I had surgery for stage 3A lung cancer in 205. I found LUNGevity online and I don’t know how I could have made it through that diagnosis and treatment without the support of all the people there. They answered my questions as only those who have had a cancer diagnosis and treatment can. I have developed friendships and bonded with people that I have not had the opportunity to meet.
Prior to diagnosis I was a middle school teacher getting prepared for principalship. I was diagnosed on March 14, 2014 with Stage IV NSCLC ALK positive. I was born on Valentine's day, I'd just turned 43 years old then. Started Crizontinib as 1st line of defense in April 2014. Stayed on Crizontinib for 36 months. Brain metastasis was evident and Crizontinib was no longer effective. I started Alectinib in May 2017.
This September 2020 makes it 40 months for me on Alectinib. I've learned how to manage certain noticeable side effects very well. I follow my instincts and work cooperatively with nurses, physician assistants, and oncologist very well. I am proactive and advocate for myself. I take on adventures, like skydiving in July 2017. It was wild. Oh, I pray
Lungevity is an AMAZING foundation that goes above and beyond to help us. As a lung cancer survivor, I felt completely lost before I found Lungevity. The amazing people there have provided me with a better understanding of the disease and treatments available and connected me with my wonderful lung cancer family. To Lungevity, I am more than just a person who has been diagnosed with lung cancer. I am family. Lungevity has also encouraged me to advocate for myself and others and fight for more research. Katie, Nikole, Lauren, and Upal are so important to me and my family.
Lungevity helped me find hope in a cancer that had no hope. They helped me meet new people going through exactly what I was going through and because of that I am able to help other people.
This organization taught me how to successfully advocate for myself. I put things I learned at their educational seminars to work for me including getting pulmonary rehab and getting a second opinion.
For the past 7 years, LUNGevity has been a huge source of information, support, and access to cutting edge research. The work they do and the services they provide is indescribable.
I can’t recommend them enough!
Wow, lost for a lot of words. Let say it Gave me Hope, laughter , educated me, made a new family, have people to call and talk to or cry to ,made many friends. Gave me more reason to fight .look forward to each year to meet new survivors, hear their stories . It’s all due to Lungevity .they care and they ate there anyway they can, they try hard to get answers. Able to learn about new treatments new clinical trials have great people n Drs in board.
They people people from all over the world together ! They raise money for me and you
Lungevity is the leading Lung Cancer non-profit. They do an amazing job keeping the community informed and advocating on their behalf. The annual International Lung Cancer Survivorship Conference is a huge boost to all attendees. Andrea started the organizational based on her family suffering from Lung Cancer so it’s created from a good place too.
Lungevity does two things very well: it really cares about those with lung cancer, focusing substantial resources on information and patient/survivor support programs, and it funds research into treatment and early detection. It is a well managed non profit with administrative expenses below 10% of total revenue. The annual International Lung Cancer Survivorship Conference is a substantial event bringing hope and new therapy information to patients and caring family members.
LUNGevity does three vital things for lung cancer patients and their families: drives science by funding research, empowers patients by providing insight and assistance through online and telephone support, and improves outcomes by broadcasting knowledge about new treatments and methods.
LUNGevity is my absolute favorite go to for any support I have needed relative to Lung Cancer.
They have been a huge support system for me and I highly value all they do for the entire Lung Cancer Community.
I recently attended their 2020 International Lung Cancer Survivorship Conference and was blow away at the amount of information they provided for us all. They expert speakers were fantastic and the topics we very informative. It was a life-changing event and I now look forward to attending again next year.
LUNGevity offers a wealth of resources and support to anyone touched by Lung Cancer. They are wonderful advocates and some of the most kind and caring people I have ever met.
I love LUNGevity and I am very proud and honored to be an active member of their community and highly recommend them to anyone who is in need of education or support while living with Lung Cancer.
My husband's oncologist introduced Lungevity to us as he began his first clinical trial for stage 4 lung cancer, back in 2014. We attended our first Hope Summit (now the International Lung Cancer Survivorship Conference) in 2015, and every year after until he passed away in 2019. I continue to be involved with this wonderful organization. Their dual mission is promoting research and providing access to cutting edge knowledge to patients and caregivers. They make a real difference by funding young scientists with the goal of helping them achieve their first big NIH grants. And the difference Lungevity makes in the lives of survivors and their loved ones is unmatched. Love this organization!
(I am a former client served, a current volunteer.)
I joined this group to find support and to gain knowledge about living with lung cancer! Lungevity has provided all that and more than I could have ever imagined!
Lungevity helps the Richmond area host a Breathe Deep event every year. I am proud to be a part of promoting this event. The help and support I get from Lungevity is simply amazing. The event would not happen if not for them.
I found Lungevity attending the National HOPE Summit for the past five years. I rely on the foundation for information and support.
I went to my first Hope Summit in 2014 and haven’t missed one since. There’s no way to describe the feeling of being among so many others who are experiencing the same thing. This Summit just keeps getting bigger and better (if that’s possible) every year and there’s many of us who attend every year. It has become a family reunion for many of us. It’s such an educational and uplifting experience and everyone affected by lung cancer owes it to themselves to attend. Becoming involved with LUNGevity has opened many advocacy opportunities for me for which I’m very grateful. I want to help educate and spread awareness for this number one cancer killer and I have had and continue to have the chance to do so because of LUNGevity.
I first learned of the Lungevity foundation about 4 years ago which was 8 years after my diagnosis. I had explored other organizations, but I knew I found the right one when a friend suggested I check out Lungevity. This organization is truly patient/survivor centered, offering us emotional, psychological and educational support and information. Most importantly, Lungevity offers us hope by keeping us updated on all recent developments regarding treatments. I have been living with lung cancer for 12 years now and I credit Lungevity for helping supply vital information for e to share with my care team.
I love how they encourage audience participation and each year try to better our experience. Also, allowing us to raise funds and taking care of travel arrangements for us is super helpful!
I first met the team at the International Lung Cancer survivorship conference in April 2019.
I flew in from Australia, the team were amazing, from when i originally enquired about this conference right through to recieing a travel award and arriving to DC. They guided me around the conference, took the time out to i troduce me to the Survivorship community. Absolutely felt so well looked after.
Lungevity Foundation not only gives much needed information to people with lung cancer, it also puts you in contact with others like yourself, especially at that moment when you feel most alone.
The money that Lungevity Foundation raises goes to the research needed so desperately to find news ways to extend the lives of lung cancer patients,. It's doing that.....so many new therapies have been discovered; however many more are needed.
Lungevity Foundation is such a wonderful resource for those of us diagnosed with lung cancer. Not only does it help in navigating all the information one seeks at the time of a diagnosis, but it also provides LifeLine. This is a mentoring program which puts you in touch with someone who totally understands! In addition, if you attend any Lungevity functions such as Breathe Deep or especially the Hope Summits, the instant connection with other sister and brother survivors is unexplainable.
The lungevity foundation has been a great resource for me as a lung cancer patient. This organization hosts a hope summit for all lung cancer survivors to attend so we can connect and share our stories. This organization has also helped provide funding to much needed research in the lung cancer field that has allowed me to live a longer life. I was diagnosed when I was 30 years old and I’m currently 32. With the help of lungevity I hope to extend my life just a little longer.
I love this organization more than I have words to describe. I'm often telling LUNGevity that I am in their "fan club!"
My mother (i.e., my best friend!) was diagnosed with Stage IV lung cancer in March 2015. We were terrified, overwhelmed, in denial...all of it. I will never forget the darkness of the days between the diagnosis and the start of the treatment plan.
In those dark days, I went searching for...something. We didn't even know what we needed; not really. Mom said she desperately needed hope. I said I needed a way to contribute to the fight. I felt so disenfranchised knowing that there was nothing I could do to change how my mom's treatment was going to work, but I wanted to feel like I was fighting, too.
I literally stumbled into LUNGevity's open arms. I remember the first email I ever sent to the Survivorship and Support team: I didn't know what I could do, but I needed to do something. They responded immediately: with opportunities to join in the policy conversation around lung cancer; with opportunities to raise funds for research; with places where my mom and I could find peer-to-peer support; with opportunities to help disseminate accurate lung cancer information; the list goes on. Truly, the sky was the limit. The ability to call myself an advocate and to tailor my advocacy to my skill set was revelatory, and changed my family's whole approach to the diagnosis. We went from vulnerable to connected and empowered.
Today, as a volunteer linked to several of LUNGevity's programs, I can confidently say that they are the thought leaders in cancer advocacy. They work tirelessly to find new ways for survivors and caregivers to have support. They are personal and professional ambassadors to the medical world. They work at the highest level of government and academia to influence public policy in favor of cancer patients. They bend over backwards to fund the research projects that will become tomorrow's advanced treatments.
It cannot be said enough: LUNGevity is changing the world on behalf of cancer patients, true to their motto and mission statement.
And I, for one, will never be able to thank them enough for undergirding my family's determination.
I was diagnosed with lung cancer in late 2016. I didn't know anything about this kind of cancer and the Lungevity website was a source of reliable, up to date information. I looked for a lung cancer support group in my city but there was none so I started participating in the Lungevity Forums on line. I'm now a volunteer moderator there, so I can pass on the support and hope I've experienced.. I've gone to two Hope Summits, national conferences put on by Lungevity annually, where I found not only more information, support and hope, but got to meet some of the great folks, both staff and survivors, who I'd been in contact with on the Forums. All in all, Lungevity has been my greatest and most reliable source of information, support and hope since my diagnosis. I'm really grateful!
I learned of the LUNGevity Foundation when my mom was diagnosed with her 1st lung cancer recurrence. Her first round was simple and my nativity about lung cancer didn't prepare me for this upcoming challenge. I was crushed, my mom was crushed. I was looking for hope on the internet at all hours of the day and night. I was desperate to find 1 positive thing about my mom's possibility of survival. That's when I found LUNGevity's website and discussion forums. I had finally found my hope. It was through the helpful information on their website that I had resources available to teach my about my mom's lung cancer and recommended treatment. I was given tools to help me ask the right questions and the support to keep moving forward from the fellow advocates and survivors on the discussion forums. I gained so much from the forums that I began to give back. I shared my experience as my mom's caregiver, as well as, offered hope to those who were in desperate need of it, just as I once was. I am so very thankful for the services and information offered by the LUNGevity Foundation.
The world of nonprofits devolves into 2 hemispheres, both wanting money. Those that care and those that don't. How does one identify the caring? I look for the little people-centered things. Lung cancer is horrifyingly frightening, especially for the newly diagnosed. A free lung cancer helpline staffed with a knowledgable and caring person is a little thing of enormous benefit. An online, available-to-the-world, presence were patients and their caregivers can ask tough questions and get thoughtful answers, almost in real time, is a little thing of enormous benefit. Offering a tenured lung cancer survivor to mentor, guide and assist someone struggling with lung cancer is a little thing of enormous benefit. These little but vastly important things focused at the individual lung cancer survivor or caregiver are evidence of the Lungevity Foundation's nonprofit excellence.
Lungevity gave me my mental stability and life back. They truly care about us as a person, not just a diagnosis. They go above and beyond in helping every person that contacts them - patients, caregivers and medical professionals. I have been a client and help spread awareness about them. Every Lung Cancer patient should be made aware of Lungevity!
When I was diagnosed with lung cancer in 2015 I was terrified, I had never known anyone who had lung cancer, the only thing I had ever heard about it was that it was a cancer found in old men who had smoked for years. I did not fit any of those criteria. I was a healthy, active, non-smoking female in my early 60's. I was confused by all the medical jargon, I didn't even know the right questions to ask so I went to Google and fortunately as I waded through all the misinformation and terrifying statistics online I came upon the name Lungevity and if for no other reason than I thought the name was a cute play on words I clicked on it and I am so thankful I did. I found tons of updated information as well as many others who were just like me who made me feel welcome and supported. Lungevity works extremely hard to bring awareness and raise funds for research of lung cancer. I was immediately a fan and signed up to become a social media ambassador for them. I am forever grateful for this amazing organization.
Lungevity is everything they say and more. When you want to find facts, they have them. If you, or your care-giver (or co-survivor as they have been calling them. Much more accurate term in my opinion) need someone to talk to, they they will match you with someone who has been through similar situations. And if you want to volunteer, they have many things for you to do so that no matter what you are capable of, you can feel useful and appreciated. Every member of that group is like a super pleasant ambassador into the one side of your lung cancer journey that doesn't cause emotional or physical pain. The support is unending and full of true friendship from volunteers and paid staff alike.
I am so blessed to have found them 5 years ago.
This is just an amazing group! No matter how you want your support, you can find it here. There is a message board so you can post questions or just what you are worried about to get written support. If you just need to type it out to get a rant out, do it here and half a dozen people will give you virtual hugs and pats on the back. If you are wondering what post-op will be like, people will share their stories.
If you prefer to have some one on one support they will find you someone to email or phone who understands what you are going thru because they have been thru it too. They try to match you as close as possible for diagnosis and anything else you prefer... if you want to make sure that you are matched with someone your gender, age group, family situation... ask away and if they know of someone that fits the bill, you will have a new friend.
Then there is the annual Hope Summit in DC! Informative speakers, yummy meals and more and more survivors every year!! I can hardly wait til May for the next one!!
There is no better place for lung cancer support!
I thank God that I found them and only wish I had found them sooner!!
Lungevity is THE reliable source to educate & raise awareness to REDIFINE the myths of lung cancer! THANK YOU, Lungevity, for allowing loved ones fighting this horrible disease to LIVE & FIGHT with DIGNITY!
Lungevity helped me cope with my husbands lung cancer journey. They were there to support me when I was at the lowest point in my life. I can never express my heartfelt gratitude to them.
I am a fourteen year Lung Cancer survivor. LUNGevity has played a huge part in my success. Their programs and information are invaluable. The professional service and staff go out of their way to support and encourage. If you are a lung cancer warrior or caregiver, contact LUNGevity now, get support and begin your journey.
LUNGevity has awesome information and resources for people with Lung cancer and for caregivers. They provide up to date information regarding lung cancer. The Hope Summit was one of the greatest experiences I had since my diagnosis.
This organization gives hope and valuable resources to those fighting lung cancer. The Hope and friendships and help given to my son were phenomenal! I will be forever grateful!
I was in Hospice care when I found Lungevity. That was early in 2017. I was already improving and I was on oxygen. I so wanted to attend the National Hope Summit as a Bucket List item. I was able to get financial assistance with my hotel costs by Lungevity. My daughter and I flew into Washington D.C. and spent the weekend with some of the most amazing people that I have ever met. I got some new information that was a game-changer for me. I felt so much love and hope from the other survivors. After we returned home, I kicked Hospice to the curb after 10 months. I am about to start a new targeted pill for my genetic mutation. Lungevity has literally saved my life!!!
I found lungevity in 2010, several months after my lung cancer diagnosis. Their website gave me the information I was looking for and in 2012 I attended my first survivors Hope Summit which completely changed my life. Where I felt ignorant I gained knowledge. Where I once felt helpless, I found empowerment. When I felt alone, lungevity connected me to strangers who became family. Lungevity gave me the tools to help others by being a lung cancer advocate. After my mom's death from one cancer in 2016 I brought my father to the Hope Summit. I had hoped it would have the same impact on him as it did on my mom and I. After only half of the weekend I saw a side of my father I never knew existed. Lungevity has taught my father how to live as a caregiver with no one to care for. He also has lungevity family and a new purpose no. We are only three lives that lungevity has changed for the better but there are so many more lives... families who benefit everyday because lungevity exists.
When I was first diagnosed with lung cancer--a never smoker--I was in shock and overwhelmed. LUNGevity was the first to reach out and give me support and resources. Super engaged, super active and proactive, and on top of the latest in research and treatments. Five years later, I am still going strong--and still think the world of LUNGevity and its wonderful, caring staff!
Amazing support! Informative and uplifting. I start everyday by checking in to see how my fellow survivors and fighters are and end every day with a prayer for us all!!! LUNGevity is one of the few non profit who actually use your money for research which is another thing I love
I was introduced to LUNGevity 2 years post my diagnosis. I had no idea such organizations existed prior to being diagnosed with lung cancer. In a word, 'Amazing'. They cover so many bases it's difficult to put in a review. Support, information, and research funding top the list. LUNGevity has no peer from where I sit. Eternally grateful I learned of them when I did. They're a game changer for people such as myself.
I was diagnosed with lung cancer in 2000, 3 months after my mom died of lung cancer. It was before the internet boom and I felt so alone and scared. I was a single mom with 10 year old twin boys and no family around. Within about 6 months of my diagnosis, I started becoming familiar with the world wide web, but there was very little to nothing on lung cancer.
Then I found LUNGevity. I was no longer alone. I now have a community, a family. LUNGevity's site is comprehensive and the message board is a life saver to me.
The support from LUNGevity, has been a lifeline to me. Not only does one get emotional support, but we learn more about different protocols from each other than the doctors!
I think one of the most powerful events LUNGevity sponsors is the annual HOPE SUMMIT. There is so much emotion and support for one another. Words cannot describe what it is like to be able to be yourself, your "cancer self" for one whole weekend.
My biggest challenge has been dealing with the anxiety of leaving my sons without me. I am a single mom and my sons have no other relatives that could be in their lives if something should happen to me. Also, I was diagnosed with LC a few months after my mom passed from the same LC. My children were young and with me while I was taking care of her and we watched her waste away and die. A few months later I was diagnosed and the hardest thing was for me to tell my sons I had cancer too. They were 10 years old (I have twin boys) and I had to go to the hospital for a week, recuperate from surgery and then have chemo treatments, so I knew I would have to be honest and talk with them. It was so hard. I had no one to turn to who really understood. And then I found LUNGevity. The support from LUNGevity, has been a lifeline to me. Not only does one get emotional support, but we learn more about different protocols from each other than the doctors! Also, spends more dollars on research for a cure than other organizations. I think one of the most powerful events LUNGevity sponsors is the annual HOPE SUMMIT. There is so much emotion and support for one another. Words cannot describe what it is like to be able to be yourself, your "cancer self" for one whole weekend.
As a patient I registered for a survivorship conference organized by LUNGevity. Prior to arrival I had lost hope in my situation. After a two day conference I regained a sense of hope & companionship with other patient survivors as well as a greater grasp for looking forward to the future!
Top notch organization with the highest quality, dedicated employees. The services they provide those of us whose lives had been affected by lung cancer are beyond compare.
My first Hope Summit was in 2014. I left with such hope and inspiration and couldn't believe the amount of survivors I got to meet in person. Lungevity not only helps to connect other survivors to give hope and inspire us to keep fighting but they also are the number one non-profit that donates towards lung cancer research. Research is so critically needed for such an insatiable, deadly disease like this. I thank Lungevity staff for their deep dedication and all they do to raise awareness about lung cancer and help survivors live in the process.
So blessed I found this organization browsing through the Internet after my diagnosis. This organization is wonderful, they know exactly how we (lung cancer warriors) feel and understand because they too have been effected by lung cancer one way or another.
If you have lung cancer, get in touch with LUNGevity. If you research treatments for lung cancer, get in touch with LUNGevity. If you need HOPE, get in touch with LUNGevity.
When I was diagnosed in 2008 with stage III NSCLC, I was in shock. My vision of LC was most likely not too far off from others; a little old man with gray hair sitting alone in the dark of a bar smoking a cigarette. I had the gray hair but not the rest. Following surgery of the same year, I was told I had at most two years to live...
LUNGevity has been a life force in more ways than one can write in a review. Trust though that of all the advocacy and non profits I've had the pleasure to know throughout my almost 60 years, they have no peer. Without a doubt throughout this organization, they are wired tight to support, guide, inform, and advocate for people of every walk of life afflicted. Amazing doesn't begin to describe the level of commitment, knowledge, and capability they bring to life every day making all of our lives a little more HOPEtastic in the process. Nothing short of extraordinary!
LUNGevity continues to set the standard for cancer advocacy organizations. Their level of professionalism and commitment to provide resources and patient support is unparalleled. I have had the extreme pleasure to work with them for the past two years during my cancer journey and no other organization comes close to the level of empathy, understanding, plus overall care and encouragement they provide on a continual basis.
Simply put, Amazing group of individuals working together towards a common cause and ultimately creating incredible results.
My name is Don Stranathan I am a stage 4 lung cancer survivor and my girlfriend Penny Blume was a small cell lung cancer survivor, she passed in January of 2014. Lungevity was outstanding in helping Penny and I look for new treatments and second opinions. My last promise to Penny before she passed was to continue to advocate for more research and awareness for lung cancer. Lungevity has helped me keep that promise.
I have been involved with Lungevity for over a year now. They have been awesome in providing emotional support along with treatment options. I have non-small cell and my girlfriend Penny has small cell extensive. Katie Brown with Lungevity has been extremely helpful in putting us in touch with people that could help Penny in her fight. We both attended the Hope Summit in May in Arlington, VA. and make contact with other survivors and gained valuable information on how to fight this disease. I am also am a Lifeline Support Partner and have been able to offer one on one support to other survivors that I have been put in touch with through Lungevity
LUNGevity is a very powerful group of cancer warriors and their caregivers, who speak cancer and encourage each other, to see another sunrise. They devote every minute to lung cancer, which kills more people every year than the top four cancers combined. As a ten year stage four survivor, I am honored to be part of such a wonderful foundation.
Lungevity provides information,support , fellowship,and valuable connections to other lung cancer survivors and caregivers. As an 11 year survivor, I can't adequately describe the support and connections that i have received through Lungevity. Their staff tirelessly works to provide support and information and the organization funds meaningful research aimed at finding a cure for lung cancer.
I LOVE LUNGEVITY Foundation. I found this foundation last year while attempting to find some type of support group in my area. What I found was HOPE!!!!. They welcomed me in and I went to a regional hope summit. Through that I became part of the Alumni and found some neighboring members. We began a support group in my area for Lung Cancer Survivors. I went to the National Summit in DC. Met many survivors and gained more hope. LUNGEVITY gave me a life line partner. I met her while in DC at the Summit. Now I try to be a life line partner and it feels great to be able to help others. One of the greatest things I love about this foundation is the ongoing support I get from the members as well as Katie Brown. I don't feel or believe I have to go through this cancer journey alone. Great organization.
I found Lungevity and an incredible dedicated group of people almost four years ago. The offer me, a lung cancer survivor, stage 4 diagnoses, a inner circle of people like myself who offer kindness, understanding, prayers, wishes and place to meet up and share our crazy roller coaster lifestyle. Many of us live in three, six or twelve month intervals between our scans. We reach out and get inspired, we reach out and get hope. Thanks, Audrey
In 2012 I had the good fortune to meet with many helpmates in this incredible organization. The outreach of this group goes far beyond what one might expect. Comprised of dedicated people from all walks of life, coming together to advocate, support and uphold the lung cancer community at large is to be praised on all levels. I've yet to experience from any other such organization the outreach that LUNGevity provides to mention a few, medical navigation
, emotional support, opportunities to inspire and encourage, it's a place to be real.
I was diagnosed with non small cell Stage 4 lung cancer in April 2014. I had no one to talk to about my fears and questions. The Cancer Society gave me the number of Lungevity. These people are terrific. Within 2 days Katie had me in touch with someone who has the same type of cancer. I've finished one round of chemo and will start Round 2 shortly. Then that 1st mentor had a set-back and Katie got me another mentor as soon as I asked for one. There is such a stigma about lung cancer, almost as if we caused it. One breast cancer survivor even asked me how much I smoked to bring it on myself. I would be lost without the caring support of these people.
I was diagnosed with lung cancer in August of 2013. LUNGevity was one of the first online resources I found for getting information about this horrible disease. In May of 2014, I was able to attend the national HOPE Summit in Washington D.C. and connect with other fellow survivors. Since then, I have been working to spread the word about the #1 cancer killer and the stigma associated with it that contributes to the low funding of research projects. LUNGevity has a clear mission and awesome staff that go above and beyond to work with survivors, caregivers and advocates as we all work together to increase funding for essential research. I am proud to be a LUNGevity volunteer and a 14 month (and counting) survivor!
I was involved with Lungevity as a supporter of a local event 2 years ago. Little did I know I would be diagnosed with Lung Cancer and all the emotions and questions that come with it. Lungevity has been an essential tool for me and my family to help us navigate the confusion and questions of a disease that has few research dollars yet kills more people. The stigma of lung cancer for a person who never smoked is unreal. I was embarrassed to disclose my diagnosis. Lungevity has helped me deal with everything - and given me a voice to be an advocate and help others. They are an important lifeline.
I'm a four year lung cancer survivor currently facing a recurrence of my cancer. I was not really aware of LUNGevity until starting to fight this recurrence. I am most impressed with the quality of the people in the LUNGevity organization and specifically their commitment to improving the situations of survivors/patients like me. I have learned enough about the research funding focus of this organization to believe that its efforts will significantly help me and others facing this dreaded cancer--I also applaud LUNGevity's efforts to provide peer mentoring/support whenever and however needed.
In 2009, at 39 years old, I was diagnosed with stage 3B non small cell lung cancer. I underwent brutal treatments for 10 agonizing weeks. Because of the stigma and the small # of lung cancer survivors, I really had no one to talk to about what I was going through, except for my mom, who is also a lung cancer survivor. Without her (my rock) I don't know how I would've made it through. She was always there to support, encourage, and remind me that "tomorrow will be better". I was lucky... most don't have anyone to turn to who has been there, done that. I wanted to share and give to others who may not have been so lucky and were fighting "alone". When I found LUNGevity, I was truly amazed at what this organization is all about. It gave me a voice; a way to touch and be touched in a way that gives and spreads hope to others as well as myself. This organization is all about the survivors, their families and caregivers. It funds vital research and provides information, support, and hope to all who are in need. I have attended the LUNGevity Survivor's Hope Summit two years in row and both experiences were magical. From the moment I walked in, I felt welcomed, accepted, embraced, and loved. I have NEVER experienced anything like it in all my life. Just being with all of the survivors gives me a renewed feeling of strength, empowerment, and unconditional love. I have made friendships that will last a lifetime and have gained the knowledge and ability to touch others as I have been touched. In the days just before the 2013 Hope Summit, I was going through a lot of not so happy things. I remember thinking, "I survived cancer for this?!". I was crying the morning I got onto the plane, but the moment I connected with the first "brother and sister survivors", I was all smiles. I suddenly remembered what it was all about! LUNGevity has opened many doors for me to help not only myself but others who need what we all crave... Love, support, encouragement, and hope. Through LUNGevity, I have been accepted to review applications for funding for research through the Department of Defense, and have been directed to the patient navigation institute where I was awarded a full scholarship to train to be an oncology patient navigator, None of this would've been possible without the guidance that LUNGevity provides, There is NO better nonprofit organization out there!!!
I was diagnosed stage four in 2009. I came through some very harsh treatments and made it. I have been cancer free for almost four years. During the first part of treatment and beyond, it was frustrating to have no support in our little town. I went through all the usual emotional issues and felt alone. I bumped into Lungevity by accident in a magazine ad. I looked it up online and found a great resource for support. I made many online friends who knew what I was going through and gladly accepted me. I have been to two of the Hope Summit gatherings in Wash. DC. I have learned so much from this wonderful group and feel like part of a big national family and beyond. I am aware of their tremendous fundraising efforts and all they do to help research. They work so hard and they know so many of us on a personal level too. They have made a huge impact during my recovery and continue on our behalf as patients, caregivers, survivors and families.
Lungevity extends a warm welcome to everyone who is touched in some way by lung cancer.It is an organisation that is determined to fight the scourge of lung cancer on many different levels,investing $millions supporting lung cancer projects right down to supporting individual survivors,families and carers.Their interests extend beyond North America,reaching out worldwide,even to such places as Bonnie Scotland,which is where I live,almost five years ago,I was diagnosed with lung cancer,it was through searching the internet for some information on lung cancer,I discovered LUNGevity, reading through their website engaged me enough to want to become a member.I was accepted into a new family friends who are made up of survivors,carers and family members.It has been my priviledge to visit the USA on two occassions and meet with,many LUNGevity members and staff I had only contact with prior online.It is my intention to make future visits to the USA,to maintain and strengthen my links with LUNGevity.
I was dxd with lung cancer in Oct 2008,a death sentence I believed,my mind was in turmoil,thought of losing my wife and daughter forever was just so difficult to bear.Family and friends helped me tremendously from the start and through my chemo and surgery.On the successful course of treatments,I still was in need of the emotional support that my family and friends provided previous,but my cancer situation was wearing a bit thin on their patience with me,as one of my friends put it "Eric you have had all your treatments,the cancer is now gone for good,now forget it and get on with your life".My cancer issues were upsetting them,and I couldnt really blame them for wanting the subject dropped. Surfing the net one day,looking for some good news stories regarding lung cancer,I stumbled onto a site called LUNGevity,I had found something very special,a new family of friends just waiting for me to join them to share friendship,their knowledge and experiences with lung cancer,to make me realise I would never be alone again having to deal with my problems with lung cancer.I can testify that LUNGevity has been and is my saving grace.
Review from Guidestar
I participate in a Breathe Deep 5k in memory of my dad and aunt. Its always really great and they really care about the people that come.
A first class organizatin. Great staff, great resources, and there for you whenever you need them. Thanks for everything you do LUNGevity!
I went to the dfw walk and it was really well put together and there were like 25 survivors and it was so moving to my family. They really care about what they are doing.
The event every year is something my whole family looks forward to. LUNGevity gives them a way to honor our loved one and raise funds for research at the same time. Thank you LUNGevity. We are working to CURE LUNG CANCER!
I live in a small community where there are not a lot of resources. Lungevity has been invaluable both in support and understanding, as well as up-to-date information on the latest treatments and research. I would simply be lost without them.
The support You can find here and the caring warm experience of being welcomed into this community of others who understand is simply amazing. I can't describe how it's changed my life and the life of so many others.
Lungevity is an amazing organization. The support that they offer survivors and caregivers far surpasses ANY organization out there. When I was diagnosed seven years ago, they were the only organization out there offering hope. They raise money for the much needed and underfunded research.
I met LUNGevity when I was first diagnosed with lung cancer. I was diagnosed at 24 years old so I felt pretty alone, but LUNGevity changed that. I was instantly connected with people who knew exactly what I was going through, and it was wonderful to not feel alone anymore! Not only are the staff personable, respectful, and caring, but they all have been impacted by lung cancer in some way. Every single person affiliated with LUNGevity knows how hurtful lung cancer is, and we all want to stop it. LUNGevity Foundation is the best charity I have ever come across, because they are dedicated to not only finding a cure for this disease but also to emotionally help those impacted whether patient, family member, or friend. I would not be where I am without LUNGevity.
This is the hardest working charity I have found. For such a small group of people, they conduct dozens of walks and charitable benefits across the country in a single year. Their community outreach is so extensive. Their website and staff both help those affected with lung cancer and also for those who know someone affected by lung cancer. You can talk to someone who truly understands and that can help the body, as well as, the soul.