My Nonprofit Reviews
Review for Congenital Heart Information Network, Margate City, NJ, USA
My son was diagnosed with a heart defect, couple days after being born and a few hours before we left the hospital. I was told he'd need open heart surgery sometime in the first two years of life, or he wouldn't survive. I was told to see the cardiologist in his office in a week, that we'd be monitoring my son's progress to allow him to grow as much as safely possible before the surgery. And then I was told to take him home and enjoy him. Of course, I was terrified. C.H.I.N. provided me access to many families who had faced the same kind of situation and were there to provide support. Most importantly, in addition to knowing there were people going through the same fears and challenges as I, they also provided me with vast amounts of information. We actively evaluated options for surgical centers and surgeons, in part from feedback from community members. My son had a successful repair to his heart. And over the years, as he has also faced developmental challenges that are more prevalent among kids with CHDs, Ive returned to the site many times to see if others were confronting similar challenges and what they've done about them. This site and its community are incredibly valuable to the many families supporting children with CHDs. I can't recommend C.H.I.N. highly enough.
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