My brother is tortured by this terrible disease. OMF are giving a little hope to him and his close ones, by their research. Their scientists seem really great, both competent and having an honest desire to solve the mystery of ME/CFS.
I Will Tell You This
About Myalgic Encephalomyelitis:
When the pain is unbearable and my muscles cannot take anymore I am too exhausted. I need to lay down away from sounds, light or any distress. Seeking comfort and try to relax. Hoping for better days and results from OMF biomedic research...
Because there is no cure yet!
WE WANT TO LIVE! So please join in for more biomedical research in M.E.!
I have suffered from ME for 28 years. Due to this illness I have lost a career, the chance to get married and have a family. I spend most of my time housebound, and alone. This is not the life I envisaged in my twenties. My life effectively came to an abrupt stop at the age of 27.
During the last 28 years there has been very little research into ME/CFS, particularly biomedical research. The Open Medicine Foundation are one of the few groups of researchers working in this field. Research gives ME patients hope, the OMF gives us hope.
Please let's not loose yet another generation to this dreadful illness because of lack of research. Support the OMF.
The OMF is dedicated to rigorous biomedical research into the much neglected illness ME/CFS. It does this very ethically, sharing data and reaching out to a wide range of disciplines. Most of all it giveaways HOPE
The Open Medicine Foundation funds top scientists to study one of the most neglected diseases of our time.
Myalgic Encephalomyelitis (ME) is often called chronic fatigue syndrome (CFS) even though it is recognized by the World Health Organization as a debilitating neurological condition. Research has shown that ME/CFS is more disabling than MS, congestive heart failure and end-stage renal disease. It is estimated that more than 1 million Americans have the disease and several millions worldwide. There is currently no FDA-approved treatment for ME/CFS and little is known about the illness.
The Open Medicine Foundation is dedicated to change that. It engages with the ME community and brings patients and researchers together in their quest for knowledge and answers. Most importantly: it brings high quality science to the field of medicine that needs it the most. I myself have been ill because of ME/CFS for more than 10 years. It has left me disabled, uneducated and homebound. There are millions like me suffering. Please support the Open Medicine Foundation and help find a cure for ME/CFS.
I have been ill with ME for 28 years, but because of no knowledge of this disease among physicians it took 15 years to get the correct diagnosis. In the meantime my condition deteriorated, to a level where I can no longer work or take care of myself. Open Medicine Foundation is supporting long overdue research on this neglected disease.
The Open Medicine Foundation is successfully bringing together some of the most gifted scientists and doctors in the world to collaborate on research to find the cause and possible treatment of ME/CFS, a devastating chronic illness that has historically received very little research funding from the US federal government and that has been largely ignored by the medical establishment. As a private nonprofit, it has made great strides in recent years in generating important scientific insights about the disease, raising awareness about ME/CFS within the scientific and medical communities, and giving hope to ME/CFS patients who have been neglected for far too long.
I have donated to this organization and will continue to as they give me hope with their collaborative research efforts.
My name is Diane and I was diagnosed with ME/CFS 28 years ago. Because of the poor advice I received from physicians (including Mayo Clinic) that I was just deconditioned from a bad virus and should go back to work and do graduated exercises, I went from having a moderate case of CFS to very severe. I could no longer work at all and my parents had to take care of me as I was bed ridden for 20 years. Then they both became ill with lung cancer, and I had to somehow take care of them. I was never able to get married or have children because I was never able to improve- there is absolutely no treatment or cure for ME/CFS. We're just told it's all in our head and go home and deal with it. I still am mostly housebound and unable to work. But there are caring researchers out there who are finding that it is a true physiological disease and NEEDS proper funding for research. Open Medicine Foundation is the ONLY hope people with ME have to get a proper diagnosis and treatment, as they encourage several research groups from around the country to collaborate and share information (rather than competing for funding) so that research for a cure can be found more quickly!!
I am so happy and encouraged to learn about Open Medicine Foundation- it's such an inspired idea which gives me great hope in speeding the effort to find a cause/cure for ME/CFS. I have battled a severe form of CFS for 27 years, along with my mom who was also diagnosed with it. Thank you for all you are doing on our behalf!
It's a shame for all nations of the world!
Despite very little public funds, Ron Davis, founder of Open Medicine Foundation, has managed to establish an excellent research center with a great number of renowned scientists and collaborations with top scientists across the globe. You can see the impressing list of collaborating universities, scientists and research centers on OMF's website.
OMF is real science! OMF is efficiency! OMF is hope for millions of desperate patients terribly suffering from ME/CFS! In a few years OMF has achieved more than other projects in decades!
OMF is one of the most important and efficient foundations in the world! Not only for ME/CFS-sufferers, but for all patients suffering from chronic diseases and for the benefit of whole mankind! It has deserved much more (financial) support!
Open Medicine Foundation OMF is a great organisation that gives hope to millions of suffering MECFS-sufferers. Actually it's a shame that organisations like OMF have to do the work official institutions like NIH should do. But official institutions don't care preferentially about the suffering of patients but about their budget, profit and public reputation. OMF is not dependened on political guidelines. The main purpose of OMF is to help patients suffering from MECFS. With their diligent and highly qualified staff including top-scientists OMF finally wants to clear up the mystery of MECFS and wants to put an end to the inhuman ignorance and neglect of severe ill patients by official departments.
Provides hope and science for a population of patients that has a long history of stigma and neglect.
Opening up for medical progress, connecting medical professors from all the world to solve a devestating desease keeping kids (and adults) from participating in their own lives.
The Open Medicine Foundation currently provides the strongest hope that researchers might find a cause and treatment for ME/CFS. Funding for the illness is woefully inadequate. The collaborative nature of the Foundation’s work increases their power and reach. This illness causes unimagineable suffering. We must advocate for those who are too ill to advocate for themselves.
Hello, I’m Jean and I’ve had ME for 30years, since I was 38. For many years I was able to live a relatively normal life, using the pacing technique of working out how much I could do in a day and then doing only 75 per cent of it. This worked well except for the days when I failed to pace myself and paid the price by crashing and having to rest, in pain, until I was back to 'normal'.
Over the last few years I have become more ill, having to rest nearly all of the time, and I now become extremely exhausted after a couple of hours spent with friends or family. I’ve also realised that my doctor doesn’t believe that ME is a real illness making me realise that there is no possibility of my medical problems being treated knowledgeably and purposefully. I only see my doctor when I have an easily identified illness that I’ve had before, now. The Open Medicine Foundation has given me hope that my disease will be understood and recognised one day. They are the reason I can hope for a better future and I love to read about the research they are doing.
The story of ME/CFS is so amazing and is really a material for a suspense movie. Before this illness I thought plots in movies are a bit exaggerated. But... I met some real heroes and fighters for justice and the truth. People of the OMF are fighting hard and don't give up even when the odds are against them. MILLIONS of ME/CFS sufferers are drawing hope and strength from their efforts. We are alone, helpless and forgotten but what we do have are the best scientist on our side who are not in it for fame and glory.
I am 20 years old and have ME/CFS. That means I can't live my life and even typing this is mentally and physically exhausting. OMF is doing incredible work for us the Millions missing, who are neglected by the govts. Theyre the reason for many patients not to lose hope because of the great research they fund!
Hope for the hopeless. OMF are producing champagne results on shandy money. Their pursuit to find answers is as unrelenting as the disease they aim to cure.
Open Medicine Foundation is doing groundbreaking research in ME, a serious desease that has gotten too little attention from the medical community. They are close to a break through and deserves support.
Open Med has brought hope to the millions of people with ME/CFS with their commitment to sound science, new technology, and big picture thinking.
When I came ill with ME/CFS about 15 years ago, I only vaguely heard about this disease before that; I was told this would be for the rest of my life and that I had to stop hoping for a cure. (??)
I never ever wanted to give up hope, because, really, hope is the only companion I have left while trying to live 24/24 7/7 in this horrible nightmare which this life-quality-stealing-disease is. I thought I was a lonely warrior in this battle, until I discovered OMF. Every time my hope is running low, I read one of their many articles about their achievements and efforts to get scientists worldwide work together in finding a cure. and then a little bit of hope for a cure in the near future sparkles again in my heart. I'm so grateful !