OMF is raising funds to do leading edge research to find biomarkers, diagnostics, eventual treatments, cures, prevention for M.E., Myalgic Encephalomyelitis. Linda Tannenbaum is doing a superb job of leading this effort to cure over 1 million ill in US, perhaps 17,000,000 worldwide. She has met with experts and patients nationwide and even visited my 22 year son at our home last month, showing her true compassion. I focus my donations on OMF since it is a leading organization funding key patient R&D including the severe ME/CFS patient study that was started early this year (Feb 2016).
Open medicine is striving to do research to solve Mylalgic Encephalomyelitis, a severely debilitating disease that affect approx 1-2 million in US and perhaps 20 million worldwide, and related diseases. The NIH has done negligible funding for this neglected medical disease that leaves a quarter of those affected housebound or bedridden. UNBROKEN! The author of this movie and Seabiscuit, Laura Hillenbrand, has this disease and has heroically helped publicize this. I have donated to this since my son is affected and went from being successful Stanford student, to being stuck in a dark room 23 hours a day, barely able to think or talk for last year. He is unbroken, but 80% of sufferers are not even diagnosed since research for diagnostics is missing. End-MECFS.org needs your support, to make up for the discriminatory lack of funding for research to cure this, by Congress and NIH. This group has the top researchers at Stanford, Nobel prize winners involved, but needs your support.
The best ME/CFS charity worldwide. Brilliant highly dedicated people working with complete integrity. Their latest revolutionary research has provided some much needed hope to patients and carers globally.
This is what a medical charity should be like! Transparent, informative, humble, dedicated, well organised and honest. These qualities shine through in everything they do and all their publications.
OMF has given me hope I have not even dared to feel all these years being severely ill with ME/CFS. People involved have the unique blend of stunning expertise and personal investment in finding the cure. That way I know that every dollar I donate goes straight into solving ME/CFS in the best and quickest way possible. And their results so far have shown I've been right to trust them. Thank you.
Great communication. Finally some hope for such an important but ignored area.
O.M.F are pushing through to find answers to M.E/cfs like no other research facility has done in the past 30 odd years. As a sufferer of this illness for at least that long believe me I know. Their board and team are fantastic and we are kept informed of research,which gives us all hope. Historically M.E./cfids has been chronically under funded and things still have not changed.
The leading researcher for ME/CFS - They give hopes to millions of us struggling with this disease, when all others have failed us.
Raises funds and gives grants to scientists, medical researchers, geneticists and computer experts to combine their talents to look deeper than even the CDC and NIH have done at the condition of CFS/ME and actually seems to have proved it can be diagnosed in labs by biomarkers.
Finally after three decades we patients have proof that it is not "all n our heads" nor "mysteriously inexplicable."
Publicizes its efforts through reputable peer-reviewed scientific papers, mass media and social media as well as public events. Makes highly specialized knowledge understandable even to laypeople through excellent communications programming, such as linking the journal articles to Q & A sessions with the investigators.
Ron Davis and his team of stellar scientists, including many Nobel laureates, is doing some of the best, most promising, research in ME and CFS, bringing hope to millions. NIH is funding ME at $5, MS at about $200 and HIV at about $3000/patient. They haven't contributed a penny to this ground-breaking research, which is appalling. OMF fundraises to get this research done, which could lead to testing and treatment in the near future.
I went from a highly active university professor to a slight step above bedbound within a few days of contracting ME. 15 years ago. NIH has underfunded the disease - about 2% of the funding for MS and Parkinsons and 0.5% of AIDS funding. This leaves us with no accepted biomarkers or treatments, though the work of experts is finding antivirals, immune modifiers, cancer treatments that work for some patients if they can be made available. Most patients, like me, however, are left to rot. And most medical schools either don't even cover ME or have wrong information. We need good biomedical research now to solve these problems and bring life back to 10s of thousands like me.
OMF is one of the good biomedical researchers. And one of the few that is looking to research the severe patients. I've participated in past studies and am so excited at the new study awaiting funding to study severe patients. The researchers and advisory board are stellar - nobel laureates, Stanford, Harvard...... And the planned study results could soon change the bleak picture people with ME face now.
The OMF's breakthrough discovery of metabolic biomarkers is revolutionary. It's not even just that they found something but that they actually looked for something being wrong with severely ill people with Me/CFS. For decades the CDC and NIH have followed the psychiatrists who "hijacked the disease" claiming it was a mental health disorder and blaming the patients for being ill.
The dedication and finding safe and collaboration of these scientists is unheralded - scientists whose primary aim is to help patients and ovturn decades of neglect.
Millions of woman and men worldwide have "lost"their lives due to this disease yet the USA government has ignored us.
Promises of funding after the publication of the IOM and P2P reports have come to naught, so far. Is that because diseases rhat predominantly affect woman are ignored??
The work by the OMF is Changi g the way ME/CFS is perceived worldwide, despite the lack of government funding. Imagine how fast and how huge the breakthrough started would be if the OMF was funded??