My Nonprofit Reviews

The Open Medicine Foundation is at the forefront of scientific research into the causes of and potential treatments for ME/CFS (more widely known as Chronic Fatigue Syndrome) and Long Covid. It also works to inform and educate the medical community so it better recognizes these illnesses.

ME/CFS is a devastating chronic illnesses with long-lasting symptoms that include severe pain, fatigue and impaired cognitive function. The symptoms of these illnesses affect not only the ability of patients to maintain employment to support themselves and their families financially, but also their ability to maintain relationships with friends and family, to have and to raise children, even to leave their homes and their beds. Despite how devastating ME/CFS usually is for patients, research into it is severely underfunded relative to disease burden. Patients are underserved by the medical community, as many doctors do not know how to diagnose let alone treat them.

This is where the Open Medicine Foundation has stepped in and filled an enormous gap. It has recruited some of the brightest minds in science to research the illness, led by Ron Davis, the renowned geneticist at Stanford. It has brought together a scientific advisory board that is comprised of highly respected biologists, biochemists, geneticists, immunologists and physicians. It has created and funded ME/CFS research centers at Stanford and Harvard in the US, as well as in Canada, Australia and Sweden.

Open Medicine Foundation represents the best hope ME/CFS patients have that this grave illness will finally be understood and become treatable, even curable.

The Open Medicine Foundation is successfully bringing together some of the most gifted scientists and doctors in the world to collaborate on research to find the cause and possible treatment of ME/CFS, a devastating chronic illness that has historically received very little research funding from the US federal government and that has been largely ignored by the medical establishment. As a private nonprofit, it has made great strides in recent years in generating important scientific insights about the disease, raising awareness about ME/CFS within the scientific and medical communities, and giving hope to ME/CFS patients who have been neglected for far too long.