Find Birth Defects & Genetic Diseases Research Nonprofits and Charities
Featured Review
F.I.S.H. of Sanibel-Captiva, Inc
I volunteer at fish. They go over and above to help those neighbors in need. The food bank and Back Pack programs help provide food for families. They help the elderly with transportation and visits.... more
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CDH International
- Location:
- Wake Forest, NC
4.87415 stars 294 reviews
Gillian M. wrote:
When our daughter was diagnosed with CDH we had no idea what it really was and how many other babies and families were affected by it. We received a box with gifts information and encouragement from parents who had been through it before. So much is accomplished... more »
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Barth Syndrome Foundation Inc
- Location:
- Larchmont, NY
4.99535 stars 215 reviews
cooleen wrote:
I chose to donate to the Barth Syndrome Foundation after reading one of their newsletters. I felt compelled to give to this incredible organization when I read the stories about these wonderful families. I was actually moved to tears, reading about... more »
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Huntington's Disease Society of America, Inc.
- Location:
- New York, NY
4.78462 stars 195 reviews
Rick17 wrote:
I got involved with this group through my wife. Her father passed away some years ago from HD. Her sister is in an assisted living home with HD. I became involved through doing some research about HD. I asked Jane Kogan for some assistance. I have... more »
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Trisomy 18 Foundation
- Location:
- Flushing, MI
4.76923 stars 143 reviews
Radarsmom wrote:
I lost my beloved 1st son in October of 2007 after a Trisomy 18 diagnosis. I knew nothing about trisomy 18 and knew no one else that had walked this heartbreaking road. Through the Trisomy 18 Foundation, I found much more information than even my doctor... more »
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Cornelia de Lange Syndrome Foundation, Inc.
- Location:
- Avon, CT
4.97458 stars 118 reviews
Kimberly30 wrote:
It was sixteen years ago, and I didn't have access to anything but a medical dictionary and a book from the '40s showing a photograph of a child that looked remarkably like my newborn daughter. I was shocked and devastated with the diagnosis. A nurse... more »
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International WAGR Syndrome Association
- Location:
- Montgomery Village , MD
5 stars 114 reviews
Tammie wrote:
Our general doctor was the one who found the IWSA for us. As first time parents we were scared enough, but when Evie was 3 days old we found out that our lives were about to take a dramatic turn by hearing that she had no irises in her eyes, that she... more »
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FSHD Society
- Location:
- Randolph, MA
4.9902 stars 102 reviews
bartonfletcher wrote:
The Society raises money to fund research into curing the disease it's named for, and it does a shockingly good job. Smaller than the Muscular Dystrophy Association, it spends its money wisely by 'seeding' young researchers or unproven lines of inquiry,... more »
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Chromosome 18 Registry and Research Society
- Location:
- San Antonio, TX
5 stars 98 reviews
KristenSE wrote:
My daughter has 18p-. This is a rare genetic condition that manifests itself with speech delay, social delay, low muscle tone, cognitive delay, short stature among many other issues. My husband and I found out this devestating news in 1999. We were... more »
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Indo-US Organization for Rare Diseases
- Location:
- Herndon, VA
4.92857 stars 42 reviews
Cure VCP Disease wrote:
Great organization that is focused on collaboration between USA and India rare disease patient advocacy organizations. IndoUSRare helped make a connection to doctors in India that were aware of my rare disease. This is just the start and networking... more »
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The Luca John Foundation
- Location:
- Princeton, NJ
4.92105 stars 38 reviews
Momof1MS wrote:
Loosing a child is one of the most difficult things I have ever had to deal with. My husband and I were never able to afford a tombstone for my son's grave. The people at the Luca John Foundation were generous enough to donate the stone. From the first... more »
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CHILD LIFE SOCIETY INC
- Location:
- Brooklyn, NY
4.76471 stars 34 reviews
Lisa R. wrote:
This organization does not follow the cross contamination guidelines recommended. They have purchased two homes in the Florida Keys and put patients lives at risk by providing it as a respite but not taking the proper precautions for patients. They... more »
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Familial Dysautonomia Now Foundation
- Location:
- Buffalo Grove, IL
5 stars 32 reviews
FD Mom wrote:
Kudos to the FD NOW researchers! Since 2000, Dr. Berish Rubin and Dr. Sylvia Anderson have solely dedicated themselves to the FD community, discovering many safe treatments for the 300 children that battle daily with the ravages of Familial Dysautonomia.... more »
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SSEP
- Location:
- Fountain Vly, CA
4.94444 stars 18 reviews
jhenry wrote:
Diabetes during pregnancy is a serious condition, causing many complications, most of which can be prevented. Sweet Success Diabetes and Pregnancy program was so successful in CA, it needed to be shared with programs in other states. Standards of practice... more »
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Jacob's Cure, Inc.
- Location:
- Rye, NY
4.94444 stars 18 reviews
elena1 wrote:
The tireless effort of the founders do whatever is necessary to find a cure for this rare disease is amazing more »
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Friends of FSH Research
- Location:
- Kirkland, WA
4.64286 stars 14 reviews
NorthwestGator wrote:
This organization is entirely staffed by volunteers and was started by an incredible family in the Seattle area with the disease in their family. Fundraising occurs throughout the year through business partnerships and various individual contributions... more »
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Usher Syndrome Coalition
- Location:
- Maynard, MA
5 stars 12 reviews
Karmen T. wrote:
This is a true grass roots organization that is truly making a difference! Board members are all volunteers, working together to make a difference for those affected with Usher syndrome. I have been working in clinical genetics for 15 years, and I have... more »
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International Stillbirth Alliance Nfp
- Location:
- Millburn, NJ
4.33333 stars 12 reviews
tropicalrainbow wrote:
This org is made up of other member organizations, both nonprofit and for profit. If you don't care that your donation might not affect the stillbirth issue in your own country, or go to support another family experiencing stillbirth, but used to cover... more »
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Children's Craniofacial Association
- Location:
- Dallas, TX
5 stars 11 reviews
Jennifer140 wrote:
CCA has been helping my family since I discovered my child would be born with a birth defect at 30wks gestation. They have helped with every single 7 trips to Boston from Alabama in past 5 years for my child born with a cleft to have amazing drs. I... more »
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Vision Of Children
- Location:
- San Diego, CA
5 stars 11 reviews
Greg O. wrote:
Fantastic charity that supports research to treat pediatric eye diseases. more »
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Hearing Health Foundation
- Location:
- New York, NY
5 stars 10 reviews
AnthonyBartoli wrote:
I started donating to the Hearing Health foundation back in 2012 when I became aware of their Hearing Restoration Project. I had never before seen such an organized effort toward curing hearing loss, so I was excited to be able to contribute towards such... more »
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Usher Syndrome Society
- Location:
- Needham, MA
5 stars 10 reviews
MichaelEAConn84 wrote:
Since learning about the Usher Syndrome Society, I've been impressed how they've gone from strength to strength with their mission and impact. Usher syndrome is a rare genetic disease which is the leading cause of combined deaf-blindness, and nearly no... more »
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Canavan Research Foundation, Inc.
- Location:
- New Fairfield, CT
5 stars 5 reviews
sally9 wrote:
I came into contact with Canavan Research Foundation in 2005 when my son Ben was 2 years old, at the age of 18 months he had been diagnosed with Canavan disease. To say that this diagnosis completly broke our hearts does not nearly cover the depth of... more »
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Parkinson Association Of The Carolinas
- Location:
- Charlotte, NC
5 stars 2 reviews
kristinesmeltzer wrote:
My husband was diagnosed with early onset Parkinson's disease at 67. His symptoms were shuffling of feet, slurred speech, low volume speech, degradation of handwriting, horrible driving skills, and his right arm is held at 45 degree angle. He was placed... more »
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United Cerebral Palsy of Eastern Connecticut
- Location:
- Quaker Hill, CT
5 stars 1 review
dina1026 wrote:
UCP of Eastern Connecticut is a dynamic organization that successfully promotes independence of individuals with a variety of disabilities in the community. Thanks to the hard work of staff and management of UCP, clients have successfully transitioned... more »
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Morgan Adams Foundation
- Location:
- Denver, CO
5 stars 1 review
denverdolphingirl wrote:
The Morgan Adams Foundation raises money and awareness on behalf of children affected with cancer. Working with leading physicians, the foundation directly funds pediatric cancer research and therapies which will improve survival rates and reduce the... more »
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Families of Spinal Muscular Atrophy
- Location:
- Elk Grove Village, IL
5 stars 1 review
Elizabeth173 wrote:
We have two grandchildren with SMA type 1. SMA is the number 1 genetic killer of children under the age of 2. Our grandchildren have outlived their life expectancy and are now 12 & 14 years old. They take 24/7 365 care and their parents are... more »
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Ataxia Telangiectasia Childrens Project Inc
- Location:
- Coconut Creek, FL
5 stars 1 review
LAM908 wrote:
The A-T Children's Project is a tiny group that accomplishes tremendous non-profit work and achieves many goals. Since my child has been diagnosed with A-T they have provided a great amount of support to myself and in turn, to my family. They work tirelessly... more »
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PENNSYLVANIA CYSTIC FIBROSIS INC
- Location:
- Mifflinburg, PA
5 stars 1 review
Walk On Foundation Inc. wrote:
Pennsylvania Cystic Fibrosis Inc. is a great asset to the Central Pa area and beyond. While many organization provide funding solely to research and finding a cause of a certain disease a few go beyond and assist those dealing with the disease with... more »
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American Association For Cancer Research Foundation
- Location:
- Philadelphia, PA
5 stars 1 review
mjp113 wrote:
As a scientist, AACR is essential for the maturation of my professional career. Through grant funding, programming, conferences, workshops, and publications, AACR has established itself as the premier non-profit organization committed to aiding in the... more »
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The Eye Defects Research Foundation Inc
- Location:
- Beverly Hills, CA
5 stars 1 review
kris3 wrote:
It is amazing to see all the work that Dr. Yaron Rabinowitz has accomplished over the years in this field. He is a kind and caring physician and truly enjoys his work. The children that the foundation has helped along with their families can be very... more »
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CTNNB1 Connect and Cure
- Location:
- Green Village, NJ
5 stars 1 review
tpaes wrote:
I have 2 children with rare genetic disorders, CTNNB1 being much more rare than the other. Despite how much more rare this condition is, the CTNNB1 Connect & Cure NonProfit has been such a fantastic resource and support for our family. We’ve found hope,... more »
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Blossom Philadelphia
- Location:
- Philadelphia, PA
5 stars 1 review
Advocate12 wrote:
I have volunteered for this organization going on three years. I am disabled and devote two days a week to UCP and I have seen what they have done for children, adults and the community. I am inspired and motivated by the care and dedication I have... more »
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Pachyonychia Congenita Fund
- Location:
- Holladay, UT
5 stars 1 review
boschae14 wrote:
When I first learned about this organization, I was amazed at how much they do with so little. It truly is all about love and making a difference in the lives of those suffering with the constant pain of Pachyonychia Congenita. PC Project may be small,... more »
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National Foundation For Fertility Research
- Location:
- Lone Tree, CO
2 stars 1 review
humane2 wrote:
Dr. Mandy Katz-Jaffe's volunteer team learned and capitalized on victims. Saving Dr. Jennifer Brown from honoring wrongdoing is the best for humanity. more »
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Gerald P Murphy Cancer Foundation
- Location:
- W Lafayette, IN
4 stars 1 review
btrfli wrote:
A novel approach-learning from very old long lived dogs with cancer and researching how they live despite numerous cancers in their bodies and then the reason for their demise not being cancer related many times. Did you know that only Men and dogs get... more »
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Cerebral Palsy Alliance Research Foundation
- Location:
- New York, NY
4 stars 1 review
ShaeStudiesHard wrote:
I worked as an office intern and the staff is very passionate about the mission of CPARF. It was inspiring to see the hard work that goes into making connections, gaining support for research, and the research itself that goes into raising awareness about... more »
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Familial Dysautonomia Foundation Inc
- Location:
- New York, NY
5 stars 1 review
DRGS wrote:
Familial Dysautonomia is a rare genetic disorder that causes severe problems to the gastrointestinal, cardiac, pulmonary, orthopedic, renal, and ophthalmological systems. The Foundation has funded research and treatment leading to the identification of... more »
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Hereditary Disease Foundation
- Location:
- New York, NY
0 stars 0 reviews
To fund innovative research towards curing huntington's disease and impacting other brain disorders. more »
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American Association For Cancer Research
- Location:
- Philadelphia, PA
0 stars 0 reviews
The mission of the aacr is to prevent and cure cancer through research,education, communication, and collaboration. Through its... more »
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International Neurosurgery Education And Research Foundation
- Location:
- Raleigh, NC
0 stars 0 reviews
To promote advanced neurosurgical education, academic research, instrumentation donation and charity surgical trips through hands-on... more »
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Breast Cancer Awareness Foundation
- Location:
- Tigard, OR
0 stars 0 reviews
To raise awareness, promote education; facilitate screening for all Iranian women and to help provide medical treatment for those... more »
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Peoples Clinic Foundation Inc
- Location:
- Morehead, KY
0 stars 0 reviews
To provide free medical care more »
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Healthy Birth And Infant Brains Foundation
- Location:
- Casper, WY
0 stars 0 reviews
To improve health and birth outcomes for pregnant women. more »
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Ryans Quest Inc
- Location:
- Hamilton, NJ
0 stars 0 reviews
The mission of ryan's quest is to increase awareness of duchenne muscular dystrophy with the purpose of allocating funds for research... more »
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International Federation Of Ferility Societies
- Location:
- Houston, TX
0 stars 0 reviews
Iffs is an international democratic body whose first objective is to create links among countries, peoples, and cultures in the... more »
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The JMML Foundation
- Location:
- San Diego, CA
0 stars 0 reviews
The Mission of The JMML Foundation is to cure Juvenile Myelomonocytic Leukemia (JMML) and to improve the quality of life of JMML... more »
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The Foundation For Embryonic Competence Inc
- Location:
- Basking Ridge, NJ
0 stars 0 reviews
Providing broad access to cutting-edge and highly validated embryonic diagnostic tests that accurately assess the competency of... more »
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Hereditary Colon Cancer Association
- Location:
- Madison, WI
0 stars 0 reviews
The mission of HCCA is the prevention of colorectal cancer caused by the inherited syndromes including Familial Adenomatous Polyposis... more »
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Susanna And Lucy Delaurentis Charitable Foundation
- Location:
- Elkins Park, PA
0 stars 0 reviews
Cures or controls for fatal childhood diseases; recognition of students who excel despite extraordinary personal challenges more »
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Dandy Walker Alliance Inc
- Location:
- Kensington, MD
0 stars 0 reviews
We support all efforts to determine the cause(s) of, find the cure for and to ameliorate the effects of Dandy-Walker Syndrome. more »
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Sanfilippo Research Foundation Inc
- Location:
- Wellesley, MA
0 stars 0 reviews
To promote awareness of sanfilippo syndrome and raise funds to support research aimed at finding a cure. more »
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Stop Ald Foundation
- Location:
- Houston, TX
0 stars 0 reviews
The Stop ALD Foundation takes an entrepreneurial approach to adrenoleukodystrophy (ALD)and adrenomyeloneuropathy (AMN) therapy... more »
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Foundation For A Cure For Mitochondrial Disease Inc
- Location:
- Cheshire, CT
0 stars 0 reviews
The foundation for a cure for mitochondrial disease, inc. Exists to support research to find medical hope for children and adults... more »
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Javacia W Harrison Respect Academy And Cancer Research Foundation
- Location:
- Ellenwood, GA
0 stars 0 reviews
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Porter Hills Home Health West
- Location:
- Grand Rapids, MI
0 stars 0 reviews
Home care primarily for the elderly more »
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Coach-Ed Inc
- Location:
- Berwyn, PA
0 stars 0 reviews
The organization exists for the charitable purpose of encouraging, enabling and supporting cystic fibrosis patients to live beyond... more »
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Cardiovascular Research Foundation
- Location:
- New York, NY
0 stars 0 reviews
Investigate, evaluate and educate the treatment of cardiovascular disease more »
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Project CASK
- Location:
- New York, NY
0 stars 0 reviews
To accelerate breakthroughs in research to develop treatments and a cure for CASK gene disorders. more »
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Hope For Holt Foundation
- Location:
- Charlotte, NC
0 stars 0 reviews
Raising funds for cystinosis research more »
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Texas Health Research & Education Institute
- Location:
- Arlington, TX
0 stars 0 reviews
Conduct medical research, offer educational programs and undertake development projects that contribute to the prevention, diagnosis... more »
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Biogenesis Foundation Inc
- Location:
- Rockport, MA
0 stars 0 reviews
Research in cell regeneration. more »
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Psmc5 Foundation Inc
- Location:
- Winchester, MA
0 stars 0 reviews
We are a non for profit organization seeking to find a solution to those with PSMC5 mutation! more »
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The Clinic For Special Children Inc
- Location:
- Strasburg, PA
0 stars 0 reviews
Provide comprehensive local medical care, integrate the science and practice of medicine, and share knowledge to improve the health... more »
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World Molecular Imaging Society
- Location:
- Culver City, CA
0 stars 0 reviews
The world molecular imaging society (wmis) is an international scientific educational organization dedicated to the understanding... more »
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Recnac Non Profit Non Governmental Cancer Volunteer Program
- Location:
- Richmond, VA
0 stars 0 reviews
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American Society For Transplantation & Cellular Therapy
- Location:
- Chicago, IL
0 stars 0 reviews
The society's purpose is to foster research and development of transplantation by providing a forum for the exchange of information,... more »
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Little People's Research Fund, Inc.
- Location:
- Towson, MD
0 stars 0 reviews
The Little People's Research Fund, Inc., supports clinical research into the natural history of Skeletal Dysplasia (dwarfism)... more »
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International Association For Chronic Fatigue Syndrome-Me
- Location:
- Stony Brook, NY
0 stars 0 reviews
The mission of iacfs/me is to promote, stimulate and coordinate the exchange of ideas related to chronic fatigue syndrone(cfs)... more »
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Foundation For Prader Willi Research
- Location:
- Walnut, CA
0 stars 0 reviews
The mission of foundation for prader-will research (fpwr) is to eliminate the challenges of prader willi syndrome through the... more »
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Massachusetts Down Syndrome Congress, Inc.
- Location:
- Melrose, MA
0 stars 0 reviews
To continuously enhance the lives of individuals with Down syndrome through the education and support of people with Down syndrome,... more »
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Minkoff Center For Jewish Genetics Dba Jewish Genetic Diseases Center
- Location:
- Scottsdale, AZ
0 stars 0 reviews
To raise awareness in the greater phoenix jewish community regarding jewish genetic diseases and to educate about tragic disorders.... more »
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Ivan & Sam Foundation Inc
- Location:
- Brentwood, TN
0 stars 0 reviews
The mission of the Ivan & Sam Foundation is to provide understanding of cancer through educational materials and videos specifically... more »
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Pks Kids
- Location:
- Green Bay, WI
0 stars 0 reviews
Educating medical doctors with the current information from research on how to test for the pallister-killian syndrome and send... more »
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American Hemochromatosis Society Inc
- Location:
- Lake Mary, FL
0 stars 0 reviews
Education of the general public about the cause and symptoms of hereditary hemochromatosis more »
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Bridgemar Research Foundation
- Location:
- Crete, IL
0 stars 0 reviews
To raise money to fund research for unknown genetic disorders in children. Strive to increase awareness for families of undiagnosed... more »
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The American Society Of Gene & Cell Therapy
- Location:
- Waukesha, WI
0 stars 0 reviews
Asgct's mission is to advance knowledge, awareness, and education leading to the discovery and clinical application of genetic... more »
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Signature Band & Choir Camp Inc
- Location:
- Syracuse, NY
0 stars 0 reviews
To organize, operate and maintain year-round music and performing arts programs for preteen and teenage musicians. more »
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Westchester Putnam Rockland Lactation Consotium Inc
- Location:
- Tappan, NY
0 stars 0 reviews
Professional development re: breastfeeding issues more »
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Lowin Medical Research Foundation
- Location:
- Great Neck, NY
0 stars 0 reviews
This foundation is engaged in funding research in the area of pediatric oncology and pediatric neurology more »
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The Ryan Foundation Inc
- Location:
- Louisville, KY
0 stars 0 reviews
Fund research and experimentation expenses to find a cure for the deadly genetic disease mucopolysaccharidosis, and assist victims... more »
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Rotger Research Foundation Inc
- Location:
- Dover, DE
0 stars 0 reviews
The Rotger Research Foundation's mission is centered around democratizing access to advanced diagnostics and healthcare solutions,... more »
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International Society For Autism
- Location:
- Kansas City, MO
0 stars 0 reviews
The primary purpose of the international society for autism research (insar) is to foster autism research by new and established... more »
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Rock Steady Boxing Of Brownsburg Inc
- Location:
- Brownsburg, IN
0 stars 0 reviews
Give people with parkinson's disease hope by improving their quality of life through non-contact boxing-based fitness curriculum.... more »
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Mhe Coalition
- Location:
- Cleveland, OH
0 stars 0 reviews
By collecting and sharing the information we obtain from our members as well as the medical and scientific communities, The MHE... more »
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Babies Without Borders
- Location:
- Miami, FL
0 stars 0 reviews
Provide medical assistance to babies more »
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Hawaii Pediatric Association Research And Education Foundation
- Location:
- Honolulu, HI
0 stars 0 reviews
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Cleft Palate Foundation
- Location:
- Chapel Hill, NC
0 stars 0 reviews
The mission of CPF is to enhance the quality of life for individuals affected by cleft lip and palate and other craniofacial birth... more »
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Fetal Medicine Foundation Inc
- Location:
- Fort Lee, NJ
0 stars 0 reviews
Fetal medicine foundation, inc. ("fmf") is a 501(c)3 non-profit organization whose primary purpose is to improve the health care... more »
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The 11q Research And Resource Group Inc
- Location:
- Canton, GA
0 stars 0 reviews
To promote research and resources to parents of jacobsens syndrome more »
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Burlington County Cerebral Palsy Association Inc
- Location:
- Mount Holly, NJ
0 stars 0 reviews
The organization is in the primary business of providing quality programs and services for children and adults with disabilities... more »
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Spina Bifida Association Of America Foundation
- Location:
- Washington, DC
0 stars 0 reviews
The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of... more »
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National Tay Sachs & Allied Diseases Assoc New York Area Inc
- Location:
- Pomona, NY
0 stars 0 reviews
Offer support and programs geared to families affected by tay-sachs disease and over 40 other fatal degenerative genetic disorders... more »
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Familial Dysautonomia Hope
- Location:
- Chapel Hill, NC
0 stars 0 reviews
Our mission is to find a cure and new treatment options for Familial Dysautonomia by funding relevant research programs, to provide... more »
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Penn Oms Research And Education Fund
- Location:
- Philadelphia, PA
0 stars 0 reviews
The organization provides educational and professional resources for medical residents and physicians enrolled in the university... more »
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Childrens Fund For Glycogen Storage Disease Research
- Location:
- Cheshire, CT
0 stars 0 reviews
The exempt purpose of the organization is to raise and disburse funds to support individuals and laboratories and or corporate... more »
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Hauptman-Woodward Medical Research Institute Inc
- Location:
- Buffalo, NY
0 stars 0 reviews
Research in endocrine biochemistry and molecular biophysics to develop and understand the cause of diseases and potential therapies... more »
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Zouves Foundation For Reproductive Medicine
- Location:
- Foster City, CA
0 stars 0 reviews
The Zouves Foundation for Reproductive Medicine aims to expand the understanding of early human development and implantation by... more »
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Alpine Childrens Charity
- Location:
- Barrington, IL
0 stars 0 reviews
The mission of the Alpine Children's Charity is to:Raise money for research and promote public awareness of various childhood... more »
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Riverside Healthcare Association Inc
- Location:
- Newport News, VA
0 stars 0 reviews
Promote understanding of the aging process, and identification, solution or alleviation of problems/needs confronting the aging... more »
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Lesch-Nyhan Syndrome Childrens Research Foundation
- Location:
- Lake Forest, IL
0 stars 0 reviews
The foundation is organized to raise and distribute funds to promote research, study, and other programs involving pursuit of... more »
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United Cerebral Palsy Association Of San Francisco
- Location:
- Oakland, CA
0 stars 0 reviews
See statement listed below more »
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Broad Institute Inc
- Location:
- Cambridge, MA
0 stars 0 reviews
The mission of the broad institute is to propel progress in biomedicine, through research aimed at the understanding and treatment... more »
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Javacia W Harrison Respect Academy And Cancer Research Foundation
- Location:
- Ellenwood, GA
0 stars 0 reviews
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Chase Richards Foundation
- Location:
- Calabasas, CA
0 stars 0 reviews
The chase foundations sole mission is to support the chase child life program. The chase child life programs mission operates... more »
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Retina Foundation Of The Southwest
- Location:
- Dallas, TX
0 stars 0 reviews
The foundation was organized to promote the research, diagnosis, treatment and education of the leading causes of blindness and... more »
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Alpha-1 Foundation Inc
- Location:
- Coral Gables, FL
0 stars 0 reviews
The Alpha-1 Foundation is a not-for-profit, voluntary health organization founded in 1995 by Sandy Lindsey, Susan Stanley, and... more »
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The Sanfilippo Syndrome Medical Research Foundation Inc
- Location:
- Overland Park, KS
0 stars 0 reviews
TO PROMOTE AWARENESS OF SANFILIPPO SYNDROME WHILE RAISING FUNDS TO SUPPORT MEDICAL RESEARCH TOWARD A CURE. more »
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Biologic Institute
- Location:
- Redmond, WA
0 stars 0 reviews
To conduct basic scientific research on topics relating to the origin, organization and operation of living things and their parts,... more »
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Congenital Hyperinsulinism International
- Location:
- Glen Ridge, NJ
0 stars 0 reviews
Congenital hyperinsulinism international (chi) is dedicated to improving the lives of babies, children, and adults affected by... more »
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Adams Agricultural Fair Inc
- Location:
- Adams, MA
0 stars 0 reviews
Run fair and provide entertainment more »
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National Gaucher Foundation Inc
- Location:
- Rockville, MD
0 stars 0 reviews
Raise funds to promote education and awareness; meet ever-increasing needs of individuals with gaucher disease and their families.... more »
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The Key Largo Lions Foundation Inc
- Location:
- Key Largo, FL
0 stars 0 reviews
Support lions charities. more »
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Target Autism Genone, Inc.
- Location:
- Fairfield, CT
0 stars 0 reviews
TAG, founded in 1999 by scientists and concerned parents,is committed to utilizing state-of-the-art technologies to identify and... more »
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Ralston Volunteer Fire Department And Rescue Squad Inc
- Location:
- Ralston, NE
0 stars 0 reviews
Ralston Fire Department Is committed to providing the best equipment and training to its volunteers so they can provide the best... more »
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International Mammalian Genome Society Inc
- Location:
- Oak Ridge, TN
0 stars 0 reviews
Stimulate mammalian genome research more »
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International Zebrafish Society Inc
- Location:
- Milwaukee, WI
0 stars 0 reviews
Promote zebrafish scientific research more »
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Prader-Willi Alliance Of New York Inc
- Location:
- New York, NY
0 stars 0 reviews
Assist and support for a rare disability more »
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Unlocking Autism
- Location:
- Maryville, TN
0 stars 0 reviews
Unlocking autism, founded in february of 1999, grew out of a concern that children were being diagnosed with autism spectrum disorders... more »
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Col Patrick S Madigan Md Foundation
- Location:
- Lakewood, WA
0 stars 0 reviews
Among it's many programs, the foundation provides medical support to service members- and their families, offers scholarships... more »
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Sickle Cell Disease Broward County
- Location:
- Ft Lauderdale, FL
0 stars 0 reviews
THE AIDE TO FIND THE CURE FOR SICKLE CELL more »
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Citizens United For Responsible Environmentalism Inc
- Location:
- Prescott, AZ
0 stars 0 reviews
CURE grew from a grass roots environmental organization founded in the Almaden Valley of San Jose, California in 1993. Now, with... more »
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United Cerebral Palsy Association Of King-Snohomish
- Location:
- Seattle, WA
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Loyalsock Volunteer Fire Co No 1 Relief Association
- Location:
- Williamsport, PA
0 stars 0 reviews
Volunteer fire company relief association more »
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Center For Human Genetics Inc
- Location:
- Cambridge, MA
0 stars 0 reviews
To function as a local and national clinic and diagnostic reference resource for birth defect and genetic disorders; to provide... more »
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United Cerebral Palsy Association Of Michigan
- Location:
- Lansing, MI
0 stars 0 reviews
United cerebral palsy association of michigan connects people with disabilities to the opportunities and resources to live productive... more »
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Kessel Foundation
- Location:
- Fairfield, IA
0 stars 0 reviews
Supporting unique needs of children more »
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Mucolipidosis Type Iv Foundation Inc
- Location:
- Atlanta, GA
0 stars 0 reviews
The mucolipidosis type iv foundation operates solely to raise contributions from individuals and companies in order to fund medical... more »
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Doug Coley Foundation For Leukemia Research
- Location:
- Greensboro, NC
0 stars 0 reviews
To raise money to fund Leukemia Research at Wake Forest University, Baptist Medical Center,in Winston Salem,NC. more »
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Drake Rayden Foundation
- Location:
- Greer, SC
0 stars 0 reviews
To bring awareness of the disease nkh more »
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Puerto Rico Community For Clinical Services Research And Health
- Location:
- San Juan, PR
0 stars 0 reviews
Early intervention and primary clinic, dental care clinic, mental health, hiv antibody testing, medicine provision, medical care... more »
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Mount Desert Island Biological Laboratory
- Location:
- Salsbury Cove, ME
0 stars 0 reviews
The mdi biological laboratory is a rapidly growing, independent non-profit biomedical research institution whose mission is to... more »
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Sportsometry Inc
- Location:
- Fairfield, CT
0 stars 0 reviews
Sportsometry provides educational services under license to client schools and other agencies to work with their students in an... more »
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Florida Institute For Fetal Diagnosis And Therapy, Inc.
- Location:
- Tampa, FL
0 stars 0 reviews
The Florida Institute of Fetal Diagnosis and Therapy (FIFDT) has been developed to provide expectant couples with the greatly... more »
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Visionary Alternatives Inc
- Location:
- Parrish, FL
0 stars 0 reviews
Our mission is to provide information and funding for individuals that seek aggressive alternative treatment for life threatening... more »
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Caffarelli Family Study Research Foundation Inc
- Location:
- Toms River, NJ
0 stars 0 reviews
An organization that raises money for the education, awareness, and research about scapuloperoneal muscular dystrophy. more »
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Sickle Cell Disease Foundation Of California
- Location:
- Ontario, CA
0 stars 0 reviews
Founded in 1957, the Sickle Cell Disease Foundation of California is the first and oldest, non-profit, social service sickle cell... more »
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NAVA KARNATAKA SOCIAL SERVICE TRUST
- Location:
- BANGALORE,
0 stars 0 reviews
NAVA KARNATAKA SOCIAL SERVICE TRUST ® Mr. I. JOSEPH was elected as President and members were elected for the Governing Board... more »
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Shwachman-Diamond America
- Location:
- Kernersville, NC
0 stars 0 reviews
*Fund and promote research in all aspects of SDS.*Disseminate current medical literature to families and physicians.*Help fund... more »
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Fragile X Association Of Southern California
- Location:
- Burbank, CA
0 stars 0 reviews
The Fragile X Association was formed to promote public awareness and Fragile X syndrome with special emphasis on educators and... more »
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K-T Support Group
- Location:
- Milford, OH
0 stars 0 reviews
Educate members and medical community; support and connect families with klippel trenaunay syndrome; encourage research and work... more »
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National Niemann-Pick Disease Foundation
- Location:
- Fort Atkinson, WI
0 stars 0 reviews
The national niemann-pick disease foundation is a non-profit 501(c)(3) organization that supports and promotes research to find... more »
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Intermountain Spina Bifida Support Group
- Location:
- Farmington, UT
0 stars 0 reviews
The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of... more »
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Danas Angels Research Tr
- Location:
- Greenwich, CT
0 stars 0 reviews
Furthering medical research, medical education, or medical or hospital care for the treatment or cure of Niemann-Pick Type C disease... more »
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BIRTH EDUCATION BEYOND THE ORDINARY
- Location:
- Mount Kisco, NY
0 stars 0 reviews
To empower women and families to play an active role in the birth of their children by providing affordable and comprehensive... more »
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NATIONAL FRAGILE X FOUNDATION
- Location:
- Washington, DC
0 stars 0 reviews
The National Fragile X Foundation serves the entire Fragile X community to live their best lives by providing the knowledge, resources,... more »
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Southwest Institute For Families And Children With Special Needs
- Location:
- Phoenix, AZ
0 stars 0 reviews
To improve the quality of health, education, and social services for families and children with special needs and at-risk youth more »
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Movement Disorders Foundation
- Location:
- Englewood, CO
0 stars 0 reviews
The mission of the pojectspark foundation is to make a difference in the lives of people living with parkinson's, their relatives,... more »
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Alliance To Solve Pans And Immune Related Encephalopathies Inc
- Location:
- Atlanta, GA
0 stars 0 reviews
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Regional Medical Genetic Center Inc
- Location:
- Valhalla, NY
0 stars 0 reviews
To provide genetic testing services to detect possible birth defects. Also provides counseling and preventive services regardless... more »
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The Evanosky Foundation
- Location:
- Aurora, IL
0 stars 0 reviews
The Evanosky Foundation exists for the purpose of generating funds to support two main objectives. It will support pediatric leukodystrophy... more »
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Eastern Pennsylvania Down Syndrome Center
- Location:
- Trexlertown, PA
0 stars 0 reviews
Provide comprehansive medical more »
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Zero Breast Cancer
- Location:
- San Rafael, CA
0 stars 0 reviews
Zero breast cancer promotes breast cancer risk reduction through translation of scientific research and evidence-based recommendations... more »
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International Association Of Logopedics And Phonatrics
- Location:
- New York, NY
0 stars 0 reviews
The worldwide organization of professionals and seientists in communication, voice, speech language pathology, audiology and swallowing.... more »
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Childrens Roads To Recovery Inc
- Location:
- Baltimore, MD
0 stars 0 reviews
To provide transportation, lodging, and funding for related expenses when critically ill children have to travel to and from medical... more »
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Cystic Fibrosis Worldwide Inc
- Location:
- E Brookfield, MA
0 stars 0 reviews
Cystic fibrosis education more »
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Greenwood Genetic Center Inc
- Location:
- Greenwood, SC
0 stars 0 reviews
The greenwood genetic center is a nonprofit institute organized to provide clinical genetic services, diagnostic laboratory testing,... more »
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Philadelphia Fight
- Location:
- Philadelphia, PA
0 stars 0 reviews
Philadelphia FIGHT (FIGHT) is a comprehensive AIDS service organization providing primary care, consumer education, advocacy and... more »
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