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Lungevity Foundation

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Nonprofit Overview

Mission: LUNGevity Foundation is firmly committed to making an immediate impact on increasing quality of life and survivorship of people with lung cancer by accelerating research into early detection and more effective treatments, as well as providing community, support, and education for all those affected by the disease.

Results: Since 2002, LUNGevity has funded 115 scientific research projects at 58 institutions in 23 states. Whether we are supporting early-career scientists or established researchers, we work with top lung cancer experts to identify and fund promising and innovative research into the early detection and targeted treatment of lung cancer.

Target demographics: anyone impacted by lung cancer

Direct beneficiaries per year: people impacted by lung cancer

Geographic areas served: lung cancer research, education, information, survivorship, support, events

Programs: Research funding, education thru our comprehensive website, lung cancer 101, webinars and expert videos, Lung Cancer Support Community Message Boards, LifeLine Support Program, , online Survivor Resource Center and Caregiver Resource Center, Voices of Hope Videos, National and Regional Hope Summit survivorship conferences and a national grassroots events program.

Community Stories

95 Stories from Volunteers, Donors & Supporters

Tom G.1

General Member of the Public

Rating: 5

LUNGevity does three vital things for lung cancer patients and their families: drives science by funding research, empowers patients by providing insight and assistance through online and telephone support, and improves outcomes by broadcasting knowledge about new treatments and methods.

Previous Stories

General Member of the Public

Rating: 5

LUNGevity is a nonprofit focused on a very deserving but underserved (some would say ignored) population of cancer patients -- those with lung cancer.
LUNGevity does two things well that distinguish it from other non-profits. First it supports and sustains lung cancer survivors and those who care for them. It sponsors a very effective online forum that brings survivors and caregivers together to foster hope, share treatment experiences, and spread side-effect mitigation ideas. Second it funds research to advance the science and therefore the development of effective curative treatments.

Volunteer

Rating: 5

Lungevity helps the Richmond area host a Breathe Deep event every year. I am proud to be a part of promoting this event. The help and support I get from Lungevity is simply amazing. The event would not happen if not for them.

I found Lungevity attending the National HOPE Summit for the past five years. I rely on the foundation for information and support.

Melissa277

Advisor

Rating: 5

I went to my first Hope Summit in 2014 and haven’t missed one since. There’s no way to describe the feeling of being among so many others who are experiencing the same thing. This Summit just keeps getting bigger and better (if that’s possible) every year and there’s many of us who attend every year. It has become a family reunion for many of us. It’s such an educational and uplifting experience and everyone affected by lung cancer owes it to themselves to attend. Becoming involved with LUNGevity has opened many advocacy opportunities for me for which I’m very grateful. I want to help educate and spread awareness for this number one cancer killer and I have had and continue to have the chance to do so because of LUNGevity.

Previous Stories

General Member of the Public

Rating: 5

I first learned of the Lungevity foundation about 4 years ago which was 8 years after my diagnosis. I had explored other organizations, but I knew I found the right one when a friend suggested I check out Lungevity. This organization is truly patient/survivor centered, offering us emotional, psychological and educational support and information. Most importantly, Lungevity offers us hope by keeping us updated on all recent developments regarding treatments. I have been living with lung cancer for 12 years now and I credit Lungevity for helping supply vital information for e to share with my care team.

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Samantha M.8

Client Served

Rating: 5

I love how they encourage audience participation and each year try to better our experience. Also, allowing us to raise funds and taking care of travel arrangements for us is super helpful!

Michel I.

General Member of the Public

Rating: 5

I first met the team at the International Lung Cancer survivorship conference in April 2019.
I flew in from Australia, the team were amazing, from when i originally enquired about this conference right through to recieing a travel award and arriving to DC. They guided me around the conference, took the time out to i troduce me to the Survivorship community. Absolutely felt so well looked after.

Client Served

Rating: 5

Lungevity Foundation not only gives much needed information to people with lung cancer, it also puts you in contact with others like yourself, especially at that moment when you feel most alone.

The money that Lungevity Foundation raises goes to the research needed so desperately to find news ways to extend the lives of lung cancer patients,. It's doing that.....so many new therapies have been discovered; however many more are needed.

Previous Stories

Client Served

Rating: 5

Lungevity Foundation is such a wonderful resource for those of us diagnosed with lung cancer. Not only does it help in navigating all the information one seeks at the time of a diagnosis, but it also provides LifeLine. This is a mentoring program which puts you in touch with someone who totally understands! In addition, if you attend any Lungevity functions such as Breathe Deep or especially the Hope Summits, the instant connection with other sister and brother survivors is unexplainable.

Client Served

Rating: 5

The lungevity foundation has been a great resource for me as a lung cancer patient. This organization hosts a hope summit for all lung cancer survivors to attend so we can connect and share our stories. This organization has also helped provide funding to much needed research in the lung cancer field that has allowed me to live a longer life. I was diagnosed when I was 30 years old and I’m currently 32. With the help of lungevity I hope to extend my life just a little longer.

Volunteer

Rating: 5

I love this organization more than I have words to describe. I'm often telling LUNGevity that I am in their "fan club!"
My mother (i.e., my best friend!) was diagnosed with Stage IV lung cancer in March 2015. We were terrified, overwhelmed, in denial...all of it. I will never forget the darkness of the days between the diagnosis and the start of the treatment plan.
In those dark days, I went searching for...something. We didn't even know what we needed; not really. Mom said she desperately needed hope. I said I needed a way to contribute to the fight. I felt so disenfranchised knowing that there was nothing I could do to change how my mom's treatment was going to work, but I wanted to feel like I was fighting, too.
I literally stumbled into LUNGevity's open arms. I remember the first email I ever sent to the Survivorship and Support team: I didn't know what I could do, but I needed to do something. They responded immediately: with opportunities to join in the policy conversation around lung cancer; with opportunities to raise funds for research; with places where my mom and I could find peer-to-peer support; with opportunities to help disseminate accurate lung cancer information; the list goes on. Truly, the sky was the limit. The ability to call myself an advocate and to tailor my advocacy to my skill set was revelatory, and changed my family's whole approach to the diagnosis. We went from vulnerable to connected and empowered.
Today, as a volunteer linked to several of LUNGevity's programs, I can confidently say that they are the thought leaders in cancer advocacy. They work tirelessly to find new ways for survivors and caregivers to have support. They are personal and professional ambassadors to the medical world. They work at the highest level of government and academia to influence public policy in favor of cancer patients. They bend over backwards to fund the research projects that will become tomorrow's advanced treatments.
It cannot be said enough: LUNGevity is changing the world on behalf of cancer patients, true to their motto and mission statement.
And I, for one, will never be able to thank them enough for undergirding my family's determination.
Danielle Pardue

1

Client Served

Rating: 5

I was diagnosed with lung cancer in late 2016. I didn't know anything about this kind of cancer and the Lungevity website was a source of reliable, up to date information. I looked for a lung cancer support group in my city but there was none so I started participating in the Lungevity Forums on line. I'm now a volunteer moderator there, so I can pass on the support and hope I've experienced.. I've gone to two Hope Summits, national conferences put on by Lungevity annually, where I found not only more information, support and hope, but got to meet some of the great folks, both staff and survivors, who I'd been in contact with on the Forums. All in all, Lungevity has been my greatest and most reliable source of information, support and hope since my diagnosis. I'm really grateful!

1

Client Served

Rating: 5

I learned of the LUNGevity Foundation when my mom was diagnosed with her 1st lung cancer recurrence. Her first round was simple and my nativity about lung cancer didn't prepare me for this upcoming challenge. I was crushed, my mom was crushed. I was looking for hope on the internet at all hours of the day and night. I was desperate to find 1 positive thing about my mom's possibility of survival. That's when I found LUNGevity's website and discussion forums. I had finally found my hope. It was through the helpful information on their website that I had resources available to teach my about my mom's lung cancer and recommended treatment. I was given tools to help me ask the right questions and the support to keep moving forward from the fellow advocates and survivors on the discussion forums. I gained so much from the forums that I began to give back. I shared my experience as my mom's caregiver, as well as, offered hope to those who were in desperate need of it, just as I once was. I am so very thankful for the services and information offered by the LUNGevity Foundation.

1

Client Served

Rating: 5

The world of nonprofits devolves into 2 hemispheres, both wanting money. Those that care and those that don't. How does one identify the caring? I look for the little people-centered things. Lung cancer is horrifyingly frightening, especially for the newly diagnosed. A free lung cancer helpline staffed with a knowledgable and caring person is a little thing of enormous benefit. An online, available-to-the-world, presence were patients and their caregivers can ask tough questions and get thoughtful answers, almost in real time, is a little thing of enormous benefit. Offering a tenured lung cancer survivor to mentor, guide and assist someone struggling with lung cancer is a little thing of enormous benefit. These little but vastly important things focused at the individual lung cancer survivor or caregiver are evidence of the Lungevity Foundation's nonprofit excellence.

1 Jennifer Miceli T.

Client Served

Rating: 5

Lungevity gave me my mental stability and life back. They truly care about us as a person, not just a diagnosis. They go above and beyond in helping every person that contacts them - patients, caregivers and medical professionals. I have been a client and help spread awareness about them. Every Lung Cancer patient should be made aware of Lungevity!

1 cheryncp

Volunteer

Rating: 5

When I was diagnosed with lung cancer in 2015 I was terrified, I had never known anyone who had lung cancer, the only thing I had ever heard about it was that it was a cancer found in old men who had smoked for years. I did not fit any of those criteria. I was a healthy, active, non-smoking female in my early 60's. I was confused by all the medical jargon, I didn't even know the right questions to ask so I went to Google and fortunately as I waded through all the misinformation and terrifying statistics online I came upon the name Lungevity and if for no other reason than I thought the name was a cute play on words I clicked on it and I am so thankful I did. I found tons of updated information as well as many others who were just like me who made me feel welcome and supported. Lungevity works extremely hard to bring awareness and raise funds for research of lung cancer. I was immediately a fan and signed up to become a social media ambassador for them. I am forever grateful for this amazing organization.

Mary316

Volunteer

Rating: 5

Lungevity is everything they say and more. When you want to find facts, they have them. If you, or your care-giver (or co-survivor as they have been calling them. Much more accurate term in my opinion) need someone to talk to, they they will match you with someone who has been through similar situations. And if you want to volunteer, they have many things for you to do so that no matter what you are capable of, you can feel useful and appreciated. Every member of that group is like a super pleasant ambassador into the one side of your lung cancer journey that doesn't cause emotional or physical pain. The support is unending and full of true friendship from volunteers and paid staff alike.

I am so blessed to have found them 5 years ago.

Previous Stories
1

Client Served

Rating: 5

This is just an amazing group! No matter how you want your support, you can find it here. There is a message board so you can post questions or just what you are worried about to get written support. If you just need to type it out to get a rant out, do it here and half a dozen people will give you virtual hugs and pats on the back. If you are wondering what post-op will be like, people will share their stories.
If you prefer to have some one on one support they will find you someone to email or phone who understands what you are going thru because they have been thru it too. They try to match you as close as possible for diagnosis and anything else you prefer... if you want to make sure that you are matched with someone your gender, age group, family situation... ask away and if they know of someone that fits the bill, you will have a new friend.
Then there is the annual Hope Summit in DC! Informative speakers, yummy meals and more and more survivors every year!! I can hardly wait til May for the next one!!
There is no better place for lung cancer support!
I thank God that I found them and only wish I had found them sooner!!

General Member of the Public

Rating: 5

Lungevity is THE reliable source to educate & raise awareness to REDIFINE the myths of lung cancer! THANK YOU, Lungevity, for allowing loved ones fighting this horrible disease to LIVE & FIGHT with DIGNITY!

Mish M.

General Member of the Public

Rating: 5

Lungevity helped me cope with my husbands lung cancer journey. They were there to support me when I was at the lowest point in my life. I can never express my heartfelt gratitude to them.

Volunteer

Rating: 5

I am a fourteen year Lung Cancer survivor. LUNGevity has played a huge part in my success. Their programs and information are invaluable. The professional service and staff go out of their way to support and encourage. If you are a lung cancer warrior or caregiver, contact LUNGevity now, get support and begin your journey.

Stephanie L.1

Client Served

Rating: 5

LUNGevity has awesome information and resources for people with Lung cancer and for caregivers. They provide up to date information regarding lung cancer. The Hope Summit was one of the greatest experiences I had since my diagnosis.

Faith Fennimore M.

Client Served

Rating: 5

This organization gives hope and valuable resources to those fighting lung cancer. The Hope and friendships and help given to my son were phenomenal! I will be forever grateful!

1 Denise E M.

Client Served

Rating: 5

I was in Hospice care when I found Lungevity. That was early in 2017. I was already improving and I was on oxygen. I so wanted to attend the National Hope Summit as a Bucket List item. I was able to get financial assistance with my hotel costs by Lungevity. My daughter and I flew into Washington D.C. and spent the weekend with some of the most amazing people that I have ever met. I got some new information that was a game-changer for me. I felt so much love and hope from the other survivors. After we returned home, I kicked Hospice to the curb after 10 months. I am about to start a new targeted pill for my genetic mutation. Lungevity has literally saved my life!!!

Client Served

Rating: 5

I found lungevity in 2010, several months after my lung cancer diagnosis. Their website gave me the information I was looking for and in 2012 I attended my first survivors Hope Summit which completely changed my life. Where I felt ignorant I gained knowledge. Where I once felt helpless, I found empowerment. When I felt alone, lungevity connected me to strangers who became family. Lungevity gave me the tools to help others by being a lung cancer advocate. After my mom's death from one cancer in 2016 I brought my father to the Hope Summit. I had hoped it would have the same impact on him as it did on my mom and I. After only half of the weekend I saw a side of my father I never knew existed. Lungevity has taught my father how to live as a caregiver with no one to care for. He also has lungevity family and a new purpose no. We are only three lives that lungevity has changed for the better but there are so many more lives... families who benefit everyday because lungevity exists.

Greta K.

Client Served

Rating: 5

When I was first diagnosed with lung cancer--a never smoker--I was in shock and overwhelmed. LUNGevity was the first to reach out and give me support and resources. Super engaged, super active and proactive, and on top of the latest in research and treatments. Five years later, I am still going strong--and still think the world of LUNGevity and its wonderful, caring staff!

1 Melissa283

Client Served

Rating: 5

Amazing support! Informative and uplifting. I start everyday by checking in to see how my fellow survivors and fighters are and end every day with a prayer for us all!!! LUNGevity is one of the few non profit who actually use your money for research which is another thing I love

1 Randall B.

General Member of the Public

Rating: 5

I was introduced to LUNGevity 2 years post my diagnosis. I had no idea such organizations existed prior to being diagnosed with lung cancer. In a word, 'Amazing'. They cover so many bases it's difficult to put in a review. Support, information, and research funding top the list. LUNGevity has no peer from where I sit. Eternally grateful I learned of them when I did. They're a game changer for people such as myself.

1 alisa.brenes

Client Served

Rating: 5

I was diagnosed with lung cancer in 2000, 3 months after my mom died of lung cancer. It was before the internet boom and I felt so alone and scared. I was a single mom with 10 year old twin boys and no family around. Within about 6 months of my diagnosis, I started becoming familiar with the world wide web, but there was very little to nothing on lung cancer.

Then I found LUNGevity. I was no longer alone. I now have a community, a family. LUNGevity's site is comprehensive and the message board is a life saver to me.

The support from LUNGevity, has been a lifeline to me. Not only does one get emotional support, but we learn more about different protocols from each other than the doctors!

I think one of the most powerful events LUNGevity sponsors is the annual HOPE SUMMIT. There is so much emotion and support for one another. Words cannot describe what it is like to be able to be yourself, your "cancer self" for one whole weekend.

Previous Stories

Client Served

Rating: 5

My biggest challenge has been dealing with the anxiety of leaving my sons without me. I am a single mom and my sons have no other relatives that could be in their lives if something should happen to me. Also, I was diagnosed with LC a few months after my mom passed from the same LC. My children were young and with me while I was taking care of her and we watched her waste away and die. A few months later I was diagnosed and the hardest thing was for me to tell my sons I had cancer too. They were 10 years old (I have twin boys) and I had to go to the hospital for a week, recuperate from surgery and then have chemo treatments, so I knew I would have to be honest and talk with them. It was so hard. I had no one to turn to who really understood. And then I found LUNGevity. The support from LUNGevity, has been a lifeline to me. Not only does one get emotional support, but we learn more about different protocols from each other than the doctors! Also, spends more dollars on research for a cure than other organizations. I think one of the most powerful events LUNGevity sponsors is the annual HOPE SUMMIT. There is so much emotion and support for one another. Words cannot describe what it is like to be able to be yourself, your "cancer self" for one whole weekend.

1

Client Served

Rating: 5

As a patient I registered for a survivorship conference organized by LUNGevity. Prior to arrival I had lost hope in my situation. After a two day conference I regained a sense of hope & companionship with other patient survivors as well as a greater grasp for looking forward to the future!

1

Client Served

Rating: 5

Top notch organization with the highest quality, dedicated employees. The services they provide those of us whose lives had been affected by lung cancer are beyond compare.

3 Lysa B.

Client Served

Rating: 5

My first Hope Summit was in 2014. I left with such hope and inspiration and couldn't believe the amount of survivors I got to meet in person. Lungevity not only helps to connect other survivors to give hope and inspire us to keep fighting but they also are the number one non-profit that donates towards lung cancer research. Research is so critically needed for such an insatiable, deadly disease like this. I thank Lungevity staff for their deep dedication and all they do to raise awareness about lung cancer and help survivors live in the process.

1 Juanita5

General Member of the Public

Rating: 5

So blessed I found this organization browsing through the Internet after my diagnosis. This organization is wonderful, they know exactly how we (lung cancer warriors) feel and understand because they too have been effected by lung cancer one way or another.

1

Client Served

Rating: 5

If you have lung cancer, get in touch with LUNGevity. If you research treatments for lung cancer, get in touch with LUNGevity. If you need HOPE, get in touch with LUNGevity.

4

Volunteer

Rating: 5

When I was diagnosed in 2008 with stage III NSCLC, I was in shock. My vision of LC was most likely not too far off from others; a little old man with gray hair sitting alone in the dark of a bar smoking a cigarette. I had the gray hair but not the rest. Following surgery of the same year, I was told I had at most two years to live...
LUNGevity has been a life force in more ways than one can write in a review. Trust though that of all the advocacy and non profits I've had the pleasure to know throughout my almost 60 years, they have no peer. Without a doubt throughout this organization, they are wired tight to support, guide, inform, and advocate for people of every walk of life afflicted. Amazing doesn't begin to describe the level of commitment, knowledge, and capability they bring to life every day making all of our lives a little more HOPEtastic in the process. Nothing short of extraordinary!

Previous Stories
1

Volunteer

Rating: 5

LUNGevity continues to set the standard for cancer advocacy organizations. Their level of professionalism and commitment to provide resources and patient support is unparalleled. I have had the extreme pleasure to work with them for the past two years during my cancer journey and no other organization comes close to the level of empathy, understanding, plus overall care and encouragement they provide on a continual basis.

Simply put, Amazing group of individuals working together towards a common cause and ultimately creating incredible results.

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4 Don_18

Volunteer

Rating: 5

My name is Don Stranathan I am a stage 4 lung cancer survivor and my girlfriend Penny Blume was a small cell lung cancer survivor, she passed in January of 2014. Lungevity was outstanding in helping Penny and I look for new treatments and second opinions. My last promise to Penny before she passed was to continue to advocate for more research and awareness for lung cancer. Lungevity has helped me keep that promise.

Previous Stories

Client Served

Rating: 5

I have been involved with Lungevity for over a year now. They have been awesome in providing emotional support along with treatment options. I have non-small cell and my girlfriend Penny has small cell extensive. Katie Brown with Lungevity has been extremely helpful in putting us in touch with people that could help Penny in her fight. We both attended the Hope Summit in May in Arlington, VA. and make contact with other survivors and gained valuable information on how to fight this disease. I am also am a Lifeline Support Partner and have been able to offer one on one support to other survivors that I have been put in touch with through Lungevity

2

General Member of the Public

Rating: 5

LUNGevity is a very powerful group of cancer warriors and their caregivers, who speak cancer and encourage each other, to see another sunrise. They devote every minute to lung cancer, which kills more people every year than the top four cancers combined. As a ten year stage four survivor, I am honored to be part of such a wonderful foundation.

1

Client Served

Rating: 5

Lungevity provides information,support , fellowship,and valuable connections to other lung cancer survivors and caregivers. As an 11 year survivor, I can't adequately describe the support and connections that i have received through Lungevity. Their staff tirelessly works to provide support and information and the organization funds meaningful research aimed at finding a cure for lung cancer.

1

Client Served

Rating: 5

I LOVE LUNGEVITY Foundation. I found this foundation last year while attempting to find some type of support group in my area. What I found was HOPE!!!!. They welcomed me in and I went to a regional hope summit. Through that I became part of the Alumni and found some neighboring members. We began a support group in my area for Lung Cancer Survivors. I went to the National Summit in DC. Met many survivors and gained more hope. LUNGEVITY gave me a life line partner. I met her while in DC at the Summit. Now I try to be a life line partner and it feels great to be able to help others. One of the greatest things I love about this foundation is the ongoing support I get from the members as well as Katie Brown. I don't feel or believe I have to go through this cancer journey alone. Great organization.