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Congenital Heart Information Network Overview
The Congenital Heart Information Network, a 501(c)(3) organization created by the mother of a child with complex heart defects, currently publishes the Congenital Heart Disease Information and Resources Web site. Harnessing the power of the Internet as an action-oriented health education and awareness tool, we are one of only a handful of consumer information and support resources for Pediatrics currently available on the Internet that has a commitment to accuracy and reliability, the guidance and assistance of health professionals, and the active participation of our intended audience.
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TCHIN was the first organization that I was introduced to after giving birth to my first son who had a complex congenital heart defect called Hypo-Plastic Left HEart Sysndrome. TCHIN's website had all the information that I needed to help me through my journey and to connect with others in the same...
My daughter was born 17 years ago with Hypoplastic left heart syndrome, and there was very little information available. I clung to a copy of an article about a little boy who had the same thing because it made me feel we were not alone. I became involved with the Congenital Heart Information ...
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My son was diagnosed with a heart defect, couple days after being born and a few hours before we left the hospital. I was told he'd need open heart surgery sometime in the first two years of life, or he wouldn't survive. I was told to see the cardiologist in his office in a week, that we'd be ...
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