Open Medicine Foundation

OMF is the single reason why a lot of people around the globe don’t lose hope for a better future. Their support of research for ME/CFS is invaluable. They are at the cutting-edge of research and tackle this disease with all they have got. There are many millions of suffered world wide and studies have compared the quality of life of people with ME to that of other diseases like lung cancer and HIV, and ME had the worst QOL. The necessity of supporting this amazing non profit organization can not be stated enough!

My wife has developed severe ME/CFS. We have three young children and she is bed bound except for going to the restroom. She has to wear noise blocking ear muffs all day, is unable to read, write, draw, or watch video due to the stimulation that makes her symptoms worse, and can whisper for 5-10 minutes a day and cannot listen for more than 15 cumulative minutes throughout the day. The OMF is leading multiple research efforts to understand and treat this debilitating illness and I am extremely grateful for them.

OMF is a great organization for people living with MECFS
it really needs to be supported more in order to find solutions for this devastating disorder!

Chronic Fatigue is a shockingly under-studied condition with such high impact on people's quality of life. It is disgraceful that it is not sufficiently recognised or understood.

Of all the charities, I feel that OMF are the most forward thinking and pushing the boundaries of research. Their work gives me hope and should be supported as much as possible. That is why I donate to them even there are more local UK charities.

It would be nice if it were easier for people to donate out of the US.

No charity is more dedicated to curing/treating ME/CFS. For many years, OMF has coordinated the global effort into ME/CFS research. Thier data is made publicly available and they empower and encourage scientists around the world to pursue novel approaches and to take thier research and build on it. Backed by the brilliant Dr. Ronald Davis (nominated for a Nobel prize for his contribution to the human genome project) , who has a personal vested interest in this disease, their mission has been a beacon of hope to millions of people too sick to advocate for themselves. Their work is the first line of defence for many patients like myself who have personally been victim to the misinformation that surrounds ME/CFS and that has infected even the medical professionals tasked with our care.

There's no disease as debilitating, prevalent and unresearched as ME/CFS and no charity better poised and equipped to make a lasting difference on the wellbeing of humanity

Open Medicine Foundation is making a real difference in the understanding of ME/CFS and funding research to identify the cause and develop a cure.

The Open Medicine Foundation is at the forefront of scientific research into the causes of and potential treatments for ME/CFS (more widely known as Chronic Fatigue Syndrome) and Long Covid. It also works to inform and educate the medical community so it better recognizes these illnesses.

ME/CFS is a devastating chronic illnesses with long-lasting symptoms that include severe pain, fatigue and impaired cognitive function. The symptoms of these illnesses affect not only the ability of patients to maintain employment to support themselves and their families financially, but also their ability to maintain relationships with friends and family, to have and to raise children, even to leave their homes and their beds. Despite how devastating ME/CFS usually is for patients, research into it is severely underfunded relative to disease burden. Patients are underserved by the medical community, as many doctors do not know how to diagnose let alone treat them.

This is where the Open Medicine Foundation has stepped in and filled an enormous gap. It has recruited some of the brightest minds in science to research the illness, led by Ron Davis, the renowned geneticist at Stanford. It has brought together a scientific advisory board that is comprised of highly respected biologists, biochemists, geneticists, immunologists and physicians. It has created and funded ME/CFS research centers at Stanford and Harvard in the US, as well as in Canada, Australia and Sweden.

Open Medicine Foundation represents the best hope ME/CFS patients have that this grave illness will finally be understood and become treatable, even curable.

OMF are doing an amazing job of carrying out the research needed to help millions of people across the world who struggle with ME/CFS. They help the community feel seen by sharing the stories of those with the condition and also reach outside of the community by raising incredible awareness. I am proud to support OMF in their work.

Open Med Foundation has support for me, as a patient with ME/CFS, and resources for those near to me, as well. They keep me up to date on research and give me hope that some day things may be better. I point people to their site often for more info on ME/CFS and Long Covid… those people include my own doctors!!

I have had CFS/Me for over 25 years. It’s a lonely & difficult journey coping with the syndrome.
Thankfully, I found the Open Medicine Foundation. It has helped me immensely.
OMF is the only organization that’s has given me guidance, along with emotional & physical support for many years.
I routinely visit their website. When I do that, I find nuggets of information that propels me to try different approaches to aid me in my quest to feel better; it works.
What is most impressive is that they reach out to me constantly on a personal level.
It’s hard to describe what that does for me.

As I continue my life with this dreaded syndrome, I can’t thank OMF enough for making me live with hope for a better future.
OMF certainly deserves any help from any organization in its quest for a cure for ME/CFS

The OMF is doing leading edge research for ME/CFS amongst other underfunded and complicated illnesses like Long Covid. We are extremely thankful for this amazing organization helping those with ME/CFS including our daughter who was severe for many years. We have hope for a biomarker and treatment soon, which seemed impossible in the beginning of our chronic illness journey!

This is the only organization devoted to biomedical research into ME/CFS. Which means that, if you have this devastating illness, this org is your ONLY hope.

Methylation is responsible for quality of life and yet there seems to be a total lack of knowledge/interest in this metabolic process and how it may relate to a chronic debilitating fatigue following an infectious disease. From personal experience with Lyme disease that went undiagnosed for twelve years, I have diagnostic evidence that methylation has been hijacked most likely a result of the pathogen’s ability to interfere/control the methylation cycle for its own benefit.
A 7.5mg dose of L-5-methyltetrahydrofolic acid eliminated the chronic fatigue within two hours; a fatigue I chased for twenty-four years. I submitted a pilot study to Dr. Brian Fallon of Columbia University and have included a copy with this review. It should be noted that I test negative for the MTHFR gene mutation so my methylation issue was acquired following the infection. MTHFR gene mutations are common in the public with upwards of 40% so these individuals have an even higher chance of methylation issues responsible for their post treatment fatigue. When will the Open Medicine Foundation investigate methylation issues in the chronically ill patient population?

Pilot Study Submission to The Lyme Clinical Trials Network (Personal Dropbox storage area)
https://www.dropbox.com/scl/fi/1ix735lnwyg38uulgnuak/Pilot-Study-Submission-to-The-Lyme-Clinical-Trials-Network.docx?rlkey=exzrrbl024glg9uo0arbuweb7&dl=0

OMF has been a beacon of hope for so many with ME/CFS. I see it as an organization with impeccable integrity and great dedication to its mission - a much needed research arm for an illness that has had little scientific attention over many years. I can't imagine investing in a better nonprofit.

Ron is my hero, and in him all my hope lies. The OMF are doing groundbreaking biomedical research into ME, and if anyone is going to come up with answers about treatments and the underlying cause of this devastating disease, it will be OMF. Please support them on any way you can.

This nonprofit seems to be not only doing groundbreaking research on ME/CFS but also bringing greater awareness of the disease to the public at large. I have had ME for at least 25 years now and only since becoming aware of Open Medicine Foundation (OMF) in the last couple of years do I finally have some hope that the medical community will finally learn enough about this disease to treat us with respect. Maybe they will even eventually have medicines to offer that will help. Thanks to OMF for giving me hope!

OMF has a unique approach to research - requiring all its grant recipients to collaborate with each other. This means new results and ideas are shared in real time without having to wait for the extended publication time line so common in scientific research. As a result, the chances of finding effective treatments for MECFS, or even a cure, are maximised. I consider it a privilege to serve this organisation as an Australian board member and donor.

I first met the CEO of the Open Medicine foundation many years ago when she first contacted me because I have myself MEU/CFS. Even then I was very impressed with her passion, dedication, amazing capacity to build an organization, energy, and determination. Subsequently, I became a member of the board of directors and have developed a wonderful rich, long-term friendship with her. I value her judgment, regarding interpersonal issues at work and elsewhere, how to best connect or not connect with various people and organizations related to MECFS, and how I can in any small way contribute to the research in a cure or treatment for MECFS. She continues to build the organization and handle the complex financial matters, and it extremely professional and successful way. All we need to succeed is money from the NIH to accelerate our research. The research intern will benefit people with many related medical disorders and is desperately needed. As at least 2 million of us in this country alone have a MECFS and at least 80% of us are unable to work.

I am a long term supporter of OMF through volunteering as a Board Member at OMF Australia and with a regular financial donation. The passion, commitment and expertise of the team is inspiring, coupled with a bold vision to cure ME and other multi system, chronic complex diseases I highly recommend OMF.

Our son has had Me/CFS for 16 years and cannot work or study. OMF simply is the best and biggest privately funded research and treatment advice operation globally. Top class people, think Stanford, Harvard, Montreal, Uppsala and Melbourne Universities and many others including hospitals involved in collaborative projects. The focus on practical translation into tests and cures for individual patients, and the focus on helping primary care doctors and their patients in conjunction with Bateman Horne Center are excellent. The best things are that the OMF people all work well together, collaborating and working as one global team, and that they are nice people! This all brings the best chances of diagnostic tests, treatments and cures.

The Open Medicine Foundation funds vital research into the long-neglected disease ME/CFS and similar diseases. This research will bring much-needed hope to people suffering, including the 23 million Americans with long Covid.

Galvanized the biomedical research for ME and, now, long Covid. Brought together researchers from across the globe, but also engaging regularly and clearly in it's Comms with patients and donors. Brilliant NGO.

OMF has unified the ME/CFS field and is at the forefront of discovering pathology and treatment for this illness and other immunometablic and neuroimmne illnesses.

I donate to OMF every year to support the ongoing vision and mission of this international team of dedicated scientists and researchers. They are on the front line of hope for all who suffer from ME/CFS.

OMF is an organization that is dedicated to funding both medical research and education into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). I have been personally affected by this condition and was impressed with the level of dedication and passion that the team at OMF brings to their work. They truly understand the importance of both research and education in improving the lives of those living with ME/CFS and it is evident in the programs and initiatives they support.

Great nonprofit doing so much to help people like me with long covid

OMF gives hope to so many people who have been left behind for decades with ME/CFS.

I am a mother from Germany who has a sick grownup daughter.
I donate to OMF per maecenata, because in Germany there is nearly no research on Me/ Cfs! We trust in Prof Ron Davis, he is the only hope for the ME/CFS community, in my country and worldwide, that there might be a cure someday!

After 5 years as an ME patient, I feel so grateful to OMF for their ambitious & tireless work on this underfunded & poorly understood disease. Thank you, thank you, THANK YOU!

This organization has done considerably more than all others when it comes to fundraising and advancing research. They have extraordinary researchers around the world working together to solve this terrible disease. They truly are game changers.

I have been working with nonprofits in the healthcare field for a decade now, and OMF is truly one of a kind. Their dedication and sense of urgency is admirable, and the work they do in the scientific community to advocate for patients is rare. Happy to recommend this exceptional nonprofit seeking to dismantle barriers to care for this community.

We have two children with ME/CFS (along with other diagnoses). We support OMF financially because they are on the frontline of research and give us hope for better treatments and (someday) a cure.

OMF is the organisation that brings hope for so many people :), in the first place for those suffering from ME, but also for their partners and family.

As a person with ME/CFS I believe this organization is vital to the advancement of diagnosis, treatment, and hopefully one day a cure. I have faith this organization will do everything it can if properly supported financially to make these goals a reality for the millions of us with this condition, as well as the other chronic illnesses they research. At any time these conditions could become someone’s reality. Support is needed now so you or a loved one will have options available right away.

We need hope based on research. That's what OMF gives.

My daughter has had ME/CFS for 7 years. OMF is consistently giving our family hope that one day soon treatments or a cure will be found for her. Nobody else seems to be doing the research, so we are thankful that the OMF has stepped in.

I got Long COVID in early 2021 and OMF’s research is one of the only things giving me hope. The OMF researchers really know what they’re doing. Thank you, OMF!

I am an Incline Village survivor and original prototype for Holmes 1988 Chronic Fatigue Syndrome.
I made multiple trips to Stanford and the Open Medicine Foundation to explain that clues were overlooked, and that the incident "CFS" was coined for has never been investigated.
In other words, the OMF is speaking out of ignorance and is not representing CFS accurately.
To my surprise, my evidence was regarded with disdain and disinterest. They said "CFS has moved on since then". Indicating that they have no intention of ever looking into CFS.
For this reason, they are disqualified to speak about Chronic Fatigue Syndrome.
Their methods are unscientific and antithetical to common sense and logic.

Giving hope to ME-patients all over the world.
OMF is supporting the work and research that most countries' governments are neglecting. Thank you so much. Where would we be without you.....

So extremly importent research! I have ME and hoping for help in the future.

The Open Medicine Foundation gives hope to millions suffering w ME/CFS and other debilitating long term chronic illness. They are cutting edge and a single source of hope. I have been ill with ME/CFS for 20 years. Without the OMF I might have given up the fight trying to survive day to day.

Happy to recommend the Open Medicine Foundation who are one of the few trying to help people with ME.
As a patient I look forward to progress in this field and donate when possible. However, I feel that OMF should not have to rely on donations and hope that this is remedied in the near future, to save any more pain and heartache among so many seriously ill, ignored and disregarded people.

OMF is clearly the leading institution when it comes to research on ME/CFS and related illnesses (Long COVID, Fibromyalgia and Lyme).
It is made up by the very best research centres (Stanford, Harvard, University of Uppsala, University of Montréal + hospital, Melbourne), which work in close cooperation, and truly prominent, brilliant researchers in their fields, who are highly motivated. A prominent figure among these researchers is Dr. Ronald Davis, who was the first to physically map the genome of any organism (1968). All the top reserachers in ME/CFS are actively involved in OMF (Ron Davis, R. Naviaux, Jonas Bergquist, Alain Moreau, Norway's Fluge and Mella, Ronald Tompkins RIP, etc.), including two Nobel laureates (!). Even Dr David Systrom is conducting crucial research within the OMF.
They are making huge advances in understanding ME/CFS and they are not lost in the theoretical world - they have a very practical approach too, trying to find treatments that will help patients as soon as possible (and not in 20 years!).
The research OMF is conducting will help not only ME/CFS but also the millions in the world who develop Long COVID, and people with fibromyalgia, as well as Lyme.
OMF has the highest chance of success in deciphering the illness that is ME/CFS (and related illnesses), as well as coming up with treatments that work in a short period of time.
It is definitely a unique research gem and an exception, and it is clear that with sufficient funding, they will crack ME/CFS and identify suitable treatments.

What a team. The genius brains of Ron Davis and the amazing people who work with him have given us hope. They work collaboratively and share their latest findings with patients so that we can keep hoping and praying that one day there will be a cure for this awful life limiting condition they call ME/CFS. Please support them. We need funding so they can give us our lives back.

Open Medicine Foundation is the most impressive non-profit organization I’ve ever encountered. It is supporting cutting edge research and relationships among researchers that will help millions of people. As someone who is bedbound with ME, OMF is like a lighthouse in a dark storm. Thank you, OMF, for bringing hope to so many people.

So hopeful for all the research that they do. They need all the support they can get. They are doing great research with limited resources. Perhaps they will also be able to help Long Covid which has become a big issue lately. We are all depending on finding answers and are thankful for the people who believe and support us such as this organization.

The Open Medicine Foundation and the research they do sometimes feels like it it the only hiope we patients with ME have to get a cure

I’ve had ME/CFS since 1980. Nothing is more discouraging than having doctors tell you they can’t find anything wrong with you and suggest that you see a psychiatrist, when you know that you have a profound health issue that’s ruining your life, and in my case, the life of my young daughter. I was a single professional Mom, trying to stay awake in meetings and having not an ounce of energy to give my daughter when I got home from work. Thank god someone finally took this horrible sickness seriously! The amazing work these researchers are doing is beginning to reveal the full range of biological and neurological systems that are affected by ME/CFS. Their collaboration with each other and with those of us who suffer this disease is amazing! We’re finally taken seriously. I just wish this had begun 40 years ago. I might have been able to lead an entirely different, more productive life, and surely would have been far more able to give my child the attention she deserved. I encourage those who can to donate to furthering this long neglected and much needed research. They’ve been operating on a shoestring budget and their work can progress much more rapidly with additional resources. Find out more about their great work on YouTube.

I am from India and am suffering from ME/CFS for the past 2 years. Awareness about this disease is so low here, I had to run around for months before getting diagnosed. Open Medicine Foundation is the last hope for me. I visit their website everyday to see if there are any updates in their research.

My best friend is losing use of her legs, her speech, and her faculties because of M.E. and related chronic, complex diseases. We are frustrated and angry that there is so little federal interest in researching M.E. OMF gives us hope that she will not be killed by this disease and that there will be answers soon.

Delivers hope and support pioneer-research. An important organisation for ME-patients and their families/network

OFM is the nonprofit I chose to support. I wish I had more to offer but given how limited my resources are, I felt OFM makes the most effort to maximize them and turn into tangible, palpable science-driven solutions to the most debilitating illnesses abandoned by NIH and CDC for several decades.

Open Medicine Foundation is doing great work, leading the field in the research of Myalgic Encephalomyelitis that for decades has been ignored or misdiagnosed as a purely psychological condition. This has now been disproven but we desperately need diagnostic tests and treatments, if not a cure. I have suffered for decades from this condition and so have 100’s of thousands of others around the globe, including my father and grandmother, and with the help of OMF we now have very real hope that a cure will be found.

I'm a long-years sufferer from ME/CFS being the most neglected disease of our time and the last 70 years. There is way too less scientific research done in this field. Open Medicine Foundation is one of the few non-profit organisations dedicated to solving the mysteries of this horrible disease and finding a biomarker as well as treatment options with the help of the worlds most renowned scientists. If it wasn't for their precious work, i would already have lost all hope of getting my life back one day. They are worth every penny of the donations given to them!

OMF is an important voice and agent of change in the search for understanding of and treatments for ME patients. As part of this neglected and maligned group, I am grateful for their advocacy and the hope they offer for the future.

My daughter has ME/CFS, and this organization gives us both hope.

Open medicine foundation is giving me hope of getting my life back. They are my heroes!

Thank goodness for the Open Medicine Foundation. They are giving me and millions of sufferers and their families hope that one day there will be treatments for ME/CFS and maybe a cure. This disease has been ignored by doctors, governments and society for far too long. We the sufferers have felt abandoned as we endure one of the most disabling diseases there is.
I’ve had ME/CFS for 26 years. I’ve been bedbound for the past 18 months. I’m 62. Time is running out. I want to live my life.
OMF are giving this disease the recognition it deserves. Their team of amazing researchers are working around the clock for answers.
Thank you !!

Open Med is one of the most important nonprofits. The information is immensely helpful for those suffering and working through fatigue issues in their body. I will continue to support this foundation and their ever expanding work for years .

An amazing organisation giving hope to millions who have been left behind. All my fundraising and donations go to them.

I'm a monthly donor to OMF and I truly believe in their success in curing ME/CFS. There are dozens of legends working in OMF collaboration teams!

This organization has given me hope for the possibility of recovery for both myself and others. I have been dealing with ME/CFS for over a decade and it brings tears to my eyes to see the great work Open Medicine Foundation is doing for so many who continue to suffer invisibly. Research is key. Understanding this illness is key. They are doing ingenious work with covid-19 long haulers and I hope they continue to do so to unlock the mystery that is MECFS.

The OMF are literally keeping me and millions like me alive. They are my only hope of ever getting even some of life back. I’ve been completely suicidal depressed due to this disease but knowing that 0MF work so bloody hard round-the-clock trying to find answers and treatments for us, always brings me back from the brink. They are the most amazing people on this planet and care so much about helping us when everyone else neglected and stigmatised and left us to rot for decades without any hope whatsoever. Many patients have committed suicide in the past. Thanks to OMF we now have hope that things will get better. That we will live again. I cannot praise OMF highly enough. They are saving my life. They are saving of millions of people‘s lives.

Thank heavens for OMF!! For those of us with ME, it often feels like the entire scientific community is ignoring us. OMF changed that by bringing together a passionate, brilliant group of scientists and helping them secure funding for their incredibly important research.

M.E. is a desperately underfunded condition given the extent of suffering caused by the condition. The OMF is giving millions of sufferers hope where there was none.

The best hope for ME sufferers globally. OMF tirelessly does great work and deserves more recognition and funding.

OMF is leading the way in ME/CFS research. They bring hope to the millions of us worldwide trying to survive this debilitating illness. It takes everything from you. People with severe ME are some of the sickest people in the world. We need more research, we need treatment or a cure, and OMF will be the ones to crack it. They are a dedicated team, some with the first-hand experience of loved one's fighting ME/CFS. They work tirelessly. I honestly can't think of another research team as dedicated as they are.
OMF give us hope that there is a better future out there. A chance to get our lives back.

This is one of the only organizations trying to help fight for people with ME/CFS. I really appreciate all that they do. I have had the disease for 5 years and they give me hope.

continuously researching ME/CFS and giving patients hope!

OMF have given me and my partner (who has ME) the most hope. We could be years off a cure yet, but to see the work they are putting in, and to trust they are giving it everything they have means the world to us. We are in our late 20s, everyday we wish with all our heart that a cure will come soon, so we can still enjoy being young together and start thinking about having a family of our own one day.

COLLABORATION. A powerful way to achieve results, when researching a disease so complex such as ME/CFS - and collaboration is in the core of the work at OMF. This NGO has already achieved groundbreaking discoveries and will continue to do so, aiming at finding treatment for the symptoms and hopefully a cure. My son and millions of other patients follow OMF’s work, which they share with their community on a weekly basis. I am part of their translator’s team, who help them reach patients, caregivers and the public in general in many countries around the world.

I am a mother of two small children- a preschooler and a baby. This disease has devastated my health, some days I can barely walk. I now need help caring for my precious children. I was young, fit, and very healthy when I got this disease. It can happen to anyone! Yet there is a horrific lack of understanding and no treatments available. Suicide is 8x higher for us. We need help! Our lives are passing us by. OMF is the only organization that I know of that is dedicated to a cure. Forget politics, forget who gets “credit”- OMF cares solely about a cure because the people that run the organization both have severely ill children. The organization is “open” meaning anyone can see their data and help solve this disease. Their recently published study brings us closer to a bio marker. The research coming out of this organization is some of the most important of our time.

Open Medicine Foundation are taking my health seriously with their excellent hard working projects, while others goes in circles and arguing about old missfeild arguments.
They listen to the patients experience, where other doctors choose to not listen. And from that OMF find importante emperi and ideas for there work and goals.

OMF have great scientists that are willing to fast track research with their open data policy. They give me hope there will be a cure for ME during my lifetime, even though I'm 48 and ME patients have a 13 year shorter lifespan. I've had ME since early childhood and want to experience a life where walking, eating, breathing and sleeping aren't as exhausting and painful.

I am a 32 year old male with ME/CFS. I can barely walk much during the day, I push myself to work some small part-time jobs where I can sit and work, which still tires me out. This itself is difficult due to the cognitive dysfunction cfs causes patients, such as in my case.

Every day is like climbing a mountain, as soon as I wake up the morning stiffness is so severe my body almost can’t keep up with the pain.

The researchers investigating, finding, and presenting bio-markers that have validated CFS are all directly affiliated with the Open medicine foundation.

Their published scientific research and articles demonstrate the hard work and innovation they are bringing to the table to deal with this difficult challenge.

They are also actively looking for a cure, sympathetic to the needs of the CFS patient community.

In a way for many, OMF serves as a beacon of hope, or even our last bastion.

They have taken blood samples from me (and even my healthy relatives) many times and have run tests on them for their comparative studies, so I can personally say they are actively working on a day to day basis for the needs of the CFS community.

Please donate generously. Hopefully your funds can lead to a break through in one of the most devastating and debilitating sicknesses a person can deal with.

Thank you.

OMF is the organisation that brings hope for so many people :)

This organisation is conducting much needed biomedical research into ME/CFS. the work that they're doing gives hope to be and millions of other sufferers that I've day there maybe be treatment or even a cure.

I am a mother of two young children struggling with this very debilitating and devastating disease, OMF brings real hope and understanding to my life. Thank you, thank you OMF.

After 37 years of this illness, we finally have an advocate with power. Thank you, OMF, for bringing hope to this forgotten population.

The Open Medicine Foundation is comprised of the best and most dedicated scientists, bringing hope to millions of people.

I was 28 when I got this horrible disease ME/CFS. That is now 2 years ago. I can´t work and live the life I want to have. OMF is the onliest Organisation who has the power and knowledge to help us. But they need more funding!!!!

My wife has been sick with ME for about 5 years. Like most people with ME, she cannot work and has had to give up most things from her previous life. There is no diagnostic test, no cure and no FDA-approved treatments. Government funding for ME is next to nothing. OMF does top quality and groundbreaking research and is the leading the way and is the standard-bearer for ME research. They are by far the best hope for the millions of people who have had their lives trashed by ME/CFS.

My brother is tortured by this terrible disease. OMF are giving a little hope to him and his close ones, by their research. Their scientists seem really great, both competent and having an honest desire to solve the mystery of ME/CFS.

I have suffered from ME for 28 years. Due to this illness I have lost a career, the chance to get married and have a family. I spend most of my time housebound, and alone. This is not the life I envisaged in my twenties. My life effectively came to an abrupt stop at the age of 27.
During the last 28 years there has been very little research into ME/CFS, particularly biomedical research. The Open Medicine Foundation are one of the few groups of researchers working in this field. Research gives ME patients hope, the OMF gives us hope.
Please let's not loose yet another generation to this dreadful illness because of lack of research. Support the OMF.

The OMF is dedicated to rigorous biomedical research into the much neglected illness ME/CFS. It does this very ethically, sharing data and reaching out to a wide range of disciplines. Most of all it giveaways HOPE

The Open Medicine Foundation funds top scientists to study one of the most neglected diseases of our time.

Myalgic Encephalomyelitis (ME) is often called chronic fatigue syndrome (CFS) even though it is recognized by the World Health Organization as a debilitating neurological condition. Research has shown that ME/CFS is more disabling than MS, congestive heart failure and end-stage renal disease. It is estimated that more than 1 million Americans have the disease and several millions worldwide. There is currently no FDA-approved treatment for ME/CFS and little is known about the illness.

The Open Medicine Foundation is dedicated to change that. It engages with the ME community and brings patients and researchers together in their quest for knowledge and answers. Most importantly: it brings high quality science to the field of medicine that needs it the most. I myself have been ill because of ME/CFS for more than 10 years. It has left me disabled, uneducated and homebound. There are millions like me suffering. Please support the Open Medicine Foundation and help find a cure for ME/CFS.

I have been ill with ME for 28 years, but because of no knowledge of this disease among physicians it took 15 years to get the correct diagnosis. In the meantime my condition deteriorated, to a level where I can no longer work or take care of myself. Open Medicine Foundation is supporting long overdue research on this neglected disease.

I have donated to this organization and will continue to as they give me hope with their collaborative research efforts.

My name is Diane and I was diagnosed with ME/CFS 28 years ago. Because of the poor advice I received from physicians (including Mayo Clinic) that I was just deconditioned from a bad virus and should go back to work and do graduated exercises, I went from having a moderate case of CFS to very severe. I could no longer work at all and my parents had to take care of me as I was bed ridden for 20 years. Then they both became ill with lung cancer, and I had to somehow take care of them. I was never able to get married or have children because I was never able to improve- there is absolutely no treatment or cure for ME/CFS. We're just told it's all in our head and go home and deal with it. I still am mostly housebound and unable to work. But there are caring researchers out there who are finding that it is a true physiological disease and NEEDS proper funding for research. Open Medicine Foundation is the ONLY hope people with ME have to get a proper diagnosis and treatment, as they encourage several research groups from around the country to collaborate and share information (rather than competing for funding) so that research for a cure can be found more quickly!!

It's a shame for all nations of the world!

Despite very little public funds, Ron Davis, founder of Open Medicine Foundation, has managed to establish an excellent research center with a great number of renowned scientists and collaborations with top scientists across the globe. You can see the impressing list of collaborating universities, scientists and research centers on OMF's website.

OMF is real science! OMF is efficiency! OMF is hope for millions of desperate patients terribly suffering from ME/CFS! In a few years OMF has achieved more than other projects in decades!

OMF is one of the most important and efficient foundations in the world! Not only for ME/CFS-sufferers, but for all patients suffering from chronic diseases and for the benefit of whole mankind! It has deserved much more (financial) support!

The Open Medicine Foundation currently provides the strongest hope that researchers might find a cause and treatment for ME/CFS. Funding for the illness is woefully inadequate. The collaborative nature of the Foundation’s work increases their power and reach. This illness causes unimagineable suffering. We must advocate for those who are too ill to advocate for themselves.

Hello, I’m Jean and I’ve had ME for 30years, since I was 38. For many years I was able to live a relatively normal life, using the pacing technique of working out how much I could do in a day and then doing only 75 per cent of it. This worked well except for the days when I failed to pace myself and paid the price by crashing and having to rest, in pain, until I was back to 'normal'.
Over the last few years I have become more ill, having to rest nearly all of the time, and I now become extremely exhausted after a couple of hours spent with friends or family. I’ve also realised that my doctor doesn’t believe that ME is a real illness making me realise that there is no possibility of my medical problems being treated knowledgeably and purposefully. I only see my doctor when I have an easily identified illness that I’ve had before, now. The Open Medicine Foundation has given me hope that my disease will be understood and recognised one day. They are the reason I can hope for a better future and I love to read about the research they are doing.

The story of ME/CFS is so amazing and is really a material for a suspense movie. Before this illness I thought plots in movies are a bit exaggerated. But... I met some real heroes and fighters for justice and the truth. People of the OMF are fighting hard and don't give up even when the odds are against them. MILLIONS of ME/CFS sufferers are drawing hope and strength from their efforts. We are alone, helpless and forgotten but what we do have are the best scientist on our side who are not in it for fame and glory.

I am 20 years old and have ME/CFS. That means I can't live my life and even typing this is mentally and physically exhausting. OMF is doing incredible work for us the Millions missing, who are neglected by the govts. Theyre the reason for many patients not to lose hope because of the great research they fund!

Hope for the hopeless. OMF are producing champagne results on shandy money. Their pursuit to find answers is as unrelenting as the disease they aim to cure.

Open Medicine Foundation is doing groundbreaking research in ME, a serious desease that has gotten too little attention from the medical community. They are close to a break through and deserves support.

My daughter has ME for 7 years. I️ have been careing for her and my grandkids. Praying for a cure

Open Med has brought hope to the millions of people with ME/CFS with their commitment to sound science, new technology, and big picture thinking.

When I came ill with ME/CFS about 15 years ago, I only vaguely heard about this disease before that; I was told this would be for the rest of my life and that I had to stop hoping for a cure. (??)
I never ever wanted to give up hope, because, really, hope is the only companion I have left while trying to live 24/24 7/7 in this horrible nightmare which this life-quality-stealing-disease is. I thought I was a lonely warrior in this battle, until I discovered OMF. Every time my hope is running low, I read one of their many articles about their achievements and efforts to get scientists worldwide work together in finding a cure. and then a little bit of hope for a cure in the near future sparkles again in my heart. I'm so grateful !

Excellent research. Timely public information. Not many other places to turn for this kind of effort.

OMF is my hope that in a near future I will be living again, sharing lost years with my husband and sons. Those scientist are my daily strength and support.

Sick with ME. Increasing knowledge about the disease.

Gives me hope! I am really inpressed with their work

Probably the most important organization in medicine today.

OMF gave me hope of a cure as when I was first diagnosed there was very little research/progress being made and then the end ME/CFS project came about, the work they are doing made a massive difference to being able to see an end in sight when I was severely affected, mainly bed ridden.
Being collaborative across the world and having focus on getting to the root cause(s), potential treatments, sharing of information with other researchers rather than writing papers and being published is something that really stands out.
They also do some excellent advocacy work

On the cutting edge of science, helping the unhelped!

A medical group like no other, working for the ME/CFS patients and giving us hope unlike any other group or physician. After 34 years of disability with no cure or treatment, we NEED hope and great research. PLEASE HELP US.

OMF is our only hope to end Myalgic Encephalomyelitis!!!

OMF is a nonprofit organization that i support beacause they are very focus in finding a medecine to cure the ME. They are very well structure they have a lot of great reserchers that work for that cause. They need help in any means espacialy money.

I am sick of ME for 21 years and i am 59. My life for 21 years it is not a life.

The Open Medicine Foundation deserves the highest praise. It is an organization with a big heart that listens to, communicates with, and learns from patients. The impressive research team headed by Ron Davis is totally dedicated to finding answers as fast as humanly possible to a complex, horrible and neglected disease. For many patients and their families, they are the main source of hope. Anyone who contributes to this organization knows that the money will be spent carefully and strategically, in the interest of patients not careers or egos.

HOPE
Hope that someone is paying attention
Hope that someone is DOING something
Hope that one day doctors won't victimize patients
Hope that a blood test, treatment, and cure is possible
Hope that lives can be restored
Hope that families can be reunited
Hope that despair will end instead of lives
HOPE

As a CFS/ME sufferer OMF has given me real hope in a cure being found. Their philosophy of sharing data and collaborating with other scientists globally to develop theories and research methods to find the cause and ultimate cure of ME/CFS is exemplary. They are not driven by monetary profit or personal recognition, but by the true desire of improving the lives of all CFS/ME sufferers worldwide.

As a ME/CFS suffer for nearly 3 decades, OMF is the reason I keep pushing onward. I dont know what the future holds for us patients, but OMF surely has given us more hope than any time in the past. Ive seen how little research is done, decade after decade. No one worked on this illness as a collaborated effort until now. OMF continually updates us on all the work they are doing. Continue to fundraise, and hold conferences globally. It is because of them, we see a small glow of light at the end of a tunnel of endless hell.

I am from Germany, where nearly no research is funded and done for ME/ Cfs.
So OMF is our only hope, to get progress in research in the US- and so later on in the whole world. Thats why we donate regularly to OMF. We trust in Prof. Ron Davis and all the scientist he has gathered.

Full open data and open access research. A team dedicated to the scientific research of the biological disease ME/CFS. I have suffered from the disease for 40 years and the first 20 I was still able to work. If there had been treatment options during that first 20 years I may not be disabled now. This is why great research organizations like the OMF need to be funded. Correct diagnosis with biomarkers, treatment options, and the right tools in the hands of clinicians must be made available as soon as possible. The Incline Village outbreak occurred more than 30 years ago and due to egregious missteps by the CDC, NIH, and the psychiatric field, no help came to those victims of the outbreak or for those who were ill prior and after.

This organization gives patients hope for a cure to a disabling disease. The government has been way behind in providing help so thank goodness for these dedicated scientists.

The OMF foundation work with top scientists to find a cure for ME. Sick people allover the world feel hopeful because of the great job they are doing in the process of finding more answers. Good science costs money. I'm glad to donate to OMF.

My 10-year sickiversary is approaching. OMF gives me hope for a test and a cure. Publicly available research can only make us better.

Donations to the Open Medicine Foundation (OMF) are helping fund much needed targeted research into M.E. Their ethos of “collaborative medical research” also means there is even more chance of finding answers for the people who suffer from this serious illness.

I’m in my forties and have had M.E for over 30 years, I am mostly housebound. The OMF gives me hope that something can be done about this illness in my lifetime, it’s hope I haven’t had in a long time.

OMF is the leading the way in ME/CFS research, without them, we would have very little hope of understanding this debilitating disease. They work tirelessly for a large global community of severely ill ME/CFS patients, their carers and loved ones, who desperate for change. ME/CFS patients are essentially living an extremely painful slow death, this research is crucial in putting a stop to losing yet another. As a severely affected ME/CFS patient, bed bound and lock away from the world, I need hope that one day we will understand what this disease is, and in turn develop an approved treatment, or even find a cure. OMF gives me hope that one day I will have my life back, one day my family will no longer have to step in as my fulltime carers, will no longer have to worry constantly if I'll wake up one day and not be able to move or speak or eat. They need their life back too. We need change, and OMF is at the forefront of that. Thank you OMF, I cannot imagine not having the hope that you bring.

OMF gives me hope because they are committed to finding a cure for ME/CFS, "the last great disease" that is not understood. I've been sick since 2013, and had to quit my very rewarding job as a PA-C specializing in Epilepsy. Now I'm at about 30% functionality, spending several hours a day in bed, having to budget every bit of energy expenditure from washing my hair, to standing in the kitchen to load the dishwasher. Studies show that those of us with this disease are more debilitated than patients with MS, heart failure, and AIDS.

OMF is led by individuals at the top of their fields, who are intensely committed to finding a cure, because they have children with the disease. Dr. Ron Davis is a world-renowned geneticist and inventor, whose innovations enabled the Human Genome Project to happen. He has recruited a group of world-class researchers, including several Nobel laureates, to take on the problem of ME/CFS. And he and Linda Tannenbaum are stirring up interest in the research community to invest time and money into this neglected disease. What is unique about their approach is the "open" philosophy, that the top priority is to share data with other researchers, to advance toward a cure, rather than holding results close to the vest in order to advance one's own career through publishing as the end goal. They have developed a device for testing drugs for ME/CFS, as well as a model for understanding the metabolic derangement sat occur with the disease. These are huge steps toward finding a cure. I couldn't imagine going on like this without the hope they provide.

OMF gives me hope for a better live I hope to life one day. I got sick at the age of 15 and am 21 by now, this is not what I imagend live to be when i was younger. This illness is one of the worst things, that could ever happen to you.

OMF are doing amazing work into ME. I have very severe ME and I'm so grateful to have them on my side in a world full of misunderstanding and judgement.

OMF give hope to patients all over the world. I have severe M.E. I am mostly bedridden, unable to care for my children. I miss being a functional mum so much. I cannot participate in life. ME is an underfunded disease. So much more research needs to be done, OMF are doing that, but they rely on the generosity of donors to continue their work. Please support them, so many lives affected, so many dreams lost to this devastating illness.

I suffer from ME/CFS. I have lost my career, hobbies and I can no longer look after my children or spend a day with them. I am partially bedridden, housebound and use a wheelchair. I cannot participate in life, severe M.E is existing in a seperate world. It is such a debilitating illness and it's impact is poorly understood. It is a disease that is totally underfunded in terms of research. The Open Medicine Foundation want to find diagnostic markers, treatments and ultimately a cure for this disease. They give hope to patients like me all over the world. I so want to live a little again, I want to live to see my children grow up. I do not want to spend the rest of my life confined to my house and bed. I am only 42 years old. It is heartbreaking not being able to go anywhere with my children, I can't cook for them. I am sick for two years now, my youngest child is 4. He will never remember me as healthy and well. Please support the Open Medicine Foundation. So many are suffering, please help us find answers to this dreadful disease. M.E can be fatal and life threatening. Many commit suicide as they see no hope for their future. The Open Medicine Foundation give all patients hope now, hope that was not there before.

ME/CFS has robbed me of the last thirteen years of my life. When I was first diagnosed, there was hardly a whisper about this horrible illness, let alone any kind of real research or possible treatments/cure. When OMF was established, I had no idea that they would not only help finance some of the worlds most prominent researchers and their projects, they would also help change the way researchers around the globe communicate and collaborate. Since it’s inception Open Medicine Foundation has worked continuously to bring awareness of ME/CFS, encouraged teaching institutions to add ME/CFS to their curriculum and have brought hope to millions of patients worldwide.

The Open Medicine Foundation is a wonderful and caring organization. They are raising money to help research ME/CFS which is a horrible and debilitating disease that has been extremely underfunded and ignored by the majority of the medical community. This organization truly gives hope to those suffering and sometimes hope is all that gets people with ME/CFS through the day. Please give to this organization if you can. They are doing incredibly important work.

SCIENCE is my HOPE!! I support OMF because I know how hard Dr. Davis is working for us. When your child is ill, you'll move heaven and earth to help them. I think someday we're going to get some good news! Thank you, OMF!!

FROM CANADA!! We run a local support group in Ontario and we're thrilled with all that Open Medicine Foundation (OMF) is doing on behalf of ME sufferers, not just those living in their own region or even in the States, but for the global ME community. They work hard on every front (research, education, awareness, fundraising, etc.) and have accomplished more in the last few years than we could possibly have imagined in decades previous.....yet there is still much more to do and OMF is up to the challenge. They have rekindled hope for many who felt abandoned and re-energized those of us who have become weary as caregivers, like myself (sadly there was no 'caregiver' option in choosing a role below). Keep up the wonderful work, OMF!!!!

OMF has given hope that in the near future Dr Davis will discover a cure for this cruel disease.

OMF has all my esteem for the enormous work it is doing and for how it is working! A great hope for millions of sufferers of ME / CFS. But their work could contribute to research into various diseases. Great commitment, seriousness, involvment of great researchers, excellent communication.

I honestly don't think I can articulate in a few words just how amazing the Open Medicine Foundation really is!
I've been a patient with ME for over 15 years and the fantastic work that the OMF does has given all patients with ME real HOPE that things will change for the better in the future. Linda T is so driven, enthusiastic and passionate about progressing research into ME and is linked to so many world-class researchers such as Prof Ron Davis at Stanford that real progress has already been made in researching the illness and I'm sure even more will be in future. I'm about to host a fund-raising event for ME and am absolutely delighted to be sharing the proceeds with the OMF as I know the money will be wisely spent in advancing our understanding of this debilitating illness.
THANK YOU to Linda and all the OMF for their amazing and inspiring work!

OMF is one of the most dedicated research organisations to a discriminated disease. They stand strong against criticism and hostility from the medical profession, which chooses to stigmatize the 20 million people suffering from myalgic encephalomyelitis (ME), a highly disabling disease that receives absolutely no support or sympathy in most countries.

Most medical research non-profits benefit from social support and good will. They are praised for striving to achieve a goal that makes consensus: helping the sick. Research in ME receives none of this good will, instead facing criticism and derision from medical institutions and professionals who overwhelmingly deny our very existence.

It takes courage to do medical research in any setting. It takes so much more courage to do so when the whole world disagrees that your cause is worth fighting for. Discriminating against disease should be a thing of the past, but it continues, and I salute and thank OMF for their determination and pushing forward with this cause.

The Open Medicine Foundation does groundbreaking work for 20 million ME/CFS-sufferers worldwide. I live in Germany , bedbound, and the OMF is the reason I haven't lost hope. Ron Davis is brilliant and my personal hero.

My experience of this non profit is quite simply one of hope. Their end me/cfs project, their collaborative approach toward research, the quality of research they fund and scientists involved, their support of having the pace trial questioned, their advocacy, its incredible and with all the focus on the science there is still clearly a genuine respect and appreciation for the real people who are living with the illness. But more than that as a person with m.e/cfs they give me hope, with a condition where you can feel neglected and let down, it is the difference between feeling utter despair and giving us something to hang in for. The omf and the work their involved with has single handedly restored my faith in the scientific community, in research, as a patient with cfs/me the omf has my utter trust, trust that they will fund quality research, trust that the research will be conducted properly by excellent researchers, trust that patients involved in research will be treated ethically, trust they're only agenda is one that will be in a patients and science best interests. I cannot speak highly enough of the OMF or truly express what their work means to those of us living with the condition, and I frequently see many people specifically cite OMF and their work as literally giving them a reason to keep going, there is no higher complement a person can pay. They are simply and without overstating it in any way, heroes.

Efficient and smart use of funding. Very effective at building direct collaboration among scientists and medical professionals and promoting sharing of research at stages that are much earlier than the publication process. OMF is one of a severely limited number of non-profits focusing on ME/CFS research, a debilitating disease that currently has no FDA approved diagnostics or treatment. This organization has attracted brilliant researchers, and their Scientific Advisory Board is an impressive line-up of talent. Their dedication to fast-tracking research is very evident and extremely unique. They are also excellent with transparency and organization, which are critical for being a top, effective non-profit. Not only do I trust them to make the most of funds I have donated, as an ME/CFS patient, I trust them with my future.

I'm very happy with the recent research breakthroughs they've made, and the diagnostic blood testing material that they're developing in addition to trying to learn more about ME/CFS, and develop a treatment or cure. They're a shining beacon of hope for those of us that are struggling to do the things that a healthy adult would consider necessary to survive.

My daughter has ME, and I run the ME/FM Society of BC in Canada. The work that the OMF does gives us hope. They provide the community with excellent research, great information and opportunities, such as the live streaming of their Community Symposium on 12 August at which world class researchers and clinicians will be presenting the latest research. The OMF is a beacon in the darkness that is this awful illness.

Their work could change our lives & possibly in my lifetime.
That's exptreme,y important for those of us who are at the severe & extreme end where quality of life is lower than those with MS & those undergoing chemotherapy.
It feels like we've been seen. It feels like we've been heard. It feels like a miracle could happen.

Amazing people, highly engaged and involved especially in the ME/CFS field. Groundbreaking research towards the end of ME/CFS.

OMF are giving patients like me with CFS/M.E hope for the first time. They have become a global force for groundbreaking research into this debilitating disease, and their efforts to educate and advocate around the world are inspiring. OMF are a lifeline to us!

The OMF is an exceptional group of scientists that go way above and beyond to increase the understanding of the disease ME/CFS worldwide. The have an incredible knack of doing mind blowing science and communicating those findings into an easy to understand message.

This organization is constantly working on behalf of finding a cure for this horrible disease.

Open Medicine Foundation is very import to cfs/me sufferers. Their amazing work gives hope!

They are giving me hope. Something I lost. I feel that they are fighting for me, I mean really fighting. I'll be forever thankful.

Amazing work towards understanding and helping those of us with ME /CFS!

Open Medicine Foundation has given me back my hope, when I had all but given up. I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for 22 years, & for the first time since I became ill with this very disabling disease, I feel that their research may bring about some sort of treatment, & hopefully, a cure. Until recently we were forgotten, disbelieved, left without treatment, support & understanding, by the medical profession, governments, friends & family. Millions of people worldwide are struck down with ME, & have nowhere to go to get help. OMF has shown we are physically ill, when so many didn't want to know. Not much money is allocated into research of this illness, & I am forever grateful to OMF for trying to get answers with their End ME/CFS research programme. They have an understanding, & compassion for those of us afflictedwith ME, & a dedication to getting results. A huge thank you to all of you at OMF!! Please keep on doing what you do best...

Open Medicine Foundation is a shining star for patients who suffer from ME/CFS. This organization's efforts in organizing and conducting research into this long-neglected, incapacitating but very common disease is light years ahead of the status quo. If an option were available, I would be giving it 100 stars.

The OMF is funding groundbreaking research on ME/CFS and deserve recognition not only for scientufic advancement gained but also for their excellent awareness campaign.

Open Medicine Foundation and their relentless effort to find diagnostic tools and a cure for this disabling disease gives hope to all ME sufferers around the world.

Open Medicine Foundation (OMF) has brought together some of the world's top researchers in an attempt to tackle the devastating disease, ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome). In just a few short years, they have identified several potential biomarkers and are working tirelessly to find a treatment.

ME/CFS patients are desperate for relief. Many spend their days and nights closed off from the rest of the world due to extreme sensitivities to light and noise, profound exhaustion and weakness as well as cognitive impairment. They are often unable to do basic activities of daily living such as taking a shower or doing simple chores around the house. A great deal of patients also experience severe pain thoughtout their bodies and suffer in silence due to lack of support and care from the medical community and our government.

As a single mom with severe ME/CFS (mostly bedridden), I am thrilled that we have OMF fighting to bring us better tomorrows. Their passion and determination, in conjunction with their caliber of scientists and staff members, bring patients great hope.

I have donated to this charity numerous times and they are doing an incredible job finding the route cause of ME/CFS. They have world class talent and world leading technology. With enough funding, I'm confident they will find an effective treatment.

Before discovering OMF I was on the verge of giving up my life. I had no energy to fight, physical or emotional. I had nothing to fight for. And even had I wanted to do something about my disease I didn't know what to do. However after discovering OMF, Ron Davis and his team of Nobel Award Winning scientists have truly given me hope and determination to fight this horrific disease. They have made tremendous scientific progress over the past few years and so many breakthroughs looks incredibly promising. I have found my source of strength and hope and knowing that by donating everything I have to OMF, I am not only saving myself but I will also be helping the millions of others who are suffering the same fate as mine.

OMF is the leading organization that brings hope to many suffering with this awful disease!! They do such incredible work and fight such a tough battle! They have an amazing group of scientists who work tirelessly to find a cure and biomarkers! OMF never stops reaching out to raise awareness and bring hope to the patients fighting to get their lives back! I'm so glad to have them on our side!

Even in France, OMF bring some hope for those who are housebound or too sick to take care of themself. OMF share a lot of information with us and we fell supported for once.

I have had ME for over 15yrs and was seriously starting to give up hope, when I first learned about Dr Ronald Davis and the Open Medicine Foundation's impressive research into MECFS and other related illness. From the first day I contacted Marilyn Simon-Gersuk (director of communications/development) for more information, I felt confident that I had found the right non-profit to stand behind. Everyone I have come in contact with has been helpful and timely in answering any questions I might have. They have been nothing but welcoming and supportive, to me and thousands of others suffering from this debilitating disease. Now, through regular newsletters and video updates, as well as their social media platforms, I am kept well up to speed on the progress/discoveries the OMF's researchers are making. Not least of all, the good works of Linda Tannembaum (CEO/President) and the volunteers of OMF's EndMECFS campaign, who's monumental efforts in raising ME awarness are truly inspirational. All over the world, different countries, different cities, this dedicated non- proffit organization is striving to educating and raise funds to continue this much needed research. Thanks to the entire team at the Open Medicine Foundation, I like many others, have hope again that our suffering will end and we will get out lives back.

The best ME/CFS charity worldwide. Brilliant highly dedicated people working with complete integrity. Their latest revolutionary research has provided some much needed hope to patients and carers globally.

This is what a medical charity should be like! Transparent, informative, humble, dedicated, well organised and honest. These qualities shine through in everything they do and all their publications.

OMF has given me hope I have not even dared to feel all these years being severely ill with ME/CFS. People involved have the unique blend of stunning expertise and personal investment in finding the cure. That way I know that every dollar I donate goes straight into solving ME/CFS in the best and quickest way possible. And their results so far have shown I've been right to trust them. Thank you.

Great communication. Finally some hope for such an important but ignored area.

O.M.F are pushing through to find answers to M.E/cfs like no other research facility has done in the past 30 odd years. As a sufferer of this illness for at least that long believe me I know. Their board and team are fantastic and we are kept informed of research,which gives us all hope. Historically M.E./cfids has been chronically under funded and things still have not changed.

The leading researcher for ME/CFS - They give hopes to millions of us struggling with this disease, when all others have failed us.

Raises funds and gives grants to scientists, medical researchers, geneticists and computer experts to combine their talents to look deeper than even the CDC and NIH have done at the condition of CFS/ME and actually seems to have proved it can be diagnosed in labs by biomarkers.

Finally after three decades we patients have proof that it is not "all n our heads" nor "mysteriously inexplicable."

Publicizes its efforts through reputable peer-reviewed scientific papers, mass media and social media as well as public events. Makes highly specialized knowledge understandable even to laypeople through excellent communications programming, such as linking the journal articles to Q & A sessions with the investigators.

Ron Davis and his team of stellar scientists, including many Nobel laureates, is doing some of the best, most promising, research in ME and CFS, bringing hope to millions. NIH is funding ME at $5, MS at about $200 and HIV at about $3000/patient. They haven't contributed a penny to this ground-breaking research, which is appalling. OMF fundraises to get this research done, which could lead to testing and treatment in the near future.

The OMF's breakthrough discovery of metabolic biomarkers is revolutionary. It's not even just that they found something but that they actually looked for something being wrong with severely ill people with Me/CFS. For decades the CDC and NIH have followed the psychiatrists who "hijacked the disease" claiming it was a mental health disorder and blaming the patients for being ill.
The dedication and finding safe and collaboration of these scientists is unheralded - scientists whose primary aim is to help patients and ovturn decades of neglect.
Millions of woman and men worldwide have "lost"their lives due to this disease yet the USA government has ignored us.
Promises of funding after the publication of the IOM and P2P reports have come to naught, so far. Is that because diseases rhat predominantly affect woman are ignored??
The work by the OMF is Changi g the way ME/CFS is perceived worldwide, despite the lack of government funding. Imagine how fast and how huge the breakthrough started would be if the OMF was funded??

For the last thirty years, the severely disabling myalgic encephalomyelitis, also called chronic fatigue syndrome, has been neglected by governments and by researchers and academic centers around the world. As a 2015 U.S. National Academy of Medicine report noted that ME is more functionally disabling than multiple sclerosis, end-stage renal disease, congestive heart failure and a number of other chronic diseases. And yet, this report noted there has been a paucity of research funding and remarkably little research outside the field of psychiatry. The report further noted there are no diagnostics or treatment, and doctors have not taken the disease seriously, have treated patients with hostility, and have recommended treatments that have harmed patients. One million Americans with ME and 17 million worldwide have been abandoned with so little hope that a leading cause of death in ME patients is suicide.

In its short existence, the OMF has done more to catalyze biomedical research into this disease than the National Institutes of Health have in all the years that they have been researching this disease. The OMF has recruited internationally renowned scientists - including Nobel Laureates and Academy of Science Fellows - from other fields to their team, bringing fresh perspective to a very challenging disease. They are driving the very edge of science in this field and finally creating real hope for patients that they will finally get their lives back.

If I could give OMF 10 stars I would!! OMF offers the first real hope for persons with ME/CFS (myalgic encephalitis/chronic fatigue syndrome). It is doing groundbreaking research into ME/CFS, making discoveries in a very short time, with no federal funding. Dr. Ron Davis of Stanford and his research team at OMF (which includes 3 Nobel laureates) are brilliant. Dr. Davis’ son is extremely ill with ME/CFS, so he will do whatever it takes to find an answer.

My life essentially stopped 18 years ago due to ME/CFS. I had to quit work, am mostly homebound and my activities are primarily limited to essentials of daily living (food, laundry), and even those often with difficulty.

ME/CFS has been compared to end-stage AIDS in its level of debilitation, only we live with it for years and years and years. And yet the medical community at large has ignored, neglected and even ridiculed those with ME/CFS. Almost no government money has been spent on ME/CFS research and in fact research has been discouraged - more money is spent on male pattern baldness. The medical community’s non-scientific, nonprofessional and extremely ignorant stance is in stark contrast to the commitment and brilliance of Dr. Davis and the OMF team. The ME/CFS community is beyond grateful to Dr. Davis and OMF.

OMF is one of the few hope-giving research institutes for ME patients. They work without any funding from NIH, and yet are doing the biggest data study to date. The study has a big chance of yielding biomarkers and blood tests, which would turn this disease, and the life of patients, around. I have ME since early childhood, a rare form where the onset is gradual and not clearly initiated by virus or infection. The recent studies by Naviaux and Davis include non-infectional triggers, which would explain this form of ME. ME is a disease that takes over your life, and especially if you have ME since childhood, explanations can put your life into perspective.

I have a servere ME/ cfs and there is no help or cure for me. But I am still dreaming that one day I can put my shoes on and start walking again. And that is because Open medicine foundation is working hard and fast trying to help people like me. They are among the few reasearchers who are including servere ME- pasients in their work. And that brings hope deep in to my heart. Thank you.

This organization has helped so many people and is doing very important work.

The Open Medicine Foundation has been for me a pillar of HOPE. Being ill from this horrible disease and it's co morbid issues for over 14 years I thought that I would just wither away in my bed for the remainder of my life.. Then I read about this foundation and the work they are doing. I spoke on several occasions with Linda Tannenbaum who is always so supportive. I became involved with the studies and the wonderful staff by phone and in person. I began to be able to believe that there were great people in the medical community that do care about our suffering and are working tirelessly to find treatments or a cure for ME/CFS. They have kept me informed almost daily of discoveries and advancements being made through social media and by newsletters. On Mondays they post a motivational quote that helps me look a bit forward in my life. Developments are happening very quickly and it is all due to the dedication of this foundation. They are my lifeline at this point. Thank you OMF for all you do.

OMF do great biomedical research on ME/CFS. Me and millions of others around the world have lost our active lifes to this devastating illness, waiting for a relief, to be able to work and contribute to society and our familys again. OMF is our greatest hope!

After suffering with very little medical treatment and no medical evidence of anything wrong with me, I heard about OMI and called them immediately.
Much to my surprise, an actual person answered the phone! And even more surprising to me, scheduled an appointment for me! I had tried in vain to see other Dr's, only to be directed to fill out forms and pray they would contact me.
I have only been a patient since March of 2016 and I'm already feeling so much better. Not only am I being treated by a Dr who knows sooo much more about my illness than I do, she ran tests that provide me with medical evidence of how very ill I am. They are very organized and efficient. The staff is all very helpful and friendly. My emails aren answered the same day. This place is amazing and I'm so very grateful to them for giving me some quality of life back.

This nonprofit supports our most brilliant scientists and gives hope to millions of Americans. OMF has our full support! This is a non profit that will make a difference in patient's lives.

Open Medicine Foundation has formed a stellar Scientific Advisory Board of world-renown researchers with a track record of innovation and success. The Open Medicine Foundation is spearheading neuro-immune disease research that follows patterns of success and benefits from collaborating with leading scientists and clinicians from around the globe. These experts bring to our foundation their expertise in immunology, virology, genomics, informatics, molecular biology, epidemiology, infectious disease, oncology, pathology, and clinical medicine. The current focus is on ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome / systemic exertion intolerance disease), with the expectation that discoveries in this disease will bring answers to other diseases that share some of the symptoms (such as fibromyalgia and Lyme disease). They also are highly involved in patient advocacy. They will also be researching other neuro immune disease. Many of these diseases are poorly funded by the US Govt despite how serious and debilitating ME/CFS. They are also researching severe ME. That had not been a priority in our US gov't. Severe ME patients are mostly care around the clock by parents with partnership of experts. Without this foundation and how it has accelerated research, I saw no hope for the future. My future has been mostly home bound for 10 years. Now, with this foundation...I now have hope. ME/CFS has been neglected for 30 years by the US government. If we have a chance to get better in the very near future, Open Medicine Institute will be one of the foundations that will is playing a vital role! Sorry, I do have major cognitive issues with ME/CFS so this the best I can do. I will be actively trying to help in some capacity such as fundraising bc all they do for patient community. Its best in class.

I am a donor and a volunteer for one of their research projects, and would recommend anyone to consider devoting their time, or body to furthering the most ambitious goals of any CFS organization. The OMI doesn't just want to just "raise awareness" or sell ribbons, they have one mission -- cure CFS/ ME. They have the people and the commitment to do so -- all they need is you.

Jennifer Heye

This is a first rate scientific research charity, conducting research into a devastating and highly disabling illness called cfs or me. The government have cruelly neglected research into this illness, for decades and the cdc budget for research into this illness, has just been scrapped for 2016. On the other hand the omf are a very worthwhile charity research in cfs me and so please help this wonderful organisation to help find a cure because we sure can't depend on the nih

Having struggled with ME for over three decades, I am extremely grateful to the OMF for their cutting edge and collaborative approach to solving the complex and extremely devastating illness that is ME!

CFS/ME is a very real, very serious, and very debilitating neuroimmune illness. It has gone unrecognized, underfunded and under researched for far too long. I have suffered from this illness for over two DECADES, with no effective treatment or relief from the myriad of incapacitating symptoms. I am mostly homebound, and continually try my utmost to not become permanently bedbound. The End CFS/ME initiative of the Open Medicine Foundation represents hope for me. I see this stellar group of world-class scientists all coming together to try to research and solve the very complex puzzle of this illness as my best chance for finding a cure in my lifetime.....before I'm too old and debilitated to benefit from the findings.

The quality of people enlisted for research is like nothing ME/CFS has ever seen. For the first time in 30 years I have hope that someone is going to figure this out. Please know that your donations will be put to the best possible use.

The efforts of OMF are the only thing that have provided my parents (both ill with ME/CFS for 25+ years) with any semblance of hope. Their work - and the work of the researchers and doctors they are partering with - is so monumentally important and they are so very deserving of peoples support.

Open Medicine Foundation is doing revolutionary and desperately needed work researching ME/CFS. They've given me more hope than I've had in a long time.

This is a wonderful non-profit that is working to find a cure for a devastating disease which has left many across the globe bedridden and without answers or help for decades. Few other organizations are fighting to find a cure or even a treatment for this disease, so I am very grateful to the Open Medicine Institute for taking the charge and forging ahead with such a difficult but important task.

OMF projects into ME/CFS are sorely needed. Their project looking at Severe ME/CFS is the most extensive study of people with the severe form of this complex and perplexing illness. The team of eminent scientists, including a Nobel prize laureate, undertake exemplary research that will lead this field of study far forward.

The Open Medicine Foundation, working to end the terrible chronic illness of CFS/ME, is highly well-organized, detailed, informative and passionate. CFS is so much worse than the name suggests, plaguing sufferers with chronic aches and vertigo as well as fatigue. Symptoms can worsen and extend dramatically with even slight or mild exertion. Open Medicine is working very well to bring attention, education, and most importantly scientific research to the condition and richly deserves support to further its mission.

I strongly support the Open Medicine Foundation because I have been sick with ME since 1994 and largely bedbound the past ten years. The OMF offers our best hope for discovering effective treatment for ME. The OMF has an outstanding scientific advisory board, headed by one of history's greatest geneticists, Ron Davis, and including three Nobel laureates plus members of the National Academy of Sciences. These scientists have offered a brilliant, detailed plan for research, beginning with studying the very sickest ME patients--those who are bedbound or homebound, like me.

I make a recurring monthly donation to OMF. Its staff is always friendly, courteous and professional. I highly recommend donating to this charity.

Dr. Andy Kogelnick has been able to co-create a most productive team of experts in the medical and scientific field, who are dedicated to find the answers for a cure for ME/CFS. I also express kudos to Linda Tannembaum who is their executive director and one individual who has been a force behind the Open Medicine Foundation working diligently raising funds and creating awareness for ME/CFS and other related neuroendocrineimmune diseases. I wish them continuing success in all that they do. May they be blessed with good health and resilience to face the unsurmountable hurdles that they face in their labor of love to help a most forgotten community of suffering.

This institute is trying very hard to research the illness that has devastated my life & youth for the past 21 years. I am lucky I have huge support from my family which many in my position do not. But we are all crying out to find a way to improve my quality of life, currently this simply is not there however this is one of the few organisations trying to help me my family & my equally ill friends.

OMF is my hope for a healthy future with The End ME/CFS project. It is so motivation to fundraise as every dollar is a little step towards a life without illness.

Hugely dedicated, transparent and genuine, this team never ceases to amaze me. Brilliant ideas, excellent focus and a rare, wonderful ability to get great scientists and other experts on board. Ms Linda Tannenbaum is one of the most passionately engaged people I've ever come across in the ME/CFS field, and I truly believe in her efforts and aims. I really appreciate the frequent updates on the current projects and what the money is being used for. With infinite gratitude, I wish you the very best of luck -- stay strong, be brave!

OMF's team of world experts is working hard to end the silent epidemic of ME/CFS utilizing a big data approach coupled with clinical research. ME/CFS is a painful, debilitating, and devastating disease affecting a million people or more in the US, yet it is almost unheard of in conventional medicine. Currently, it takes years for a proper diagnosis (if one is lucky enough to get a diagnosis), by which time, the illness can progress and limit chances of recovery.

Being afflicted with severe ME/CFS myself, I can honestly say that it is a disease more terrible than a hypochondriac's worst nightmare. I am saddened by the fact that the US government has spent more money on male pattern baldness and erectile dysfunction than on ME/CFS research, despite increasing incidence of ME/CFS in the past 30 years.

Without government funding, we patients desperately need OMF and their important work to find causes of and treatments for ME/CFS.

As a registered pharmacist who has suffered greatly with ME/CFS/SEID for the last 12 years, I can state unequivocally that the Open Medicine Foundation is one of the VERY few research facilities in the entire world whose researchers not only understand how serious and disabling an illness this truly is, but also have a clear and concise strategy focused on unraveling the mysteries that have eluded us for decades. To this very day, the true nature and pathology of this disease has never been discovered and there is still not a single FDA-approved diagnostic test or treatment available, so God Bless the great work they are doing to change all this because I cannot even begin to express how badly it is needed. Please, do all you can to support the Open Medicine Foundation and let's beat this thing once and for all.

I have had ME for almost 28 years. The first few years I was very poorly then I went into part remission for many years, until in my early 50s the illness began to progress and has done for the last ten years. I am aware of the sincere mission of the Open Medicine Foundation to end this illness, which robs so many of us to function, physically and mentally. I received sincere thanks for the donation I made, and feel that the staff are personally interested in each and every one of us. Thank you all for your dedication and all the excellent work you are doing.
Christine Knott

I have always been impressed with the work they do. Their tireless efforts give people like me living with ME-CFS hope for a cure.

Their goal says it all ie to end ME/CFS,an illness which for decades has literally been a living death for people such as myself.We have met with disbelief at best to downright ridiculing,and this serious physical illness being "high jacked"by the psychiatric lobby....trying to exist(because in its worst form,that sums ones life up)is bad enough without the "it's all in your head"attitude.So the OMF is truly a beacon of hope for sufferers hidden from view ie we can't go on rallies,marches etc as we are too il,so it takes the OMF to speak up,then treat us.Surely at last this is the beginning of the end of ME?

I have had severe ME/CFS, housebound and bed ridden for much of 23 years. Prior to my illness I was very active as a mum and teacher, high school and university and in the community. ME/CFS has cost me 23 years of life; my career, marriage and being able to participate in life as my children grew up. The severely ill are too sick to get to the doctors. Because of the cardinal symptom being PEM (post exertional malaise), the mere act of travelling can exacerbate symptoms and thus make a person suffer more, often for weeks and even months. The fact that this OMF research is going TO the patient is hugh and so needed. This OMF research is so important to bring out the pathology of ME especially the severely ill who make up at least a third of all sufferers. According to a recent Danish study ME CFS patients have the lowest Quality of Life scores out of 20 major illnesses.http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421

Doing the work that you would expect government to do in helping find bio markers for a devastating disease that costs the government billions of dollars and destroys lives.
Providing visibility for the profoundly ill that so often have no medical care. Forgotten, neglected and stigmatised.

This is a dream team of researchers tackling the greatest medical mystery of our time. Support the cure to millions of suffering Americans-ME/CFS-we are so grateful for this dedicated team, including 3 Nobel Laureates-even the great Watson himself!

I am the father of a severely ill ME/CFS daughter whose condition has gradually declined over the past 20 years. For the first time in years, I feel hope because of the Open Medicine Foundation and its sponsorship of the work of Ron Davis and other top-rank scientists. His study will be one of the rare ones that focuses on bed-bound patients who are unable to go to the doctor let alone go to a research center to participate in a study. I am an agnostic who is praying for the success of the OMF and Dr. Davis's work.

As the mother of a child with ME/CFS, I can tell you it is an horribly debilitating disease, which effects previously healthy people of all ages, and robs them of the energy to work, go to school, exercise, think, read, feed themselves, groom themselves, carry on social lives, etc.

Doctors and researchers know very little about it's etiology and have virtually no proven treatments. Research is desperately needed.

The Open Medicine Foundation has brought together a brilliant research team and is ready to tackle this disease with a well coordinated master plan. They have just begun a study looking for everything that could possibly be wrong in a small group of the most severely ill, those who are bed bound, cannot eat, speak, tolerate light or sound, etc. They are looking in this group first as it is likely to be the most efficient way to find abnormalities. Abnormalities are often most glaring in the most severely ill.

The Open Medicine Foundation holds the greatest promise for ending ME/CFS. If you are looking for a way to make a difference in this world, help the OMF! I have donated, I hope you will, too.

The OMF is carrying out research into ME/CFS, an illness that leaves 25% of the people with it bedbound.
Their first stage is to investigate these severely ill people who have rarely been studied because they are not well enough to attend research centres.

There are no widely accepted biomarkers for this debilitating illness, no approved treatments, and most of the research is funded by patients themselves, patients who often live in poverty because they are too ill to be employed.

Please support the OMF!
A lot of very unwell people are relying on them to produce change.

These top scientists are doing all they can to help thse disadvantaged people.

There is nothing "GREAT" about this. They are a hoax and any "discoveries" are totally anecdotal and made up.

Please everyone knowledge is power when it comes to ME/CFS because so many sufferers can not be heard and are bed bound and literally in the dark . We have to spread awareness and the OMF is doing their part in making our voices heard and making it so we don't suffer in silence. While some of the medical community still doesn't fully understand the devastation this disease causes after suffering for 18 yrs since 16 yrs of age I can tell you it's a very real physical disease and I've lost everything and everyone! We need support from anyone including medical professionals, government, and nonprofits such as this one to help in saving over 4 million lives in the USA alone! Please do not ignore this disease or the work of the OMF because the life they save may be mine!

The Open Medicine Foundation supports research, advocacy and awareness of "invisible" diseases such as Fibromyalgia and Chronic Fatigue Syndrome. These illnesses can have severe symptoms, including chronic pain, memory and concentration defects, and extreme physical debility. They affect millions of people, but are still poorly understood, difficult to diagnose, and have limited treatment options.

In part, this is because these diseases have defied traditional biomedical research methods for isolating their cause, such as identification of a viral agent or mutant gene.
These diseases also have a large social stigma, as the symptoms have minimal outward signs, and are often mistaken for mental illness or malingering. These factors have combined to create an environment where funding and support for this research is at an abysmal level. For example, the annual NIH budget for all Chronic Fatigue Syndrome-related research is $5 million annually. This is on par with research funding on areas like lead poisoning, or Hay Fever, and is 1/10th to 1/100th that of other diseases with similar incidence and social burden. As a result, the research that does exist is often conflicting, of low statistical significance (due to a limited number of patients that can be enrolled, or limited sample sizes that can be analyzed on a given grant budget), and poorly focused.

The Open Medicine Foundation is working to change all of that. Their scientific advisory board contains luminaries from universities such as Harvard and Stanford, and includes Nobel laureate James Watson among their number. These individuals have become involved due to the compelling intellectual challenge, the possibility of uncovering new mechanisms underlying disease, or because close friends and relatives suffer horribly due to these illnesses. Together they have outlined a focused, economical, well-designed series of projects using state of the art diagnostic techniques, rigorous analysis and large sample sizes to finally bring study of these diseases into the 21st century and give them the attention they deserve. Of particular merit are the clinical studies of "low hanging fruit" - treatment options which have had some success in the literature, but have only had limited numbers of patients studied to date. So are the tools they are building to generate and analyze data that patients and patient advocates can supply from anywhere they have an internet connection.

Truly stunning, however, is the ME/CFS Severely Ill - Big data study. The patients who are the most ill, and consequently are likely to have the highest levels of biomarkers for the disease(s), haven't been evaluated in previous studies, because constantly travelling to see physicians or give samples is too exhausting for them. Instead, sampling will be performed professionally AT THEIR OWN HOMES. The samples are then analyzed in incredible depth using existing state-of-the-art research labs developed by their collaborators. This eliminates the capital cost of instrumentation or fees from contract research labs, meaning they get this data for the consumables cost and man-hour time alone. The $1 million goal for this study was recently fully funded, thanks mostly to a couple of anonymous donors with very deep pockets.

If OMF succeeds in their mission, they will effectively double the current research budget on their own, and finally give patients and physicians an objective method of verifying presence of the illness. This is crucial for diagnosis, treatment, and the social validation so necessary for improving the quality of life of millions of people. Equally as important are their advocacy activities, making videos, supporting documentaries and working to re-categorize these diseases into a framework that allows both the public and physicians to take them seriously. Just ask a patient with any of these diseases how often they've struggled to get support and been told "You don't look sick" or "I'm tired all the time too, doesn't stop me."

I can't put into words how impressed I am with this Foundation, its activities and aims. I say this not only as a patient who has struggled to overcome Chronic Fatigue Syndrome and be a useful member of society since my early teens, but as a successful analytical biochemist with over a decade of experience in Life Sciences R&D. These people deserve your money.

A fairly new "nonprofit" with high aspirations but sometimes not very articulate studies. They seem to do huge studies but not be transparent at all about what their expectations or goals are of the studies.

Open Medicine is helping bring awareness to a disease that is by far the least understood illness that can greatly affect a person's life. My 20 yr old son was diagnosed with this condition and no one in Houston knew what to do with it, how to treat it. We had to fly to California in order to get the proper treatment. This condition has completely altered my son's life- a valedictorian out of high school that now can only take 1-2 classes and can't socialize with friends due to his fatigue. There is still no cure and hardly anyone in our society understands it so it has a stigma that the patients do not deserve. Only through the work of institutions like Open Medicine can we get to a cure and better awareness. Thanks Open Medicine!

These folks have identified an important medical problem that requires definition. Their plan proposes to employ the very latest scientific methods of discovery and to collect Big Data. The data will be subjected to highly sophisticated computer analyses to look for patterns. From those patterns, hypotheses will be derived. Experiments will be undertaken to test those hypotheses.

I'm very pleased to have found the Open Medicine Foundation and their "End ME/CFS" work. At last, a chance to beat this insidious disease. My son has suffered from CFS for 12 years. He is 34 now, so he has lost the best years of his life.
It requires a concerted effort like this to make progress; the mainstream medical research organisations seem only interested in the high-profile diseases like Cancer and Heart disease.
I am happy to donate and hope that enough others will join me to defeat ME/CFS.

The Open Medicine Foundation is working hard to move the science forward for ME/CFS (Myalgic Encephalomyelitis /Chronic Fatigue Syndrome) and other neuroimmune illnesses. I've had CFS for decades, and it's only in the past few years I've started to feel hope that the pathology and causes of this illness will be unravelled, in a great part due to organizations like the Open Medicine Foundation. They have an all-star lineup of researchers, and are using "Big Data" and sponsoring studies on both genomes and gene expression to try to figure out what's going on. I would love to see them get all the support they need to follow their vision on this research.

My plea is on behalf of people who are severely ill with CFS. By severely ill, I mean formerly healthy people who can no longer walk or speak or feed themselves--and no one knows why. These people have been treated with contempt by most government research grantors for at least 30 years.

The OMF is the very first research group to understand that these extremely ill people are the ones who MUST be studied in order to find a group of biomarkers to distinguish their disease from other diseases. The OMF doesn't just give lip service to this idea. They are designing ways to send researchers into severe patients' homes to collect the five types of bodily fluids they will study. The OMF includes some of the world's best scientists, and my hope lies with them.

The OMF has top scientists with a great research plan that is ready to move forward. When you donate to them your money goes directly to real science for a cure.

The OMF is aggressively searching for answers for Neuro-Immune illnesses. With a rock star Scientific Advisory Board that is led by Professor Ron Davis who is Professor of Biochemistry & Genetics, and Director of the Stanford Genome Technology Center at Stanford University it won't be long till major headway is made in understanding this area of science. This is a first class organization that desperately needs all our support! The beauty is there making a difference NOW in patients lives by offering cutting edge treatments.

OMF is providing hope for those who suffer from one of the least understood major diseases out there today. Their research on neuro-immune disease is cutting edge and collaborative which means that they are sharing information and building relationships within the neuro-immune disease research community so that the world can make advances faster and hopefully find a cure sooner. I also very much appreciate how they are working to build awareness and have greatly helped my daughter in finding ways to educate people on her disease which is so misunderstood. They have also helped our family find the resources and team of doctors that we need to support us through this disease.

This charity is fantastic, the people behind it so inspirational and innovative problem solvers. Their plans to devise biomarker panels for Myalgic encephalomyeltis will start to bring about understanding of parthenogenesis that has been desperately lacking, subsequently likely helping to bring about treatments to give patients back their lost lives.

Open Medicine Foundation offers open scientific collaboration, expertise, courage, and endurance. This is what M.E. patients, including me, have been awaiting for decades. One can only hope that the NIH wakes up and realizes that this work needs to be fully funded. Will more children, adults , and caregivers have to lose their lives to this disease while at the same time being asked to provide evidence that they are sick? I hope not, and I hope anyone who reads this will support the Open Medicine Foundation.

As a patient, to say I'm grateful for the work of the Open Medicine Foundation (OMF) is an understatement. Members of the OMF's scientific advisory board comprising world-renown researchers, including two Nobel Laureates, are "...contributing their time, experience, connections, and brilliant minds to ending ME/CFS and the suffering it causes". Thank goodness, because ME/CFS patients like me need this caliber of scientists to work on our behalf and move knowledge of this disease forward in the near-absence of funding or support by the US government.

Members of the OMF Board are equally dedicated. Linda Tannenbaum, the Executive Director, is a parent of a patient. She and others successfully raised funds needed for Phase One of the End ME/CFS project. Please consider donating to the OMF for Phase Two.

This non-profit organization is simply our best hope! A bigwigs class is ready to mobilize for us, ME sufferers, dying patients in our beds, living dead ... They only needs the funds ... that NIH still refuse to give ! ME Research is no experience subsidies, while we are millions in the world to suffer! Wordwilde, there is almost only the OMF for helping us, so please, consider this organization, we need so much OMF and their work! (sorry for my poor English)
A French ME Sufferer

I am an ME sufferer. I am housebound and invisible. The work the OMF is doing is the only thing giving me hope in a very hopeless situation. Thank you from the bottom of my heart!

This is one of the few organizations undertaking real scientific research into myalgic encephalomyelitis and other poorly understood neuroimmune diseases. ME patients have been neglected by the federal government's research funding and healthcare agencies for thirty years. That is starting to change now, largely thanks to OMF and its stellar scientific advisory board. There is now at least a glimmer of hope for patients with this truly horrible, debilitating disease.

Having suffered from severe ME unable to feed or wash myself, a charity that fights for funding and research is one of the few hopes we severe ME sufferers have left.