Featured Review

F.I.S.H. of Sanibel-Captiva, Inc
I volunteer at fish. They go over and above to help those neighbors in need. The food bank and Back Pack programs help provide food for families. They help the elderly with transportation and visits.... more
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Miracle Flights
- Location:
- Las Vegas , NV
4.93643 stars 582 reviews
mse wrote:
This charity requires you send a photo of yourself before they will donate a flight. I have gone through several other charities for free flights to treatment and have never been asked for a photo. To ask is one thing but these people REQUIRE it before... more »
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Smile Train, Inc.
- Location:
- New York, NY
4.53137 stars 542 reviews
BReise wrote:
DeLois Greenwood, VP of Smile Train is paid in excess of $310,000 per year. She is also provided an apartment in New York City paid for by Smile Train. Several other employees earn in excess or close to the $200,000 per year amount. Why are these employees... more »
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Cranio Care Bears
- Location:
- Kalispell, MT
5 stars 246 reviews
Jessica234567 wrote:
CCBs sent our son Oliver a care package when he was in the hospital. The package brightened our day and helped out in the hospital. What a fantastic organization! more »
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DES Action USA
- Location:
- New York, NY
4.9596 stars 198 reviews
JPVMurphy wrote:
DES Action USA was my saving grace when I found it 13 years ago. Suffering health issues from the effects of my pre-natal exposure to DES they provided the information I had been seeking for years. They are the ONLY organization that serves the DES... more »
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The MAGIC Foundation
- Location:
- Warrenville, IL
4.93252 stars 163 reviews
dyoder wrote:
I just found the MAGIC Foundation this year when I was faced with a medical mystery with my son who is now 3. He stopped growing properly when he was less than six months old and after a parade of doctors I realized that it was up to me to find out how... more »
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Buddy Cruise Inc
- Location:
- Lithia, FL
4.98718 stars 156 reviews
dmgodfrey1 wrote:
I have been involved with Buddy Cruise since their inaugural voyage in October 2008, as their photographer. Buddy Cruise provides quality education and fun activities on a cruise. Workshop topics include education (including IEPs and working with public... more »
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Chromosome Disorder Outreach, Inc.
- Location:
- Boca Raton, FL
4.96732 stars 153 reviews
Abby11 wrote:
My son was diagnosed with a rare chromosomal deletion (5q11.2-q13.2) at 13 months of age and we were told there was no other information for us about this deletion. We felt completely alone. Then somehow I found Chromosome Disorder Outreach and became... more »
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Team Telomere, Inc.
- Location:
- New York, NY
4.97368 stars 152 reviews
Rachel71 wrote:
The information and access to medical specialists that DC Outreach connected me to was truly life saving for my infant son. I am proud to be a part of this group and to work to connect other families to this help and support. more »
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Exceptional Children's Foundation
- Location:
- Culver City, CA
4.97333 stars 150 reviews
Leslie A. wrote:
I have been associated with ECF for over three decades. It has become the premiere vendor of services in the greater Los Angeles area. Its breath of services covers birth to senior citizen, excelling in each program. I know this because i have spoken... more »
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Trisomy 18 Foundation
- Location:
- Flushing, MI
4.76923 stars 143 reviews
Radarsmom wrote:
I lost my beloved 1st son in October of 2007 after a Trisomy 18 diagnosis. I knew nothing about trisomy 18 and knew no one else that had walked this heartbreaking road. Through the Trisomy 18 Foundation, I found much more information than even my doctor... more »
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SynGAP Research Fund - SRF (SYNGAP1)
- Location:
- San Diego, CA
4.97015 stars 134 reviews
Mike G.4 wrote:
This group is non-stop. There are a dozen families on the board and they are all working to raise both awareness of Syngap and funding for research. I am blown away by the team here. Also the founder cover all operating costs so 100% of donations go... more »
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International WAGR Syndrome Association
- Location:
- Montgomery Village , MD
5 stars 114 reviews
Tammie wrote:
Our general doctor was the one who found the IWSA for us. As first time parents we were scared enough, but when Evie was 3 days old we found out that our lives were about to take a dramatic turn by hearing that she had no irises in her eyes, that she... more »
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REINS Therapeutic Horsemanship Program
- Location:
- Fallbrook, CA
5 stars 103 reviews
TobyAnders wrote:
Reins is a wonderful program where all the kids and voulnteers love everything about it. I volunteer there every Wednesday and Friday afternoon and I absolutely love it. The instructors are the sweetest and nicest people as are the other voulnteers.... more »
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22Q Texas, Inc
- Location:
- Dallas, TX
5 stars 95 reviews
Claudia34 wrote:
22q Texas has saved me. The group of men and women behind this group will never know the depths of my love for them. We are about 6 months into the journey with 22q as my daughter was diagnosed at the beginning of the year. I have made many friendships,... more »
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Turner Syndrome Foundation
- Location:
- Hazlet, NJ
4.95652 stars 92 reviews
mobileUser425722 wrote:
More than awareness to reduce the age of diagnosis, TSF provides free access to education resources & support more »
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Ellies Army Foundation
- Location:
- Miami, FL
5 stars 81 reviews
miriamjayne wrote:
You will rarely meet a more committed, compassionate team behind such an effective organization. I can't emphasize enough how powerful it is to be involved with this organization as a donor, and to know that my dollars are making a meaningful difference... more »
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Equi-Ed, Inc.
- Location:
- Santa Rosa, CA
4.95588 stars 68 reviews
Rachaeleq wrote:
Equi-Ed is a wonderfully magical place! The horses are gentle, kind and quiet. The volunteers are professional, and help to keep everything running safely and smoothly! What a wonderful facility and program. Thank you! more »
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Breath of Hope Inc.
- Location:
- Charlottesville, VA
4.40984 stars 61 reviews
megskaggs wrote:
I will never forget the day that I received a care package from Breath of Hope. My son was about 16 days old and fighting for his life. He was born with a congenital diaphragmatic hernia and we received so many thoughtful items in our care packages. I... more »
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Cooley's Anemia Foundation, Inc.
- Location:
- New York, NY
5 stars 61 reviews
JillMD71 wrote:
I cannot say enough positive words to describe CAF. They are a nonprofit that cares so very deeply and are always a pleasure to work with in any capacity. more »
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Cacna1a Foundation Inc
- Location:
- Norwalk, CT
4.98333 stars 60 reviews
mikeaman wrote:
a great cause and a magnificent people. this is a very new foundation and is really serving a need for those who are looking to genetic testing to help. more »
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1p36 Deletion Support & Awareness
- Location:
- Bend, OR
4.96364 stars 55 reviews
karen27 wrote:
1p36 Deletion Syndrome is a chromosome disorder that is characterized by moderate to severe intellectual disability, delayed growth, limited speech ability and distinct facial features. It is estimated that 1p36 Deletion Syndrome occurs in one in every... more »
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AmeriFace
- Location:
- Las Vegas, NV
4.92727 stars 55 reviews
kikaibear wrote:
I'm so happy to know about this non profit and every opportunity I get I tell others who could benefit from it. It has made all the difference in my life and helped me through tough times. I know many people who the group has had a life changing impact.... more »
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Cure AHC- Alternating Hemiplegia of Childhood
- Location:
- Rolesville, NC
5 stars 54 reviews
Julie134 wrote:
I just wanted to say how much our family appreciates you guys. My grand daughter Alexis Harding has gone without being diagnosed for almost 4 years , now we know what her health issues are and how to deal with this. you guys have been very supportive... more »
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Csnk2a1 Foundation
- Location:
- San Francisco, CA
5 stars 52 reviews
jsills wrote:
The CSNK2A1 Foundation is the leading research organization studying Okur Chung Neurodevelopmental Syndrome. They have annual conferences for families and scientists and contract with research facilities all around the world to learn more and hopefully... more »
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STXBP1 Foundation
- Location:
- Holly Springs, NC
5 stars 45 reviews
SyngapRF wrote:
This is a remarkable organization. Started by 5 families they are moving mountains to accelerate a therapy for kids with STXBP1. As the leader of another Rare Disease organization, we have seen this team in action up close and we are impressed. STXers... more »
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Redwood
- Location:
- Fort Mitchell, KY
4.97674 stars 43 reviews
mark32 wrote:
I was Responsible for the management of the Business Computer Skills program of this non-profit rehabilitation center. I Supervised two classroom aid employees and instructed 25 adults with multiple disabilities, in use of Office software. We used... more »
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Rare Genomics Institute
- Location:
- Los Angeles, CA
4.88095 stars 42 reviews
Writer wrote:
Rare Genomics (RG) is helping rare disease patients (mainly kids) find hope for a cure. That's the reason why I joined the organization. RG focusses on individuals with rare diseases which face similar challenges. Within Marketing we are looking for ways... more »
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Indo-US Organization for Rare Diseases
- Location:
- Herndon, VA
4.92857 stars 42 reviews
Cure VCP Disease wrote:
Great organization that is focused on collaboration between USA and India rare disease patient advocacy organizations. IndoUSRare helped make a connection to doctors in India that were aware of my rare disease. This is just the start and networking... more »
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Rare Disease Ghana Initiative
- Location:
- Accra,
4.82051 stars 39 reviews
Sean G.1 wrote:
I have worked with Rare Ghana Initiative (RDGI) and found the team very professional and dedicated to helping people in a difficult medical, economic and regulatory environment. In all jurisdictions around the people with rare diseases are challenged,... more »
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Cure Mito Foundation
- Location:
- Mckinney, TX
4.97368 stars 38 reviews
mitoadvocate wrote:
Cure Mito Foundation truly puts patients first and moves mountains daily to reach treatments and cures for Leigh syndrome and mitochondrial disease. All patients affected by Leigh syndrome - please join Cure Mito in our common mission. more »
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The Lindsay Foundation
- Location:
- Huffman, TX
4.88571 stars 35 reviews
sasha wrote:
my name is jessica and I have daughter who just turned three who has celebral palsy. I found this organzation online when I was just browsing one day. This is the greatest place for people to go if you have a child with a disabilty. Insurance only covers... more »
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Alliance For Smiles
- Location:
- San Francisco, CA
5 stars 33 reviews
argasdoc wrote:
I volunteered as an anesthesiologist for this organization on a recent trip to Dhaka, Bangladesh. I was impressed with the dedication of the staff and volunteers to provide repairs to cleft lips and palates that the children of Dhaka. The quality of care... more »
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United Cerebral Palsy (UCP) of Central Florida, Inc.
- Location:
- Orlando, FL
4.96552 stars 29 reviews
Marytza S. wrote:
WITH out you guys my son wouldnt get the HELP he needs hes progressed so much thank you so much for everything UCP SCHOOL IN THE EAST CAMPUS BAILY CENTER more »
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Angelman Syndrome Foundation
- Location:
- Aurora, IL
5 stars 27 reviews
DJones55 wrote:
They Rock! They have given Millions of Dollars in research money to finding a cure and enhancing the lives of Individuals with AS. Whenever I have a problem I can call them and find support. I've been participating in their walks and they are a blast,... more »
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Williams Syndrome Association
- Location:
- Troy, MI
4.96296 stars 27 reviews
mommytobobby wrote:
When we first received the diagnosis we had no idea what to do next. I thank God every day for the Williams Syndrome Association and the support they have provided me and my family. Because of their close ties with the medical and research community,... more »
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22qties Unite
- Location:
- Fontana, CA
5 stars 25 reviews
Samuel C.1 wrote:
Kids will always come first and this organization is all about them. The staff and volunteers are amazing and wont hesitate to help a family in need. Some people spend a lifetime wondering if they made a difference, this organization doesnt have that... more »
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The Sturge-Weber Foundation
- Location:
- Aurora , CO
5 stars 25 reviews
Kenna J. wrote:
My daughter Carlie was born Sept 10, 2010. I remeber my husband and I telling the family about this cute Port-Wine birth mark she had on the right side of her face. A following day the doctor's told us that Carlie migt have some medical issues becuase... more »
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EDS TODAY ~ Ehlers-Danlos Advocates
- Location:
- Mays Landing, NJ
5 stars 25 reviews
MirandaM wrote:
All the ladies on the board of directors are wonderful, compassionate and so helpful. Especially Cathy she has gone above and beyond to educate me on all aspects of EDS, so that I could advocate for my child. I am forever grateful. This knowledge that... more »
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Association Of Birth Defect Children, Inc. dba Birth Defect Research for Children
- Location:
- Orlando, FL
4.91667 stars 24 reviews
NinaBDRC wrote:
I first discovered Birth Defect Research for Children (BDRC) after the birth of my second daughter who was born with multiple birth defects. I was initially shocked and devastated; I couldn’t believe it happened to me and my child. What tormented... more »
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Spina Bifida Association of Western Pennsylvania
- Location:
- Wexford, PA
4.95652 stars 23 reviews
Petad wrote:
What an incredible organization, doing great work to help children, young adults, parents, and schools. I have volunteered with this organization for seven years and every day I continue to be impressed with their work. Key members of the staff have been... more »
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Shwachman-Diamond Syndrome Alliance Inc
- Location:
- Woburn, MA
5 stars 21 reviews
SyngapRF wrote:
The leader of this organization is non-stop and so very dedicated. We see her at every turn trying to help her community. SDS patients are lucky to have such a dedicated, talented and hard-working professional working. on their behalf. more »
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JEENA
- Location:
- Santa Clara, CA
5 stars 21 reviews
ltsering wrote:
Jeena has made a profound difference in hundreds of lives. As the first and only center for South Asian special-needs kids, Jeena has helped hundreds of families across the United States -- and now in India too -- cope with the challenges of raising mentally... more »
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Angels Pediatric Heart House
- Location:
- Plantation, FL
4.95 stars 20 reviews
heartmom21 wrote:
Our son had heart surgery 2 years ago this month. We had known he would need surgery around age four, but he started having problems at 28 months. He had his surgery within a few weeks, and we got invited to a Heart party at the park. This was where... more »
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Adult Congenital Heart Association Inc
- Location:
- Media, PA
4.94737 stars 19 reviews
nursemom94 wrote:
ACHA has raised my awareness for the need of this specialized care. Because of ACHA I was able to learn of the most common and serious complication of my heart defect. When I experienced one of these complications I acted quickly and call the paramedics.... more »
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Jacob's Cure, Inc.
- Location:
- Rye, NY
4.94444 stars 18 reviews
elena1 wrote:
The tireless effort of the founders do whatever is necessary to find a cure for this rare disease is amazing more »
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SSEP
- Location:
- Fountain Vly, CA
4.94444 stars 18 reviews
jhenry wrote:
Diabetes during pregnancy is a serious condition, causing many complications, most of which can be prevented. Sweet Success Diabetes and Pregnancy program was so successful in CA, it needed to be shared with programs in other states. Standards of practice... more »
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Miracle League of Palm Beach County
- Location:
- Delray Beach, FL
5 stars 17 reviews
Writer wrote:
The miracle of the Miracle League of Delray Beach is the way it touches everyone who touches it. From the special needs players who are stars on the baseball diamond, to the angels in the field who get to play with them. From the coaches who have a... more »
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FAR Therapeutic Arts and Recreation
- Location:
- Birmingham, MI
5 stars 17 reviews
Mark201 wrote:
As the parent of a FAR client, the impact FAR Therapeutic Arts And Recreation has on them is far reaching. I have witnessed clients develop confidence and social skills so important in providing them the opportunity to be on an equal footing to their... more »
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Genes Education & Support Foundation Inc
- Location:
- Coral Gables, FL
5 stars 16 reviews
tim.evans21042 wrote:
I have been very fortunate to volunteer with the Genes Foundation on many activities including their Annual Fashion Show, which is an amazing inclusive event. The joy that it brings to the participants and those attending is incredible. They are always... more »
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Little Light House
- Location:
- Tulsa, OK
5 stars 15 reviews
KyndallParker wrote:
Little Light House is a place that I imagine heaven feels like. It's pure joy from the moment you walk through the door. Little Light House serves special needs students, their families and communities by providing educational and therapy services tuition... more »
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Congenital Heart Defects Families Association
- Location:
- Kansas City, MO
4.93333 stars 15 reviews
jayhawksunflowergirl wrote:
CHD Families has been a great group to be connected with! They do wonderful things for people who need assistance and support at challenging times. The networking with other families dealing with CHD is fantastic and has helped us a great deal! more »
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Gavin's Got Heart
- Location:
- Islip, NY
5 stars 14 reviews
stefanieo wrote:
Gavin's Got Heart is a non-profit organization dedicated to raising awareness about CHD's (Congenital Heart Defects) and supporting families in their local community who are affected by them. I have been to a number of GGH functions and fundraisers... more »
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Cystic Fibrosis Foundation Headquarters
- Location:
- Bethesda, MD
3.64286 stars 14 reviews
Lora Godfrey wrote:
The amount of forward movement in management and potential cures have offered a very difficult disease and piece of hope. My daughter has CF and she is doing fantastic. When she wasn't we were able to turn it around from the treatments that the research... more »
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National Lymphedema Network
- Location:
- New York, NY
4.69231 stars 13 reviews
adiegrey wrote:
Lymphedema is a tricky condition that is little understood by much of the general population as well as the medical community. As a patient and a therapist in this realm, I am always grateful for excellent education on the subject, and I get that from... more »
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Ability Connection
- Location:
- Irving, TX
5 stars 13 reviews
Katrina Weger M. wrote:
Progressive organization making great strides towards improving the services available to children and adults with intellectual and developmental disabilities. Vocational training, Independent living skills, Health and Nutrition, Academics and Community... more »
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Parkinsons Resource Organization Inc
- Location:
- Palm Desert, CA
5 stars 13 reviews
ABJMom wrote:
Parkinsons Resource Organization (PRO) is a small nonprofit with a huge heart and a huge mission. As a caregiver for my husband, who battled Parkinsons from a relatively young age, and now as a CNA in a skilled nursing facility, I have found that PRO... more »
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Project 8p Foundation
- Location:
- New York, NY
5 stars 13 reviews
HeidiWebbCFRE wrote:
I first learned of Project 8p at a rare disease-oriented nonprofit conference. Bina Shah, the organization's founder, is smart, kind, and driven to ensure the success of the program. I especially love how wonderful they are with the families within the... more »
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Tymeless Hearts
- Location:
- Hopkinsville, KY
5 stars 12 reviews
loribeth31 wrote:
Tymeless hearts was a AMAZING after we lost EVERYTHING in a house fire just around Christmas time about 2 years ago! We got out with just the clothes on our backs . I have 4 children ages then was 6, 5 , 2 and 4 months old. Our 2 year old is our heart... more »
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Congenital Heart Information Network
- Location:
- Margate City, NJ
5 stars 12 reviews
shelly15 wrote:
well my story is that I was born with congenital heart deaffect. it is called trilogy of fallot. This organztion is one the best that I know. They are very helpful and people in the organztion is always trying find aways to make sure people understand... more »
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EDS Wellness, Inc.
- Location:
- Ijamsville, MD
5 stars 12 reviews
dnr_1 wrote:
Knowledge, expertise, kindness.... when looking for help, frustration can lead to hopelessness. Thankfully, EDS Wellness is a resource that can make a difference. One person at a time. more »
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Children's Craniofacial Association
- Location:
- Dallas, TX
5 stars 11 reviews
Jennifer140 wrote:
CCA has been helping my family since I discovered my child would be born with a birth defect at 30wks gestation. They have helped with every single 7 trips to Boston from Alabama in past 5 years for my child born with a cleft to have amazing drs. I... more »
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Camp Millhouse Inc
- Location:
- South Bend, IN
5 stars 11 reviews
breden3 wrote:
The staff and volunteers are awesome Everything they do to make sure every camper have the best time at camp they can have they treat all with respect and dignity. They keep everyone engaged in all activitiesIt is hard to describe the love joy and... more »
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Remingtons Heart Foundation
- Location:
- Belton, MO
5 stars 11 reviews
Keva D. wrote:
This foundation helps families who wouldn’t otherwise qualify for assistance but need it. Our system is broke and Remingtons Heart gives those of us who are trying to make all the ends meet while caring for a critically ill baby Hope. It’s hard... more »
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Connectability Of Mn Inc
- Location:
- Waite Park, MN
5 stars 10 reviews
nschnettler wrote:
I served on the Board of UCP-CM for nine years and I was never more impressed with the services provided by this agency! The number of people the agency has been able to assist is remarkable, considering the small number of staff. The executive director,... more »
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PKD Foundation
- Location:
- Kansas City, MO
4.8 stars 10 reviews
ineedakidney40 wrote:
I have PKD. This foundation has been raising money to help fund medical research that could be done to help bring an end to this life-threatening disease. If there is ever an end to PKD, it will be too late for me, but somebody will appreciate it. more »
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Save Babies Through Screening Foundation, Inc.
- Location:
- Cincinnati, OH
5 stars 9 reviews
Laura119 wrote:
I have been involved with the Save Babies Through Screening Foundation for almost 5 years, since my child's metabolic disorder was detected by birth through newborn screening. SBTS provides more information and resources on newborn screening... more »
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Wendell Fosters Campus for Developmental Disabilities Inc
- Location:
- Owensboro, KY
5 stars 9 reviews
Uticabob wrote:
While not having direct contact from the client standpoint I have had positive contact with the staff and administration. I have not met a more dedicated or professional group that deal with the special clientel that are served by Wendell Foster... more »
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Helping Swans Co
- Location:
- Covington, GA
5 stars 9 reviews
janetGHahn wrote:
Helping Swans is a phenomenal organization that strives to educate the community on inclusivity for special needs children. Helping Swans main goals are growing gap between autism experts and special needs families. You can learn effective... more »
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Spina Bifida Association of Greater New England
- Location:
- Milford, MA
4.875 stars 8 reviews
jean4 wrote:
Provides education and support services for adults & children with spina bifida. Offers annual benefit to help pay for equipment that is not covered by insurance. Great way to meet people who also have spina bifida. Contacts greatly help assist with... more »
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Midwest Heart Connection
- Location:
- Omaha, NE
5 stars 7 reviews
CHDDadforever wrote:
Midwest Heart Connection has allowed our family to connect with other families affected by congenital heart disease through special events, one-on-one conversations, and online support and resources. They have made us believe we are not alone in our... more »
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Tiny Handprints - The Jacob Hughes Williams Foundation
- Location:
- Nashville, TN
5 stars 6 reviews
cbower52405 wrote:
Stephanie from Tinyhandprints found me when I was deep in the middle of my grief. She sent me books, support and the kind of friendship that I had been longing for. I am so thankful for this organization and all that it has done and is still doing for... more »
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United Cerebral Palsy of Greater Dane County, Inc.
- Location:
- Madison, WI
5 stars 6 reviews
BeetleBug wrote:
I have been involved with UCP for several years now. I often gather up friends and help out with one of their summertime events. The staff are great motivators, constantly reminding us of why we're there and what our help means for the organization.... more »
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Enable, Inc.
- Location:
- Princeton, NJ
3.83333 stars 6 reviews
Maureen wrote:
I am the guardian of a 54 year old woman with Down's Syndrome. Patricia has been living in an Enable managed Group Home for 15 years. Enable provides her with a safe, caring environment. She is happy in her living situation which is very important to... more »
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National Tay Sachs & Allied Diseases Association Inc
- Location:
- Boston, MA
5 stars 6 reviews
mkoltonski wrote:
Our daughter, Emily, was diagnosed with Sandhoff's Disease at the age if 3 back in 2008. NTSAD helped us connect with other families and provided literature on what to expect as Emily approached the end of her life. We attended the annual family conference... more »
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Boomer Esiason Foundation
- Location:
- New York, NY
5 stars 6 reviews
Lisa R. wrote:
The Boomer Esiason Foundation meets the needs of today's cystic fibrosis patients. Whether it be scholarships for patents to further their education, educational podcasts or donating monies for research, the BEF has those fighting with cystic fibrosis... more »
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Hope for Trisomy 13 and 18 Inc
- Location:
- Fort Worth, TX
5 stars 4 reviews
Susan122 wrote:
For me, this charity organization started out as TAG (Trisomy Advocacy Group). Alisha Hauber was my first contact with this group. She is a wonderful Mom to a full Trisomy 18 boy named Lane. They both have inspired me and encouraged me so much with... more »
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Equi-Librium Therapy Center
- Location:
- Rogersville,, MO
5 stars 4 reviews
Abbie3 wrote:
I volunteer, work, and donate for ETC. I've seen miracles happening at this place!! By using the therapy horses as connectors emotionally and by their natural movements to improve therapies for clients, it helps vastly improve results. I've seen kids... more »
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Easter Seals Greater Houston, Inc.
- Location:
- Houston , TX
4.75 stars 4 reviews
Kelly K. wrote:
So excited to now be a part of Easter Seals! Easter Seals Greater Houston, Inc. is a non-profit corporation established to provide comprehensive services to individuals of all ages with all types of disabilities and their families. In order to continue... more »
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Medical Missions For Children, Inc. aka MMFC
- Location:
- Woburn, MA
5 stars 3 reviews
Edouard Ruelle wrote:
I co-founded and am the president of the Children of Peru Foundation, a 501c3 charity doing work in Peru helping poor children in the areas of healthcare and education. The Children of Peru Foundation partnered with MMFC for the first time in... more »
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Mellowswan Foundation
- Location:
- San Luis Obispo, CA
5 stars 3 reviews
mellowswan wrote:
Mellowswan Foundation We are a international all volunteer, medical charitable non profit foundation. Our goal is to provide medical care for deformed orphans worldwide. Our volunteers work around the world researching clinics and doctors... more »
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Genetic Alliance Inc
- Location:
- Damascus, MD
2 stars 3 reviews
JasonDoge wrote:
30% of the total funds go to 4 people's salary. The CEO makes over $250,000 a year - which is more than many charities that have 100 times the funds. They sell member provided information to for-profit pharmaceutical companies. This type of organization... more »
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Duplication Cares Inc
- Location:
- Mentor, OH
5 stars 2 reviews
vicncheri wrote:
This has been a wonderful resource for my family. Our son was diagnosed with Dup7 in March 2013 at 1 year old. We've learned so much from this group about what to expect and how to prepare for our son's bright future! Because Dup7 is so rare, this... more »
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CureSHANK
- Location:
- Beverly Hills, CA
5 stars 2 reviews
lynnlievense wrote:
This organization is leading the way in research for the debilitating condition of Phelan-McDermid syndrome. As a grandparent to a child with PMS, I will do anything I can to support this org, as I believe it holds the key to improving the future of... more »
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Moebius Syndrome Foundation
- Location:
- Denver, CO
5 stars 2 reviews
natalie10 wrote:
The Moebius Syndrome Foundation is an invaluable resource to those interested in or affected by this rare disorder. more »
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SOFT: SUPPORT ORGANIZATION FOR TRISOMY 18, 13 and Related Disorders
- Location:
- Rochester, NY
5 stars 2 reviews
ThereseAnn wrote:
My own child is almost 17 years old, living with full (complete) trisomy 13 and SOFT at Trisomy.org has been a constant support for our family over the years. I go to the website and support groups daily and use and share the wealth of support the SOFT... more »
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Genres Kids With Cancer Fund
- Location:
- Irwin, PA
5 stars 2 reviews
Aimee E. wrote:
Hi my name is Aimee Eisaman and I've been a volunteer photographer at two of Genres Kids With Cancer Fund events. Both events were very well planned and organized. It was a pleasure to watch so many people come together for such a great cause. You... more »
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United Cerebral Palsy Of Northeastern Pa
- Location:
- Scranton, PA
3 stars 2 reviews
Maypahphd3 wrote:
Management treats employees terribly. I have seen first hand the abuse and how they ignore labor laws completely and threaten amazingly caring workers till they just quit. The workers who stay either are super caring or lazy and uncaring. Also the rate... more »
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Jefferson Avenue Church Of Christ
- Location:
- Birmingham, AL
5 stars 2 reviews
foxyfirewoman wrote:
Special toys for Special Kids is an awesome organization.. As a female firefighter I have made it a lifelong commitment to help this organization by making yearly donations.. Its always great to see a grass roots organization help disabled children in... more »
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Archbishop Paul Verdzekov Memorial Heart Foundation (APAVMEHEF)
- Location:
- Bamenda,
5 stars 2 reviews
Nyugah wrote:
I have witnessed first hand the joys the Heart Foundation is giving to underprivileged Cardiac Patients who thought all hope was lost and was just waiting for their time to pass on to the next life. It's an experience words alone cannot express. It's... more »
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Community Care Connections Inc
- Location:
- Butler, PA
5 stars 2 reviews
Lynne E. wrote:
This organization has helped take care of people with disabilities from birth throughout their whole life. There are many clients who started in one program as a small child, and progressed through their teen years, and now participate in our Adult programs.... more »
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Wilson Disease Association
- Location:
- Milwaukee, WI
5 stars 2 reviews
vilma wrote:
It was in 1999 when my daughter Vanessa, then 14 years old started to show signs of a liver disease. Her eyes turned yellowish and she started vomiting. I sent her at a nearby government hospital but was rejected. So, I decided to bring her at a private... more »
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United Cerebral Palsy of Eastern Connecticut
- Location:
- Quaker Hill, CT
5 stars 1 review
dina1026 wrote:
UCP of Eastern Connecticut is a dynamic organization that successfully promotes independence of individuals with a variety of disabilities in the community. Thanks to the hard work of staff and management of UCP, clients have successfully transitioned... more »
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Ehlers Danlos Syndrome Network Cares
- Location:
- Muskego, WI
5 stars 1 review
EDSLynnCARES wrote:
EDS Network CARES is currently the only patient foundation funding Ehlers-Danlos Syndrome Research. We have funded 3 EDS Research projects in less than 10 years, since the foundation started. 100% of the research money fund goes towards research.... more »
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United Cerebral Palsy Of Greater Saacramento Inc
- Location:
- Sacramento, CA
4 stars 1 review
jamiec wrote:
Twin Rivers adult school program is fantastic. I spend a lot of time at adult day programs. Twin Rivers staff have huge hearts and are fantastic advocates for their participants. Loie Rhodes is the BEST! more »
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Cerebral Palsy Services Center United Cerebral Palsy Of Cincinnat
- Location:
- Cincinnati, OH
1 stars 1 review
babbbss wrote:
The executive director was not equipped to do the job. more »
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Huisman Sickle Cell Foundation Of Agusta Georgia Inc
- Location:
- Augusta, GA
5 stars 1 review
lavedale wrote:
In April of 2011 I was contacted at my home by a member of the Huismann Sickle Cell Foundation, Mrs Sandra Rouse. She told me that they knew my husband and that I was a Sickle Cell patient. She took out the checkbook and wrote a timely check to me. We... more »
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CTC Academy, Inc - Fair Lawn and Oakland Campuses
- Location:
- Fair Lawn, NJ
5 stars 1 review
vetster02 wrote:
This is an amazing place to work, and an awesome place to go to school. I have seen miracles happen here on a daily basis! Children thrive here and are cared for and nurtured as though staff was their family! I have been a part of first words, first steps,... more »
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Prisms Inc
- Location:
- Sterling, VA
4 stars 1 review
Nollisa M. wrote:
Prisms is a great organization for finding information, parent support, fund raisers, & conferences for Smith-Magenis Syndrome (SMS). I've been involved with Prisms since Oct. 2000, shortly after our 4th daughter was diagnosed with SMS. Prisms does a... more »
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United Cerebral Palsy Of Nebraska Inc
- Location:
- Omaha, NE
1 stars 1 review
nicben wrote:
As a parent of a child with cerebral palsy,I am greatly disappointed in this organization. Over the years we have attempted to contact this organization via phone & email only to never have received any kind of response. We tried again a few months ago... more »
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Bobby Dodd Institute Inc
- Location:
- Atlanta, GA
1 stars 1 review
SINCERITY3005 wrote:
COLLEGE PARK, GA CALL CTR.1. employees who are downright nasty and rude to the disabled callers. For example, one female employee who sat diagonally from me and was rude. our supervisor would hear her and never did anything. 2. employees who... more »
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United States Adult Cystic Fibrosis Association
- Location:
- Beaverton, OR
5 stars 1 review
xnowakowski wrote:
USACFA centers the voices of adults living with CF and supports us in fulfilling our dreams. We offer a number of unique scholarships and a quarterly publication for and by adult CF community members. Everyone on the Board has CF ourselves and understands... more »
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United Cerebral Palsy of Central Arkansas, Inc.
- Location:
- Little Rock, AR
1 stars 1 review
Mindy P. wrote:
I tried to find out information on resources in the state of Arkansas for my daughter who was diagnosed with Cerebral Palsy. I was told that there was nothing this organization could do for me because I did not live in or around the Little Rock area.... more »
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Hemophilia Of Georgia Inc
- Location:
- Sandy Springs, GA
5 stars 1 review
K8sMom2002 wrote:
This program has been a lifesaver for my family, as my daughter has a rare bleeding disorder. The staff has gone above and beyond the call of duty to help us through some very tough issues. I really appreciate what they've done to help us and the outreach... more »
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49 Xxxxy Fund
- Location:
- Eureka, MO
5 stars 1 review
Andrew W. wrote:
A wonderful organization that truly changes the lives of those families it serves. When our son was diagnosed with 49xxxxy, information for families was nearly non-existent. With the help of this charitable organization, families and their boys receive... more »
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Noonan Syndrome Support Group, Inc.
- Location:
- Upperco, MD
1 stars 1 review
Beklovessc wrote:
Gave money to this org for a new website in 2011 ... Thousands of dollars were raised ... It's over a year alter and still no website ... Never answers calls ... What happened to my money? more »
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United Cerebral Palsy Of West Alabama Inc
- Location:
- Northport, AL
5 stars 1 review
Dawn R. wrote:
I am a parent volunteer, actually the family to family support coordinator. We have helped several families by providing resources, information, and referrals. We have also provided clothing, food, and help get a ramp built for a family. Our program started... more »
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Hht Foundation International Inc
- Location:
- Monkton, MD
5 stars 1 review
jmeyer wrote:
This organization serves people who suffer from HHT. Without this foundation there would not be Centers of Excellence, medical facilities that provide many different types of medical care to HHT patients. Without the foundation there would not be any... more »
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Caring Now For Kids With Cystic Fibrosis Inc
- Location:
- Bay Minette, AL
1 stars 1 review
lmcginnis wrote:
It is the greatest con out there, he looks and sounds like he is the real thing but he is not, go to silo.com and you will seewhat kind of stuff he is up to. He doesn't even pay child support for his own child that has this illness, not just a con but... more »
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Efe International
- Location:
- Newark, DE
3 stars 1 review
mannehsumo wrote:
I have been involved with this nonprofit since 2005. Patients and parents of children suffering from sickle cell disease in third world country especially in Liberia west Africa have benefited tremendously from its disease and pain education programs... more »
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International Foxg1 Foundation
- Location:
- , TX
5 stars 1 review
jlynnleonard wrote:
My daughter was diagnosed with FOXG1 in 2013. Since finding the International FOXG1 Foundation I've been able to learn more about FOXG1, how to help my daughter with her daily living, and meet clinicians and researchers around the world. I've been fortunate... more »
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United Cerebral Palsy Association of San Diego County
- Location:
- San Diego, CA
5 stars 1 review
imacia wrote:
I love going to the thrift stores. I have found many great things at their stores that would have cost me a lot of money anywhere els. I found my favorite pair of jeans at their store in Pacific Beach. For $5 I got a pair and at other stores they cost... more »
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Evelyns Treehouse
- Location:
- Haymarket, VA
5 stars 1 review
Cait Y. wrote:
When a family friend experienced the birth of their medically complex baby, they felt alone and scared. The Evelyn’s Treehouse leaders reached out to this family immediately and made an instant connection for support and love and understanding. The... more »
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Spina Bifida Association of Greater St. Louis Parents Association
- Location:
- St. Louis, MO
5 stars 1 review
Annette36 wrote:
This organization is amazing. It is wonderful to meet others who can answer all of your questions and support you through your journey. more »
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Billy Cook Foundation
- Location:
- Newark, DE
5 stars 1 review
timloveskari wrote:
Hi, I noticed this site and sen the statement this site had placed. There was no reviews so I wanted to make a note. I was the one who wrote that statement. They not only helped us deal with something few could possibly grasp --as far as what we went... more »
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PENNSYLVANIA CYSTIC FIBROSIS INC
- Location:
- Mifflinburg, PA
5 stars 1 review
Walk On Foundation Inc. wrote:
Pennsylvania Cystic Fibrosis Inc. is a great asset to the Central Pa area and beyond. While many organization provide funding solely to research and finding a cause of a certain disease a few go beyond and assist those dealing with the disease with... more »
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Alport Syndrome Foundation Inc
- Location:
- Phoenix, AZ
5 stars 1 review
joshuarichard80 wrote:
This organization has been a wealth of information for my family and our dealings with Alport Syndrome. They also provided my daughter with Paul Silver Tribute grant towards her continued education more »
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CYSTIC FIBROSIS FOUNDATION
- Location:
- Bloomington, MN
5 stars 1 review
jbstockings wrote:
The CF Foundation is one of the best at using their money for cutting edge research that WILL find a cure for cystic fibrosis. More than 90% of the money raised goes to research more »
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United Cerebral Palsy of Southern Nevada
- Location:
- Las Vegas, NV
5 stars 1 review
Christopher K.1 wrote:
One of my dearest friends Scott Marshall who has CP and I were best friends in H.S and we still stay connected today.I live in Vegas.Is there a way that i can do some plug/promoting of any events or causes here in Vegas and all over the country. on behalf... more »
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Ataxia Telangiectasia Childrens Project Inc
- Location:
- Coconut Creek, FL
5 stars 1 review
LAM908 wrote:
The A-T Children's Project is a tiny group that accomplishes tremendous non-profit work and achieves many goals. Since my child has been diagnosed with A-T they have provided a great amount of support to myself and in turn, to my family. They work tirelessly... more »
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United Cerebral Palsy Of Northeastern Maine
- Location:
- Bangor, ME
5 stars 1 review
jeanette1955 wrote:
The services I've received through UCP of Maine are very beneficial to helping make my daughter as independent as possible; without them we wouldn't be where we are today. My daughter is eighteen now it's great that this service can continue into her... more »
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Unlimited Possibilities, Formerly UCP of Orange County
- Location:
- Santa Ana, CA
5 stars 1 review
tylermounce wrote:
I've volunteered and served with UP in a number of ways, and the impact this organization is having cannot be described in words.In addition to reaching underserved families who are affected by disabilities, UP is also an industry leader - with... more »
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Blossom Philadelphia
- Location:
- Philadelphia, PA
5 stars 1 review
Advocate12 wrote:
I have volunteered for this organization going on three years. I am disabled and devote two days a week to UCP and I have seen what they have done for children, adults and the community. I am inspired and motivated by the care and dedication I have... more »
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United Cerebral Palsy of Central Arizona
- Location:
- Phoenix, AZ
5 stars 1 review
Writer wrote:
Thank you for all you have done for Jacob. We are so grateful! more »
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CTNNB1 Connect and Cure
- Location:
- Green Village, NJ
5 stars 1 review
tpaes wrote:
I have 2 children with rare genetic disorders, CTNNB1 being much more rare than the other. Despite how much more rare this condition is, the CTNNB1 Connect & Cure NonProfit has been such a fantastic resource and support for our family. We’ve found hope,... more »
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Jade Foundation
- Location:
- Minneapolis, MN
5 stars 1 review
jadewebmaster wrote:
I have been a volunteer with the Jade Foundation for exactly 10 years this month, and what an amazing, fulfilling, joyful experience it continues to be! The Jade Foundation was created in 1999 by MN's then-First Lady Terry Ventura, named for her and Gov.... more »
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HEMOPHILIA FOUNDATION OF MARYLAND INC
- Location:
- Parkville, MD
5 stars 1 review
MommytoOne wrote:
This Foundation has been around since the 1950's and provides tremendous support to the Maryland Bleeding Disorder Community. Community contributions include: Patient Service Assistance, Treatment Center Assistance, Educational Seminars, Family Retreats,... more »
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Elmhurst Inc
- Location:
- Bath, ME
1 stars 1 review
lilypea wrote:
This organization is shady. The little good they do is offset by the cuts they make to their consumers' services, while an elite few line their pockets. It is shameful and exemplifies how the term "non-profit" can be a misnomer. more »
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Families of Spinal Muscular Atrophy
- Location:
- Elk Grove Village, IL
5 stars 1 review
Elizabeth173 wrote:
We have two grandchildren with SMA type 1. SMA is the number 1 genetic killer of children under the age of 2. Our grandchildren have outlived their life expectancy and are now 12 & 14 years old. They take 24/7 365 care and their parents are... more »
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Progressive Familial Intrahepatic Cholestasis Advocacy And Resource Network Inc
- Location:
- Stanton, KY
0 stars 0 reviews
Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis,... more »
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Holimont Snowsports Inc
- Location:
- Ellicottville, NY
0 stars 0 reviews
The mission of holimont snowsports, inc is to operate the ski school and racing club at holimont for participants of all levels... more »
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Catalyst For Youth Inc
- Location:
- San Jose, CA
0 stars 0 reviews
Catalyst for Youth picks up where other programs stop. Specially we work for the population of youth that cannot make it in a... more »
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Magic Always Happens Inc
- Location:
- Bayonne, NJ
0 stars 0 reviews
To extablish and expand local and national awareness and services regarding autism, focusing on increasing education, research,... more »
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Families Of Children Under Stress Inc
- Location:
- Atlanta, GA
0 stars 0 reviews
Focus + fragile kids understands and supports the unique needs of families with children who are medically fragile or have significant... more »
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Easterseals DuPage & Fox Valley
- Location:
- Elgin, IL
0 stars 0 reviews
The mission of Easter Seals Jayne Shover Center is to serve individuals who have or are at risk for disabilities or developmental... more »
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Richmond Cerebral Palsy Center, Inc.
- Location:
- Richmond, VA
0 stars 0 reviews
Richmond Cerebral Palsy Center was founded in 1938 by Mary Junkin to provide therapy and education to neurologically impaired... more »
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Prader-Willi Syndrome Association Of Colorado
- Location:
- Littleton, CO
0 stars 0 reviews
Increase awareness and education, support research more »
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Capstone Adaptive Learning And Therapy Centers Inc
- Location:
- Pensacola, FL
0 stars 0 reviews
Service provider to children, students and adults with a spectrum of abilities and disabilities. Services in escambia and santa... more »
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Leo H Rheam Foundation For Cleft And Craniofacial Orthodontics
- Location:
- Kansas City, MO
0 stars 0 reviews
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United Cerebral Palsy Of Tallahassee
- Location:
- Miami, FL
0 stars 0 reviews
The corporation was organized for the purpose of providing supervision, training and therapeutic, medical, educational and other... more »
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Beverly Farm Foundation
- Location:
- Godfrey, IL
0 stars 0 reviews
To provide residential and training options for persons with developmental disabilities. more »
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Aspire Developmental Services Inc
- Location:
- Lynn, MA
0 stars 0 reviews
To provide services to people with disabilities more »
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Citizens For Quality Sickle Cell Care Inc
- Location:
- Avon, CT
0 stars 0 reviews
Ensure advocacy for sickle cell patients & other related disorders more »
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Mid-South Turner Syndrome Society
- Location:
- Bartlett, TN
0 stars 0 reviews
The Society is a non-profit public service organization with a two-fold mission:To enable innovations in health for Turner syndrome... more »
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Independent Disability Services Inc
- Location:
- Janesville, WI
0 stars 0 reviews
Our mission is to positively affect quality of life for people with disabilities and special needs. more »
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National Gaucher Foundation Inc
- Location:
- Rockville, MD
0 stars 0 reviews
Raise funds to promote education and awareness; meet ever-increasing needs of individuals with gaucher disease and their families.... more »
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CP Nassau (United Cerebral Palsy Association Of Nassau County Inc)
- Location:
- Roosevelt, NY
0 stars 0 reviews
Formed in 1948, the mission of CP Nassau -- United Cerebral Palsy Association of Nassau County, Inc. (ucpn) is to (a) affect positively... more »
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Reach Services Inc
- Location:
- Terre Haute, IN
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Washington State Neurofibromatosis Families
- Location:
- Kent, WA
0 stars 0 reviews
Washington state neurofibromatosis families is a network of committed volunteers partnered together for one purpose only to support... more »
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United Cerebral Palsy Association Of Calhoun County, Inc.
- Location:
- Battle Creek, MI
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Sunrise Community Of Southwest Florida Inc
- Location:
- Miami, FL
0 stars 0 reviews
The corporation was organized for the purpose of providing housing, supervision, training, therapeutic, medical educational and... more »
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Hacienda Inc
- Location:
- Phoenix, AZ
0 stars 0 reviews
Provide services for handicapped and chronically ill children more »
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Lowe Syndrome Association Inc
- Location:
- Oak Lawn, IL
0 stars 0 reviews
Founded in 1983, the LSA is an international, all-volunteer, non-profit organization made up of parents, friends, professionals,... more »
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PROVAIL
- Location:
- Seattle, WA
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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ADRENOLEUKODYSTROPHY FOUNDATION
- Location:
- Tulsa, OK
0 stars 0 reviews
In 1998, the formation of the Adrenoleukodystrophy Foundation started by building coalitions with committed medical professionals... more »
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United Cerebral Palsy Association Of Miami Inc
- Location:
- Hialeah, FL
0 stars 0 reviews
United Community Options advocates for children and adults living with unique abilities or social inequalities, providing opportunities... more »
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North Alabama Sickle Cell Foundation Inc
- Location:
- Huntsville, AL
0 stars 0 reviews
Sickle cell education, testing, and asseessment. more »
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United Cerebral Palsy Association Of Tarrant County
- Location:
- Fort Worth, TX
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Happy Babies Inc
- Location:
- Michigan City, IN
0 stars 0 reviews
To improve the quality of life of caregivers and children by creating unique community based programs designed to prevent the... more »
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Our Promise To Nicholas Foundation
- Location:
- Bedford, NH
0 stars 0 reviews
Funding research to find a cure for battens disease. more »
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Spina Bifida & Hidrocephalus Association Of Puerto Rico Inc
- Location:
- Bayamon, PR
0 stars 0 reviews
The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of... more »
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Alegria A California Fdn For The Treatment Of Cleft Lip & Palate
- Location:
- Salinas, CA
0 stars 0 reviews
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United Cerebral Palsy Of Kansas Inc
- Location:
- Wichita, KS
0 stars 0 reviews
To advance the independence, productivity, and full citizenship of people with disabilities. more »
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Jacqueline Rush Foundation
- Location:
- Danville, CA
0 stars 0 reviews
Save lives by improving public and medical community awareness of Lynch Syndrome and to raise funds for Lynch Syndrome research.... more »
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Cystic Fibrosis Association of North Dakota
- Location:
- BISMARCK, ND
0 stars 0 reviews
The mission of cfa is to provide education, relief from suffering, aid and support to persons suffering from cystic fibrosis and... more »
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United Cerebral Palsy Of West Centeral Wisconsin Inc
- Location:
- Eau Claire, WI
0 stars 0 reviews
Ucp of west central wisconsin's mission is to minimize the effects of cerebral palsy and to prevent its occurrence. Ucp offers... more »
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United Cerebral Palsy Assoc. Of Schenectady, Inc.
- Location:
- Albany, NY
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Asia Harvest
- Location:
- Winston Salem, NC
0 stars 0 reviews
To help spread the gospel of jesus christ by providing resources and financial support to projects throughout asia more »
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Carys Rainn Foundation
- Location:
- Grayson, KY
0 stars 0 reviews
Bring awareness to neural tube dedects, (ntd's) to support and promote participation in research regarding ntd prevention, and... more »
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Ability Connection Oklahoma, an Affiliate of United Cerebral Palsy
- Location:
- Oklahoma City, OK
0 stars 0 reviews
Advancing the independence, productivity and full citizenship of people with cerebral palsy and other physical disabilities. more »
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Cerebral Palsy Foundation Inc
- Location:
- New York, NY
0 stars 0 reviews
The cerebral palsy foundation is a not for profit sec. 501(c)(3) organization dedicated to funding research and educational activities... more »
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Stop Ald Foundation
- Location:
- Houston, TX
0 stars 0 reviews
The Stop ALD Foundation takes an entrepreneurial approach to adrenoleukodystrophy (ALD)and adrenomyeloneuropathy (AMN) therapy... more »
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Macoupin Center for the Developmentally Disabled
- Location:
- Carlinville, IL
0 stars 0 reviews
To meet the needs of adults with disabilities more »
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Michaels Place
- Location:
- Newberg, OR
0 stars 0 reviews
70 percent of the 54 million Americans between ages 18 and 64 with disabilities are unemployed through no choice of their own.... more »
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Greater Rochester Ny Spina Bifida Association
- Location:
- Fairport, NY
0 stars 0 reviews
Promote and advocate for the well-being of all people with spina bifida through educational and socialization and by promoting... more »
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Ld Resources Foundation Inc
- Location:
- New York, NY
0 stars 0 reviews
Give dyslexic students awards of assistive technologies more »
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Turner's Syndrome Society Of The Us
- Location:
- Laconia, NH
0 stars 0 reviews
The Society is a non-profit public service organization with a two-fold mission:To enable innovations in health for Turner syndrome... more »
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Sickle Cell-Thalassemia Patients Network Inc
- Location:
- Brooklyn, NY
0 stars 0 reviews
Sickle Cell Thalassemia Patients is dedicated to improving the quality of life for individuals and families living with sickle... more »
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Bow Foundation
- Location:
- Charlottesvle, VA
0 stars 0 reviews
Dedicated to supporting gnao1 families through enhanced research and increased awareness. more »
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Cerebral Palsy Foundation Of Oregon And Southwest Washington
- Location:
- Portland, OR
0 stars 0 reviews
The mission of CPF is to establish a permanent endowment fund to support UCP of Oregon and SW Washington. The endowment will... more »
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The Cerebral Palsy Agency
- Location:
- Racine, WI
0 stars 0 reviews
RADD is the trusted partner for youth and adults with developmental disabilities in Racine County providing programs for social... more »
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Infant Evaluation Program Inc
- Location:
- State College, PA
0 stars 0 reviews
The Mission of Infant Evaluation Program is to enrich the quality of life of children with developmental delays and their families... more »
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Linda And John Belsito Childhood Disease Research Foundation
- Location:
- Whittier, CA
0 stars 0 reviews
Fundraising for medical research & providing services for disadvantaged individuals more »
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Valerie Fund
- Location:
- Maplewood, NJ
0 stars 0 reviews
To raise funds to support comprehensive health care for children withcancer and blood disorders. more »
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National Tay Sachs & Allied Diseases Assoc New York Area Inc
- Location:
- Pomona, NY
0 stars 0 reviews
Offer support and programs geared to families affected by tay-sachs disease and over 40 other fatal degenerative genetic disorders... more »
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SHARE AND CARE COCKAYNE SYNDROME NETWORK INC
- Location:
- Waterford, VA
0 stars 0 reviews
Supporting children and families with cockayne syndrome. more »
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Tova Community Health Inc
- Location:
- Wilmington, DE
0 stars 0 reviews
Provide holistic comprehensive compassion care nd awareness to vaulnerable patient populations with complex chronic medical conditions... more »
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United Ability
- Location:
- Birmingham, AL
0 stars 0 reviews
United Ability provides innovative services connecting people with disabilities to their communities and empowering individuals... more »
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Sharing Down Syndrome Arizona
- Location:
- Gilbert, AZ
0 stars 0 reviews
To provide an uplifting place where parents, families, and community can share the joys and unique challenges for parents or guardians... more »
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United Cerebral Palsy Association Of Southern Connecticut, Inc.
- Location:
- Wallingford, CT
0 stars 0 reviews
The organization was established to advance the independence, productivity, and full citizenship of people with cerebral palsy... more »
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United Cerebral Palsy Of Blackhawk Region, Inc.
- Location:
- Loves Park, IL
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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New York State Sickle Cell Advocacy Network Inc
- Location:
- Queens Vlg, NY
0 stars 0 reviews
Service more »
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Mac Pact Inc
- Location:
- Durham, CT
0 stars 0 reviews
Provides support for prader-willi syndrome community more »
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United Cerebral Palsy Of San Luis Obispo County
- Location:
- Sn Luis Obisp, CA
0 stars 0 reviews
To positively affect the quality of life for children and adults with developmental disabilities. Ucp of slo county is committed... more »
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United Cerebral Palsy Of South Puget Sound
- Location:
- Tacoma, WA
0 stars 0 reviews
Advance the independence productivity and full citizenship of individuals with disabilities. more »
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United Cerebral Palsy Association
- Location:
- Austin, TX
0 stars 0 reviews
Cerebral Palsy Association of the Capital Area, Inc is a 501(c)3 non-profit organization made up of a dynamic staff committed... more »
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Zouves Foundation For Reproductive Medicine
- Location:
- Foster City, CA
0 stars 0 reviews
The Zouves Foundation for Reproductive Medicine aims to expand the understanding of early human development and implantation by... more »
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Northwest Ohio Hemophilia Foundation
- Location:
- Toledo, OH
0 stars 0 reviews
The northwest ohio hemophilia foundation (nwohf) is a volunteer, non-profit organization. The foundation has a chapter of the... more »
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Atlanta Volunteers
- Location:
- Cumming, GA
0 stars 0 reviews
A person with a physical ability working with a person who has intellectual ability creates an Ability Team. By combining the... more »
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Bay Area Turners Syndrome Society
- Location:
- Pittsburg, CA
0 stars 0 reviews
The Society is a non-profit public service organization with a two-fold mission:To enable innovations in health for Turner syndrome... more »
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Fighting Angels Foundation Inc
- Location:
- Monroe, CT
0 stars 0 reviews
To support and fund research and raise awareness of the rare neuro-genetic disorder angelman syndrome as well as serving and protecting... more »
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Ucp Of Western Massachusetts Inc
- Location:
- Pittsfield, MA
0 stars 0 reviews
To advance the independence, productivity and full citizenship of people with physical and developmental disabilities. more »
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Craniofacial Foundation Of Arizona
- Location:
- Phoenix, AZ
0 stars 0 reviews
Dedicated to providing financial and emotional support to cranofacial patients and their families, promote educational programs... more »
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Northeast La Sickle Cell Anemia Tech Resource Foundation Inc
- Location:
- Monroe, LA
0 stars 0 reviews
To provide services to persons with sickle cell anemia. more »
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Muscular Dystrophy Family Foundation Inc
- Location:
- Carmel, IN
0 stars 0 reviews
The Muscular Dystrophy Family Foundation, Inc. exists to provide resources, services, home medical equipment, and adaptive devices... more »
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United Cerebral Palsy Of Idaho, Inc.
- Location:
- Boise, ID
0 stars 0 reviews
Provide support and education. more »
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International 22q11 2 Deletion Syndrome Foundation Inc
- Location:
- Moorestown, NJ
0 stars 0 reviews
To educate and increase awareness regarding the 22q11. 2 deletion sydrome, assist clinical care centers that provide services... more »
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United Cerebral Palsy East Central Alabama
- Location:
- Anniston, AL
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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International Childrens Surgical
- Location:
- Boise, ID
0 stars 0 reviews
To provide corrective surgery free of charge to disfigured patients in developing nations. To provide individualized training... more »
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Fasd United Inc
- Location:
- Washington, DC
0 stars 0 reviews
The leading preventable cause of birth defects and learning disabilities is alcohol. The National Organization on Fetal Alcohol... more »
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Mucolipidosis Type Iv Foundation Inc
- Location:
- Atlanta, GA
0 stars 0 reviews
The mucolipidosis type iv foundation operates solely to raise contributions from individuals and companies in order to fund medical... more »
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Sunrise Northeast Opportunities Inc
- Location:
- Miami, FL
0 stars 0 reviews
This organization provides supported living services and a summer camp program in addition to providing information and referral... more »
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Soundwave Center For Hearing Impaired Children
- Location:
- Foster City, CA
0 stars 0 reviews
The Phoenix Center for Hearing Impaired Children was founded in 1984 to provide Auditory-Verbal Therapy to deaf and other hearing... more »
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We Care Dmv Day Services Inc
- Location:
- Washington, DC
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Provail
- Location:
- Seattle, WA
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Sickle Cell Disease Association Of Greater Washington Inc
- Location:
- Washington, DC
0 stars 0 reviews
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Ferre Institute Inc
- Location:
- Binghamton, NY
0 stars 0 reviews
Ferre institute, inc. Is a non-profit organization dedicated to the promotion and expansion of infertility services and quality... more »
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United Cerebral Palsy Housing Development Fund Corporation
- Location:
- Long Is City, NY
0 stars 0 reviews
Developing & maintaining an apartment building for low income people, the majority of whom have cerebral palsy. more »
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United Cerebral Palsy Of Southern Arizona Inc
- Location:
- Tucson, AZ
0 stars 0 reviews
The mission of united cerebral palsy of southern arizona is to enrich the quality of life for people with disabilities and the... more »
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United Cerebral Palsy Association Of Greater Chicago
- Location:
- Tinley Park, IL
0 stars 0 reviews
The mission of united cerebral palsy is to advance the independence of people with disabilities, enrich their lives, provide support... more »
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Fight For Mike Children With Cerebral Palsy A Nj Nonprofit
- Location:
- Rutherford, NJ
0 stars 0 reviews
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United Cerebral Palsy Of Illinois
- Location:
- Springfield, IL
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Wraparound Services Of The Hudson Valley Inc
- Location:
- Kingston, NY
0 stars 0 reviews
Cerebral palsy of ulster county partners with communities throughout the mid-hudson valley to empower people with disabilities... more »
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Abilities Network Inc
- Location:
- Towson, MD
0 stars 0 reviews
To challenge the community to acknowledge the value and equality of people of all abilities. more »
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United Cerebral Palsy of Washington
- Location:
- Seattle, WA
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Michigan Neonatal Biobank
- Location:
- Detroit, MI
0 stars 0 reviews
The michigan neonatal biobank is a storage and management facility for the michigan department of community health's archive of... more »
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American Association For Klinefelter Syndrome Info &support
- Location:
- Mundelein, IL
0 stars 0 reviews
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Napa Center Kids Foundation
- Location:
- Hawthorne, CA
0 stars 0 reviews
Provide financial assistance for children with disabilities, so that they may develop to their full potential. Funds provide access... more »
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Able2 Enhancing Potential Inc
- Location:
- Elmira, NY
0 stars 0 reviews
To enhance the quality of life of the people we serve. more »
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Penncares
- Location:
- Hanover, PA
0 stars 0 reviews
United cerebral palsy of south central pa advances the quality of life and promotes independence and productivity for people with... more »
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THE WESTERN PENNSYLVANIA CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION
- Location:
- Cranberry, PA
0 stars 0 reviews
WPCNHF strives to enrich the lives of those with bleeding disorders in Western Pennsylvania and respond to the needs of the community... more »
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United Cerebral Palsy Housing Of Eastern Nc No. Two, Inc.
- Location:
- Raleigh, NC
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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United Cerebral Palsy of Southern Alleghenies Region, Inc.
- Location:
- Johnstown, PA
0 stars 0 reviews
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New Horizons Corp
- Location:
- Nashville, TN
0 stars 0 reviews
Vocational training, residential, and day services provided to developmentally disabled adults more »
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Harrisons Heart Foundation Inc
- Location:
- Huntington, NY
0 stars 0 reviews
To solicit donations to help research for heart disease in infants and children. more »
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Little People Of America Inc
- Location:
- Sonoma, CA
0 stars 0 reviews
Support group for short-statured individuals. more »
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Medical Home For Adults With Sickle Cell Disease In West Philadelphia
- Location:
- Philadelphia, PA
0 stars 0 reviews
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Friends Of United Cerebral Palsy Of West Central Wisconsin
- Location:
- Eau Claire, WI
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Spina Bifida Association Of The Roanoke Valley Inc.
- Location:
- Roanoke, VA
0 stars 0 reviews
SBARV's Mission is "To promote the prevention of Spina Bifida and to enhance the lives of all affected." more »
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Cerebral Palsy And Physical Rehabilitation Center Of Columbus
- Location:
- Columbus, GA
0 stars 0 reviews
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Hearing & Speech Institute Inc
- Location:
- Portland, OR
0 stars 0 reviews
The artz center for developmental health and audiology's mission is to provide comprehensive developmental health services and... more »
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United Cerebral Palsy Housing Of Central Piedmont Nc, Inc.
- Location:
- Raleigh, NC
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Grin2b Foundation
- Location:
- Niles, IL
0 stars 0 reviews
GRIN2B Foundation is a parent-run organization dedicated to furthering research on the GRIN2B gene and providing support and education... more »
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We Can Succeed Inc
- Location:
- Grants Pass, OR
0 stars 0 reviews
Education and development of special education students. more »
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Cleft Palate Foundation
- Location:
- Chapel Hill, NC
0 stars 0 reviews
The mission of CPF is to enhance the quality of life for individuals affected by cleft lip and palate and other craniofacial birth... more »
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Spina Bifida Wisconsin, Ltd.
- Location:
- Wauwatosa, WI
0 stars 0 reviews
The Mission of the Spina Bifida Wisconsin, Ltd. is to promote the prevention of spina bifida and to enhance the lives of all affected.... more »
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United Cerebral Palsy Association Of Michigan
- Location:
- Lansing, MI
0 stars 0 reviews
United cerebral palsy association of michigan connects people with disabilities to the opportunities and resources to live productive... more »
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United Cerebral Palsy Association Of The Tri-Counties Inc
- Location:
- Queensbury, NY
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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United Cerebral Palsy Of Palm Beach & Mis-Coast Counties, Inc.
- Location:
- Hialeah, FL
0 stars 0 reviews
The organization's mission is to positively impact the quality of life of people with cerebral palsy, other developmental disabilities... more »
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The Foundation For Faces Of Children
- Location:
- Brookline, MA
0 stars 0 reviews
The foundation for faces of children is dedicated to improving the lives of children with craniofacial differences, including... more »
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Huntingtons Disease Rockford Support Inc
- Location:
- Rockford, IL
0 stars 0 reviews
To improve the quality of life experienced by patients with huntington's disease and their families by sharing information and... more »
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United Cerebral Palsy Of The Inland Empire
- Location:
- Rancho Mirage, CA
0 stars 0 reviews
To advance the independence, productivity and full citizenship of people with cerebral palsy and other disabilities. more »
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Turners Syndrome Society Of The United States
- Location:
- Overland Park, KS
0 stars 0 reviews
The Society is a non-profit public service organization with a two-fold mission:To enable innovations in health for Turner syndrome... more »
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Spina Bifida Association Of Minnesota Inc
- Location:
- Brooklyn Ctr, MN
0 stars 0 reviews
The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of... more »
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Healing The Children Southwest Chapter - Nmprc 2561777
- Location:
- Albuquerque, NM
0 stars 0 reviews
Locally, Healing the Children Southwest provides help to families when their children fall through the cracks of the medical system... more »
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Zack S Place Enrichment Center Inc
- Location:
- Woodstock, VT
0 stars 0 reviews
Zacks place provides a relaxed setting in the community center for people with speial needs where they can enjoy art, music, dance... more »
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Possible Dream Foundation Inc
- Location:
- Miami, FL
0 stars 0 reviews
Counseling and support of handicapped children and their parents and infant stimulation programs and the care of handicapped children,... more »
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Wonderwork Inc
- Location:
- Foxborough, MA
0 stars 0 reviews
Provide treatment, surgery, and related assistance to children and adults everywhere, including those in developing countries,... more »
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Spina Bifida Association Of Central Florida Inc
- Location:
- Orlando, FL
0 stars 0 reviews
The mission of the spina bifida association of central florida is to promote the prevention of spina bifida and to enhance the... more »
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Foundation For Prader Willi Research
- Location:
- Walnut, CA
0 stars 0 reviews
The mission of foundation for prader-will research (fpwr) is to eliminate the challenges of prader willi syndrome through the... more »
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United Cerebral Palsy Of New York City Inc
- Location:
- New York, NY
0 stars 0 reviews
United cerebral palsy of new york city, inc. (doing business as adapt community network) (the "agency") is a not-for-profit organization,... more »
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Dandy Walker Alliance Inc
- Location:
- Kensington, MD
0 stars 0 reviews
We support all efforts to determine the cause(s) of, find the cure for and to ameliorate the effects of Dandy-Walker Syndrome. more »
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Ladacin Network Inc
- Location:
- Ocean, NJ
0 stars 0 reviews
The mission of ladacin network, a non-profit agency, is to provide a continuum of care, including educational, therapeutic, social,... more »
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Northwestern Pennsylvania Cleft Palate Institute
- Location:
- Erie, PA
0 stars 0 reviews
The purpose of the institute is the physical and communicational restoration of children born with various craniofacial anomalies... more »
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Ehlers Danlos National Foundation
- Location:
- Scottsdale, AZ
0 stars 0 reviews
Our organization provides emotional support and resources for those effected by EDS. We also fundraise for much needed research. more »
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Let Them Be Little X2 Inc
- Location:
- Hasbrouck Hts, NJ
0 stars 0 reviews
The let them be little foundations mission is to increase public awareness of, advocate for, and raise money to support children... more »
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United Cerebral Palsy Of Northern Central And Southern New Jersey In
- Location:
- Chester, NJ
0 stars 0 reviews
To construct, finance, operate and maintain affordable housing for persons with disabilities and special needs. more »
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Cure Cf
- Location:
- Louisville, KY
0 stars 0 reviews
Raise funds for research to cure cystic fibrosis more »
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Joseph Belsky Home Care Services Of United Cerebral Palsy Inc
- Location:
- New York, NY
0 stars 0 reviews
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United Cerebral Palsy Of Utah, Inc.
- Location:
- S Salt Lake, UT
0 stars 0 reviews
As one of the largest health non-profits in America, United Cerebral Palsy's mission is to advance the independence, productivity... more »
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Boston International Turner Syndrome Summit
- Location:
- Mansfield, MA
0 stars 0 reviews
Bringing young women with Turner syndrome together for fun, enriching experiences that foster independence and community. more »
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Fly With Me Fund
- Location:
- Lynbrook, NY
0 stars 0 reviews
Fly with me fund was organized to assist families with children diagnosed with "fragile x. " it is intended to provide awareness... more »
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Creating Unlimited Possibilities Inc
- Location:
- Wilkes Barre, PA
0 stars 0 reviews
Provide training for mentally and physically handicapped more »
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The Marfan Foundation Inc
- Location:
- Prt Washingtn, NY
0 stars 0 reviews
The marfan foundation creates a brighter future for everyone affected by marfan syndrome and related disorders. The foundation... more »
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Agris-Zindler Childrens Foundation
- Location:
- Bellaire, TX
0 stars 0 reviews
The primary function is reconstructive surgery of physical defects, trauma and burns in infants and children to help maximize... more »
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THE ARC OF THE CAPITAL AREA
- Location:
- Austin , TX
0 stars 0 reviews
To assist people with developmental disabilities and related conditions, to achieve the greatest degree of independence and self-determination... more »
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United Cerebral Palsy Association Of Metro Boston Inc
- Location:
- Watertown, MA
0 stars 0 reviews
The organization is dedicated to helping children and adults with cerebral palsy and other disabilities live, learn, and work... more »
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United Cerebral Palsy Of Central Florida Memorial Foundation Inc
- Location:
- Orlando, FL
0 stars 0 reviews
The mission of the ucp memorial foundation is to support the operations of ucp of central florida, a non-profit 501(c)(3) organization,... more »
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CEREBRAL PALSY SCHOOL OF LOUISVILLE FOUNDATION INC
- Location:
- Louisville, KY
0 stars 0 reviews
The Cerebral Palsy School of Louisville Foundation’s mission is to provide direct funding support for services, programs... more »
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Inland Northwest Turner Syndrome Society
- Location:
- Spokane, WA
0 stars 0 reviews
The Society is a non-profit public service organization with a two-fold mission:To enable innovations in health for Turner syndrome... more »
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Sma Support Inc
- Location:
- Kokomo, IN
0 stars 0 reviews
Support information for families of sma more »
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Legendary Smiles Inc
- Location:
- Kokomo, IN
0 stars 0 reviews
We strive to strengthen and support families in the cleft and craniofacial community. more »
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North Jersey Elks Developmental Disabilities Agency
- Location:
- Clifton, NJ
0 stars 0 reviews
North jersey elks developmental disabilities agency's mission is to advance the independence and to enrich the quality of life... more »
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United Cerebral Palsy Association Inc Of Stanislaus County
- Location:
- Modesto, CA
0 stars 0 reviews
Dedicated to advancing the independence, productivity, and full citizenship of persons with cerebral palsy and other diabilities.... more »
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Dream Catchers Usa
- Location:
- Killen, AL
0 stars 0 reviews
To grant outdoor wishes of disabled n terminaly il more »
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Opportunity Of North Central Wisconsin Inc
- Location:
- Wausau, WI
0 stars 0 reviews
PROVIDE VARIOUS SERVICES TO PEOPLE WITH DISABILITIES, SUCH AS: DAY SERVICES, COMMUNITY LIVING, SPECIALIZED SUPPORT SERVICES AND... more »
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Massachusetts Down Syndrome Congress, Inc.
- Location:
- Melrose, MA
0 stars 0 reviews
To continuously enhance the lives of individuals with Down syndrome through the education and support of people with Down syndrome,... more »
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Smiles 4 Cancer Inc
- Location:
- Roswell, GA
0 stars 0 reviews
To provide support for those diagnosed with cancer more »
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Hemophilia Foundation Of Michigan
- Location:
- Ypsilanti, MI
0 stars 0 reviews
The hemophilia foundation of michigan strives to improve the quality of life for all people affected by hemophilia, von willebrand... more »
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Easter Seals Ucp North Carolina & Virginia Inc
- Location:
- Raleigh, NC
0 stars 0 reviews
Easter seals ucp north carolina & virgina, inc. Creates opportunities, promotes individual choice, & changes the lives of people... more »
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United Cerebral Palsy Association Of Cayuga County Inc
- Location:
- Auburn, NY
0 stars 0 reviews
The mission of the e. John gavras center is to provide the highest quality educational, habilitative, and therapeutic services... more »
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Parent To Parent New York Inc
- Location:
- Staten Island, NY
0 stars 0 reviews
Parent to Parent fulfills the need for parents to know that they are not alone when this crisis hits them. That there are other... more »
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International Clearinghouse For Birth Defects Monitoring Systems
- Location:
- Salt Lake City, UT
0 stars 0 reviews
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Ability Connection Colorado
- Location:
- Denver, CO
0 stars 0 reviews
To empower and support Coloradans through innovative and comprehensive Early Education, Employment and Family Support programs.... more »
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Cerebal Palsy Ability Center
- Location:
- Ashburn, VA
0 stars 0 reviews
To make conductive education available to children in the greater washington dc area. more »