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SUS2

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1 reviews

Review for Open Medicine Foundation, Agoura Hills, CA, USA

Rating: 5 stars  

Full open data and open access research. A team dedicated to the scientific research of the biological disease ME/CFS. I have suffered from the disease for 40 years and the first 20 I was still able to work. If there had been treatment options during that first 20 years I may not be disabled now. This is why great research organizations like the OMF need to be funded. Correct diagnosis with biomarkers, treatment options, and the right tools in the hands of clinicians must be made available as soon as possible. The Incline Village outbreak occurred more than 30 years ago and due to egregious missteps by the CDC, NIH, and the psychiatric field, no help came to those victims of the outbreak or for those who were ill prior and after.

Role:  General Member of the Public