July 23, 2012
I came across The Congenital Heart Information Network years ago after my child was diagnosed with a defect and an experimental procedure was recommended. The local cardiologist had no resources to give me to find out all that I could. Scouring the internet uncovered C.H.I.N., the knowledgeable members there, information, resources, contacts, and most importantly, support for a fellow parent struggling through the shock of my toddler's diagnosis, treatments, and open-heart surgery. Years later I again turned to C.H.I.N. for a different child: my newly diagnosed teenager. The support was there from teenagers with defects and parents of those teens. I learned about the special concerns older children have when undergoing surgery (social, academic), what assistance to ask of teachers, and how to be better prepared to help my child mentally and physically. I'm forever thankful. Without a doubt C.H.I.N. is the single most important place/resource that "carried" me through these experiences.
How would you describe the help you got from this organization?
How likely are you to recommend this organization to a friend?
How do you feel you were treated by this organization?
When was your last experience with this nonprofit?
MY ROLE:Client Served