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bluebird08

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1 reviews

Review for Open Medicine Foundation, Agoura Hills, CA, USA

Rating: 5 stars  

I am a mother of two small children- a preschooler and a baby. This disease has devastated my health, some days I can barely walk. I now need help caring for my precious children. I was young, fit, and very healthy when I got this disease. It can happen to anyone! Yet there is a horrific lack of understanding and no treatments available. Suicide is 8x higher for us. We need help! Our lives are passing us by. OMF is the only organization that I know of that is dedicated to a cure. Forget politics, forget who gets “credit”- OMF cares solely about a cure because the people that run the organization both have severely ill children. The organization is “open” meaning anyone can see their data and help solve this disease. Their recently published study brings us closer to a bio marker. The research coming out of this organization is some of the most important of our time.

Role:  General Member of the Public