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- EIN 52-1350226
- (800) 504-3189
- 5410 Edson Ln Ste 220 Rockville MD 20852-3195 USA
- www.gaucherdisease.org
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Nonprofit Overview
Causes: Birth Defects & Genetic Diseases, Birth Defects & Genetic Diseases Research, Health, Specifically Named Diseases
Mission: Raise funds to promote education and awareness; meet ever-increasing needs of individuals with gaucher disease and their families.
Programs: Support of the care program, which grants funds to approximately 250 individuals, to subsidize, or to purchase in full, a health insurance policy(primary, secondary or both), to which the patient is entitled or eligible, but for which the patient does not have adequate personal resources to enroll.
education and awareness initiatives throughout the u. S. The program includes a website with expansive content that is regularly updated, monthly blog posts on gaucher disease from medical thought leaders, monthly e-newsletters, human interest stories in film, digital and written materials,an annual educational symposium for patients and physicians, a carrier screening program as well as services to patients (with information, support,and resources) to help them achieve and maintain their optimal health.