Thank goodness for the Open Medicine Foundation. They are giving me and millions of sufferers and their families hope that one day there will be treatments for ME/CFS and maybe a cure. This disease has been ignored by doctors, governments and society for far too long. We the sufferers have felt abandoned as we endure one of the most disabling diseases there is.
I’ve had ME/CFS for 26 years. I’ve been bedbound for the past 18 months. I’m 62. Time is running out. I want to live my life.
OMF are giving this disease the recognition it deserves. Their team of amazing researchers are working around the clock for answers.
Thank you !!
Open Med is one of the most important nonprofits. The information is immensely helpful for those suffering and working through fatigue issues in their body. I will continue to support this foundation and their ever expanding work for years .
An amazing organisation giving hope to millions who have been left behind. All my fundraising and donations go to them.
Open Medicine Foundation is an amazing nonprofit organization! I am an identical twin and I have ME/CFS, but my twin is healthy. We are participating in studies that OMF are supporting. One of the GREAT things about OMF is that all research is shared on a data base with all of their researchers. This type of collaboration is allowing them to make great strides in their research. They have some of the most brilliant research minds in the Scientific community. I was a Professional Ski Patroller when I became ill with ME/CFS. Doctors where of no help! With my limited abilities due to the illness I had to do my own research. Thankfully I came across Whitney Dafoe's video's that his family had placed online and was able the get my diagnosis. What this organization has done in the past 4 years is extraordinary! Their dedication to this illness and the support of the patient community (that are so disabled) is remarkable!!!
I'm a monthly donor to OMF and I truly believe in their success in curing ME/CFS. There are dozens of legends working in OMF collaboration teams!
This organization has given me hope for the possibility of recovery for both myself and others. I have been dealing with ME/CFS for over a decade and it brings tears to my eyes to see the great work Open Medicine Foundation is doing for so many who continue to suffer invisibly. Research is key. Understanding this illness is key. They are doing ingenious work with covid-19 long haulers and I hope they continue to do so to unlock the mystery that is MECFS.
The OMF are literally keeping me and millions like me alive. They are my only hope of ever getting even some of life back. I’ve been completely suicidal depressed due to this disease but knowing that 0MF work so bloody hard round-the-clock trying to find answers and treatments for us, always brings me back from the brink. They are the most amazing people on this planet and care so much about helping us when everyone else neglected and stigmatised and left us to rot for decades without any hope whatsoever. Many patients have committed suicide in the past. Thanks to OMF we now have hope that things will get better. That we will live again. I cannot praise OMF highly enough. They are saving my life. They are saving of millions of people‘s lives.
Thank heavens for OMF!! For those of us with ME, it often feels like the entire scientific community is ignoring us. OMF changed that by bringing together a passionate, brilliant group of scientists and helping them secure funding for their incredibly important research.
M.E. is a desperately underfunded condition given the extent of suffering caused by the condition. The OMF is giving millions of sufferers hope where there was none.
The best hope for ME sufferers globally. OMF tirelessly does great work and deserves more recognition and funding.
OMF is leading the way in ME/CFS research. They bring hope to the millions of us worldwide trying to survive this debilitating illness. It takes everything from you. People with severe ME are some of the sickest people in the world. We need more research, we need treatment or a cure, and OMF will be the ones to crack it. They are a dedicated team, some with the first-hand experience of loved one's fighting ME/CFS. They work tirelessly. I honestly can't think of another research team as dedicated as they are.
OMF give us hope that there is a better future out there. A chance to get our lives back.
This is one of the only organizations trying to help fight for people with ME/CFS. I really appreciate all that they do. I have had the disease for 5 years and they give me hope.
continuously researching ME/CFS and giving patients hope!
OMF have given me and my partner (who has ME) the most hope. We could be years off a cure yet, but to see the work they are putting in, and to trust they are giving it everything they have means the world to us. We are in our late 20s, everyday we wish with all our heart that a cure will come soon, so we can still enjoy being young together and start thinking about having a family of our own one day.
COLLABORATION. A powerful way to achieve results, when researching a disease so complex such as ME/CFS - and collaboration is in the core of the work at OMF. This NGO has already achieved groundbreaking discoveries and will continue to do so, aiming at finding treatment for the symptoms and hopefully a cure. My son and millions of other patients follow OMF’s work, which they share with their community on a weekly basis. I am part of their translator’s team, who help them reach patients, caregivers and the public in general in many countries around the world.
In the 24 years I have had ME/CFS OMF has given us the most hope. They share their research openly, use their funds as well as they can to maximise the value they get from them, have people involved who have a personal interest in seeing a diagnostic test and cure for this devastating disease. They are working for their loved ones as well as all of us. They work tirelessly, take every opportunity to raise awareness and bring help to a substantial number of people who have had lives devastated by this horrible illness. My daughter is 30 and has had the illness since 13. All her dreams on hold. We are both house and bedbound. To know that OMF are tireless and dedicated to helping us gives us more hope than we've ever had. Thank you OMF.
I am a mother of two small children- a preschooler and a baby. This disease has devastated my health, some days I can barely walk. I now need help caring for my precious children. I was young, fit, and very healthy when I got this disease. It can happen to anyone! Yet there is a horrific lack of understanding and no treatments available. Suicide is 8x higher for us. We need help! Our lives are passing us by. OMF is the only organization that I know of that is dedicated to a cure. Forget politics, forget who gets “credit”- OMF cares solely about a cure because the people that run the organization both have severely ill children. The organization is “open” meaning anyone can see their data and help solve this disease. Their recently published study brings us closer to a bio marker. The research coming out of this organization is some of the most important of our time.
Open Medicine Foundation are taking my health seriously with their excellent hard working projects, while others goes in circles and arguing about old missfeild arguments.
They listen to the patients experience, where other doctors choose to not listen. And from that OMF find importante emperi and ideas for there work and goals.
OMF have great scientists that are willing to fast track research with their open data policy. They give me hope there will be a cure for ME during my lifetime, even though I'm 48 and ME patients have a 13 year shorter lifespan. I've had ME since early childhood and want to experience a life where walking, eating, breathing and sleeping aren't as exhausting and painful.
I am a 32 year old male with ME/CFS. I can barely walk much during the day, I push myself to work some small part-time jobs where I can sit and work, which still tires me out. This itself is difficult due to the cognitive dysfunction cfs causes patients, such as in my case.
Every day is like climbing a mountain, as soon as I wake up the morning stiffness is so severe my body almost can’t keep up with the pain.
The researchers investigating, finding, and presenting bio-markers that have validated CFS are all directly affiliated with the Open medicine foundation.
Their published scientific research and articles demonstrate the hard work and innovation they are bringing to the table to deal with this difficult challenge.
They are also actively looking for a cure, sympathetic to the needs of the CFS patient community.
In a way for many, OMF serves as a beacon of hope, or even our last bastion.
They have taken blood samples from me (and even my healthy relatives) many times and have run tests on them for their comparative studies, so I can personally say they are actively working on a day to day basis for the needs of the CFS community.
Please donate generously. Hopefully your funds can lead to a break through in one of the most devastating and debilitating sicknesses a person can deal with.
This organisation is conducting much needed biomedical research into ME/CFS. the work that they're doing gives hope to be and millions of other sufferers that I've day there maybe be treatment or even a cure.
I am a mother of two young children struggling with this very debilitating and devastating disease, OMF brings real hope and understanding to my life. Thank you, thank you OMF.
After 37 years of this illness, we finally have an advocate with power. Thank you, OMF, for bringing hope to this forgotten population.
The Open Medicine Foundation is comprised of the best and most dedicated scientists, bringing hope to millions of people.
I was 28 when I got this horrible disease ME/CFS. That is now 2 years ago. I can´t work and live the life I want to have. OMF is the onliest Organisation who has the power and knowledge to help us. But they need more funding!!!!
My wife has been sick with ME for about 5 years. Like most people with ME, she cannot work and has had to give up most things from her previous life. There is no diagnostic test, no cure and no FDA-approved treatments. Government funding for ME is next to nothing. OMF does top quality and groundbreaking research and is the leading the way and is the standard-bearer for ME research. They are by far the best hope for the millions of people who have had their lives trashed by ME/CFS.
My brother is tortured by this terrible disease. OMF are giving a little hope to him and his close ones, by their research. Their scientists seem really great, both competent and having an honest desire to solve the mystery of ME/CFS.
I Will Tell You This
About Myalgic Encephalomyelitis:
When the pain is unbearable and my muscles cannot take anymore I am too exhausted. I need to lay down away from sounds, light or any distress. Seeking comfort and try to relax. Hoping for better days and results from OMF biomedic research...
Because there is no cure yet!
WE WANT TO LIVE! So please join in for more biomedical research in M.E.!
I have suffered from ME for 28 years. Due to this illness I have lost a career, the chance to get married and have a family. I spend most of my time housebound, and alone. This is not the life I envisaged in my twenties. My life effectively came to an abrupt stop at the age of 27.
During the last 28 years there has been very little research into ME/CFS, particularly biomedical research. The Open Medicine Foundation are one of the few groups of researchers working in this field. Research gives ME patients hope, the OMF gives us hope.
Please let's not loose yet another generation to this dreadful illness because of lack of research. Support the OMF.
The Open Medicine Foundation funds top scientists to study one of the most neglected diseases of our time.
Myalgic Encephalomyelitis (ME) is often called chronic fatigue syndrome (CFS) even though it is recognized by the World Health Organization as a debilitating neurological condition. Research has shown that ME/CFS is more disabling than MS, congestive heart failure and end-stage renal disease. It is estimated that more than 1 million Americans have the disease and several millions worldwide. There is currently no FDA-approved treatment for ME/CFS and little is known about the illness.
The Open Medicine Foundation is dedicated to change that. It engages with the ME community and brings patients and researchers together in their quest for knowledge and answers. Most importantly: it brings high quality science to the field of medicine that needs it the most. I myself have been ill because of ME/CFS for more than 10 years. It has left me disabled, uneducated and homebound. There are millions like me suffering. Please support the Open Medicine Foundation and help find a cure for ME/CFS.
I have been ill with ME for 28 years, but because of no knowledge of this disease among physicians it took 15 years to get the correct diagnosis. In the meantime my condition deteriorated, to a level where I can no longer work or take care of myself. Open Medicine Foundation is supporting long overdue research on this neglected disease.
The Open Medicine Foundation is successfully bringing together some of the most gifted scientists and doctors in the world to collaborate on research to find the cause and possible treatment of ME/CFS, a devastating chronic illness that has historically received very little research funding from the US federal government and that has been largely ignored by the medical establishment. As a private nonprofit, it has made great strides in recent years in generating important scientific insights about the disease, raising awareness about ME/CFS within the scientific and medical communities, and giving hope to ME/CFS patients who have been neglected for far too long.
I have donated to this organization and will continue to as they give me hope with their collaborative research efforts.
My name is Diane and I was diagnosed with ME/CFS 28 years ago. Because of the poor advice I received from physicians (including Mayo Clinic) that I was just deconditioned from a bad virus and should go back to work and do graduated exercises, I went from having a moderate case of CFS to very severe. I could no longer work at all and my parents had to take care of me as I was bed ridden for 20 years. Then they both became ill with lung cancer, and I had to somehow take care of them. I was never able to get married or have children because I was never able to improve- there is absolutely no treatment or cure for ME/CFS. We're just told it's all in our head and go home and deal with it. I still am mostly housebound and unable to work. But there are caring researchers out there who are finding that it is a true physiological disease and NEEDS proper funding for research. Open Medicine Foundation is the ONLY hope people with ME have to get a proper diagnosis and treatment, as they encourage several research groups from around the country to collaborate and share information (rather than competing for funding) so that research for a cure can be found more quickly!!
I am so happy and encouraged to learn about Open Medicine Foundation- it's such an inspired idea which gives me great hope in speeding the effort to find a cause/cure for ME/CFS. I have battled a severe form of CFS for 27 years, along with my mom who was also diagnosed with it. Thank you for all you are doing on our behalf!
It's a shame for all nations of the world!
Despite very little public funds, Ron Davis, founder of Open Medicine Foundation, has managed to establish an excellent research center with a great number of renowned scientists and collaborations with top scientists across the globe. You can see the impressing list of collaborating universities, scientists and research centers on OMF's website.
OMF is real science! OMF is efficiency! OMF is hope for millions of desperate patients terribly suffering from ME/CFS! In a few years OMF has achieved more than other projects in decades!
OMF is one of the most important and efficient foundations in the world! Not only for ME/CFS-sufferers, but for all patients suffering from chronic diseases and for the benefit of whole mankind! It has deserved much more (financial) support!
Open Medicine Foundation OMF is a great organisation that gives hope to millions of suffering MECFS-sufferers. Actually it's a shame that organisations like OMF have to do the work official institutions like NIH should do. But official institutions don't care preferentially about the suffering of patients but about their budget, profit and public reputation. OMF is not dependened on political guidelines. The main purpose of OMF is to help patients suffering from MECFS. With their diligent and highly qualified staff including top-scientists OMF finally wants to clear up the mystery of MECFS and wants to put an end to the inhuman ignorance and neglect of severe ill patients by official departments.
Provides hope and science for a population of patients that has a long history of stigma and neglect.
Opening up for medical progress, connecting medical professors from all the world to solve a devestating desease keeping kids (and adults) from participating in their own lives.
The Open Medicine Foundation currently provides the strongest hope that researchers might find a cause and treatment for ME/CFS. Funding for the illness is woefully inadequate. The collaborative nature of the Foundation’s work increases their power and reach. This illness causes unimagineable suffering. We must advocate for those who are too ill to advocate for themselves.
Hello, I’m Jean and I’ve had ME for 30years, since I was 38. For many years I was able to live a relatively normal life, using the pacing technique of working out how much I could do in a day and then doing only 75 per cent of it. This worked well except for the days when I failed to pace myself and paid the price by crashing and having to rest, in pain, until I was back to 'normal'.
Over the last few years I have become more ill, having to rest nearly all of the time, and I now become extremely exhausted after a couple of hours spent with friends or family. I’ve also realised that my doctor doesn’t believe that ME is a real illness making me realise that there is no possibility of my medical problems being treated knowledgeably and purposefully. I only see my doctor when I have an easily identified illness that I’ve had before, now. The Open Medicine Foundation has given me hope that my disease will be understood and recognised one day. They are the reason I can hope for a better future and I love to read about the research they are doing.
The story of ME/CFS is so amazing and is really a material for a suspense movie. Before this illness I thought plots in movies are a bit exaggerated. But... I met some real heroes and fighters for justice and the truth. People of the OMF are fighting hard and don't give up even when the odds are against them. MILLIONS of ME/CFS sufferers are drawing hope and strength from their efforts. We are alone, helpless and forgotten but what we do have are the best scientist on our side who are not in it for fame and glory.
I am 20 years old and have ME/CFS. That means I can't live my life and even typing this is mentally and physically exhausting. OMF is doing incredible work for us the Millions missing, who are neglected by the govts. Theyre the reason for many patients not to lose hope because of the great research they fund!
Hope for the hopeless. OMF are producing champagne results on shandy money. Their pursuit to find answers is as unrelenting as the disease they aim to cure.
Open Medicine Foundation is doing groundbreaking research in ME, a serious desease that has gotten too little attention from the medical community. They are close to a break through and deserves support.
Open Med has brought hope to the millions of people with ME/CFS with their commitment to sound science, new technology, and big picture thinking.
When I came ill with ME/CFS about 15 years ago, I only vaguely heard about this disease before that; I was told this would be for the rest of my life and that I had to stop hoping for a cure. (??)
I never ever wanted to give up hope, because, really, hope is the only companion I have left while trying to live 24/24 7/7 in this horrible nightmare which this life-quality-stealing-disease is. I thought I was a lonely warrior in this battle, until I discovered OMF. Every time my hope is running low, I read one of their many articles about their achievements and efforts to get scientists worldwide work together in finding a cure. and then a little bit of hope for a cure in the near future sparkles again in my heart. I'm so grateful !
Actually the Open Medicine Foundation is a miracle. Not funded by any authority groundbreaking research is being done by an unprecedented and still increasing number of scientists from all over the world into a disease - ME aka CFS - about which in practically all countries little to none is known and which accordingly almost everywhere is classified as psychosomatic, with a detrimental impact upon its sufferers being stigmatized and treated as creating and maintaining their own disease (which untreated can be lethal)
No wonder all eyes from patients all over the world and the hope of numerous of them
are fixed upon the researches being done thanks to the unrelenting efforts of this marvellous foundation
Excellent research. Timely public information. Not many other places to turn for this kind of effort.
OMF is my hope that in a near future I will be living again, sharing lost years with my husband and sons. Those scientist are my daily strength and support.
Sick with ME. Increasing knowledge about the disease.
Gives me hope! I am really inpressed with their work
Probably the most important organization in medicine today.
An organization that gives hope to people with #MEcfs worldwide. We believe in you and your breakthrough in science.
Greetings from Germany and the Netherlands! Sonja - I am ONE of #MillionsMissing
OMF gave me hope of a cure as when I was first diagnosed there was very little research/progress being made and then the end ME/CFS project came about, the work they are doing made a massive difference to being able to see an end in sight when I was severely affected, mainly bed ridden.
Being collaborative across the world and having focus on getting to the root cause(s), potential treatments, sharing of information with other researchers rather than writing papers and being published is something that really stands out.
They also do some excellent advocacy work
A medical group like no other, working for the ME/CFS patients and giving us hope unlike any other group or physician. After 34 years of disability with no cure or treatment, we NEED hope and great research. PLEASE HELP US.
OMF is a nonprofit organization that i support beacause they are very focus in finding a medecine to cure the ME. They are very well structure they have a lot of great reserchers that work for that cause. They need help in any means espacialy money.
I am sick of ME for 21 years and i am 59. My life for 21 years it is not a life.
The Open Medicine Foundation deserves the highest praise. It is an organization with a big heart that listens to, communicates with, and learns from patients. The impressive research team headed by Ron Davis is totally dedicated to finding answers as fast as humanly possible to a complex, horrible and neglected disease. For many patients and their families, they are the main source of hope. Anyone who contributes to this organization knows that the money will be spent carefully and strategically, in the interest of patients not careers or egos.
Hope that someone is paying attention
Hope that someone is DOING something
Hope that one day doctors won't victimize patients
Hope that a blood test, treatment, and cure is possible
Hope that lives can be restored
Hope that families can be reunited
Hope that despair will end instead of lives
I consider Open Medicine Foundation a leader in research for myalgic encephalomyelitis /chronic fatigue syndrome. Its origins are parent based. When a child is in danger there is no greater strength or focus.
Our son was diagnosed August 2015 following a four year flu that has slowly and painfully taken away his hopes and dreams. One by one. He remains hopeful but realistic about the roadblocks that our government continues to put in place preventing meaningful treatment or cure.
The first information we had about ME/CFS was a July 2015 video about Ron Davis, Janet Dafoe, their son Whitney and daughter Ashley. Little did we know the parallels our lives would share. But there was hope. We soon learned about Open Medicine Foundation and their commitment to fund research to end this horrid illness that has taken our son captive. OMF's President and CEO, Linda Tannenbaum is another parent with skin in the game.
Every opportunity we have, we give to this organization of parents trying to save our children. Cash, Amazonsmile, cars, family donations, offering outreach in our area and more. There is no research organization we trust more to find the answers. Today OMF is hosting a global conference for researchers followed by a Community Symposium for to public. It is sold out. Open Medicine Foundation has tremendous credibility in the ME/CFS world. They are the "good guys" who continue to make connections and fight for our son.
As a CFS/ME sufferer OMF has given me real hope in a cure being found. Their philosophy of sharing data and collaborating with other scientists globally to develop theories and research methods to find the cause and ultimate cure of ME/CFS is exemplary. They are not driven by monetary profit or personal recognition, but by the true desire of improving the lives of all CFS/ME sufferers worldwide.
As a ME/CFS suffer for nearly 3 decades, OMF is the reason I keep pushing onward. I dont know what the future holds for us patients, but OMF surely has given us more hope than any time in the past. Ive seen how little research is done, decade after decade. No one worked on this illness as a collaborated effort until now. OMF continually updates us on all the work they are doing. Continue to fundraise, and hold conferences globally. It is because of them, we see a small glow of light at the end of a tunnel of endless hell.