My Nonprofit Reviews
Review for Congenital Heart Information Network, Margate City, NJ, USA
I came across The Congenital Heart Information Network years ago after my child was diagnosed with a defect and an experimental procedure was recommended. The local cardiologist had no resources to give me to find out all that I could. Scouring the internet uncovered C.H.I.N., the knowledgeable members there, information, resources, contacts, and most importantly, support for a fellow parent struggling through the shock of my toddler's diagnosis, treatments, and open-heart surgery. Years later I again turned to C.H.I.N. for a different child: my newly diagnosed teenager. The support was there from teenagers with defects and parents of those teens. I learned about the special concerns older children have when undergoing surgery (social, academic), what assistance to ask of teachers, and how to be better prepared to help my child mentally and physically. I'm forever thankful. Without a doubt C.H.I.N. is the single most important place/resource that "carried" me through these experiences.
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