I have the honor of being National Program Director for Mended Little Hearts and a volunteer with my local chapter, MLH of Central VA. I love the way this organization connects people and provides hope and support in some of their darkest hours. Mended Little Hearts has many amazing programs to raise awareness and educate families. Most of our services are free to hospitals and families, and our chapters are 100% volunteer-led. As a Heart Mom, this organization has made a very positive difference in my life.
I have taken part in their yearly symposiums and recently became involved in my local chapter as well. They are an amazing resource for information and support and do a great deal for CHD patients and families. This organization is a real lifesaver!
MLH is an amazing organization run by wonderful people that make a huge difference in the CHD community. The support and friendship you receive from other heart families is lifesaving during difficult times. There is no other CHD support organization like MLH
Mended Little Hearts, has been a great help to our family. June 19th we found out our 3rd daughter would be born with Hypoplastic Left Heart Syndrome, which would mean she would need at least 3 Open Heart Surgeries. Well Trinity Aurora was born on August 23, 2013 which was 3 weeks early, and was the day President Obama was in Binghamton, so we joke that she had to come and tell him to go back to Kenya LOL. She had her Open heart surgery at 5 days old. Soon after surgery she ended up with a Yeast Infection that a week later turned into a STAFF Infection, so she has been fighting those for 4 weeks now.
We are been at Strong Memorial Hospital since Aug. 24, 2013 and there is a Mended Little Hearts group that meets right here in the hospital every Wed. for coffee hour at 3pm. They are also having a family day on Oct. 20, 2013 from 1 to 3pm at a horse farm, which will be really fun. Any questions we have they have been able to answer, and its nice just having other families to relate to.
Mended Little Hearts is an amazing organization for many reasons. I learned about MLH when my son was about a year old and had already undergone two heart procedures. I was blessed to know my family was not alone. After learning about this wonderful organization for 3+ years I've run my own chapter in Chicago and recently had a very scary and unexpected hospital stay with my son. It was an amazing feeling to know that after years for helping out heart families, I was the one receiving the support, love and care from the families who really understand. You will never feel alone facing CHD! Support, awareness and advocacy for CHD all in one place
After the birth of my second heart son, and feeling ALL ALONE..... I decided that I needed to do something for heart families and let them know they are NOT ALONE. Shortly after my decision, I was introduced to Mended Little Hearts- and what it offers families with heart kiddos. I said "THIS IS IT". I took the bull by the horns and started a MLH chapter in my local hometown of Appleton. I met so many heart families, I educated them on living with heart children, I opened the eyes of the community to what CHD means, and I let everyone know they are NOT ALONE! Although I made a difference in my community, I helped other heart families, I spread awareness to physicians, elected officials and the general public- nothing can TOP what MLH did for MY heart and for my family. It helped me "heal" while helping other!! Mended Little Hearts is a great non-profit that I am honored to say "I am a part of"! HOPE~HELP~HEALING~
Mended little hearts has been with our family every step of the way since our son was born in May of 2012 with a CHD. When you have a baby that is sick and in the hospital it really helps to find other families that have gone through similar situations and just talk to them. It makes life a little easier when families can map our journey and have some of the same doctors and can tell us what did and didn't work for them. The events are great for the families to get together, for siblings to play together and to talk to different doctors and get involved in the community. There is just so much support!
My son was born with a heart defect and I wanted to find others (parents and adults with heart defects) that I could talk to. I found Mended Little Hearts online and was so excited to find a caring community of people that knew what I was going through. The support and advice we have received have been so helpful!
Until you have a child with CHD you cant possibly understand what it is like. Mended Little Hearts has been a huge support for me for the past 7 years. My son has had 2 open heart surgeries and I couldnt have gotten through it without other CHD moms.
I am mom to two children with congenital heart defects. For many years, after my first CHD child was born, I asked our cardiologists and nurses for support group information, and was told there was nothing in our area. After the birth of my second CHD child 10 years later, I began looking outside of our region and seeking assistance on a national level. Mended Little Hearts offers wonderful connections and educational programs, as well a great guidelines for providing support to other famiies. We now have a Mended Little Hearts group in our area, and I am so very happy with the love, answers, and support they provide!
My son was born with TOF and we had no idea until he was 2 days old. At the time I did not know about this group. We did not have a local chapter. I felt so alone. I did find this group when he was 2 and became a member and we now have a local chapter. This group not only provides me with support, but has connected me with families that I am able to show support to. The amount of information they make available is amazing. MLH is a part of my life now and I couldn't it without them.
When our son was born in 2009 with a complex and life-threatening congenital heart, this organization connected with other families who had children with the same diagnosis. This connection provided us with much needed encouragement and hope as we began our journey. It was due to this experience and connection with other heart parents in our area, that we started our own local group, which is part of this national organization.
At 2.5 months we found out my son has tetralogy of fallot, pulmonary atresia, multiple collateral pulmonary arteries, and a cleft tricuspid. He has had 2 open heart surgeries and has been in the or 7 times. We spent 86 days in the PICU at strong memorial hospital. Mended little hearts helped us a lot throughout the process. Without Mended Little Hearts we wouldn't know half of what we do about my sons condition.
My son was born in 2009 with a congenital heart defect and I was so blessed to find this amazing organization shortly after his birth. The support, education, and information that I needed to get through the crisis time and find hope, help, and healing. Mended Little Hearts has been my rock for the past 4 years and I'm so thankful for them. Connecting with other families who have walked the same journey has been invaluable.
I am currently 30 weeks pregnant with a baby girl and at 20 weeks we found out she has a critical congenital heart defect. She only has a single ventricle, pulmonary atresia, tricuspid atresia, ventricular septal defect, and transposition of the great arteries. Before our diagnosis, I had never heard of any of these conditions, and then I found out that nearly 1 out of every 110 live births is a baby with some form of CHD. Mended Little Hearts is an organization that does so much for raising awareness, research, and giving families of children affected by CHD so much hope.
This is a great organization, whose goal is to provide support to families living with congenital heart disease and those who have lost a child to CHD. They provide training to parents of CHD children so that they can visit families in the hospital and help them through their difficult journey. They also provide resources and items to families in need, in the hospital and at home. I knew of their work for years, before becoming a member volunteer, from working in a pediatric cardiology office. Seeing the positive impact that they had on some many families inspired me to become more involved and I am so very happy that I did....even through the sad times...it just motivates all of us to bring more awareness to CHD...awareness equals research funding...which leads to advancements in treatment...which saves lives!!!! Very trust worth organization, with chapters across the country that serve the specific needs of their community!!
Review from Guidestar