OMF is the leading organization that brings hope to many suffering with this awful disease!! They do such incre work and fight such a tough battle! I'm so glad to have them on our side!
Even in France, OMF bring some hope for those who are housebound or too sick to take care of themself. OMF share a lot of information with us and we fell supported for once.
I have had ME for over 15yrs and was seriously starting to give up hope, when I first learned about Dr Ronald Davis and the Open Medicine Foundation's impressive research into MECFS and other related illness. From the first day I contacted Marilyn Simon-Gersuk (director of communications/development) for more information, I felt confident that I had found the right non-profit to stand behind. Everyone I have come in contact with has been helpful and timely in answering any questions I might have. They have been nothing but welcoming and supportive, to me and thousands of others suffering from this debilitating disease. Now, through regular newsletters and video updates, as well as their social media platforms, I am kept well up to speed on the progress/discoveries the OMF's researchers are making. Not least of all, the good works of Linda Tannembaum (CEO/President) and the volunteers of OMF's EndMECFS campaign, who's monumental efforts in raising ME awarness are truly inspirational. All over the world, different countries, different cities, this dedicated non- proffit organization is striving to educating and raise funds to continue this much needed research. Thanks to the entire team at the Open Medicine Foundation, I like many others, have hope again that our suffering will end and we will get out lives back.
OMF is raising funds to do leading edge research to find biomarkers, diagnostics, eventual treatments, cures, prevention for M.E., Myalgic Encephalomyelitis. Linda Tannenbaum is doing a superb job of leading this effort to cure over 1 million ill in US, perhaps 17,000,000 worldwide. She has met with experts and patients nationwide and even visited my 22 year son at our home last month, showing her true compassion. I focus my donations on OMF since it is a leading organization funding key patient R&D including the severe ME/CFS patient study that was started early this year (Feb 2016).
Open medicine is striving to do research to solve Mylalgic Encephalomyelitis, a severely debilitating disease that affect approx 1-2 million in US and perhaps 20 million worldwide, and related diseases. The NIH has done negligible funding for this neglected medical disease that leaves a quarter of those affected housebound or bedridden. UNBROKEN! The author of this movie and Seabiscuit, Laura Hillenbrand, has this disease and has heroically helped publicize this. I have donated to this since my son is affected and went from being successful Stanford student, to being stuck in a dark room 23 hours a day, barely able to think or talk for last year. He is unbroken, but 80% of sufferers are not even diagnosed since research for diagnostics is missing. End-MECFS.org needs your support, to make up for the discriminatory lack of funding for research to cure this, by Congress and NIH. This group has the top researchers at Stanford, Nobel prize winners involved, but needs your support.
The best ME/CFS charity worldwide. Brilliant highly dedicated people working with complete integrity. Their latest revolutionary research has provided some much needed hope to patients and carers globally.
This is what a medical charity should be like! Transparent, informative, humble, dedicated, well organised and honest. These qualities shine through in everything they do and all their publications.
OMF has given me hope I have not even dared to feel all these years being severely ill with ME/CFS. People involved have the unique blend of stunning expertise and personal investment in finding the cure. That way I know that every dollar I donate goes straight into solving ME/CFS in the best and quickest way possible. And their results so far have shown I've been right to trust them. Thank you.
Great communication. Finally some hope for such an important but ignored area.
O.M.F are pushing through to find answers to M.E/cfs like no other research facility has done in the past 30 odd years. As a sufferer of this illness for at least that long believe me I know. Their board and team are fantastic and we are kept informed of research,which gives us all hope. Historically M.E./cfids has been chronically under funded and things still have not changed.
The leading researcher for ME/CFS - They give hopes to millions of us struggling with this disease, when all others have failed us.