July 27, 2012
Our daughter was diagnosed with Hypoplastic Left Heart Syndrome in utero. When hospital staff prepared us for her delivery, The Congenital Heart Information Network was recommended as a site to visit for support and accurate information, both of which have been invaluable resources as we've navigated her medical needs for the past seven years. We also appreciate the advocacy and awareness components which we know will extend and improve our daughter's quality of life. We are continually grateful for the support and advice we receive on the parent email board; we learn information that we never thought to consider and are empowered in our ability to care for our daughter.
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MY ROLE:Client Served