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MichielTack

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Review for Open Medicine Foundation, Agoura Hills, CA, USA

Rating: 5 stars  

The Open Medicine Foundation funds top scientists to study one of the most neglected diseases of our time.

Myalgic Encephalomyelitis (ME) is often called chronic fatigue syndrome (CFS) even though it is recognized by the World Health Organization as a debilitating neurological condition. Research has shown that ME/CFS is more disabling than MS, congestive heart failure and end-stage renal disease. It is estimated that more than 1 million Americans have the disease and several millions worldwide. There is currently no FDA-approved treatment for ME/CFS and little is known about the illness.

The Open Medicine Foundation is dedicated to change that. It engages with the ME community and brings patients and researchers together in their quest for knowledge and answers. Most importantly: it brings high quality science to the field of medicine that needs it the most. I myself have been ill because of ME/CFS for more than 10 years. It has left me disabled, uneducated and homebound. There are millions like me suffering. Please support the Open Medicine Foundation and help find a cure for ME/CFS.

Role:  Professional with expertise in this field