My Nonprofit Reviews
Joanne C.7
Review for Open Medicine Foundation, Agoura Hills, CA, USA
I’ve had ME/CFS since 1980. Nothing is more discouraging than having doctors tell you they can’t find anything wrong with you and suggest that you see a psychiatrist, when you know that you have a profound health issue that’s ruining your life, and in my case, the life of my young daughter. I was a single professional Mom, trying to stay awake in meetings and having not an ounce of energy to give my daughter when I got home from work. Thank god someone finally took this horrible sickness seriously! The amazing work these researchers are doing is beginning to reveal the full range of biological and neurological systems that are affected by ME/CFS. Their collaboration with each other and with those of us who suffer this disease is amazing! We’re finally taken seriously. I just wish this had begun 40 years ago. I might have been able to lead an entirely different, more productive life, and surely would have been far more able to give my child the attention she deserved. I encourage those who can to donate to furthering this long neglected and much needed research. They’ve been operating on a shoestring budget and their work can progress much more rapidly with additional resources. Find out more about their great work on YouTube.