priority to get together in person on several occasions, and I know that if I am ever in dire need, in pain, need an opinion, need to vent or just lonely I can call, come to this website, facebook, and I can get immediate support 24/7. I owe my life to my Painiac family and I can't imagine a day in my life without them.

Thank you to all the painiacs who have made my life worth hanging on to. Thank you to those I may not know but have prayed for me or kept me in your thoughts. It is wonderful to know you have a place to go! I pray that we can continue sites like this one that can reach out to many others who are in pain or even have similar sites for other problems in peoples lives!

1

Kimberlee2 General Member of the Public

Rating: 5

10/22/2014

My mother lived with chronic pain for the last 10 years of her life. The folks of the pain community were a blessing for her and for me. Although these folks have been associated and supportive under other organizational names, they have maintained the integrity of the group and supported the dignity and integrity of those in pain. I salute them. I thank them.

1

Radene C. Client Served

Rating: 5

10/22/2014

Being alone when you are sick or hurt is horrible. Having a chronic pain condition means you are both. The Pain Community is a wonderful place of refuge for those of us who deal with devastating pain 24/7 (and for those who just have it bust in on their lives once in a while, too). Here there is always someone comforting another and when you reach out, many who respond quickly and support with whatever it is that you need in comfort and help. I love them!

1

DMHudzinski Volunteer

Rating: 5

10/22/2014

The Pain Community is here to help those in pain find their voice and speak out for compassionate, quality and just treatment of pain. They have chat rooms for those who need to talk to someone about what they are going through. Blog posts that stimulate discussion on a variety of topics related to Pain and the management of pain. Educational materials to help inform and educate the person in pain and the general public. Discussion forums and a lot more. I support The Pain Community as a volunteer and serve on the steering committee. I receive a lot of personal and group support and I am kept up to date with the latest news and research on pain issues. This is not a place to whine about pain...it is a place to advocate for self care and advocate for the best treatment possible for your pain. If they don't know the answer they will hunt for it until they find it.

1

imdacutie Client Served

Rating: 5

10/22/2014

Excellent community for chronic pain. Have received so much support from everyone and haven met a few fellow painiacs!!!! Ive made it through some tough times with this community of people and hope ive returned in kind. Excellent! !

1

lraldrich60 Client Served

Rating: 5

10/22/2014

The Pain Community is a great organization for emotional and educational support. Plus it is a non-judgmental place to be able to "vent" with others experiencing similar issues.

1

markmaginn Client Served

Rating: 5

10/22/2014

This is a great and growing organization for people like me who live daily with unspeakable pain. It gives good information, & good support for those in pain as well as their caregivers.

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