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2 reviews

Review for Open Medicine Foundation, Agoura Hills, CA, USA

Rating: 5 stars  

Hope that someone is paying attention
Hope that someone is DOING something
Hope that one day doctors won't victimize patients
Hope that a blood test, treatment, and cure is possible
Hope that lives can be restored
Hope that families can be reunited
Hope that despair will end instead of lives

Role:  Donor

Review for Open Medicine Foundation, Agoura Hills, CA, USA

Rating: 5 stars  

I consider Open Medicine Foundation a leader in research for myalgic encephalomyelitis /chronic fatigue syndrome. Its origins are parent based. When a child is in danger there is no greater strength or focus.

Our son was diagnosed August 2015 following a four year flu that has slowly and painfully taken away his hopes and dreams. One by one. He remains hopeful but realistic about the roadblocks that our government continues to put in place preventing meaningful treatment or cure.

The first information we had about ME/CFS was a July 2015 video about Ron Davis, Janet Dafoe, their son Whitney and daughter Ashley. Little did we know the parallels our lives would share. But there was hope. We soon learned about Open Medicine Foundation and their commitment to fund research to end this horrid illness that has taken our son captive. OMF's President and CEO, Linda Tannenbaum is another parent with skin in the game.

Every opportunity we have, we give to this organization of parents trying to save our children. Cash, Amazonsmile, cars, family donations, offering outreach in our area and more. There is no research organization we trust more to find the answers. Today OMF is hosting a global conference for researchers followed by a Community Symposium for to public. It is sold out. Open Medicine Foundation has tremendous credibility in the ME/CFS world. They are the "good guys" who continue to make connections and fight for our son.

Role:  General Member of the Public