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Mfrances

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1 reviews

Review for Open Medicine Foundation, Agoura Hills, CA, USA

Rating: 5 stars  

If I could give OMF 10 stars I would!! OMF offers the first real hope for persons with ME/CFS (myalgic encephalitis/chronic fatigue syndrome). It is doing groundbreaking research into ME/CFS, making discoveries in a very short time, with no federal funding. Dr. Ron Davis of Stanford and his research team at OMF (which includes 3 Nobel laureates) are brilliant. Dr. Davis’ son is extremely ill with ME/CFS, so he will do whatever it takes to find an answer.

My life essentially stopped 18 years ago due to ME/CFS. I had to quit work, am mostly homebound and my activities are primarily limited to essentials of daily living (food, laundry), and even those often with difficulty.

ME/CFS has been compared to end-stage AIDS in its level of debilitation, only we live with it for years and years and years. And yet the medical community at large has ignored, neglected and even ridiculed those with ME/CFS. Almost no government money has been spent on ME/CFS research and in fact research has been discouraged - more money is spent on male pattern baldness. The medical community’s non-scientific, nonprofessional and extremely ignorant stance is in stark contrast to the commitment and brilliance of Dr. Davis and the OMF team. The ME/CFS community is beyond grateful to Dr. Davis and OMF.

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