My Nonprofit Reviews
Review for Congenital Heart Information Network, Margate City, NJ, USA
My daughter was born 17 years ago with Hypoplastic left heart syndrome, and there was very little information available. I clung to a copy of an article about a little boy who had the same thing because it made me feel we were not alone. I became involved with the Congenital Heart Information Network at the beginning, and how watched it evolve. This group has been a wonderful resource for me. It has educated me on procedures that my daughter has had - I have no medical background, and her issues have been complex. I have met families who are going through the same thing, so I don't feel alone and isolated. In turn, I hope I have been able to provide hope and information to people just starting down this path. I'm giving back, and that helps me, too. I would really feel lost if this group did not exist!!
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