Congenital Heart Information Network Overview
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Programs: Parent/Patient Matching Services
Online support systems
Financial assistance to families/individuals in crisis
Funding for local affiliated support groups
Printing and distribution of informational materials
CHD Awareness Week materials and local activities
Mission:
The Congenital Heart Information Network, a 501(c)(3) organization created by the mother of a child with complex heart defects, currently publishes the Congenital Heart Disease Information and Resources Web site. Harnessing the power of the Internet as an action-oriented health education and awareness tool, we are one of only a handful of consumer information and support resources for Pediatrics currently available on the Internet that has a commitment to accuracy and reliability, the guidance and assistance of health professionals, and the active participation of our intended audience.
Results:
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CHDDad
11/30/12
TCHIN was the first organization that I was introduced to after giving birth to my first son who had a complex congenital heart defect called Hypo-Plastic Left HEart Sysndrome. TCHIN's website had all the information that I needed to help me through my journey and to connect with others in the same...
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StLouisBookworm
11/16/12
My daughter was born 17 years ago with Hypoplastic left heart syndrome, and there was very little information available. I clung to a copy of an article about a little boy who had the same thing because it made me feel we were not alone. I became involved with the Congenital Heart Information ...
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lyoung
11/13/12
My son was diagnosed with a heart defect, couple days after being born and a few hours before we left the hospital. I was told he'd need open heart surgery sometime in the first two years of life, or he wouldn't survive. I was told to see the cardiologist in his office in a week, that we'd be ...
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