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atir44

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2 Reviews

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Adult Congenital Heart Association Inc
October 8, 2012

My daughter was born in 1983 with serious complex heart defects. Today she is 29 years old. This site has helped with transition from pediatric to adult doctors. We have used the directory to find good ACHD doctors.

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Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

MY ROLE:
General Member of the Public

Congenital Heart Information Network
July 20, 2012

I have been involved with this organization since its inception. When my daughter was about 11 years old - in 1994 - I got my first computer. I looked and looked for information on her heart defect and began correponding with other parents of heart kids. C.H.I.N. has evolved through time into a great place for information and support. I have made many "heart" friends via this forum. I had finally found a place where I could talk to people who were having the same experiences as my family was faced with. I cannot say enough wonderful words about C.H.I.N. and its founder, Mona Barmash.

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Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

MY ROLE:
Volunteer