I love this organization more than I have words to describe. I'm often telling LUNGevity that I am in their "fan club!"
My mother (i.e., my best friend!) was diagnosed with Stage IV lung cancer in March 2015. We were terrified, overwhelmed, in denial...all of it. I will never forget the darkness of the days between the diagnosis and the start of the treatment plan.
In those dark days, I went searching for...something. We didn't even know what we needed; not really. Mom said she desperately needed hope. I said I needed a way to contribute to the fight. I felt so disenfranchised knowing that there was nothing I could do to change how my mom's treatment was going to work, but I wanted to feel like I was fighting, too.
I literally stumbled into LUNGevity's open arms. I remember the first email I ever sent to the Survivorship and Support team: I didn't know what I could do, but I needed to do something. They responded immediately: with opportunities to join in the policy conversation around lung cancer; with opportunities to raise funds for research; with places where my mom and I could find peer-to-peer support; with opportunities to help disseminate accurate lung cancer information; the list goes on. Truly, the sky was the limit. The ability to call myself an advocate and to tailor my advocacy to my skill set was revelatory, and changed my family's whole approach to the diagnosis. We went from vulnerable to connected and empowered.
Today, as a volunteer linked to several of LUNGevity's programs, I can confidently say that they are the thought leaders in cancer advocacy. They work tirelessly to find new ways for survivors and caregivers to have support. They are personal and professional ambassadors to the medical world. They work at the highest level of government and academia to influence public policy in favor of cancer patients. They bend over backwards to fund the research projects that will become tomorrow's advanced treatments.
It cannot be said enough: LUNGevity is changing the world on behalf of cancer patients, true to their motto and mission statement.
And I, for one, will never be able to thank them enough for undergirding my family's determination.
I was diagnosed with lung cancer in late 2016. I didn't know anything about this kind of cancer and the Lungevity website was a source of reliable, up to date information. I looked for a lung cancer support group in my city but there was none so I started participating in the Lungevity Forums on line. I'm now a volunteer moderator there, so I can pass on the support and hope I've experienced.. I've gone to two Hope Summits, national conferences put on by Lungevity annually, where I found not only more information, support and hope, but got to meet some of the great folks, both staff and survivors, who I'd been in contact with on the Forums. All in all, Lungevity has been my greatest and most reliable source of information, support and hope since my diagnosis. I'm really grateful!
I learned of the LUNGevity Foundation when my mom was diagnosed with her 1st lung cancer recurrence. Her first round was simple and my nativity about lung cancer didn't prepare me for this upcoming challenge. I was crushed, my mom was crushed. I was looking for hope on the internet at all hours of the day and night. I was desperate to find 1 positive thing about my mom's possibility of survival. That's when I found LUNGevity's website and discussion forums. I had finally found my hope. It was through the helpful information on their website that I had resources available to teach my about my mom's lung cancer and recommended treatment. I was given tools to help me ask the right questions and the support to keep moving forward from the fellow advocates and survivors on the discussion forums. I gained so much from the forums that I began to give back. I shared my experience as my mom's caregiver, as well as, offered hope to those who were in desperate need of it, just as I once was. I am so very thankful for the services and information offered by the LUNGevity Foundation.
The world of nonprofits devolves into 2 hemispheres, both wanting money. Those that care and those that don't. How does one identify the caring? I look for the little people-centered things. Lung cancer is horrifyingly frightening, especially for the newly diagnosed. A free lung cancer helpline staffed with a knowledgable and caring person is a little thing of enormous benefit. An online, available-to-the-world, presence were patients and their caregivers can ask tough questions and get thoughtful answers, almost in real time, is a little thing of enormous benefit. Offering a tenured lung cancer survivor to mentor, guide and assist someone struggling with lung cancer is a little thing of enormous benefit. These little but vastly important things focused at the individual lung cancer survivor or caregiver are evidence of the Lungevity Foundation's nonprofit excellence.
Lungevity gave me my mental stability and life back. They truly care about us as a person, not just a diagnosis. They go above and beyond in helping every person that contacts them - patients, caregivers and medical professionals. I have been a client and help spread awareness about them. Every Lung Cancer patient should be made aware of Lungevity!
When I was diagnosed with lung cancer in 2015 I was terrified, I had never known anyone who had lung cancer, the only thing I had ever heard about it was that it was a cancer found in old men who had smoked for years. I did not fit any of those criteria. I was a healthy, active, non-smoking female in my early 60's. I was confused by all the medical jargon, I didn't even know the right questions to ask so I went to Google and fortunately as I waded through all the misinformation and terrifying statistics online I came upon the name Lungevity and if for no other reason than I thought the name was a cute play on words I clicked on it and I am so thankful I did. I found tons of updated information as well as many others who were just like me who made me feel welcome and supported. Lungevity works extremely hard to bring awareness and raise funds for research of lung cancer. I was immediately a fan and signed up to become a social media ambassador for them. I am forever grateful for this amazing organization.
Lungevity is everything they say and more. When you want to find facts, they have them. If you, or your care-giver (or co-survivor as they have been calling them. Much more accurate term in my opinion) need someone to talk to, they they will match you with someone who has been through similar situations. And if you want to volunteer, they have many things for you to do so that no matter what you are capable of, you can feel useful and appreciated. Every member of that group is like a super pleasant ambassador into the one side of your lung cancer journey that doesn't cause emotional or physical pain. The support is unending and full of true friendship from volunteers and paid staff alike.
I am so blessed to have found them 5 years ago.
This is just an amazing group! No matter how you want your support, you can find it here. There is a message board so you can post questions or just what you are worried about to get written support. If you just need to type it out to get a rant out, do it here and half a dozen people will give you virtual hugs and pats on the back. If you are wondering what post-op will be like, people will share their stories.
If you prefer to have some one on one support they will find you someone to email or phone who understands what you are going thru because they have been thru it too. They try to match you as close as possible for diagnosis and anything else you prefer... if you want to make sure that you are matched with someone your gender, age group, family situation... ask away and if they know of someone that fits the bill, you will have a new friend.
Then there is the annual Hope Summit in DC! Informative speakers, yummy meals and more and more survivors every year!! I can hardly wait til May for the next one!!
There is no better place for lung cancer support!
I thank God that I found them and only wish I had found them sooner!!
Lungevity is THE reliable source to educate & raise awareness to REDIFINE the myths of lung cancer! THANK YOU, Lungevity, for allowing loved ones fighting this horrible disease to LIVE & FIGHT with DIGNITY!
Lungevity helped me cope with my husbands lung cancer journey. They were there to support me when I was at the lowest point in my life. I can never express my heartfelt gratitude to them.
I am a fourteen year Lung Cancer survivor. LUNGevity has played a huge part in my success. Their programs and information are invaluable. The professional service and staff go out of their way to support and encourage. If you are a lung cancer warrior or caregiver, contact LUNGevity now, get support and begin your journey.
LUNGevity has awesome information and resources for people with Lung cancer and for caregivers. They provide up to date information regarding lung cancer. The Hope Summit was one of the greatest experiences I had since my diagnosis.
This organization gives hope and valuable resources to those fighting lung cancer. The Hope and friendships and help given to my son were phenomenal! I will be forever grateful!
Lungevity Foundation is such a wonderful resource for those of us diagnosed with lung cancer. Not only does it help in navigating all the information one seeks at the time of a diagnosis, but it also provides LifeLine. This is a mentoring program which puts you in touch with someone who totally understands! In addition, if you attend any Lungevity functions such as Breathe Deep or especially the Hope Summits, the instant connection with other sister and brother survivors is unexplainable.
LUNGevity is a nonprofit focused on a very deserving but underserved (some would say ignored) population of cancer patients -- those with lung cancer.
LUNGevity does two things well that distinguish it from other non-profits. First it supports and sustains lung cancer survivors and those who care for them. It sponsors a very effective online forum that brings survivors and caregivers together to foster hope, share treatment experiences, and spread side-effect mitigation ideas. Second it funds research to advance the science and therefore the development of effective curative treatments.
I first learned of the Lungevity foundation about 4 years ago which was 8 years after my diagnosis. I had explored other organizations, but I knew I found the right one when a friend suggested I check out Lungevity. This organization is truly patient/survivor centered, offering us emotional, psychological and educational support and information. Most importantly, Lungevity offers us hope by keeping us updated on all recent developments regarding treatments. I have been living with lung cancer for 12 years now and I credit Lungevity for helping supply vital information for e to share with my care team.
This is by far the most knowledgeable, helpful, supportive and educational Lung Cancer organization out there. LUNGevity is staffed by people who are 150% invested in doing their absolute best to serve the needs of Lung Cancer patients and caregivers. Their Regional and National HOPE Summits are well organized and feature specialists in all aspects of this disease. They have our backs and work hard to keep us up to speed on the latest advances as well as provide opportunities for us to reach out to others. Thank you LUNGevity for all you do. - Melissa Crouse - Living with lung cancer for 10 years (stage 4 now)
I was in Hospice care when I found Lungevity. That was early in 2017. I was already improving and I was on oxygen. I so wanted to attend the National Hope Summit as a Bucket List item. I was able to get financial assistance with my hotel costs by Lungevity. My daughter and I flew into Washington D.C. and spent the weekend with some of the most amazing people that I have ever met. I got some new information that was a game-changer for me. I felt so much love and hope from the other survivors. After we returned home, I kicked Hospice to the curb after 10 months. I am about to start a new targeted pill for my genetic mutation. Lungevity has literally saved my life!!!
I found lungevity in 2010, several months after my lung cancer diagnosis. Their website gave me the information I was looking for and in 2012 I attended my first survivors Hope Summit which completely changed my life. Where I felt ignorant I gained knowledge. Where I once felt helpless, I found empowerment. When I felt alone, lungevity connected me to strangers who became family. Lungevity gave me the tools to help others by being a lung cancer advocate. After my mom's death from one cancer in 2016 I brought my father to the Hope Summit. I had hoped it would have the same impact on him as it did on my mom and I. After only half of the weekend I saw a side of my father I never knew existed. Lungevity has taught my father how to live as a caregiver with no one to care for. He also has lungevity family and a new purpose no. We are only three lives that lungevity has changed for the better but there are so many more lives... families who benefit everyday because lungevity exists.
When I was first diagnosed with lung cancer--a never smoker--I was in shock and overwhelmed. LUNGevity was the first to reach out and give me support and resources. Super engaged, super active and proactive, and on top of the latest in research and treatments. Five years later, I am still going strong--and still think the world of LUNGevity and its wonderful, caring staff!
Amazing support! Informative and uplifting. I start everyday by checking in to see how my fellow survivors and fighters are and end every day with a prayer for us all!!! LUNGevity is one of the few non profit who actually use your money for research which is another thing I love
I was introduced to LUNGevity 2 years post my diagnosis. I had no idea such organizations existed prior to being diagnosed with lung cancer. In a word, 'Amazing'. They cover so many bases it's difficult to put in a review. Support, information, and research funding top the list. LUNGevity has no peer from where I sit. Eternally grateful I learned of them when I did. They're a game changer for people such as myself.