November 16, 2012
My daughter was born 17 years ago with Hypoplastic left heart syndrome, and there was very little information available. I clung to a copy of an article about a little boy who had the same thing because it made me feel we were not alone. I became involved with the Congenital Heart Information Network at the beginning, and how watched it evolve. This group has been a wonderful resource for me. It has educated me on procedures that my daughter has had - I have no medical background, and her issues have been complex. I have met families who are going through the same thing, so I don't feel alone and isolated. In turn, I hope I have been able to provide hope and information to people just starting down this path. I'm giving back, and that helps me, too. I would really feel lost if this group did not exist!!
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MY ROLE:Client Served