The Open Medicine Foundation currently provides the strongest hope that researchers might find a cause and treatment for ME/CFS. Funding for the illness is woefully inadequate. The collaborative nature of the Foundation’s work increases their power and reach. This illness causes unimagineable suffering. We must advocate for those who are too ill to advocate for themselves.
Hello, I’m Jean and I’ve had ME for 30years, since I was 38. For many years I was able to live a relatively normal life, using the pacing technique of working out how much I could do in a day and then doing only 75 per cent of it. This worked well except for the days when I failed to pace myself and paid the price by crashing and having to rest, in pain, until I was back to 'normal'.
Over the last few years I have become more ill, having to rest nearly all of the time, and I now become extremely exhausted after a couple of hours spent with friends or family. I’ve also realised that my doctor doesn’t believe that ME is a real illness making me realise that there is no possibility of my medical problems being treated knowledgeably and purposefully. I only see my doctor when I have an easily identified illness that I’ve had before, now. The Open Medicine Foundation has given me hope that my disease will be understood and recognised one day. They are the reason I can hope for a better future and I love to read about the research they are doing.
The story of ME/CFS is so amazing and is really a material for a suspense movie. Before this illness I thought plots in movies are a bit exaggerated. But... I met some real heroes and fighters for justice and the truth. People of the OMF are fighting hard and don't give up even when the odds are against them. MILLIONS of ME/CFS sufferers are drawing hope and strength from their efforts. We are alone, helpless and forgotten but what we do have are the best scientist on our side who are not in it for fame and glory.
I am 20 years old and have ME/CFS. That means I can't live my life and even typing this is mentally and physically exhausting. OMF is doing incredible work for us the Millions missing, who are neglected by the govts. Theyre the reason for many patients not to lose hope because of the great research they fund!
Hope for the hopeless. OMF are producing champagne results on shandy money. Their pursuit to find answers is as unrelenting as the disease they aim to cure.
Open Medicine Foundation is doing groundbreaking research in ME, a serious desease that has gotten too little attention from the medical community. They are close to a break through and deserves support.
Open Med has brought hope to the millions of people with ME/CFS with their commitment to sound science, new technology, and big picture thinking.
When I came ill with ME/CFS about 15 years ago, I only vaguely heard about this disease before that; I was told this would be for the rest of my life and that I had to stop hoping for a cure. (??)
I never ever wanted to give up hope, because, really, hope is the only companion I have left while trying to live 24/24 7/7 in this horrible nightmare which this life-quality-stealing-disease is. I thought I was a lonely warrior in this battle, until I discovered OMF. Every time my hope is running low, I read one of their many articles about their achievements and efforts to get scientists worldwide work together in finding a cure. and then a little bit of hope for a cure in the near future sparkles again in my heart. I'm so grateful !
Actually the Open Medicine Foundation is a miracle. Not funded by any authority groundbreaking research is being done by an unprecedented and still increasing number of scientists from all over the world into a disease - ME aka CFS - about which in practically all countries little to none is known and which accordingly almost everywhere is classified as psychosomatic, with a detrimental impact upon its sufferers being stigmatized and treated as creating and maintaining their own disease (which untreated can be lethal)
No wonder all eyes from patients all over the world and the hope of numerous of them
are fixed upon the researches being done thanks to the unrelenting efforts of this marvellous foundation
Excellent research. Timely public information. Not many other places to turn for this kind of effort.
OMF is my hope that in a near future I will be living again, sharing lost years with my husband and sons. Those scientist are my daily strength and support.
Sick with ME. Increasing knowledge about the disease.
Gives me hope! I am really inpressed with their work
Probably the most important organization in medicine today.
An organization that gives hope to people with #MEcfs worldwide. We believe in you and your breakthrough in science.
Greetings from Germany and the Netherlands! Sonja - I am ONE of #MillionsMissing
OMF gave me hope of a cure as when I was first diagnosed there was very little research/progress being made and then the end ME/CFS project came about, the work they are doing made a massive difference to being able to see an end in sight when I was severely affected, mainly bed ridden.
Being collaborative across the world and having focus on getting to the root cause(s), potential treatments, sharing of information with other researchers rather than writing papers and being published is something that really stands out.
They also do some excellent advocacy work
A medical group like no other, working for the ME/CFS patients and giving us hope unlike any other group or physician. After 34 years of disability with no cure or treatment, we NEED hope and great research. PLEASE HELP US.